Genetic privacy: orthodoxy or oxymoron?

abstract：:Psychotropic and other drugs can alter brain mechanisms regulating the formation, storage, and retrieval of different types of memory. These include "off label" uses of existing drugs and new drugs designed specifically to target the neural bases of memory. This paper discusses the use of beta-adrenergic antagonists t...

journal_title：Journal of medical ethics

authors： Glannon W

更新日期：2006-02-01 00:00:00

abstract：:Direct-to-consumer (DTC) genetic services have generated enormous controversy from their first emergence. A dramatic recent manifestation of this is the Food and Drug Administration's (FDA) cease and desist order against 23andMe, the leading provider in the market. Critics have argued for the restrictive regulation of...

journal_title：Journal of medical ethics

authors： Vayena E

更新日期：2015-04-01 00:00:00

abstract：:Downie comments on Sieghart's article, "Professions as the conscience of society" (Journal of Medical Ethics 1985 Sep; 11(3): 117-122). He charges that Sieghart is blurring empirical, conceptual, and moral claims when he contends that the professional relationship is unique in that "altruism is paramount and self-int...

journal_title：Journal of medical ethics

authors： Downie RS

更新日期：1986-06-01 00:00:00

abstract：:Rationing healthcare is a difficult task, which includes preventing patients from accessing potentially beneficial treatments. Proponents of implicit rationing argue that politicians cannot resist pressure from strong patient groups for treatments and conclude that physicians should ration without informing patients o...

journal_title：Journal of medical ethics

authors： Lauridsen SM,Norup MS,Rossel PJ

更新日期：2007-12-01 00:00:00

abstract：:Moral evaluation of risk/benefit in early phase studies requires assessing the clinical promise of a candidate intervention using preclinical evidence. Yet, there is little to guide ethics committees, investigators, sponsors or other stakeholders morally charged with making these assessments ('evaluators'). In what fo...

journal_title：Journal of medical ethics

authors： Kimmelman J,Henderson V

更新日期：2016-01-01 00:00:00

abstract：BACKGROUND:More and more quantitative information is becoming available about the risks of complications arising from medical treatment. In everyday practice, this raises the question whether each and every risk, however low, should be disclosed to patients. What could be good reasons for doing or not doing so? This wi...

journal_title：Journal of medical ethics

authors： Palmboom GG,Willems DL,Janssen NB,de Haes JC

更新日期：2007-02-01 00:00:00

abstract：:Several prominent writers including Norman Daniels, James Sabin, Amy Gutmann, Dennis Thompson and Leonard Fleck advance a view of legitimacy according to which, roughly, policies are legitimate if and only if they result from democratic deliberation, which employs only public reasons that are publicised to stakeholder...

journal_title：Journal of medical ethics

authors： Smith WR

更新日期：2018-06-01 00:00:00

abstract：:Ancell and Sinnott-Armstrong argue that medical providers possess wide freedoms to determine the scope of their practice, and therefore, prohibiting almost any conscientious objections is a bad idea. They maintain that we could create an acceptable system on the whole which even grants accommodations to discriminatory...

journal_title：Journal of medical ethics

authors： Card RF

更新日期：2019-03-01 00:00:00

abstract：:The advent of prenatal genetic diagnosis has sparked debates among ethicists and philosophers regarding parental responsibility towards potential offspring. Some have attempted to place moral obligations on parents to not bring about children with certain diseases in order to prevent harm to such children. There has b...

journal_title：Journal of medical ethics

authors： Bosslet GT

更新日期：2011-05-01 00:00:00

abstract：:Some disability rights advocates criticise prenatal testing and selective abortion on the grounds that these practices express negative attitudes towards existing persons with disabilities. Disability rights advocates also commonly criticise and oppose physician-assisted suicide (PAS) and euthanasia on the same ground...

