Patient healthcare passports in community specialist palliative care: a mixed methods study.

abstract：:Adrenocortical carcinoma (ACC) comprises approximately 0.02% of all malignant tumours, which are a very small fraction of a group of cancers that affect in 0.7 to 2 in 1 000 000 people per year. Recurrence is very common even after complete resection and prognosis is poor. We report a case of a sporadic form of ACC fo...

journal_title：BMJ supportive & palliative care

authors： Shuayb M,Das A,Uddin MN

更新日期：2019-03-01 00:00:00

abstract：OBJECTIVE:To develop and implement a methodology for capturing complete haematological malignancy pathway data and use it to identify variations in specialist palliative care (SPC) referrals. METHODS:In our established UK population-based patient cohort, 323 patients were diagnosed with acute myeloid leukaemia, diffus...

journal_title：BMJ supportive & palliative care

authors： Howell DA,Wang HI,Roman E,Smith AG,Patmore R,Johnson MJ,Garry AC,Howard MR

更新日期：2015-12-01 00:00:00

abstract：:Conscience objection is a proposed way of ensuring that medical practitioners who object to physician-assisted suicide may avoid having to be involved in such a procedure if this is legalised. This right on the part of healthcare professionals already exists in certain circumstances. This paper examines the ethical an...

journal_title：BMJ supportive & palliative care

authors： Willis D,George R

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:Breast cancer is becoming the most common cancer among women of Indian origin. However, little is known about the psychological impact of the disease and its treatment among this population. AIM:To improve understanding of psychological symptoms among Indian women with breast cancer. DESIGN:This is a syste...

journal_title：BMJ supportive & palliative care

authors： Daniel S,Clark J,Gnanapragasam S,Venkateswaran C,Johnson MJ

更新日期：2020-05-11 00:00:00

abstract：INTRODUCTION:Of the 40 million people globally in need of palliative care (PC), just 14% receive it, predominantly in high-income countries. Within fragile health systems that lack PC, incurable illness is often marked by pain and suffering, as well as burdensome costs. In high-income settings, PC decreases healthcare ...

journal_title：BMJ supportive & palliative care

authors： Reid EA,Kovalerchik O,Jubanyik K,Brown S,Hersey D,Grant L

更新日期：2019-06-01 00:00:00

abstract：:The COVID-19 pandemic is expected to surpass the healthcare system's capacity to provide intensive care to all patients who deteriorate as a result of the disease. This poses a unique challenge to healthcare teams of rationing care during pandemic when resources are scarce. Healthcare providers will need to acquire ne...

journal_title：BMJ supportive & palliative care

authors： Fadul N,Elsayem AF,Bruera E

更新日期：2020-06-11 00:00:00

abstract：BACKGROUND:General practitioners (GPs) and general practice nurses (GPNs) face increasing demands to provide end-of-life care (EoLC) as the population ages. To enhance primary palliative care (PC), the care they provide needs to be understood to inform best practice models of care. OBJECTIVE:To provide a comprehensive...

journal_title：BMJ supportive & palliative care

authors： Senior H,Grant M,Rhee JJ,Aubin M,McVey P,Johnson C,Monterosso L,Nwachukwu H,Fallon-Ferguson J,Yates P,Williams B,Mitchell G

更新日期：2019-08-29 00:00:00

abstract：BACKGROUND:There has been a dramatic increase in liver disease over recent decades, with morbidity and mortality rates predicted to rise significantly. In order to effectively support this growing patient population we need to understand the experiences, key issues and priorities of people living and dying with advance...

journal_title：BMJ supportive & palliative care

authors： Kimbell B,Murray SA

更新日期：2015-12-01 00:00:00

abstract：BACKGROUND:Family caregivers suffer physically, mentally, and spiritually. Community volunteers play an important role in supporting patients at the end of life or former caregivers in bereavement. However, there are no research reports of volunteer services focused on maintaining the wellbeing of end-of-life caregiver...

journal_title：BMJ supportive & palliative care

authors： Cohen SR,Keats S,Cherba M,Allen D,MacKinnon CJ,Bitzas V,Kogan N,Penner JL,Calislar MP,Feindel A,Lapointe B,Baxter S,O'Brien S,Stajduhar K

