Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England.

abstract：BACKGROUND:General practitioners (GPs) and general practice nurses (GPNs) face increasing demands to provide end-of-life care (EoLC) as the population ages. To enhance primary palliative care (PC), the care they provide needs to be understood to inform best practice models of care. OBJECTIVE:To provide a comprehensive...

journal_title：BMJ supportive & palliative care

authors： Senior H,Grant M,Rhee JJ,Aubin M,McVey P,Johnson C,Monterosso L,Nwachukwu H,Fallon-Ferguson J,Yates P,Williams B,Mitchell G

更新日期：2019-08-29 00:00:00

abstract：INTRODUCTION:The incidence of some fatal diseases, including HIV/AIDS, accompanied by depression has become a significant concern in developed, developing and underdeveloped countries. A great deal of time and money are spent on controlling and reducing the complications of this infection across the world. Accordingly,...

journal_title：BMJ supportive & palliative care

authors： Rezaei S,Ahmadi S,Rahmati J,Hosseinifard H,Dehnad A,Aryankhesal A,Shabaninejad H,Ghasemyani S,Alihosseini S,Bragazzi NL,Raoofi S,Kiaee ZM,Ghashghaee A

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVE:To examine the association of the use of hospice care on patient experience and outcomes of care. Promoting high-value, safe and effective care is an international healthcare imperative. However, the extent to which hospice care may improve the value of care is not well characterised. METHODS:A secondary ana...

journal_title：BMJ supportive & palliative care

authors： Kleinpell R,Vasilevskis EE,Fogg L,Ely EW

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVE:Terminal haemorrhage is a rare and distressing emergency in palliative oncology. We present an algorithm for the management of terminal haemorrhage in patients likely to receive end-of-life care at home, based on a literature review of the management of terminal haemorrhage for patients with advanced cancer, ...

journal_title：BMJ supportive & palliative care

authors： Ubogagu E,Harris DG

更新日期：2012-12-01 00:00:00

abstract：OBJECTIVES:This paper examined the potential of a new classification framework, The Spectrum of Children's Palliative Care Needs, to facilitate identification of children with palliative care needs for the purposes of minimum data set collection and population needs assessment. METHODS:Health and social care professio...

journal_title：BMJ supportive & palliative care

authors： Shaw KL,Brook L,Mpundu-Kaambwa C,Harris N,Lapwood S,Randall D

更新日期：2015-09-01 00:00:00

abstract：:Malignant spinal cord compression (MSCC) in patients with short life expectancy is most frequently treated with radiotherapy and/or corticosteroids. Hypofractionation has been proven to be efficient in metastatic bone pain, but the level of evidence for hypofractionation in MSCC is limited. Searches were performed in ...

journal_title：BMJ supportive & palliative care

authors： Løhre ET,Lund JÅ,Kaasa S

更新日期：2012-03-01 00:00:00

abstract：OBJECTIVE:To determine the feasibility of conducting creative writing workshops (CWW) for patients with cancer to promote improvement in mood. METHOD:We piloted a prospective study to determine the feasibility of conducting CWW over a 4-week period. Patients were randomised 2:1 to either an intervention arm (IA) or to...

journal_title：BMJ supportive & palliative care

authors： Zhu J,Hussain M,Joshi A,Truica CI,Nesterova D,Collins J,Saunders EFH,Hayes M,Drabick JJ,Joshi M

更新日期：2020-03-01 00:00:00

abstract：:Adrenocortical carcinoma (ACC) comprises approximately 0.02% of all malignant tumours, which are a very small fraction of a group of cancers that affect in 0.7 to 2 in 1 000 000 people per year. Recurrence is very common even after complete resection and prognosis is poor. We report a case of a sporadic form of ACC fo...

journal_title：BMJ supportive & palliative care

authors： Shuayb M,Das A,Uddin MN

更新日期：2019-03-01 00:00:00

abstract：:The aim of this article is to use data from Belgium to analyse distinctions between palliative sedation and euthanasia. There is a need to reduce confusion and improve communication related to patient management at the end of life specifically regarding the rapidly expanding area of patient care that incorporates a sp...

journal_title：BMJ supportive & palliative care

authors： Cohen-Almagor R,Ely EW

更新日期：2018-09-01 00:00:00

abstract：OBJECTIVE:P-cadherin can act both as a tumour suppressor and an oncogene. The clinical prognostic value of P-cadherin overexpression in breast cancer (BC) remains unclear. We conducted a study-level meta-analysis to determine whether P-cadherin expression can help predict prognosis in BC. METHODS:A systematic literatu...