journal_title：Journal of medical ethics

authors： Reed P

更新日期：2020-08-01 00:00:00

abstract：:Towers reviews Joan Robinson: One Woman's Story, an American documentary film about a terminal cancer patient that was first broadcast by the Public Broadcasting Service on 21 January 1980. The film was made at the instigation of Robinson, a writer and editor, and covers the last twenty-two months of her life from th...

journal_title：Journal of medical ethics

authors： Towers B

更新日期：1980-06-01 00:00:00

abstract：:In an earlier article in this journal, I advanced five ethical arguments in favour of a voluntary, unpaid system of blood donation. In his reply to my article, Hugh McLachlan criticised one of those arguments, namely, the argument that an unpaid system promotes altruism and social solidarity. In this reply to Dr. McLa...

journal_title：Journal of medical ethics

authors： Keown J

更新日期：1998-08-01 00:00:00

abstract：:The purpose of the present study was to examine whether or not strong values might influence physicians' estimations of future events. In an empirical study about physicians' attitudes towards physician assisted suicide (PAS) we asked about the physicians' main reasons for being pro, doubtful or contra PAS and also as...

journal_title：Journal of medical ethics

authors： Juth N,Lynöe N

更新日期：2010-04-01 00:00:00

abstract：OBJECTIVES:In treating critically ill neonates, situations occasionally arise in which aggressive medical treatment prolongs the inevitable death rather than prolonging life. Decisions as to limitation of neonatal medical intervention remain controversial and the primary responsibility of the generally unprepared famil...

journal_title：Journal of medical ethics

authors： Hammerman C,Kornbluth E,Lavie O,Zadka P,Aboulafia Y,Eidelman AI

更新日期：1997-06-01 00:00:00

abstract：:This article is a response to Raphael Cohen-Almagor's paper entitled 'First do no harm: intentionally shortening lives of patients without their explicit request in Belgium'. His paper deals with very important matters of life and death, however its concept usage is in part misleading. For instance, the fact that medi...

journal_title：Journal of medical ethics

authors： Materstvedt LJ,Magelssen M

更新日期：2016-09-01 00:00:00

abstract：:Determining whether a research risk meets or exceeds a regulatory standard of risk acceptability is difficult. Recently a framework called the systematic evaluation of research risks (SERR) has been proposed as a method of comparing research risks with predetermined standards of acceptability. SERR purports to offer a...

journal_title：Journal of medical ethics

authors： Rossi J,Nelson RM

更新日期：2012-07-01 00:00:00

abstract：:A considerable amount of publicity has recently centred on a few Lesbian couples who have successfully obtained artificial insemination by donor (AID) in order to have a child. Advice was orginally sought on a private basis from the Journal on the following case: now the issue is public knowledge, the doctor presentin...

journal_title：Journal of medical ethics

authors：

更新日期：1978-06-01 00:00:00

abstract：:In summary, the discussion by Professors Helmchen and Müller-Oerlinghausen of the morality of clinical trials has emphasized a point that is frequently overlooked. It is an essential to consider those situations in which it might be unethical not to conduct a trial as it is to be concerned about the ways in which tria...

journal_title：Journal of medical ethics

authors： Wing JK

更新日期：1975-12-01 00:00:00

abstract：:In contemporary medical ethics health is rarely acknowledged to be an ethical obligation. This oversight is due to the preoccupation of most bioethicists with a rationalist, contract model for ethics in which moral obligation is limited to truth-telling and promise-keeping. Such an ethics is poorly suited to medicine ...

journal_title：Journal of medical ethics

authors： Sider RC,Clements CD

更新日期：1984-09-01 00:00:00

abstract：:Coercion and pressure in mental healthcare raise moral questions. This article focuses on moral questions raised by the everyday practice of pressure and coercion in the care for the mentally ill. In view of an example from literature-the story of Ulysses and the Sirens-several ethical issues surrounding this practice...

