Medical specialists' motivations for referral to specialist palliative care: a qualitative study.

abstract：OBJECTIVE:This study explored how built space plays out in palliative care, focusing on spatial aspects that could support or hamper patients', relatives' and caregivers' well-being. METHODS:This study was conducted in a freestanding small-scale hospice combining a residential part for eight guests with a day-care par...

journal_title：BMJ supportive & palliative care

authors： Annemans M,Coomans K,Heylighen A

更新日期：2020-05-14 00:00:00

abstract：OBJECTIVES:Referral to, and usage of, specialist palliative care (SPC) services are not equitable and social deprivation may be a contributory factor in this. Deprivation may also affect the place of death of patients with cancer. No study, however, has investigated whether inequalities persist following referral to SP...

journal_title：BMJ supportive & palliative care

authors： Macfarlane M,Carduff E

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:A developing body of evidence has provided valuable insight into the experiences of caregivers of people with motor neuron disease; however, understandings of how best to support caregivers remain limited. AIM:This study sought to understand concepts related to the motor neuron disease caregiver experience ...

journal_title：BMJ supportive & palliative care

authors： Anderson NH,Gluyas C,Mathers S,Hudson P,Ugalde A

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:Family caregivers suffer physically, mentally, and spiritually. Community volunteers play an important role in supporting patients at the end of life or former caregivers in bereavement. However, there are no research reports of volunteer services focused on maintaining the wellbeing of end-of-life caregiver...

journal_title：BMJ supportive & palliative care

authors： Cohen SR,Keats S,Cherba M,Allen D,MacKinnon CJ,Bitzas V,Kogan N,Penner JL,Calislar MP,Feindel A,Lapointe B,Baxter S,O'Brien S,Stajduhar K

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Malignant pleural effusion (MPE) results in breathlessness and impairment of health-related quality of life (HRQOL). This study reviews the existing literature on HRQOL following invasive interventions in MPE. METHODS:Five electronic databases were systematically searched and assessed three times during the...

journal_title：BMJ supportive & palliative care

authors： Sivakumar P,Saigal A,Ahmed L

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:Non-invasive ventilation (NIV) is beneficial for respiratory failure in motor neurone disease (MND) but some patients may wish to stop the intervention. Guidance from the National Institute for Health and Care Excellence recommends that research is needed on NIV withdrawal. There is little in the literature ...

journal_title：BMJ supportive & palliative care

authors： Faull C,Rowe Haynes C,Oliver D

更新日期：2014-03-01 00:00:00

abstract：OBJECTIVE:To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN:Systematic review. SETTING:Child and adult services and interface between healthcare providers. PATIENTS:Young people aged 13-24 years with palliative care conditions in the p...

journal_title：BMJ supportive & palliative care

authors： Doug M,Adi Y,Williams J,Paul M,Kelly D,Petchey R,Carter YH

更新日期：2011-09-01 00:00:00

abstract：OBJECTIVE:To identify the position of formal service providers in the networks of those providing end-of-life care in the home from the perspective of the informal network. METHODS:Using third-generation social network analysis, this study examined the nature and strength of relationships of informal caring networks w...

journal_title：BMJ supportive & palliative care

authors： Leonard R,Horsfall D,Rosenberg J,Noonan K

更新日期：2020-06-01 00:00:00

abstract：OBJECTIVE:This study investigated the preferences of patients, family and staff for single or shared rooms in a UK hospice. METHOD:Semistructured interviews were conducted with patients, informal carers and staff at a hospice, focusing on room type preference. RESULTS:14 current and former hospice inpatients, 15 pati...

journal_title：BMJ supportive & palliative care

authors： Williams C,Gardiner C

更新日期：2015-06-01 00:00:00

abstract：OBJECTIVES:Impending death is poorly recognised. Many undergraduate healthcare professionals will not have experience of meeting or caring for someone who is dying. As death can occur in any setting, at any time, it is vital that all healthcare students, regardless of the setting they go on to work in, have end-of-life...

journal_title：BMJ supportive & palliative care

authors： White N,Oostendorp LJ,Minton O,Yardley S,Stone P

更新日期：2019-11-20 00:00:00

abstract：OBJECTIVE:This study examined whether the choice of pain-related outcome to represent opioid efficacy influenced findings in a genetic association study. Data from the European Pharmacogenetic Opioid Study, which used opioid dose as the outcome, were analysed in respect of six alternative outcomes: average pain intensi...