journal_title：BMJ supportive & palliative care

authors： Qi R,Lin J,Chen S,Jiang J,Zhang X,Yao B,Zheng H,Jin Z,Yuan Y,Hou W,Hua B,Guo Q

更新日期：2020-09-17 00:00:00

abstract：BACKGROUND:Non-invasive ventilation (NIV) is beneficial for respiratory failure in motor neurone disease (MND) but some patients may wish to stop the intervention. Guidance from the National Institute for Health and Care Excellence recommends that research is needed on NIV withdrawal. There is little in the literature ...

journal_title：BMJ supportive & palliative care

authors： Faull C,Rowe Haynes C,Oliver D

更新日期：2014-03-01 00:00:00

abstract：OBJECTIVE:This study investigated the preferences of patients, family and staff for single or shared rooms in a UK hospice. METHOD:Semistructured interviews were conducted with patients, informal carers and staff at a hospice, focusing on room type preference. RESULTS:14 current and former hospice inpatients, 15 pati...

journal_title：BMJ supportive & palliative care

authors： Williams C,Gardiner C

更新日期：2015-06-01 00:00:00

abstract：BACKGROUND:Values used in economic evaluation are typically obtained from the general public, which is problematic when measures are to be used with people experiencing a life-course stage such as the end of life. OBJECTIVE:To assess the feasibility of obtaining values for the ICECAP-Supportive Care Measure (SCM) from...

journal_title：BMJ supportive & palliative care

authors： Bailey C,Kinghorn P,Hewison A,Radcliffe C,Flynn TN,Huynh E,Coast J

更新日期：2019-12-01 00:00:00

abstract：OBJECTIVES:Prognostication is an essential ability to clinicians. Nevertheless, it has been shown to be quite variable in acutely ill patients, potentially leading to inappropriate care. We aimed to assess the accuracy of physician's prediction of hospital mortality in acutely deteriorating patients referred for urgent...

journal_title：BMJ supportive & palliative care

authors： Ramos JGR,Dias RD,Passos RDH,Batista PBP,Forte DN

更新日期：2020-03-01 00:00:00

abstract：OBJECTIVES:The present study examined the impact of a patient-tailored complementary/integrative medicine (CIM) programme on sleep quality in patients undergoing chemotherapy for breast and gynaecological cancer. METHODS:Study participants received standard supportive care, with or without weekly CIM treatments. Distu...

journal_title：BMJ supportive & palliative care

authors： Kerner H,Samuels N,Ben Moshe S,Sharabi IS,Ben-Arye E

更新日期：2020-09-01 00:00:00

abstract：:There has been rapid progress in palliative care in Africa since the World Health Assembly in 2005 which identified palliative care as an urgent humanitarian need. Palliative care is now recognised as a basic human right, and momentum has gathered to translate this into action. From being significantly present in only...

journal_title：BMJ supportive & palliative care

authors： Grant L,Downing J,Namukwaya E,Leng M,Murray SA

更新日期：2011-09-01 00:00:00

abstract：BACKGROUND:Recruitment and training of Companion Volunteers has developed out of a Companion Sitter Training Programme begun in 2010. (Scottish Journal of Healthcare Chaplaincy Vol 15. No 1, 2012). This programme was established to support patients emotionally and spiritually. While other services were available to off...

journal_title：BMJ supportive & palliative care

authors： Murphy K

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVES:To investigate the body composition and dietary intake in the patients with head and neck cancer (HNC) during radiotherapy (RT), and explore the relationship between them. METHODS:This was a prospective, longitudinal observational study. Adult patients with HNC undergoing RT between March 2017 and August 20...

journal_title：BMJ supportive & palliative care

authors： Zhuang B,Zhang L,Wang Y,Cao Y,Shih Y,Jin S,Li H,Gong L,Wang Y,Jin S,Lu Q

更新日期：2020-09-11 00:00:00

abstract：:Palliative sedation is the intentional use of sedatives to manage refractory symptom(s), such as pain and/or terminal restlessness. This case report describes the successful use of propofol, an ultra-fast-acting anaesthetic agent commonly used for anaesthesia induction and maintenance to manage refractory agitated del...

journal_title：BMJ supportive & palliative care

authors： Sulistio M,Wojnar R,Michael NG

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:Health service planning in paediatric palliative care is complex, with the diverse geographical and demographic characteristics adding to the challenge of developing services across different nations. Accurate and reliable data are essential to inform effective, efficient and equitable health services. AIM:...