更新日期：2015-04-01 00:00:00

abstract：OBJECTIVES:Referral to, and usage of, specialist palliative care (SPC) services are not equitable and social deprivation may be a contributory factor in this. Deprivation may also affect the place of death of patients with cancer. No study, however, has investigated whether inequalities persist following referral to SP...

journal_title：BMJ supportive & palliative care

authors： Macfarlane M,Carduff E

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:The key challenge for most developed countries is meeting the needs of our ageing population, in particular, those nearing the end of their lives - population-based end-of-life care. Building on a public health approach to meet needs of an area-wide population, and a practical approach of enabling generalist...

journal_title：BMJ supportive & palliative care

authors： Thomas K

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2 to 4 years after the onset of symptoms. Although many people with the disease decide in favour of life-sustaining measures, thoughts about hastening death are not uncommon. OBJECTIVES:Our aim was to examine the scope of literat...

journal_title：BMJ supportive & palliative care

authors： Erdmann A,Spoden C,Hirschberg I,Neitzke G

更新日期：2021-01-04 00:00:00

abstract：BACKGROUND:The role of the Community Matron was introduced in 2005 (DoH 2005a) to case-manage those patients deemed as very high intensity service users to prevent and reduce unscheduled admission to secondary care. Related studies on the effectiveness of managed care indicated the need to manage the demand of high ser...

journal_title：BMJ supportive & palliative care

authors： Barkham A

更新日期：2015-04-01 00:00:00

abstract：:Malignant spinal cord compression (MSCC) in patients with short life expectancy is most frequently treated with radiotherapy and/or corticosteroids. Hypofractionation has been proven to be efficient in metastatic bone pain, but the level of evidence for hypofractionation in MSCC is limited. Searches were performed in ...

journal_title：BMJ supportive & palliative care

authors： Løhre ET,Lund JÅ,Kaasa S

更新日期：2012-03-01 00:00:00

abstract：BACKGROUND:Recruitment and training of Companion Volunteers has developed out of a Companion Sitter Training Programme begun in 2010. (Scottish Journal of Healthcare Chaplaincy Vol 15. No 1, 2012). This programme was established to support patients emotionally and spiritually. While other services were available to off...

journal_title：BMJ supportive & palliative care

authors： Murphy K

更新日期：2015-04-01 00:00:00

abstract：:The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have...

journal_title：BMJ supportive & palliative care

authors： Hunt KJ,Richardson A,Darlington AE,Addington-Hall JM

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:Resistance training (RT) is an effective way to increase muscle mass but little is known about its role to prevent sarcopenia in advanced cancer. Furthermore, the preferred setting for this training is not known. Considering home is frequently the place of care and death preferred by cancer patients, it is i...

journal_title：BMJ supportive & palliative care

authors： Ribeiro C,Santos R,Correia P,Maddocks M,Gomes B

更新日期：2020-08-13 00:00:00

abstract：OBJECTIVES:To estimate past trends and future projection of adult palliative care needs in Malaysia. METHODS:This is a population-based secondary data analysis using the national mortality registry from 2004 to 2014. Past trend estimation was conducted using Murtagh's minimum and maximum methods and Gómez-Batiste's me...

journal_title：BMJ supportive & palliative care

authors： Yang SL,Woon YL,Teoh CCO,Leong CT,Lim RBL

更新日期：2020-08-21 00:00:00

abstract：BACKGROUND:Communication about the end of life is especially important in the family context, as patients and their families are considered as the care unit in palliative care. Open end-of-life communication can positively affect medical, psychological and relational outcomes during the dying process for patient and fa...

journal_title：BMJ supportive & palliative care

authors： Nagelschmidt K,Leppin N,Seifart C,Rief W,von Blanckenburg P

更新日期：2020-08-27 00:00:00

abstract：OBJECTIVES:This paper examined the potential of a new classification framework, The Spectrum of Children's Palliative Care Needs, to facilitate identification of children with palliative care needs for the purposes of minimum data set collection and population needs assessment. METHODS:Health and social care professio...

journal_title：BMJ supportive & palliative care

authors： Shaw KL,Brook L,Mpundu-Kaambwa C,Harris N,Lapwood S,Randall D

更新日期：2015-09-01 00:00:00

abstract：OBJECTIVES:The present study examined the impact of a patient-tailored complementary/integrative medicine (CIM) programme on sleep quality in patients undergoing chemotherapy for breast and gynaecological cancer. METHODS:Study participants received standard supportive care, with or without weekly CIM treatments. Distu...

