Abstract:
:Since the mid-1990s most EU Member States have established a national forensic DNA database. These mass repositories of DNA profiles enable the police to identify DNA stains which are found at crime scenes and are invaluable in criminal investigation. Governments have always brushed aside privacy objections by stressing that the stored DNA profiles do not contain sensitive genetic information on the included individuals and that they reside under the statutory privacy protection regulations. However, it has been generally overlooked that the police also store the DNA samples from which the DNA profiles are derived. Although these DNA samples are actually a potential source of genetic information, they have so far scarcely been the subject of discussion. In this article we will show that both European and national regulations offer inadequate protection to completely prevent function creep, that is, the use of these forensic DNA samples for purposes beyond those envisaged at the time of collection.
journal_name
J Med Ethicsjournal_title
Journal of medical ethicsauthors
Van Camp N,Dierickx Kdoi
10.1136/jme.2007.022012subject
Has Abstractpub_date
2008-08-01 00:00:00pages
606-10issue
8eissn
0306-6800issn
1473-4257pii
34/8/606journal_volume
34pub_type
杂志文章abstract::My sexual rights puzzle according to which positive sexual rights are not compatible with negative sexual rights has been recently criticised in the Journal of Medical Ethics by Steven J Firth, who has put forward three objections to the puzzle. In this brief response, I analyse and reject each of these three objectio...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/medethics-2019-105642
更新日期:2020-05-01 00:00:00
abstract::This paper considers the ethics of routine antenatal HIV testing and the role of informed consent within such a policy in order to decide how we should proceed in this area--a decision that ultimately rests on the relative importance we give to public health goals on the one hand and respect for individual autonomy on...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2006.018861
更新日期:2007-08-01 00:00:00
abstract::With the increase in the proportion of hospital deaths there is increasing debate about appropriateness of place of death. Death should be a family affair but is increasingly hidden from public view. In contrast to those who die at home, most of those who die in hospital die alone with no relatives or friends with the...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.9.3.158
更新日期:1983-09-01 00:00:00
abstract::Simon Rippon has recently argued against kidney markets on the grounds that introducing the option to vend will result in many people, especially the poor, being subject to harmful pressure to vend. Though compelling, Rippon's argument fails. What he takes to be a single phenomenon-social and legal pressure to vend-is...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/medethics-2014-102390
更新日期:2015-06-01 00:00:00
abstract::The death of Jesse Gelsinger in 1999 during a gene therapy trial raised many questions about the ethical review of medical research. Here, the author argues that the principle of justice is interpreted too narrowly and receives insufficient emphasis and that what we permit in terms of bodily invasion affects the value...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2003.006684
更新日期:2005-04-01 00:00:00
abstract::This paper relates two experiences of teaching medical ethics, the first to a small group of clinical medical students, the second to a larger group of GP trainees. :Boyd, a theologian who is Scottish Director of the Institute of Medical Ethics, comments on a day he spent teaching two ethics sessions, one to a group ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.13.3.132
更新日期:1987-09-01 00:00:00
abstract::In their paper 'The "serious" factor in germline modification', Kleiderman, Ravitsky and Knoppers rightly highlight the ambiguity in the oft-utilised term 'serious' in legal discussions of human germline genome modification.1 They suggest interpretation of this term may benefit from a framework based on human rights r...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/medethics-2019-105764
更新日期:2020-02-01 00:00:00
abstract::In this response article, we challenge a core assumption that lies at the centre of a round table discussion regarding the Pharmacogenetics to Avoid Loss of Hearing trial. The round table regards a genetic test for a variant (mt.1555A>G) that increases the risk of deafness if a carrier is given the antibiotic gentamic...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2020-106807
更新日期:2021-02-01 00:00:00
abstract::This paper investigates the efficiency of application of medical ethics principles in the practice of artificial insemination by donors (AID) in China, in a culture characterised by traditional ethical values and disapproval of AID. The paper presents the ethical approach to AID treatment as established by the Reprodu...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2004.007831
更新日期:2005-06-01 00:00:00
abstract::With the recent Clinical Trials Directive, a degree of harmonisation into research ethics committees (RECs) across Europe, including the time taken to assess a trial proposal and the kinds of issues a committee should take into account, has been introduced by the European Union (EU). How four different member states-H...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2005.013888
更新日期:2006-08-01 00:00:00
abstract::The United Kingdom Central Council for Nursing, Midwifery and Health Visitors (UKCC) document, Exercising Accountability, states that the role of patient's advocate is an essential aspect of good professional nursing practice (1). The author examines the case for and against the nurse being the best person to act as a...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.20.3.152
更新日期:1994-09-01 00:00:00
abstract:BACKGROUND:The importance of respecting patients and participants in clinical research is widely recognised. However, what it means to respect persons beyond recognising them as autonomous is unclear, and little is known about what patients find to be respectful. OBJECTIVE:To understand patients' conceptions of respec...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2008.027235
更新日期:2009-07-01 00:00:00
abstract:OBJECTIVE:To explore the experiences of people with a "terminal illness", focusing on the patients' perspective of euthanasia and assisted suicide. METHOD:A qualitative study using narrative interviews was conducted throughout the UK. The views of the 18 people who discussed euthanasia and assisted suicide were explor...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2006.015883
更新日期:2006-12-01 00:00:00