journal_title：BMJ supportive & palliative care

authors： Fladvad T,Fayers P,Skorpen F,Kaasa S,Klepstad P

更新日期：2012-12-01 00:00:00

abstract：:This case report discusses the problems encountered with dystonia in a teenage boy with end-stage calcifying leucodystrophy. It records the successful use of prolonged continuous subcutaneous clonidine and the change to thrice weekly transdermal clonidine. ...

journal_title：BMJ supportive & palliative care

authors： McCluggage HL

更新日期：2018-12-01 00:00:00

abstract：OBJECTIVE:P-cadherin can act both as a tumour suppressor and an oncogene. The clinical prognostic value of P-cadherin overexpression in breast cancer (BC) remains unclear. We conducted a study-level meta-analysis to determine whether P-cadherin expression can help predict prognosis in BC. METHODS:A systematic literatu...

journal_title：BMJ supportive & palliative care

authors： Qi R,Lin J,Chen S,Jiang J,Zhang X,Yao B,Zheng H,Jin Z,Yuan Y,Hou W,Hua B,Guo Q

更新日期：2020-09-17 00:00:00

abstract：OBJECTIVE:Caregivers to patients with primary malignant brain tumours neglect their own physical and emotional needs during the disease trajectory. The aim of the systematic review was to explore how informal caregivers of patients with primary malignant brain tumour (high-grade glioma (HGG)) experience and manage thei...

journal_title：BMJ supportive & palliative care

authors： Piil K,Nordentoft S,Larsen A,Jarden M

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVE:To determine the feasibility of conducting creative writing workshops (CWW) for patients with cancer to promote improvement in mood. METHOD:We piloted a prospective study to determine the feasibility of conducting CWW over a 4-week period. Patients were randomised 2:1 to either an intervention arm (IA) or to...

journal_title：BMJ supportive & palliative care

authors： Zhu J,Hussain M,Joshi A,Truica CI,Nesterova D,Collins J,Saunders EFH,Hayes M,Drabick JJ,Joshi M

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:Cancer-related pain is a significant and debilitating problem. Non-pharmacological treatments such as acupuncture may have an adjunctive role in controlling pain without the undesirable side effects of drug regimens and yet the evidence base remains limited. OBJECTIVES:The main objective of this systematic ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Tashani OA,Bagnall AM,Johnson MI

更新日期：2011-06-01 00:00:00

abstract：OBJECTIVES:Loss of appetite is prevalent in palliative care and distressing for patients and families. Therapies include corticosteroids or progestogens. This study explores the net effect of dexamethasone on anorexia. METHODS:Prospective data were collected when dexamethasone was started for anorexia as part of routi...

journal_title：BMJ supportive & palliative care

authors： Hatano Y,Moroni M,Wilcock A,Quinn S,Csikós Á,Allan SG,Agar M,Clark K,Clayton JM,Currow DC

更新日期：2016-09-01 00:00:00

abstract：CONTEXT:Patients with chronic cancer pain frequently suffer severe exacerbations of pain intensity which are difficult to control adequately via pharmaceutical management. Management of these episodes of breakthrough pain (BTP) presents a challenge both to the physician and the patient, and supplemental 'rescue' doses ...

journal_title：BMJ supportive & palliative care

authors： Paley CA,Johnson MI,Bennett MI

更新日期：2011-12-01 00:00:00

abstract：BACKGROUND:The role of the Community Matron was introduced in 2005 (DoH 2005a) to case-manage those patients deemed as very high intensity service users to prevent and reduce unscheduled admission to secondary care. Related studies on the effectiveness of managed care indicated the need to manage the demand of high ser...

journal_title：BMJ supportive & palliative care

authors： Barkham A

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Health service planning in paediatric palliative care is complex, with the diverse geographical and demographic characteristics adding to the challenge of developing services across different nations. Accurate and reliable data are essential to inform effective, efficient and equitable health services. AIM:...

journal_title：BMJ supportive & palliative care

authors： Bowers AP,Bradford N,Chan RJ,Herbert A,Yates P

更新日期：2020-10-13 00:00:00

abstract：BACKGROUND:The unprecedented scale of contemporary migration across countries over the last decade means that ageing and dying occur in a more globalised, multicultural context. It is therefore essential to explore the end-of-life experiences of older people from migrant backgrounds. METHODS:A scoping review of peer-r...