journal_title：Journal of medical ethics

authors： Widdershoven G,Berghmans R

更新日期：2007-10-01 00:00:00

abstract：:The paper considers and rejects two arguments against the performance of sexual reassignment surgery. First, it is argued that the operation is not mutilating, but functionally enabling. Second, it is argued that the operation is not objectionably deceptive, since, if there is such a thing as our 'real sex', we do not...

journal_title：Journal of medical ethics

authors： Lavin M

更新日期：1987-06-01 00:00:00

abstract：:No discussion of when an individual is dead is meaningful in the absence of a definition of death. If human death is defined as the irreversible loss of the capacity for consciousness combined with the irreversible loss of the capacity to breathe spontaneously (and hence to maintain a spontaneous heart beat) the deat...

journal_title：Journal of medical ethics

authors： Pallis C

更新日期：1990-03-01 00:00:00

abstract：:Debate continues over the acts/omissions doctrine, and over the concepts of duty and charity. Such issues inform the debate over the moral permissibility of euthanasia. Recent papers have emphasised moral sensitivity, medical intuitions, and sub-standard palliative care as some of the factors which should persuade us ...

journal_title：Journal of medical ethics

authors： Parker M

更新日期：1990-03-01 00:00:00

abstract：:Ethics committees now require that individuals give informed consent to much health services research, in the same way as for clinical research. This is misguided. Existing ethical guidelines do not help us decide how to seek consent in these cases, and have allowed managerial experimentation to remain largely uncheck...

journal_title：Journal of medical ethics

authors： Cassell J,Young A

更新日期：2002-10-01 00:00:00

abstract：OBJECTIVE:This article describes a method for investigating attitudes towards prioritisation in medicine. SETTING:University of Kuopio, Finland. DESIGN:The method consisted of a set of 24 paired scenarios, which were imaginary patient cases, each containing three different ethical indicators randomly selected from a ...

journal_title：Journal of medical ethics

authors： Ryynänen OP,Myllykangas M,Vaskilampi T,Takala J

更新日期：1996-08-01 00:00:00

abstract：:Following the influential Gifford and Reith lectures by Onora O'Neill, this paper explores further the paradigm of individual autonomy which has been so dominant in bioethics until recently and concurs that it is an aberrant application and that conceptions of individual autonomy cannot provide a sufficient and convin...

journal_title：Journal of medical ethics

authors： Stirrat GM,Gill R

更新日期：2005-03-01 00:00:00

abstract：:This paper investigates the medical law and ethics (MEL) learning needs of Foundation doctors (FYs) by means of a national survey developed in association with key stakeholders including the General Medical Council and Health Education England. Four hundred sevnty-nine doctors completed the survey. The average self-re...

journal_title：Journal of medical ethics

authors： Corfield L,Williams RA,Lavelle C,Latcham N,Talash K,Machin L

更新日期：2020-04-10 00:00:00

abstract：OBJECTIVE:Informed consent and protection of patient confidentiality are central to the conduction of clinical research. Consent for chart review and contact (CCRC) allows a patient chart to be screened for research by persons outside the direct circle-of-care and for the patient to be contacted regarding potential stu...

journal_title：Journal of medical ethics

authors： Druce I,Ooi TC,McGuire D,Sorisky A,Malcolm J

更新日期：2015-05-01 00:00:00

abstract：:As a science and practice transcending metaphysical and ethical disagreements, 'secular' medicine should not exist. 'Secularity' should be understood in an Augustinian sense, not a secularist one: not as a space that is universally rational because it is religion-free, but as a forum for the negotiation of rival reaso...

journal_title：Journal of medical ethics

authors： Biggar N

更新日期：2015-03-01 00:00:00

abstract：:This article discusses what level of consent is needed from a child or parent before a primary-school medical can take place (i.e. where children are aged under 12). It also considers whether there are occasions when a doctor can see a child if the parents have failed to give consent or have explicitly refused consent...

journal_title：Journal of medical ethics

authors： Bradley P

更新日期：2000-12-01 00:00:00