Proceduralisation, choice and parental reflections on decisions to accept newborn bloodspot screening.

Abstract:

:Newborn screening is the programme through which newborn babies are screened for a variety of conditions shortly after birth. Programmes such as this are individually oriented but resemble traditional public health programmes because they are targeted at large groups of the population and they are offered as preventive interventions to a population considered healthy. As such, an ethical tension exists between the goals of promoting the high uptake of supposedly 'effective' population-oriented programmes and the goal of promoting genuinely informed decision-making. There is, however, a lack of understanding with regard to how parents experience the tension between promoting uptake and facilitating informed choice. This paper addresses this issue, and data are presented to show how aspects of the timing, presentation of information and procedural routinisation of newborn screening serves to impact on the decisions made by parents.

journal_name

J Med Ethics

authors

Nicholls SG

doi

10.1136/medethics-2011-100040

subject

Has Abstract

pub_date

2012-05-01 00:00:00

pages

299-303

issue

5

eissn

0306-6800

issn

1473-4257

pii

medethics-2011-100040

journal_volume

38

pub_type

杂志文章
  • Sex selection for social purposes in Israel: quest for the "perfect child" of a particular gender or centuries old prejudice against women?

    abstract::On 9 May 2005, the Israeli Ministry of Health issued guidelines spelling out the conditions under which sex selection by preimplantation genetic diagnosis (PGD) for social purposes is to be permitted in Israel. This article first reviews the available medical methods for sex selection, the preference for children of a...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2007.023226

    authors: Landau R

    更新日期:2008-09-01 00:00:00

  • NHS constitution values for values-based recruitment: a virtue ethics perspective.

    abstract::Values-based recruitment is used in England to select healthcare staff, trainees and students on the basis that their values align with those stated in the Constitution of the UK National Health Service (NHS). However, it is unclear whether the extensive body of existing literature within the field of moral philosophy...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2017-104503

    authors: Groothuizen JE,Callwood A,Gallagher A

    更新日期:2018-08-01 00:00:00

  • Empirical research in bioethical journals. A quantitative analysis.

    abstract:OBJECTIVES:The objective of this research is to analyse the evolution and nature of published empirical research in the fields of medical ethics and bioethics. DESIGN:Retrospective quantitative study of nine peer reviewed journals in the field of bioethics and medical ethics (Bioethics, Cambridge Quarterly of Healthca...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2004.011478

    authors: Borry P,Schotsmans P,Dierickx K

    更新日期:2006-04-01 00:00:00

  • The criminalisation of HIV transmission.

    abstract::Since Bennett, Draper, and Frith published a paper in this journal in 2000 considering the possible criminalisation of HIV transmission, an important legal development has taken place. February 2001 saw the first successful United Kingdom prosecution for the sexual transmission of disease for over a century, when Step...

    journal_title:Journal of medical ethics

    pub_type: 评论,杂志文章

    doi:10.1136/jme.28.3.160

    authors: Chalmers J

    更新日期:2002-06-01 00:00:00

  • The dead donor rule: effect on the virtuous practice of medicine.

    abstract:OBJECTIVE:The President's Council on Bioethics in 2008 reaffirmed the necessity of the dead donor rule and the legitimacy of the current criteria for diagnosing both neurological and cardiac death. In spite of this report,many have continued to express concerns about the ethics of donation after circulatory death, the ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2013-101333

    authors: Chaten FC

    更新日期:2014-07-01 00:00:00

  • Should we genetically test everyone for haemochromatosis?

    abstract::The increasing availability of DNA-based diagnostic tests has raised issues about whether these should be applied to the population at large in order to identify, treat or prevent a range of diseases. DNA tests raise concerns in the community for several reasons. There is the possibility of stigmatisation and discrimi...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.25.2.209

    authors: Allen K,Williamson R

    更新日期:1999-04-01 00:00:00

  • The Groningen Protocol for newborn euthanasia; which way did the slippery slope tilt?

    abstract::In The Netherlands, neonatal euthanasia has become a legal option and the Groningen Protocol contains an approach to identify situations in which neonatal euthanasia might be appropriate. In the 5 years following the publication of the protocol, neither the prediction that this would be the first step on a slippery sl...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2013-101402

    authors: Verhagen AA

    更新日期:2013-05-01 00:00:00

  • Are patents for methods of medical treatment contrary to the ordre public and morality or "generally inconvenient"?

    abstract::"No one has advanced a just and logical reason why reward for service to the public should be extended to the inventor of a mechanical toy and denied to the genius whose patience, foresight, and effort have given a valuable new [discovery] to mankind" (Katopis CJ. Patents v patents: policy implications of recent paten...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2002.000786

    authors: Mitnovetski O,Nicol D

    更新日期:2004-10-01 00:00:00

  • Functional neuroimaging and withdrawal of life-sustaining treatment from vegetative patients.

