Palliative care in Africa since 2005: good progress, but much further to go.

abstract：CONTEXT:Patients living with cystic fibrosis (CF) report impaired quality of life. Little is known about unmet supportive care needs among adults living with CF and how they are associated with demographic characteristics. OBJECTIVES:The primary objective of this study was to identify associations between demographic ...

journal_title：BMJ supportive & palliative care

authors： Obregon LL,Jeong K,Hoydich ZP,Yabes J,Pilewski J,Richless C,Moreines LT,Dellon EP,Goss CH,Arnold RM,Kavalieratos D

更新日期：2019-08-31 00:00:00

abstract：OBJECTIVES:Dyspnoea in patients with chronic obstructive pulmonary disease (COPD) is frequent and often persists despite conventional treatment. This study aimed to evaluate the efficacy and safety of oral morphine for dyspnoea in Japanese COPD patients. METHODS:We conducted a multi-institutional, prospective, before-...

journal_title：BMJ supportive & palliative care

authors： Matsuda Y,Morita T,Matsumoto H,Hosoi K,Kusama K,Kohashi Y,Morishita H,Kaku S,Ariyoshi K,Oyamada S,Inoue Y,Iwase S,Yamaguchi T,Nishikawa M

更新日期：2019-11-15 00:00:00

abstract：OBJECTIVES:Patients with advanced cancer do not report all symptoms, so assessment is best done systematically. However, for such patients, completion rates of some symptom instruments are <50%. Symptoms can be quantified by various scales including the Categorical Response Scale (CRS), Numerical Rating Scale (NRS) and...

journal_title：BMJ supportive & palliative care

authors： Jeter K,Blackwell S,Burke L,Joyce D,Moran C,Conway EV,Cremen I,O'Connor B,Ui Dhuibhir P,Walsh D

更新日期：2018-06-01 00:00:00

abstract：OBJECTIVE:To assess the involvement of volunteers with direct patient/family contact in UK palliative care services for children and young people. METHOD:Cross-sectional survey using a web-based questionnaire. SETTING:UK specialist paediatric palliative care services. PARTICIPANTS:Volunteer managers/coordinators fro...

journal_title：BMJ supportive & palliative care

authors： Burbeck R,Low J,Sampson EL,Scott R,Bravery R,Candy B

更新日期：2015-09-01 00:00:00

abstract：OBJECTIVES:This paper examined the potential of a new classification framework, The Spectrum of Children's Palliative Care Needs, to facilitate identification of children with palliative care needs for the purposes of minimum data set collection and population needs assessment. METHODS:Health and social care professio...

journal_title：BMJ supportive & palliative care

authors： Shaw KL,Brook L,Mpundu-Kaambwa C,Harris N,Lapwood S,Randall D

更新日期：2015-09-01 00:00:00

abstract：BACKGROUND:Cancer-related pain is a significant and debilitating problem. Non-pharmacological treatments such as acupuncture may have an adjunctive role in controlling pain without the undesirable side effects of drug regimens and yet the evidence base remains limited. OBJECTIVES:The main objective of this systematic ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Tashani OA,Bagnall AM,Johnson MI

更新日期：2011-06-01 00:00:00

abstract：OBJECTIVES:Clinicians report that withdrawal of mechanical ventilation in motor neuron disease is challenging. We report on the evaluation of the process and outcomes called for by the Association for Palliative Medicine of Great Britain and Ireland (APM) guidance. METHODS:Excel analysis of a core data set, defined in...

journal_title：BMJ supportive & palliative care

authors： Faull C,Wenzel D

更新日期：2020-05-21 00:00:00

abstract：BACKGROUND:Over time, palliative care has become "professionalised", placing a burden on health care systems to manage the suffering of individuals and families with advancing, life-limiting illness. The need to develop resources, infrastructure and policy to enhance the capacity for communities to facilitate and suppo...

journal_title：BMJ supportive & palliative care

authors： Whitfield K,LaBrie M

更新日期：2015-04-01 00:00:00

abstract：:This case report discusses the problems encountered with dystonia in a teenage boy with end-stage calcifying leucodystrophy. It records the successful use of prolonged continuous subcutaneous clonidine and the change to thrice weekly transdermal clonidine. ...

journal_title：BMJ supportive & palliative care

authors： McCluggage HL

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2 to 4 years after the onset of symptoms. Although many people with the disease decide in favour of life-sustaining measures, thoughts about hastening death are not uncommon. OBJECTIVES:Our aim was to examine the scope of literat...

