Approaches to suffering at the end of life: the use of sedation in the USA and Netherlands.

abstract：:Confidentiality is a central bioethical principle governing the provider-patient relationship. Dating back to Hippocrates, new laws have interpreted it for the age of precision medicine and electronic medical records. This is where the discussion of privacy and technology often ends in the scientific health literature...

journal_title：Journal of medical ethics

authors： Aboujaoude E

更新日期：2019-09-01 00:00:00

abstract：:With the increase in the proportion of hospital deaths there is increasing debate about appropriateness of place of death. Death should be a family affair but is increasingly hidden from public view. In contrast to those who die at home, most of those who die in hospital die alone with no relatives or friends with the...

journal_title：Journal of medical ethics

authors： Bowling A

更新日期：1983-09-01 00:00:00

abstract：BACKGROUND:According to the Declaration of Helsinki, patients who take part in a clinical trial must be adequately informed about the trial's aims, methods, expected benefits, and potential risks. The declaration does not, however, elaborate on what "adequately informed" might amount to, in practice. Medical researcher...

journal_title：Journal of medical ethics

authors： Ferguson PR

更新日期：2002-02-01 00:00:00

abstract：:Johnson and Stricker published an opinion piece in the Journal of Medical Ethics presenting their perspective on the 2008 agreement between the Infectious Diseases Society of America (IDSA) and the Connecticut Attorney General with regard to the 2006 IDSA treatment guideline for Lyme disease. Their writings indicate t...

journal_title：Journal of medical ethics

authors： Auwaerter PG,Bakken JS,Dattwyler RJ,Dumler JS,Halperin JJ,McSweegan E,Nadelman RB,O'Connell S,Sood SK,Weinstein A,Wormser GP

更新日期：2011-02-01 00:00:00

abstract：:The issue of the allocation of resources in health care is here to stay. The goal of this study was to explore the views of physicians on several topics that have arisen in the debate on the allocation of scarce resources and to compare these with the views of policy makers. We asked physicians (oncologists, cardiolog...

journal_title：Journal of medical ethics

authors： van Delden JJ,Vrakking AM,van der Heide A,van der Maas PJ

更新日期：2004-04-01 00:00:00

abstract：:This personal narrative tugs at the heart strings. However, personal narratives are not sufficient to justify public funding for any screening policy. We have to take seriously the 'just caring' problem. We have only limited resources to meet virtually unlimited health care needs. No doubt, screening tests often save ...

journal_title：Journal of medical ethics

authors： Fleck LM

更新日期：2020-04-01 00:00:00

abstract：:The paternalistic view that decisions on whether to treat defective newborns are best made by physicians is rejected. It is contended that society should serve as the infant's protector by providing legal standards to govern treatment decisions. ...

journal_title：Journal of medical ethics

authors： Ferguson P

更新日期：1983-03-01 00:00:00

abstract：:Among bioethicists and members of the public, genetics is often regarded as unique in its ethical challenges. As medical researchers and clinicians increasingly combine genetic information with a range of non-genetic information in the study and clinical management of patients with common diseases, the unique ethical ...

journal_title：Journal of medical ethics

authors： Foster MW,Royal CD,Sharp RR

更新日期：2006-11-01 00:00:00

abstract：:Opioid and sedative use are common 'active' practices in the provision of mainstream palliative care services, and are typically distinguished from euthanasia on the basis that they do not shorten survival time. Even supposing that they did, it is often argued that they are justified and distinguished from euthanasia ...

journal_title：Journal of medical ethics

authors： Riisfeldt TD

更新日期：2019-02-01 00:00:00

abstract：:One theme of London University lawyer Ian Kennedy's 1980 Reith Lectures on medical ethics was the need to change the emphasis in physician patient relations from paternalism on the part of doctors to self determination on the part of patients. Bamford, a specialist in obstetrics and gynecology, demonstrates how reali...

