Medical mismanagement or patient vacillation?

abstract：:In this paper we question whether the concept of "genetic privacy" is a contradiction in terms. And, if so, whether the implications of such a conclusion, inevitably impact on how society comes to perceive privacy and responsibility generally. Current law and ethical discourse place a high value on self-determination ...

journal_title：Journal of medical ethics

authors： Sommerville A,English V

更新日期：1999-04-01 00:00:00

abstract：OBJECTIVES:To study some ethical problems created by accession of a previously nomadic and traditional society to modern invasive medicine, by assessment of physicians' attitudes towards sharing information and decision-making with patients in the setting of a serious illness. DESIGN:Self-completion questionnaire admi...

journal_title：Journal of medical ethics

authors： Mobeireek AF,al-Kassimi FA,al-Majid SA,al-Shimemry A

更新日期：1996-10-01 00:00:00

abstract：:Currently, any dentist in the UK who is HIV-seropositive must stop treating patients. This is despite the fact that hepatitis B-infected dentists with a low viral load can continue to practise, and the fact that HIV is 100 times less infectious than hepatitis B. Dentists are obliged to treat HIV-positive patients, but...

journal_title：Journal of medical ethics

authors： Shaw D

更新日期：2008-03-01 00:00:00

abstract：OBJECTIVE:To report results from a national survey of coordinators and managers of clinical research studies in the US on their perceptions of and experiences with scientific misconduct. METHODS:Data were collected using the Scientific Misconduct Questionnaire-Revised. Eligible responses were received from 1645 of 530...

journal_title：Journal of medical ethics

authors： Pryor ER,Habermann B,Broome ME

更新日期：2007-06-01 00:00:00

abstract：:Many jurisdictions have processes to consider Individual Funding Requests but, with few exceptions, the decisions made with respect to these are not made public. Drawing upon Daniels and Sabin's account of the requirements of procedural justice, Accountability for Reasonableness, this paper considers several arguments...

journal_title：Journal of medical ethics

authors： Jonas M,Kolbe A,Warin B

更新日期：2014-12-01 00:00:00

abstract：OBJECTIVES:This study aimed to determine the ability to successfully contact past paediatric patients and their families to request participation in research, to assess familial views on the use of previously collected archival clinical samples for research purposes, and to highlight the ethical and practical issues in...

journal_title：Journal of medical ethics

authors： Sexton-Oates A,Dodgshun A,MacGregor D,Ludlow LE,Sullivan M,Saffery R

更新日期：2016-07-01 00:00:00

abstract：OBJECTIVE:To explore the ways in which health care practitioners working within the morally contested area of prenatal screening balance their professional and private moral values. DESIGN:Qualitative study incorporating semistructured interviews with health practitioners followed by multidisciplinary discussion group...

journal_title：Journal of medical ethics

authors： Farsides B,Williams C,Alderson P

更新日期：2004-10-01 00:00:00

abstract：:In this paper, I respond to criticisms by John Harris, contained in a commentary on my article "Harris, harmed states, and sexed bodies", which appeared in the Journal of Medical Ethics, volume 37, number 5. I argue that Harris's response to my criticisms exposes the strong eugenic tendencies in his own thought, when ...

journal_title：Journal of medical ethics

authors： Sparrow R

更新日期：2012-01-01 00:00:00

abstract：OBJECTIVE:To explore the experiences of people with a "terminal illness", focusing on the patients' perspective of euthanasia and assisted suicide. METHOD:A qualitative study using narrative interviews was conducted throughout the UK. The views of the 18 people who discussed euthanasia and assisted suicide were explor...

journal_title：Journal of medical ethics

authors： Chapple A,Ziebland S,McPherson A,Herxheimer A

更新日期：2006-12-01 00:00:00

abstract：:Values-based recruitment is used in England to select healthcare staff, trainees and students on the basis that their values align with those stated in the Constitution of the UK National Health Service (NHS). However, it is unclear whether the extensive body of existing literature within the field of moral philosophy...