journal_title：BMJ supportive & palliative care

authors： Erdmann A,Spoden C,Hirschberg I,Neitzke G

更新日期：2021-01-04 00:00:00

abstract：BACKGROUND:Undergraduate teaching currently fails to adequately prepare doctors to deliver 'end-of-life' care. Despite much evidence supporting simulation-based teaching, its use in medical undergraduate palliative and 'end-of-life' care curricula remain low. AIM:This study assesses whether simulation can improve the ...

journal_title：BMJ supportive & palliative care

authors： Wells G,Montgomery J,Hiersche A

更新日期：2019-08-28 00:00:00

abstract：OBJECTIVE:Patient and public involvement (PPI) has become an established theme within the UK health research policy and is recognised as an essential force in the drive to improve the quality of services and research. These developments have been particularly rapid in the cancer field. METHODS:This paper outlines a mo...

journal_title：BMJ supportive & palliative care

authors： Collins K,Boote J,Ardron D,Gath J,Green T,Ahmedzai SH,North Trent Cancer Research Network Consumer Research Panel (NTCRN CRP).

更新日期：2015-06-01 00:00:00

abstract：BACKGROUND:Values used in economic evaluation are typically obtained from the general public, which is problematic when measures are to be used with people experiencing a life-course stage such as the end of life. OBJECTIVE:To assess the feasibility of obtaining values for the ICECAP-Supportive Care Measure (SCM) from...

journal_title：BMJ supportive & palliative care

authors： Bailey C,Kinghorn P,Hewison A,Radcliffe C,Flynn TN,Huynh E,Coast J

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVE:In Singapore, more elderly are living in nursing homes (NHs), with a resultant increase in deaths occurring in NHs. However, palliative care training is limited in Singapore's core nursing curriculum, and many NHs rely on foreign-trained staff who may not have previous palliative care training. Our study aime...

journal_title：BMJ supportive & palliative care

authors： Phua GLG,Toh HJ,Tan L,Low JAYH

更新日期：2020-11-09 00:00:00

abstract：OBJECTIVES:Venous thromboembolism (VTE) is common in advanced cancer. Guidelines suggest that indefinite anticoagulation be considered for patients with ongoing active cancer. There are no data on the management of cancer-associated thrombosis (CAT) at the end of life or when to stop anticoagulation as death approaches...

journal_title：BMJ supportive & palliative care

authors： Noble S,Banerjee S,Pease NJ

更新日期：2019-06-25 00:00:00

abstract：BACKGROUND:A developing body of evidence has provided valuable insight into the experiences of caregivers of people with motor neuron disease; however, understandings of how best to support caregivers remain limited. AIM:This study sought to understand concepts related to the motor neuron disease caregiver experience ...

journal_title：BMJ supportive & palliative care

authors： Anderson NH,Gluyas C,Mathers S,Hudson P,Ugalde A

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVE:P-cadherin can act both as a tumour suppressor and an oncogene. The clinical prognostic value of P-cadherin overexpression in breast cancer (BC) remains unclear. We conducted a study-level meta-analysis to determine whether P-cadherin expression can help predict prognosis in BC. METHODS:A systematic literatu...

journal_title：BMJ supportive & palliative care

authors： Qi R,Lin J,Chen S,Jiang J,Zhang X,Yao B,Zheng H,Jin Z,Yuan Y,Hou W,Hua B,Guo Q

更新日期：2020-09-17 00:00:00

abstract：OBJECTIVE:Caregivers to patients with primary malignant brain tumours neglect their own physical and emotional needs during the disease trajectory. The aim of the systematic review was to explore how informal caregivers of patients with primary malignant brain tumour (high-grade glioma (HGG)) experience and manage thei...

journal_title：BMJ supportive & palliative care

authors： Piil K,Nordentoft S,Larsen A,Jarden M

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVES:People with dementia and their carers may experience poor end of life care, often having to navigate complex health and social care systems. The objectives of this study were to identify: (1) barriers for people with dementia and their carers in accessing good quality end of life care and (2) cost-effective ...

journal_title：BMJ supportive & palliative care

authors： Sampson E,Mandal U,Holman A,Greenish W,Dening KH,Jones L

更新日期：2012-06-01 00:00:00

abstract：BACKGROUND:Randomised controlled trials (RCTs) of palliative care interventions are challenging to conduct and evaluate. Tools used to judge the quality of RCTs do not account for the complexities of conducting research in seriously ill populations and may artificially downgrade confidence in palliative care research. ...

