Abstract:
:Newborn screening is the programme through which newborn babies are screened for a variety of conditions shortly after birth. Programmes such as this are individually oriented but resemble traditional public health programmes because they are targeted at large groups of the population and they are offered as preventive interventions to a population considered healthy. As such, an ethical tension exists between the goals of promoting the high uptake of supposedly 'effective' population-oriented programmes and the goal of promoting genuinely informed decision-making. There is, however, a lack of understanding with regard to how parents experience the tension between promoting uptake and facilitating informed choice. This paper addresses this issue, and data are presented to show how aspects of the timing, presentation of information and procedural routinisation of newborn screening serves to impact on the decisions made by parents.
journal_name
J Med Ethicsjournal_title
Journal of medical ethicsauthors
Nicholls SGdoi
10.1136/medethics-2011-100040subject
Has Abstractpub_date
2012-05-01 00:00:00pages
299-303issue
5eissn
0306-6800issn
1473-4257pii
medethics-2011-100040journal_volume
38pub_type
杂志文章abstract::On 9 May 2005, the Israeli Ministry of Health issued guidelines spelling out the conditions under which sex selection by preimplantation genetic diagnosis (PGD) for social purposes is to be permitted in Israel. This article first reviews the available medical methods for sex selection, the preference for children of a...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2007.023226
更新日期:2008-09-01 00:00:00
abstract::Values-based recruitment is used in England to select healthcare staff, trainees and students on the basis that their values align with those stated in the Constitution of the UK National Health Service (NHS). However, it is unclear whether the extensive body of existing literature within the field of moral philosophy...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2017-104503
更新日期:2018-08-01 00:00:00
abstract:OBJECTIVES:The objective of this research is to analyse the evolution and nature of published empirical research in the fields of medical ethics and bioethics. DESIGN:Retrospective quantitative study of nine peer reviewed journals in the field of bioethics and medical ethics (Bioethics, Cambridge Quarterly of Healthca...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2004.011478
更新日期:2006-04-01 00:00:00
abstract::Since Bennett, Draper, and Frith published a paper in this journal in 2000 considering the possible criminalisation of HIV transmission, an important legal development has taken place. February 2001 saw the first successful United Kingdom prosecution for the sexual transmission of disease for over a century, when Step...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/jme.28.3.160
更新日期:2002-06-01 00:00:00
abstract:OBJECTIVE:The President's Council on Bioethics in 2008 reaffirmed the necessity of the dead donor rule and the legitimacy of the current criteria for diagnosing both neurological and cardiac death. In spite of this report,many have continued to express concerns about the ethics of donation after circulatory death, the ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2013-101333
更新日期:2014-07-01 00:00:00
abstract::The increasing availability of DNA-based diagnostic tests has raised issues about whether these should be applied to the population at large in order to identify, treat or prevent a range of diseases. DNA tests raise concerns in the community for several reasons. There is the possibility of stigmatisation and discrimi...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.25.2.209
更新日期:1999-04-01 00:00:00
abstract::In The Netherlands, neonatal euthanasia has become a legal option and the Groningen Protocol contains an approach to identify situations in which neonatal euthanasia might be appropriate. In the 5 years following the publication of the protocol, neither the prediction that this would be the first step on a slippery sl...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2013-101402
更新日期:2013-05-01 00:00:00
abstract::"No one has advanced a just and logical reason why reward for service to the public should be extended to the inventor of a mechanical toy and denied to the genius whose patience, foresight, and effort have given a valuable new [discovery] to mankind" (Katopis CJ. Patents v patents: policy implications of recent paten...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2002.000786
更新日期:2004-10-01 00:00:00
abstract::Recent studies using functional magnetic resonance imaging of patients in a vegetative state have raised the possibility that such patients retain some degree of consciousness. In this paper, the ethical implications of such findings are outlined, in particular in relation to decisions about withdrawing life-sustainin...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2008.029165
更新日期:2009-08-01 00:00:00
abstract::Since the mid-1990s most EU Member States have established a national forensic DNA database. These mass repositories of DNA profiles enable the police to identify DNA stains which are found at crime scenes and are invaluable in criminal investigation. Governments have always brushed aside privacy objections by stressi...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2007.022012
更新日期:2008-08-01 00:00:00
abstract::The Belgian model of 'integral' end-of-life care consists of universal access to palliative care (PC) and legally regulated euthanasia. As a first worldwide, the Flemish PC organisation has embedded euthanasia in its practice. However, some critics have declared the Belgian-model concepts of 'integral PC' and 'palliat...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2016-103511
更新日期:2017-08-01 00:00:00
abstract::The research assessment exercise (RAE) forms the basis for determining the funding of higher education institutions in the UK. Monies are distributed according to a range of performance criteria, the most important of which is "research outputs". Problems to do with publication misconduct, and in particular, issues of...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.26.6.422
更新日期:2000-12-01 00:00:00
abstract::Obstetricians face difficult decisions when the interests of fetus and mother conflict. An example is the problem of choosing the delivery method when labour begins prematurely and the fetus is breech. Vaginal delivery involves risks for the breech fetus of brain damage or death caused by umbilical cord compression an...