journal_title：BMJ supportive & palliative care

authors： Gerber K,Maharaj E,Brijnath B,Antoniades J

更新日期：2020-12-09 00:00:00

abstract：OBJECTIVES:Mechanical ventilation (MV) has been shown to improve survival and quality of life in motor neuron disease (MND). However, during the progression of MND, there may come a point when MV is no longer felt appropriate. Association of Palliative Medicine Guidelines have been recently published to help clinicians...

journal_title：BMJ supportive & palliative care

authors： Messer B,Armstrong A,Doris T,Williams T

更新日期：2020-03-01 00:00:00

abstract：OBJECTIVES:This study explores the narrative accounts of chronic obstructive pulmonary disease (COPD) to identify events that potentially could act as triggers for provision of supportive and palliative care. Trigger events must have meaning for the patient/carer, be visible to professionals, and have value in provokin...

journal_title：BMJ supportive & palliative care

authors： Cawley D,Billings J,Oliver D,Kendall M,Pinnock H

更新日期：2014-06-01 00:00:00

abstract：OBJECTIVES:Clinicians report that withdrawal of mechanical ventilation in motor neuron disease is challenging. We report on the evaluation of the process and outcomes called for by the Association for Palliative Medicine of Great Britain and Ireland (APM) guidance. METHODS:Excel analysis of a core data set, defined in...

journal_title：BMJ supportive & palliative care

authors： Faull C,Wenzel D

更新日期：2020-05-21 00:00:00

abstract：BACKGROUND:General practitioners (GPs) and general practice nurses (GPNs) face increasing demands to provide end-of-life care (EoLC) as the population ages. To enhance primary palliative care (PC), the care they provide needs to be understood to inform best practice models of care. OBJECTIVE:To provide a comprehensive...

journal_title：BMJ supportive & palliative care

authors： Senior H,Grant M,Rhee JJ,Aubin M,McVey P,Johnson C,Monterosso L,Nwachukwu H,Fallon-Ferguson J,Yates P,Williams B,Mitchell G

更新日期：2019-08-29 00:00:00

abstract：OBJECTIVE:Evidence is mixed regarding the impact of advance care planning (ACP) on place of death. This cohort study investigated the effect of ACP programmes on place of death and utilisation of life-sustaining treatments for patients during end-of-life (EOL) care. METHODS:This prospective cohort study identified dec...

journal_title：BMJ supportive & palliative care

authors： Yen YF,Lee YL,Hu HY,Sun WJ,Ko MC,Chang SS,Chen CC,Huang SJ,Chu D

更新日期：2020-10-28 00:00:00

abstract：:: Milford Care Centre is the only hospice in Ireland to make a strategic decision to embrace a public health approach to palliative care, through the development, implementation and evaluation of the Compassionate Communities Project. This presentation seeks to examine why Milford made the decision to move toward a co...

journal_title：BMJ supportive & palliative care

authors： McLoughlin K,Rhatigan J,Richardson M,Lloyd R

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVE:To assess the involvement of volunteers with direct patient/family contact in UK palliative care services for children and young people. METHOD:Cross-sectional survey using a web-based questionnaire. SETTING:UK specialist paediatric palliative care services. PARTICIPANTS:Volunteer managers/coordinators fro...

journal_title：BMJ supportive & palliative care

authors： Burbeck R,Low J,Sampson EL,Scott R,Bravery R,Candy B

更新日期：2015-09-01 00:00:00

abstract：BACKGROUND:Recruitment and training of Companion Volunteers has developed out of a Companion Sitter Training Programme begun in 2010. (Scottish Journal of Healthcare Chaplaincy Vol 15. No 1, 2012). This programme was established to support patients emotionally and spiritually. While other services were available to off...

journal_title：BMJ supportive & palliative care

authors： Murphy K

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Patient held records need to be evaluated in palliative care settings. OBJECTIVES:To evaluate how patients, families and professionals in a specialist palliative setting use a patient held record created through close consultation with patients and carers. METHODS:A mixed methods prospective longitudinal c...

journal_title：BMJ supportive & palliative care

authors： White C,Sproule J,Brogan P,Watson M

更新日期：2018-08-18 00:00:00