Abstract:
OBJECTIVE:Informed consent and protection of patient confidentiality are central to the conduction of clinical research. Consent for chart review and contact (CCRC) allows a patient chart to be screened for research by persons outside the direct circle-of-care and for the patient to be contacted regarding potential studies. This study describes the process of implementation and benefits of such a consent. DESIGN:We present a descriptive report of a CCRC document that was created and presented to patients over a 3.5-year period at a tertiary care Endocrinology and Metabolism centre. To assess the potential impact of such a document on patient recruitment, the basic demographics of patients who did and did not consent were compared. In addition, we compared the recruitment rate at our centre, using our novel approach, with that at other centres for an ongoing study of patients with type 1 diabetes. RESULTS:A large proportion (6501/8025, or 81%) of patients gave their consent for chart review. Patients who denied consent were more likely to be women and older. Compared with other centres, our centre recruited at the highest rate for a known study of patients with type 1 diabetes. The majority (46/60, or 76.7%) of patients were recruited via the novel approach. CONCLUSIONS:Consent for chart review and contact addresses several important ethical issues regarding the use of patient clinical information for research purposes. Our study demonstrated how such a process can be implemented.
journal_name
J Med Ethicsjournal_title
Journal of medical ethicsauthors
Druce I,Ooi TC,McGuire D,Sorisky A,Malcolm Jdoi
10.1136/medethics-2013-101765subject
Has Abstractpub_date
2015-05-01 00:00:00pages
425-8issue
5eissn
0306-6800issn
1473-4257pii
medethics-2013-101765journal_volume
41pub_type
杂志文章abstract::Eduard Seidler sets his discussion of the teaching of medical ethics in the Federal Republic of Germany against an historical background. Immediately after the Second World War the freshness of the memory of the 'Nuremberg Medical Trials' influenced the way in which moral dilemmas were treated in Germany. At the prese...
journal_title:Journal of medical ethics
pub_type: 历史文章,杂志文章
doi:10.1136/jme.5.2.76
更新日期:1979-06-01 00:00:00
abstract::In this paper we identify and evaluate arguments for and against offering assisted reproductive technologies (ART), specifically IVF, to HIV discordant couples (male partner HIV positive, female partner HIV negative). The idea of offering ART to HIV discordant couples generates concerns about safety and public health ...
journal_title:Journal of medical ethics
pub_type: 杂志文章,评审
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abstract:BACKGROUND:Desire for improvement in one's illness and having one's own doctor functioning as a researcher are thought to promote therapeutic misconception (TM), a phenomenon in which research subjects are said to conflate research with treatment. PURPOSE:To examine whether subjects' therapeutic motivation and own doc...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2013-101987
更新日期:2015-05-01 00:00:00
abstract:OBJECTIVES:To evaluate the UK undergraduate medical ethics curricula against the Institute of Medical Ethics (IME) recommendations; to identify barriers to teaching and assessment of medical ethics and to evaluate perceptions of ethics faculties on the preparation of tomorrow's doctors for clinical practice. DESIGN:Qu...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2015-103189
更新日期:2017-09-01 00:00:00
abstract::Jehovah's Witnesses are students of the Bible. They refuse transfusions out of obedience to the scriptural directive to abstain and keep from blood. Dr Muramoto disagrees with the Witnesses' religious beliefs in this regard. Despite this basic disagreement over the meaning of Biblical texts, Muramoto flouts the religi...
journal_title:Journal of medical ethics
pub_type: 杂志文章
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更新日期:1999-12-01 00:00:00
abstract::Until recently, moral case deliberation (MCD) sessions have mostly been facilitated by external experts, mainly professional ethicists. We have developed a train the facilitator programme for healthcare professionals aimed at providing them with the competences needed for being an MCD facilitator. In this paper, we pr...
journal_title:Journal of medical ethics
pub_type: 杂志文章,多中心研究
doi:10.1136/medethics-2012-100546
更新日期:2012-10-01 00:00:00
abstract::Fourteen experienced psychiatric nurses participated in a pilot study aimed at describing the experiential aspect of making decisions for the patient. In-depth interviews focused on conflicts, were transcribed, coded, and categorized according to the Grounded Theory method. The theoretical construct, 'modifying autono...