journal_title：BMJ supportive & palliative care

authors： Bowers AP,Bradford N,Chan RJ,Herbert A,Yates P

更新日期：2020-10-13 00:00:00

abstract：BACKGROUND:Pain control is an essential component of high-quality palliative care. Unfortunately, many low-income and middle-income countries lack an appropriate infrastructure to provide palliative care and suffer from a severe lack of access to opioid analgesics to alleviate pain from various conditions such as cance...

journal_title：BMJ supportive & palliative care

authors： Lincoln SB,Soto-Perez-de-Celis E,Chavarri-Guerra Y,Covarrubias-Gomez A,Navarro M,Goss PE

更新日期：2019-10-30 00:00:00

abstract：OBJECTIVE:To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN:Systematic review. SETTING:Child and adult services and interface between healthcare providers. PATIENTS:Young people aged 13-24 years with palliative care conditions in the p...

journal_title：BMJ supportive & palliative care

authors： Doug M,Adi Y,Williams J,Paul M,Kelly D,Petchey R,Carter YH

更新日期：2011-09-01 00:00:00

abstract：:Effective communication is a prerequisite to the delivery of good palliative care. The increasing use of web-based technologies and social media challenges us to reassess traditional communication styles and to define appropriate applications of evolving technologies. The use of Skype, blogging and webcams by patients...

journal_title：BMJ supportive & palliative care

authors： Battley JE,Balding L,Gilligan O,O'Connell C,O'Brien T

更新日期：2012-06-01 00:00:00

abstract：:Nightmares can be a distressing symptom in patients living with serious illness. Prazosin, a selective alpha-1 adrenergic antagonist, has been suggested to treat nightmares, with most data supporting its use in post-traumatic stress disorder (PTSD). We present the case of a 60-year-old woman with metastatic breast can...

journal_title：BMJ supportive & palliative care

authors： Santivasi W,Taylor E,Christensen A,Strand J

更新日期：2021-01-27 00:00:00

abstract：OBJECTIVES:To estimate past trends and future projection of adult palliative care needs in Malaysia. METHODS:This is a population-based secondary data analysis using the national mortality registry from 2004 to 2014. Past trend estimation was conducted using Murtagh's minimum and maximum methods and Gómez-Batiste's me...

journal_title：BMJ supportive & palliative care

authors： Yang SL,Woon YL,Teoh CCO,Leong CT,Lim RBL

更新日期：2020-08-21 00:00:00

abstract：OBJECTIVE:Evidence is mixed regarding the impact of advance care planning (ACP) on place of death. This cohort study investigated the effect of ACP programmes on place of death and utilisation of life-sustaining treatments for patients during end-of-life (EOL) care. METHODS:This prospective cohort study identified dec...

journal_title：BMJ supportive & palliative care

authors： Yen YF,Lee YL,Hu HY,Sun WJ,Ko MC,Chang SS,Chen CC,Huang SJ,Chu D

更新日期：2020-10-28 00:00:00

abstract：INTRODUCTION:Of the 40 million people globally in need of palliative care (PC), just 14% receive it, predominantly in high-income countries. Within fragile health systems that lack PC, incurable illness is often marked by pain and suffering, as well as burdensome costs. In high-income settings, PC decreases healthcare ...

journal_title：BMJ supportive & palliative care

authors： Reid EA,Kovalerchik O,Jubanyik K,Brown S,Hersey D,Grant L

更新日期：2019-06-01 00:00:00

abstract：OBJECTIVES:Evidence-based communication skills training for health and social care professionals is essential to improve the care of seriously ill patients and their families. We aimed to evaluate the self-reported impact of 'Difficult Conversations', a multidisciplinary half-day interactive workshop, and gain feedback...

journal_title：BMJ supportive & palliative care

authors： Brighton LJ,Selman LE,Gough N,Nadicksbernd JJ,Bristowe K,Millington-Sanders C,Koffman J

更新日期：2018-03-01 00:00:00

abstract：BACKGROUND:Breast cancer is becoming the most common cancer among women of Indian origin. However, little is known about the psychological impact of the disease and its treatment among this population. AIM:To improve understanding of psychological symptoms among Indian women with breast cancer. DESIGN:This is a syste...

journal_title：BMJ supportive & palliative care

authors： Daniel S,Clark J,Gnanapragasam S,Venkateswaran C,Johnson MJ

更新日期：2020-05-11 00:00:00

abstract：OBJECTIVE:To identify the position of formal service providers in the networks of those providing end-of-life care in the home from the perspective of the informal network. METHODS:Using third-generation social network analysis, this study examined the nature and strength of relationships of informal caring networks w...

journal_title：BMJ supportive & palliative care

authors： Leonard R,Horsfall D,Rosenberg J,Noonan K

更新日期：2020-06-01 00:00:00