journal_title：Journal of medical ethics

authors： Bamford PN

更新日期：1981-12-01 00:00:00

abstract：:The Brisbane Supreme Court has denied an Australian woman's request to harvest and freeze her dead fiancé's sperm for future impregnation. After she was denied access to the sperm, the woman learnt that her fiancé may have been a sperm donor and she began checking to find out if his sperm was still available. Given wh...

journal_title：Journal of medical ethics

authors： Spriggs M

更新日期：2004-08-01 00:00:00

abstract：:Reflecting on the contribution by Rahul Kumar to the symposium, I consider the following topics in relation to risks in research: (1) treating someone as a mere means; (2) aggregation; (3) different conceptions of contractualism; (4) uncertainty; (5) paternalism and complicity. ...

journal_title：Journal of medical ethics

authors： Kamm FM

更新日期：2017-02-01 00:00:00

abstract：:"Terminal sedation" refers to the use of sedation as palliation in dying patients with a terminal diagnosis. Although terminal sedation has received widespread legal and ethical justification, the practice remains ethically contentious, particularly as some hold that it foreseeably hastens death. It has been proposed ...

journal_title：Journal of medical ethics

authors： Cellarius V

更新日期：2008-02-01 00:00:00

abstract：:The right not to know is underappreciated in policy-making. Despite its articulation in medical law and ethics, policy-makers too easily let other concerns override the right not to know. This observation is triggered by a recent decision of the Dutch government on embryo selection for Huntington's disease. This is a ...

journal_title：Journal of medical ethics

authors： Asscher E,Koops BJ

更新日期：2010-01-01 00:00:00

abstract：:Newborn screening is the programme through which newborn babies are screened for a variety of conditions shortly after birth. Programmes such as this are individually oriented but resemble traditional public health programmes because they are targeted at large groups of the population and they are offered as preventiv...

journal_title：Journal of medical ethics

authors： Nicholls SG

更新日期：2012-05-01 00:00:00

abstract：:In the context of military medical care, Eisenstein and colleagues have introduced the notion 'left of bang intervention in trauma', which refers to interventions administered before trauma to reduce morbidity and mortality after injury. This paper responds to Eisenstein and colleagues' ethical analysis of such interv...

journal_title：Journal of medical ethics

authors： Liivoja R

更新日期：2018-07-01 00:00:00

abstract：:This article, prompted by an extended essay published in the Journal of Medical Ethics by Charles Foster, and the current controversy surrounding the case of Vincent Lambert, analyses the legal and ethical arguments in relation to the withdrawal of life-sustaining treatment from patients with prolonged disorders of co...

journal_title：Journal of medical ethics

authors： Ruck Keene ACE,Lee A

更新日期：2019-12-01 00:00:00

abstract：:Some disability rights advocates criticise prenatal testing and selective abortion on the grounds that these practices express negative attitudes towards existing persons with disabilities. Disability rights advocates also commonly criticise and oppose physician-assisted suicide (PAS) and euthanasia on the same ground...

journal_title：Journal of medical ethics

authors： Reed P

更新日期：2020-08-01 00:00:00

abstract：:Dental tourism is patients travelling across international borders with the intention of receiving dental care. It is a growing phenomenon that raises many ethical issues, particularly regarding the dentist-patient relationship. We discuss various issues related to this phenomenon, including patient autonomy over prac...

journal_title：Journal of medical ethics

authors： Conti A,Delbon P,Laffranchi L,Paganelli C

更新日期：2014-03-01 00:00:00

abstract：:Clinical genetics encompasses a wider range of activities than discussion of reproductive risks and options. Hence, it is possible for a clinical geneticist to reduce suffering associated with genetic disease without aiming to reduce the birth incidence of such diseases. Simple cost-benefit analyses of genetic-screeni...