    abstract::Recent studies using functional magnetic resonance imaging of patients in a vegetative state have raised the possibility that such patients retain some degree of consciousness. In this paper, the ethical implications of such findings are outlined, in particular in relation to decisions about withdrawing life-sustainin...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2008.029165

    authors: Wilkinson DJ,Kahane G,Horne M,Savulescu J

    更新日期:2009-08-01 00:00:00

  • The retention of forensic DNA samples: a socio-ethical evaluation of current practices in the EU.

    abstract::Since the mid-1990s most EU Member States have established a national forensic DNA database. These mass repositories of DNA profiles enable the police to identify DNA stains which are found at crime scenes and are invaluable in criminal investigation. Governments have always brushed aside privacy objections by stressi...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2007.022012

    authors: Van Camp N,Dierickx K

    更新日期:2008-08-01 00:00:00

  • Euthanasia embedded in palliative care. Responses to essentialistic criticisms of the Belgian model of integral end-of-life care.

    abstract::The Belgian model of 'integral' end-of-life care consists of universal access to palliative care (PC) and legally regulated euthanasia. As a first worldwide, the Flemish PC organisation has embedded euthanasia in its practice. However, some critics have declared the Belgian-model concepts of 'integral PC' and 'palliat...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2016-103511

    authors: Bernheim JL,Raus K

    更新日期:2017-08-01 00:00:00

  • Publication ethics and the research assessment exercise: reflections on the troubled question of authorship.

    abstract::The research assessment exercise (RAE) forms the basis for determining the funding of higher education institutions in the UK. Monies are distributed according to a range of performance criteria, the most important of which is "research outputs". Problems to do with publication misconduct, and in particular, issues of...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.26.6.422

    authors: Sheikh A

    更新日期:2000-12-01 00:00:00

  • The premature breech: caesarean section or trial of labour?

    abstract::Obstetricians face difficult decisions when the interests of fetus and mother conflict. An example is the problem of choosing the delivery method when labour begins prematurely and the fetus is breech. Vaginal delivery involves risks for the breech fetus of brain damage or death caused by umbilical cord compression an...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章,评审

    doi:10.1136/jme.14.1.18

    authors: Anderson G,Strong C

    更新日期:1988-03-01 00:00:00

  • Sex selection and regulated hatred.

    abstract::This paper argues that the HFEA's recent report on sex selection abdicates its responsibility to give its own authentic advice on the matters within its remit, that it accepts arguments and conclusions that are implausible on the face of it and where they depend on empirical claims, produces no empirical evidence what...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2003.007526

    authors: Harris J

    更新日期:2005-05-01 00:00:00

  • Medical professionalism in the age of online social networking.

    abstract::The rapid emergence and exploding usage of online social networking forums, which are frequented by millions, present clinicians with new ethical and professional challenges. Particularly among a younger generation of physicians and patients, the use of online social networking forums has become widespread. In this ar...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2009.029231

    authors: Guseh JS 2nd,Brendel RW,Brendel DH

    更新日期:2009-09-01 00:00:00

  • Research ethics committees in Europe: implementing the directive, respecting diversity.

    abstract::With the recent Clinical Trials Directive, a degree of harmonisation into research ethics committees (RECs) across Europe, including the time taken to assess a trial proposal and the kinds of issues a committee should take into account, has been introduced by the European Union (EU). How four different member states-H...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2005.013888

    authors: Hedgecoe A,Carvalho F,Lobmayer P,Raka F

    更新日期:2006-08-01 00:00:00

  • Learning about death: a project report from the Edinburgh University Medical School.

    abstract::A report of a problem-based learning project on the ethics of terminal care, offered as one of the options available to first year MB ChB students in Edinburgh University Medical School. The project formed part of the 'clinical correlation course' in the new curriculum. Six students took part under the supervision of ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.7.2.62

    authors: Thompson IE,Lowther CP,Doyle D,Bird J,Turnbull J

    更新日期:1981-06-01 00:00:00

  • Resurrecting autonomy during resuscitation--the concept of professional substituted judgment.

    abstract::The urgency of the resuscitation and the impaired ability of the patient to make a reasonable autonomous decision both conspire against adequate consideration of the principles of medical ethics. Informed consent is usually not possible for these reasons and this leads many to consider that consent is not required for...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.25.5.375

    authors: Ardagh M

    更新日期:1999-10-01 00:00:00

  • What does 'quality' add? Towards an ethics of healthcare improvement.

    abstract::In this paper, we argue that there are important ethical questions about healthcare improvement which are underexplored. We start by drawing on two existing literatures: first, the prevailing, primarily governance-oriented, application of ethics to healthcare 'quality improvement' (QI), and second, the application of ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2019-105635

    authors: Cribb A,Entwistle V,Mitchell P

    更新日期:2020-02-01 00:00:00

  • Therapeutic privilege: between the ethics of lying and the practice of truth.