journal_title：Journal of medical ethics

authors： Groothuizen JE,Callwood A,Gallagher A

更新日期：2018-08-01 00:00:00

abstract：:Among bioethicists and members of the public, genetics is often regarded as unique in its ethical challenges. As medical researchers and clinicians increasingly combine genetic information with a range of non-genetic information in the study and clinical management of patients with common diseases, the unique ethical ...

journal_title：Journal of medical ethics

authors： Foster MW,Royal CD,Sharp RR

更新日期：2006-11-01 00:00:00

abstract：:The way people think about equality as a value will influence how they think genetic interventions should be regulated. In this paper the author uses the taxonomy of equality put forth by Derek Parfit and applies this to the issue of genetic interventions. It is argued that telic egalitarianism is untenable and that d...

journal_title：Journal of medical ethics

authors： Farrelly C

更新日期：2004-12-01 00:00:00

abstract：:I sketch a libertarian argument for the right to test in the context of 'direct to consumer' (DTC) genetic testing. A libertarian right to genetic tests, as defined here, relies on the idea of a moral right to self-ownership. I show how a libertarian right to test can be inferred from this general libertarian premise,...

journal_title：Journal of medical ethics

authors： Loi M

更新日期：2016-09-01 00:00:00

abstract：:Determining whether a research risk meets or exceeds a regulatory standard of risk acceptability is difficult. Recently a framework called the systematic evaluation of research risks (SERR) has been proposed as a method of comparing research risks with predetermined standards of acceptability. SERR purports to offer a...

journal_title：Journal of medical ethics

authors： Rossi J,Nelson RM

更新日期：2012-07-01 00:00:00

abstract：:Recently, new developments took place in the Dutch debate on the legislation of euthanasia. After a brief account of that debate, the article discusses a new government proposal for legislation in this field, which was submitted to the Dutch parliament in November 1991. This proposal relates not only to euthanasia but...

journal_title：Journal of medical ethics

authors： Gevers JK

更新日期：1992-09-01 00:00:00

abstract：:Five arguments are presented in favour of the proposal that people who opt in as organ donors should receive a tax break. These arguments appeal to welfare, autonomy, fairness, distributive justice and self-ownership, respectively. Eight worries about the proposal are considered in this paper. These objections focus u...

journal_title：Journal of medical ethics

authors： Søbirk Petersen T,Lippert-Rasmussen K

更新日期：2012-08-01 00:00:00

abstract：OBJECTIVES:To explore mental health service users' views of existing and proposed compulsory powers. DESIGN:A qualitative study employing in-depth interviews. Participants were asked to respond to hypothetical questions regarding the application of compulsory powers under the Mental Health Act 1983 for people other th...

journal_title：Journal of medical ethics

authors： Canvin K,Bartlett A,Pinfold V

更新日期：2005-08-01 00:00:00

abstract：BACKGROUND:Wish-fulfilling medicine appears to be on the rise. It can be defined as 'doctors and other health professionals using medical means (medical technology, drugs, and so on) in a medical setting to fulfil the explicitly stated, prima facie non-medical wish of a patient'. Some instances of wish fulfilling medic...

journal_title：Journal of medical ethics

authors： Asscher EC,Schermer M

更新日期：2014-12-01 00:00:00

abstract：:Two protechnology arguments, the "hopeful principle" and the "automatic escalator", often used in bioethics, are identified and critically analysed in this paper. It is shown that the hopeful principle is closely related to the problematic precautionary principle, and the automatic escalator argument has close affinit...

journal_title：Journal of medical ethics

authors： Holm S,Takala T

更新日期：2007-01-01 00:00:00

abstract：PURPOSE:Many research ethics committees (RECs) have been established in low- and middle-income countries (LMICs) in response to increased research in these countries. How well these RECs are functioning remains largely unknown. Our objective was to assess the usefulness of a self-assessment tool in obtaining benchmarki...