journal_title：Journal of medical ethics

authors： Clarke A

更新日期：1993-03-01 00:00:00

abstract：:Fourteen experienced psychiatric nurses participated in a pilot study aimed at describing the experiential aspect of making decisions for the patient. In-depth interviews focused on conflicts, were transcribed, coded, and categorized according to the Grounded Theory method. The theoretical construct, 'modifying autono...

journal_title：Journal of medical ethics

authors： Lützén K,Nordin C

更新日期：1994-06-01 00:00:00

abstract：:This paper argues that the four prima facie principles-beneficence, non-maleficence, respect for autonomy and justice-afford a good and widely acceptable basis for 'doing good medical ethics'. It confronts objections that the approach is simplistic, incompatible with a virtue-based approach to medicine, that it requir...

journal_title：Journal of medical ethics

authors： Gillon R

更新日期：2015-01-01 00:00:00

abstract：:In a recent article in this journal, Anna Christensen raises an 'Epicurean challenge' to Don Marquis' much-discussed argument for the immorality of abortion. According to Marquis' argument, abortion is pro tanto morally wrong because it deprives the fetus of 'a future like ours'. Drawing on the Epicurean idea that dea...

journal_title：Journal of medical ethics

authors： Ekendahl K

更新日期：2020-04-01 00:00:00

abstract：:The present and future rapid increase in the hospital population of geriatric patients is discussed with particular reference to the problem of advanced brain degeneration. The consequences of various clinical management options are outlined and it is suggested that extreme attempts either to preserve or terminate lif...

journal_title：Journal of medical ethics

authors： Robertson GS

更新日期：1982-12-01 00:00:00

abstract：:It is a common feature of debates on the regulation of reproductive medicine to find law portrayed as a crude form of intervention consisting in the imposition of inflexible rules on doctors and medical researchers. This paper argues that this view must be replaced by a more accurate assessment of the law's potential ...

journal_title：Journal of medical ethics

authors： Jabbari D

更新日期：1990-03-01 00:00:00

abstract：:Screening of newborns for permanent congenital or early-onset hearing impairment has emerged as an essential component of neonatal care in developed countries, following favourable outcomes from early intervention in the critical period for optimal speech and language development. Progress towards a similar programme ...

journal_title：Journal of medical ethics

authors： Olusanya BO,Luxon LM,Wirz SL

更新日期：2006-10-01 00:00:00

abstract：:The recent essay by Schuklenk and Smalling opposing respect for physicians' conscientious objections to providing patients with medical services that are legally permitted in liberal democracies is based on several erroneous assumptions. Acting in this manner would have serious harmful effects on the ethos of medicine...

journal_title：Journal of medical ethics

authors： Glick SM,Jotkowitz A

更新日期：2017-04-01 00:00:00

abstract：:Explorations of bioethical issues frequently raise the question of an entity's "moral standing," or its right to moral consideration by rational agents. Many contemporary philosophers subscribe to Leonard Nelson's view that only beings that have interests have moral standing. Kuhse attempts to define interests and t...

journal_title：Journal of medical ethics

authors： Kuhse H

更新日期：1985-09-01 00:00:00

abstract：:Many children in the USA are prescribed psychotropic drugs that have not been fully investigated in paediatric clinical trials. The common practice of prescribing psychotropic drugs off-label poses unknown and potentially serious short- and long-term consequences for these children. This paper briefly reviews the fact...

journal_title：Journal of medical ethics

authors： Tishler CL,Reiss NS

更新日期：2012-04-01 00:00:00

abstract：:In 2016, the Office of the State Coroner of New South Wales released its report into the death of an Australian woman, Sheila Drysdale, who had died from complications of an autologous stem cell procedure at a Sydney clinic. In this report, we argue that Mrs Drysdale's death was avoidable, and it was the result of a p...

journal_title：Journal of medical ethics

authors： Lysaght T,Lipworth W,Hendl T,Kerridge I,Lee TL,Munsie M,Waldby C,Stewart C

更新日期：2017-11-01 00:00:00