journal_title:Journal of medical ethics
pub_type: 杂志文章,评审
doi:10.1136/jme.20.2.101
更新日期:1994-06-01 00:00:00
abstract::In the context of military medical care, Eisenstein and colleagues have introduced the notion 'left of bang intervention in trauma', which refers to interventions administered before trauma to reduce morbidity and mortality after injury. This paper responds to Eisenstein and colleagues' ethical analysis of such interv...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/medethics-2017-104584
更新日期:2018-07-01 00:00:00
abstract::In their controversial paper 'After-birth abortion', Alberto Giubilini and Francesca Minerva argue that there is no rational basis for allowing abortion but prohibiting infanticide ('after-birth abortion'). We ought in all consistency either to allow both or prohibit both. This paper rejects their claim, arguing that ...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/medethics-2012-100629
更新日期:2013-05-01 00:00:00
abstract::Non-therapeutic circumcision violates boys' right to bodily integrity as well as to self-determination. There is neither any verifiable medical advantage connected with the intervention nor is it painless nor without significant risks. Possible negative consequences for the psychosexual development of circumcised boys...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2012-101284
更新日期:2013-07-01 00:00:00
abstract::Giubilini and Minerva argue that the permissibility of abortion entails the permissibility of infanticide. Proponents of what we refer to as the Birth Strategy claim that there is a morally significant difference brought about at birth that accounts for our strong intuition that killing newborns is morally impermissib...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2020-106781
更新日期:2020-10-26 00:00:00
abstract:BACKGROUND:Studies describing physicians' experiences with sedation at the end of life are indispensible for informed palliative care practice, but they are scarce. We describe the accounts of physicians from the USA and the Netherlands, two countries with different regulations on end-of-life decisions regarding their ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2012-100561
更新日期:2014-04-01 00:00:00
abstract:BACKGROUND:Because opioids can suppress respiratory drive, the principle of double effect (PDE) has been used to justify their use for terminally ill patients. Recent studies, however, suggest that the risk of respiratory depression in typical end-of-life (EOL) situations may be overstated and that heightened concern f...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2011-100105
更新日期:2012-03-01 00:00:00
abstract::The recent report of the UK government's Organ Donation Taskforce is in favour of continuing with the current organ donation system rather than changing to an opt-out system where people are assumed to be willing to donate. How did it reach this decision and is it correct? ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2009.031757
更新日期:2010-09-01 00:00:00
abstract::Teaching medical ethics to medical students in a pluralistic society is a challenging task. Teachers of ethics have obligations not just to teach the subject matter but to help create an academic environment in which well motivated students have reinforcement of their inherent good qualities. Emphasis should be placed...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.20.4.239
更新日期:1994-12-01 00:00:00
abstract::The paper considers and rejects two arguments against the performance of sexual reassignment surgery. First, it is argued that the operation is not mutilating, but functionally enabling. Second, it is argued that the operation is not objectionably deceptive, since, if there is such a thing as our 'real sex', we do not...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.13.2.86
更新日期:1987-06-01 00:00:00
abstract::Whenever some form of beneficent killing--for example, voluntary euthanasia--is advocated, the proposal is greeted with a flood of slippery-slope arguments warning of the dangers of a Nazi-style slide into genocide. This paper is an attempt systematically to evaluate arguments of this kind. Although there are slippery...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.19.3.169
更新日期:1993-09-01 00:00:00
abstract::While an ethical obligation to report findings of clinical research to trial participants is increasingly recognised, the academic debate is often vague about what kinds of data should be fed back and how such a process should be organised. In this article, we present a classification of different actors, processes an...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2009.034041
更新日期:2011-05-01 00:00:00
abstract::Transcranial direct current stimulation (tDCS), a simple means of brain stimulation, possesses a trifecta of appealing features: it is relatively safe, relatively inexpensive and relatively effective. It is also relatively easy to obtain a device and the do-it-yourself (DIY) community has become galvanised by reports ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2013-101458
更新日期:2015-05-01 00:00:00
abstract::In debates over life and death it is often said that one should err on the side of caution--that is, on the side of life. In the light of the recent case of Terri Schiavo, it is explained how the "err-on-the-side-of-life" argument proceeds, and an objection to it is offered. ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2007.023002
更新日期:2009-05-01 00:00:00
abstract::In medicine, racial differences are frequently presented as part of the best explanation of differences in the risk of diseases. The problem of using racial classification in biomedical research has become important because of its ethical consequences in society. However, the biological relevance of the concept of rac...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2011.043752
更新日期:2011-09-01 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2013-101587
更新日期:2015-04-01 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2015-103048
更新日期:2016-07-01 00:00:00
abstract::It is now widely accepted that a patient's ability to engage in autonomous decision-making can be seriously threatened when she denies significant aspects of her medical condition. In this paper I use a true case to reveal the harmful effects of physician denial upon patient autonomy and well-being. I suggest further ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.18.3.135
更新日期:1992-09-01 00:00:00
abstract::In this commentary on 'Why participating in (certain) scientific research is a moral duty', I take issue with a number of Stjernschantz Forsberg et al's claims. Though abiding by the terms of a contract might be obligatory, this won't show that those terms themselves indicate a duty--even allowing that there's a contr...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/medethics-2013-101370
更新日期:2014-05-01 00:00:00
abstract::In the light of increasing public mistrust, there is an urgent need to clarify the moral status of the medical profession and of the relationship of the clinician to his/her patients. In addressing this question, I first establish the coherence, within moral philosophy generally, of the concept of supererogation (the ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.28.2.70
更新日期:2002-04-01 00:00:00
abstract::In his classic paper, 'Why abortion is immoral', Don Marquis argues that what makes killing an adult seriously immoral is that it deprives the victim of the valuable future he/she would have otherwise had. Moreover, Marquis contends, because abortion deprives a fetus of the very same thing, aborting a fetus is just as...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2012-100604
更新日期:2013-02-01 00:00:00
abstract:OBJECTIVES:to assess physicians' and patients' views in Saudi Arabia (KSA) towards involving the patient versus the family in the process of diagnosis disclosure and decision-making, and to compare them with views from the USA and Japan. DESIGN:A self-completion questionnaire (used previously to study these issues in ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2006.019638
更新日期:2008-04-01 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2005.014720
更新日期:2006-10-01 00:00:00
abstract::Body art as expressed through non-therapeutic bodily modification is extremely popular, with techniques ranging from the commonplace such as ear piercing to the more esoteric forms such as tongue splitting. Scarification is one such body art practice that is becoming popular as an alternative to tattooing and ear pier...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2008.027615
更新日期:2009-10-01 00:00:00