journal_title：BMJ supportive & palliative care

authors： Kerner H,Samuels N,Ben Moshe S,Sharabi IS,Ben-Arye E

更新日期：2020-09-01 00:00:00

abstract：OBJECTIVES:Prognostication is an essential ability to clinicians. Nevertheless, it has been shown to be quite variable in acutely ill patients, potentially leading to inappropriate care. We aimed to assess the accuracy of physician's prediction of hospital mortality in acutely deteriorating patients referred for urgent...

journal_title：BMJ supportive & palliative care

authors： Ramos JGR,Dias RD,Passos RDH,Batista PBP,Forte DN

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:Managing Cancer And Living Meaningfully (CALM) is a brief individual psychotherapy for patients with advanced cancer. In an intervention-only phase 2a trial, CALM showed promising results, leading to the present 2b pilot, which introduces procedures for randomisation and improved rigour in preparation for a ...

journal_title：BMJ supportive & palliative care

authors： Lo C,Hales S,Chiu A,Panday T,Malfitano C,Jung J,Rydall A,Li M,Nissim R,Zimmermann C,Rodin G

更新日期：2019-06-01 00:00:00

abstract：BACKGROUND:Values used in economic evaluation are typically obtained from the general public, which is problematic when measures are to be used with people experiencing a life-course stage such as the end of life. OBJECTIVE:To assess the feasibility of obtaining values for the ICECAP-Supportive Care Measure (SCM) from...

journal_title：BMJ supportive & palliative care

authors： Bailey C,Kinghorn P,Hewison A,Radcliffe C,Flynn TN,Huynh E,Coast J

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:In October 2014 a detailed mapping study of volunteers in palliative care services in NSW was undertaken for the first time. This presentation will provide a thematic analysis of the initial findings. AIMS:The aim of this study was to provide a thematic analysis of the occupational terrain of palliative car...

journal_title：BMJ supportive & palliative care

authors： Hansen L,Huntir A

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:In Ireland, weekend and night medical cover for community based patients is largely provided by general practice co-operatives. Doctors working in this service do not have direct access to patients' medical records which challenges continuity of care. OBJECTIVES:This study investigates the opinion of genera...

journal_title：BMJ supportive & palliative care

authors： Kiely F,Murphy M,O'Brien T

更新日期：2013-12-01 00:00:00

abstract：BACKGROUND:Health service planning in paediatric palliative care is complex, with the diverse geographical and demographic characteristics adding to the challenge of developing services across different nations. Accurate and reliable data are essential to inform effective, efficient and equitable health services. AIM:...

journal_title：BMJ supportive & palliative care

authors： Bowers AP,Bradford N,Chan RJ,Herbert A,Yates P

更新日期：2020-10-13 00:00:00

abstract：OBJECTIVES:Clinicians report that withdrawal of mechanical ventilation in motor neuron disease is challenging. We report on the evaluation of the process and outcomes called for by the Association for Palliative Medicine of Great Britain and Ireland (APM) guidance. METHODS:Excel analysis of a core data set, defined in...

journal_title：BMJ supportive & palliative care

authors： Faull C,Wenzel D

更新日期：2020-05-21 00:00:00

abstract：BACKGROUND:In Switzerland, helping with assisted suicide under certain conditions is not prosecuted. With approximately 300 cases annually, this leaves behind a large group of bereaved people where its consequences are mostly unknown. The study aimed to explore family involvement in decision making prior to assisted su...

journal_title：BMJ supportive & palliative care

authors： Gamondi C,Pott M,Forbes K,Payne S

更新日期：2015-06-01 00:00:00

abstract：OBJECTIVES:MicroRNAs (miRNAs) have recently been reported as useful diagnostic markers in cancer; however, relationships of miRNAs with adverse events during chemotherapy have yet to be fully described. In this study, we examined the relationship between serum miRNA and the risk of peripheral neuropathy (PN), a common ...

journal_title：BMJ supportive & palliative care

authors： Noda-Narita S,Shimomura A,Tanabe Y,Kawauchi J,Matsuzaki J,Takizawa S,Aoki Y,Shimizu C,Tamura K,Ochiya T

更新日期：2020-01-14 00:00:00