journal_title：Journal of medical ethics

authors： Silverman H,Sleem H,Moodley K,Kumar N,Naidoo S,Subramanian T,Jaafar R,Moni M

更新日期：2015-04-01 00:00:00

abstract：:A recurrent issue in the vast amount of literature on reasoning models in ethics is the role and nature of moral intuitions. In this paper, we start from the view that people who work and live in a certain moral practice usually possess specific moral wisdom. If we manage to incorporate their moral intuitions in ethic...

journal_title：Journal of medical ethics

authors： van Thiel GJ,van Delden JJ

更新日期：2009-04-01 00:00:00

abstract：:The recent report of the UK government's Organ Donation Taskforce is in favour of continuing with the current organ donation system rather than changing to an opt-out system where people are assumed to be willing to donate. How did it reach this decision and is it correct? ...

journal_title：Journal of medical ethics

authors： Rieu R

更新日期：2010-09-01 00:00:00

abstract：:Clinical trials emerged in rapid succession as the COVID-19 pandemic created an unprecedented need for life-saving therapies. Fair and equitable subject selection in clinical trials offering investigational therapies ought to be an urgent moral concern. Subject selection determines the distribution of risks and benefi...

journal_title：Journal of medical ethics

authors： Jansen MO,Angelos P,Schrantz SJ,Donington JS,Madariaga MLL,Zakrison TL

更新日期：2021-01-01 00:00:00

abstract：:The right not to know is underappreciated in policy-making. Despite its articulation in medical law and ethics, policy-makers too easily let other concerns override the right not to know. This observation is triggered by a recent decision of the Dutch government on embryo selection for Huntington's disease. This is a ...

journal_title：Journal of medical ethics

authors： Asscher E,Koops BJ

更新日期：2010-01-01 00:00:00

abstract：:Obstetricians face difficult decisions when the interests of fetus and mother conflict. An example is the problem of choosing the delivery method when labour begins prematurely and the fetus is breech. Vaginal delivery involves risks for the breech fetus of brain damage or death caused by umbilical cord compression an...

journal_title：Journal of medical ethics

authors： Anderson G,Strong C

更新日期：1988-03-01 00:00:00

abstract：:Therapeutic privilege (TP) is a defence that may be available to doctors who fail to disclose to the patient relevant information when seeking informed consent for treatment if they have a reasonable belief that providing that information would likely cause the patient concerned serious physical or mental harm. In a l...

journal_title：Journal of medical ethics

authors： Menon S,Entwistle V,Campbell AV,van Delden JJM

更新日期：2021-01-01 00:00:00

abstract：:Reproductive autonomy is central to women's welfare both because childbearing takes place in women's bodies and because they are generally expected to take primary responsibility for child rearing. In 2005, the factors that influence their autonomy most strongly are poverty and belief systems that devalue such autonom...

journal_title：Journal of medical ethics

authors： Purdy L

更新日期：2006-05-01 00:00:00

abstract：:As the demand for healthcare rises, so does the need for priority setting in healthcare. In this paper, I consider a prominent priority-setting principle: proportional shortfall. My purpose is to argue that proportional shortfall, as a principle, should not be adopted. My key criticism is that proportional shortfall f...

journal_title：Journal of medical ethics

authors： Altmann S

更新日期：2018-05-01 00:00:00

abstract：:The passing on of information to GPs by genito-urinary doctors is to be encouraged but is not always possible and ultimately the patient's wishes and confidentiality must be respected if sexually transmitted diseases and HIV infection are to be controlled. Infected health-care workers should seek counselling and medic...

journal_title：Journal of medical ethics

authors： Adler MW

更新日期：1991-12-01 00:00:00

abstract：:Principles of autonomy and self-determination have been upheld as vital to modern-day medical and ethical practice. However, the complexities of current health care and changes in the expectation of some patients and their families justify a review of such concepts. Their limitations and relativities may suggest that ...

journal_title：Journal of medical ethics

authors： Wilson-Barnett J

更新日期：1989-03-01 00:00:00