    abstract::The 'right to the truth' involves disclosing all the pertinent facts to a patient so that an informed decision can be made. However, this concept of a 'right to the truth' entails certain ambiguities, especially since it is difficult to apply the concept in medical practice based mainly on current evidence-based data ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2009.033340

    authors: Richard C,Lajeunesse Y,Lussier MT

    更新日期:2010-06-01 00:00:00

  • Random paired scenarios--a method for investigating attitudes to prioritisation in medicine.

    abstract:OBJECTIVE:This article describes a method for investigating attitudes towards prioritisation in medicine. SETTING:University of Kuopio, Finland. DESIGN:The method consisted of a set of 24 paired scenarios, which were imaginary patient cases, each containing three different ethical indicators randomly selected from a ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.22.4.238

    authors: Ryynänen OP,Myllykangas M,Vaskilampi T,Takala J

    更新日期:1996-08-01 00:00:00

  • Coercive offers and research participation: a comment on Wertheimer and Miller.

    abstract::Concepts such as 'coercion' and 'inducement' are often used within bioethics without much reflection upon what they mean. This is particularly so in research ethics where they are assumed to imply that payment for research participation is unethical. Wertheimer and Miller advance our thinking about these concepts and ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2010.035931

    authors: McMillan J

    更新日期:2010-07-01 00:00:00

  • A taxonomy of multinational ethical and methodological standards for clinical trials of therapeutic interventions.

    abstract:BACKGROUND:If trials of therapeutic interventions are to serve society's interests, they must be of high methodological quality and must satisfy moral commitments to human subjects. The authors set out to develop a clinical-trials compendium in which standards for the ethical treatment of human subjects are integrated ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2010.039255

    authors: Ashton CM,Wray NP,Jarman AF,Kolman JM,Wenner DM,Brody BA

    更新日期:2011-06-01 00:00:00

  • A plea for end-of-life discussions with patients suffering from Huntington's disease: the role of the physician.

    abstract::Euthanasia and physician-assisted suicide (PAS) by request and/or based on an advance directive are legal in The Netherlands under strict conditions, thus providing options for patients with Huntington's disease (HD) and other neurodegenerative diseases to stay in control and choose their end of life. HD is an inherit...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2011-100369

    authors: Booij SJ,Engberts DP,Rödig V,Tibben A,Roos RA

    更新日期:2013-10-01 00:00:00

  • The costs and benefits of a cigarette ban.

    abstract::The death toll from tobacco is staggering: it might contribute to one billion premature deaths over the course of the 21st century. In 'The case for banning cigarettes', Kalle Grill and Kristin Voigt argue that the well-being and equality benefits of a complete ban on cigarettes more than justify the restrictions on a...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2017-104172

    authors: Doucet M

    更新日期:2017-06-01 00:00:00

  • Community care--same problems, different epithet?

    abstract::A negative image of community care prevails. This method of care is perceived to be a relatively novel phenomenon and has received mixed media coverage. The negative image of community care has led to the growing belief that this care method has failed. This failure has largely been ascribed to the lack of powers avai...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.24.5.336

    authors: Glover N

    更新日期:1998-10-01 00:00:00

  • Information disclosure and decision-making: the Middle East versus the Far East and the West.

    abstract:OBJECTIVES:to assess physicians' and patients' views in Saudi Arabia (KSA) towards involving the patient versus the family in the process of diagnosis disclosure and decision-making, and to compare them with views from the USA and Japan. DESIGN:A self-completion questionnaire (used previously to study these issues in ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2006.019638

    authors: Mobeireek AF,Al-Kassimi F,Al-Zahrani K,Al-Shimemeri A,al-Damegh S,Al-Amoudi O,Al-Eithan S,Al-Ghamdi B,Gamal-Eldin M

    更新日期:2008-04-01 00:00:00

  • Translational ethics? The theory-practice gap in medical ethics.

    abstract::Translational research is now a critically important current in academic medicine. Researchers in all health-related fields are being encouraged not only to demonstrate the potential benefits of their research but also to help identify the steps through which their research might be 'made practical'. This paper consid...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2009.029785

    authors: Cribb A

    更新日期:2010-04-01 00:00:00

  • Women's reproductive autonomy: medicalisation and beyond.

    abstract::Reproductive autonomy is central to women's welfare both because childbearing takes place in women's bodies and because they are generally expected to take primary responsibility for child rearing. In 2005, the factors that influence their autonomy most strongly are poverty and belief systems that devalue such autonom...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章,评审

    doi:10.1136/jme.2004.013193

    authors: Purdy L

    更新日期:2006-05-01 00:00:00

  • 'I just need an opiate refill to get me through the weekend'.

    abstract::In this article, we discuss the ethical dimensions for the prescribing behaviours of opioids for a chronic pain patient, a scenario commonly witnessed by many physicians. The opioid epidemic in the USA and Canada is well known, existing since the late 1990s, and individuals are suffering and dying as a result of the e...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2018-105099

    authors: Yan E,Kuo DJ

    更新日期:2019-04-01 00:00:00