abstract::Genetic parenthood is usually portrayed as a value-neutral concept that can be confirmed or rejected based on objective, scientific tests. However, on inspection, it is exposed as a very complex idea that we might need to consider as something that comes in different shapes and forms and that is open to interpretation...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2013-101830
更新日期:2014-11-01 00:00:00
abstract::This paper explores whether donor-parents felt coerced to donate a kidney to their child. There is a paucity of UK literature on parental live kidney donors and the voluntariness of their decision-making. Data were gathered as part of a study exploring parental experiences of consenting for live donation at a UK speci...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2013-101988
更新日期:2015-04-01 00:00:00
abstract::Ancell and Sinnott-Armstrong argue that medical providers possess wide freedoms to determine the scope of their practice, and therefore, prohibiting almost any conscientious objections is a bad idea. They maintain that we could create an acceptable system on the whole which even grants accommodations to discriminatory...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2018-105173
更新日期:2019-03-01 00:00:00
abstract::The practice of covertly administering medication is controversial. Although condemned by some as overly paternalistic, others have suggested that it may be acceptable if patients have permanent mental incapacity and refuse needed treatment. Ethical, legal, and clinical considerations become more complex when the ment...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2003.007336
更新日期:2005-05-01 00:00:00
abstract::Codes of medical ethics issued by professional organizations typically contain statements affirming the importance of confidentiality between patients and health-care practitioners. Seldom, however, is the confidentiality obligation depicted as absolute. Instead, exceptions are noted, the most common of which is that ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.20.1.47
更新日期:1994-03-01 00:00:00
abstract::One theme of London University lawyer Ian Kennedy's 1980 Reith Lectures on medical ethics was the need to change the emphasis in physician patient relations from paternalism on the part of doctors to self determination on the part of patients. Bamford, a specialist in obstetrics and gynecology, demonstrates how reali...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.7.4.179
更新日期:1981-12-01 00:00:00
abstract::Clinicians' work depends on sincere and complete disclosures from their patients; they honour this candidness by confidentially safeguarding the information received. Breaching confidentiality causes harms that are not commensurable with the possible benefits gained. Limitations or exceptions put on confidentiality wo...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.12.3.117
更新日期:1986-09-01 00:00:00
abstract::In an earlier article in this journal, I advanced five ethical arguments in favour of a voluntary, unpaid system of blood donation. In his reply to my article, Hugh McLachlan criticised one of those arguments, namely, the argument that an unpaid system promotes altruism and social solidarity. In this reply to Dr. McLa...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.24.4.255
更新日期:1998-08-01 00:00:00
abstract::The COVID-19 pandemic will likely recede only through development and distribution of an effective vaccine. Although there are many unknowns surrounding COVID-19 vaccine development, vaccine demand will likely outstrip early supply, making prospective planning for vaccine allocation critical for ensuring the ethical d...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2020-106850
更新日期:2020-12-17 00:00:00
abstract::Recognising that offers of payment to research participants can serve various purposes-reimbursement, compensation and incentive-helps uncover differences between participants, which can justify differential payment of participants within the same study. Participants with different study-related expenses will need dif...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2018-105140
更新日期:2019-05-01 00:00:00
abstract::With the recent developments in the Human Genome Mapping Project and the new technologies that are developing from it there is a renewal of concern about eugenic applications. Francis Galton (b1822, d1911), who developed the subject of eugenics, suggested that the ancient Greeks had contributed very little to social t...
journal_title:Journal of medical ethics
pub_type: 传,历史文章,杂志文章
doi:10.1136/jme.24.4.263
更新日期:1998-08-01 00:00:00
abstract::In an influential essay entitled Why abortion is wrong, Donald Marquis argues that killing actual persons is wrong because it unjustly deprives victims of their future; that the fetus has a future similar in morally relevant respects to the future lost by competent adult homicide victims, and that, as consequence, abo...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.26.2.103
更新日期:2000-04-01 00:00:00
abstract:OBJECTIVE:To study the preferences of patients for information related to elective procedures. METHODS:A survey was carried out using a sample of 187 women. The majority of whom were on a low-income, who obtained obstetric or gynaecological services at St Joseph Regional Medical Center in Milwaukee, Wisconsin, while t...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2005.014274
更新日期:2006-08-01 00:00:00
abstract::The urgency of the resuscitation and the impaired ability of the patient to make a reasonable autonomous decision both conspire against adequate consideration of the principles of medical ethics. Informed consent is usually not possible for these reasons and this leads many to consider that consent is not required for...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.25.5.375
更新日期:1999-10-01 00:00:00
abstract::Concepts such as 'coercion' and 'inducement' are often used within bioethics without much reflection upon what they mean. This is particularly so in research ethics where they are assumed to imply that payment for research participation is unethical. Wertheimer and Miller advance our thinking about these concepts and ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.035931
更新日期:2010-07-01 00:00:00
abstract::'Futility' is a contentious term that has eluded clear definition, with proposed descriptions either too strict or too vague to encompass the many facets of medical care. Requests for futile care are often surrogates for requests of a more existential character, covering the whole range of personal, emotional, cultura...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2020-106232
更新日期:2020-04-24 00:00:00
abstract:BACKGROUND:More and more quantitative information is becoming available about the risks of complications arising from medical treatment. In everyday practice, this raises the question whether each and every risk, however low, should be disclosed to patients. What could be good reasons for doing or not doing so? This wi...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2005.014936
更新日期:2007-02-01 00:00:00