journal_title：BMJ supportive & palliative care

authors： Isenberg SR,Kavalieratos D,Chow R,Le L,Wegier P,Zimmermann C

更新日期：2020-11-18 00:00:00

abstract：:Platypnea orthodeoxia is an uncommon condition but given its associations with severe lung disease and advancing age, it might be seen in the palliative care population. Presentation is classical in the association of symptoms with postural change. It should be considered when patients present with breathlessness or d...

journal_title：BMJ supportive & palliative care

authors： Bradley V,Sabharwal N,MacGregor E,Bond C

更新日期：2019-09-07 00:00:00

abstract：CONTEXT:Patients with chronic cancer pain frequently suffer severe exacerbations of pain intensity which are difficult to control adequately via pharmaceutical management. Management of these episodes of breakthrough pain (BTP) presents a challenge both to the physician and the patient, and supplemental 'rescue' doses ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Johnson MI,Bennett MI

更新日期：2011-12-01 00:00:00

abstract：OBJECTIVE:Evaluate the internal consistency and temporal stability of advance directives (ADs) generated by an interactive, online computer program. METHODS:33 participants completed the program at three visits, 2 weeks apart. Agreement rates were calculated for the General Wishes component of the AD. The test-retest ...

journal_title：BMJ supportive & palliative care

authors： Schubart JR,Camacho F,Green MJ,Rush KA,Levi BH

更新日期：2017-03-01 00:00:00

abstract：BACKGROUND:There has been a dramatic increase in liver disease over recent decades, with morbidity and mortality rates predicted to rise significantly. In order to effectively support this growing patient population we need to understand the experiences, key issues and priorities of people living and dying with advance...

journal_title：BMJ supportive & palliative care

authors： Kimbell B,Murray SA

更新日期：2015-12-01 00:00:00

abstract：OBJECTIVES:As a rose geranium in sesame oil spray product has been anecdotally noted to improve nasal vestibulitis symptoms, this study was designed to assess whether patients with nasal vestibulitis associated with cancer-directed therapy experienced symptomatic improvements from it. METHODS:Patients with breast canc...

journal_title：BMJ supportive & palliative care

authors： Cathcart-Rake EJ,Smith D,Zahrieh D,Loprinzi CL

更新日期：2020-12-01 00:00:00

abstract：:Effective communication is a prerequisite to the delivery of good palliative care. The increasing use of web-based technologies and social media challenges us to reassess traditional communication styles and to define appropriate applications of evolving technologies. The use of Skype, blogging and webcams by patients...

journal_title：BMJ supportive & palliative care

authors： Battley JE,Balding L,Gilligan O,O'Connell C,O'Brien T

更新日期：2012-06-01 00:00:00

abstract：OBJECTIVE:To examine the association of the use of hospice care on patient experience and outcomes of care. Promoting high-value, safe and effective care is an international healthcare imperative. However, the extent to which hospice care may improve the value of care is not well characterised. METHODS:A secondary ana...

journal_title：BMJ supportive & palliative care

authors： Kleinpell R,Vasilevskis EE,Fogg L,Ely EW

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVES:Education and training are seen as 'absolutely essential parts of providing palliative care'. As part of a larger study to explore the extent of palliative care need in two acute hospital settings, we report the perceptions of healthcare professionals regarding their training and educational needs. METHODS:...

journal_title：BMJ supportive & palliative care

authors： Ingleton C,Gardiner C,Seymour JE,Richards N,Gott M

更新日期：2013-06-01 00:00:00

abstract：OBJECTIVE:Terminal haemorrhage is a rare and distressing emergency in palliative oncology. We present an algorithm for the management of terminal haemorrhage in patients likely to receive end-of-life care at home, based on a literature review of the management of terminal haemorrhage for patients with advanced cancer, ...

journal_title：BMJ supportive & palliative care

authors： Ubogagu E,Harris DG

更新日期：2012-12-01 00:00:00

abstract：OBJECTIVES:Report the use of an objective tool, UK Gold Standards Framework (GSF) criteria, to describe the prevalence, recognition and outcomes of patients with palliative care needs in an Australian acute health setting. The rationale for this is to enable hospital doctors to identify patients who should have a patie...

journal_title：BMJ supportive & palliative care

authors： Milnes S,Orford NR,Berkeley L,Lambert N,Simpson N,Elderkin T,Corke C,Bailey M

更新日期：2019-03-01 00:00:00