journal_title:Journal of medical ethics
pub_type: 杂志文章,评审
doi:10.1136/jme.14.1.18
更新日期:1988-03-01 00:00:00
abstract::This paper argues that the HFEA's recent report on sex selection abdicates its responsibility to give its own authentic advice on the matters within its remit, that it accepts arguments and conclusions that are implausible on the face of it and where they depend on empirical claims, produces no empirical evidence what...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2003.007526
更新日期:2005-05-01 00:00:00
abstract::The rapid emergence and exploding usage of online social networking forums, which are frequented by millions, present clinicians with new ethical and professional challenges. Particularly among a younger generation of physicians and patients, the use of online social networking forums has become widespread. In this ar...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2009.029231
更新日期:2009-09-01 00:00:00
abstract::With the recent Clinical Trials Directive, a degree of harmonisation into research ethics committees (RECs) across Europe, including the time taken to assess a trial proposal and the kinds of issues a committee should take into account, has been introduced by the European Union (EU). How four different member states-H...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2005.013888
更新日期:2006-08-01 00:00:00
abstract::A report of a problem-based learning project on the ethics of terminal care, offered as one of the options available to first year MB ChB students in Edinburgh University Medical School. The project formed part of the 'clinical correlation course' in the new curriculum. Six students took part under the supervision of ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.7.2.62
更新日期:1981-06-01 00:00:00
abstract::The urgency of the resuscitation and the impaired ability of the patient to make a reasonable autonomous decision both conspire against adequate consideration of the principles of medical ethics. Informed consent is usually not possible for these reasons and this leads many to consider that consent is not required for...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.25.5.375
更新日期:1999-10-01 00:00:00
abstract::In this paper, we argue that there are important ethical questions about healthcare improvement which are underexplored. We start by drawing on two existing literatures: first, the prevailing, primarily governance-oriented, application of ethics to healthcare 'quality improvement' (QI), and second, the application of ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2019-105635
更新日期:2020-02-01 00:00:00
abstract::The 'right to the truth' involves disclosing all the pertinent facts to a patient so that an informed decision can be made. However, this concept of a 'right to the truth' entails certain ambiguities, especially since it is difficult to apply the concept in medical practice based mainly on current evidence-based data ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2009.033340
更新日期:2010-06-01 00:00:00
abstract:OBJECTIVE:This article describes a method for investigating attitudes towards prioritisation in medicine. SETTING:University of Kuopio, Finland. DESIGN:The method consisted of a set of 24 paired scenarios, which were imaginary patient cases, each containing three different ethical indicators randomly selected from a ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.22.4.238
更新日期:1996-08-01 00:00:00
abstract::Concepts such as 'coercion' and 'inducement' are often used within bioethics without much reflection upon what they mean. This is particularly so in research ethics where they are assumed to imply that payment for research participation is unethical. Wertheimer and Miller advance our thinking about these concepts and ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.035931
更新日期:2010-07-01 00:00:00
abstract:BACKGROUND:If trials of therapeutic interventions are to serve society's interests, they must be of high methodological quality and must satisfy moral commitments to human subjects. The authors set out to develop a clinical-trials compendium in which standards for the ethical treatment of human subjects are integrated ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.039255
更新日期:2011-06-01 00:00:00
abstract::Euthanasia and physician-assisted suicide (PAS) by request and/or based on an advance directive are legal in The Netherlands under strict conditions, thus providing options for patients with Huntington's disease (HD) and other neurodegenerative diseases to stay in control and choose their end of life. HD is an inherit...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2011-100369
更新日期:2013-10-01 00:00:00
abstract::The death toll from tobacco is staggering: it might contribute to one billion premature deaths over the course of the 21st century. In 'The case for banning cigarettes', Kalle Grill and Kristin Voigt argue that the well-being and equality benefits of a complete ban on cigarettes more than justify the restrictions on a...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2017-104172
更新日期:2017-06-01 00:00:00
abstract::A negative image of community care prevails. This method of care is perceived to be a relatively novel phenomenon and has received mixed media coverage. The negative image of community care has led to the growing belief that this care method has failed. This failure has largely been ascribed to the lack of powers avai...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.24.5.336
更新日期:1998-10-01 00:00:00
abstract:OBJECTIVES:to assess physicians' and patients' views in Saudi Arabia (KSA) towards involving the patient versus the family in the process of diagnosis disclosure and decision-making, and to compare them with views from the USA and Japan. DESIGN:A self-completion questionnaire (used previously to study these issues in ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2006.019638
更新日期:2008-04-01 00:00:00
abstract::Translational research is now a critically important current in academic medicine. Researchers in all health-related fields are being encouraged not only to demonstrate the potential benefits of their research but also to help identify the steps through which their research might be 'made practical'. This paper consid...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2009.029785
更新日期:2010-04-01 00:00:00
abstract::Reproductive autonomy is central to women's welfare both because childbearing takes place in women's bodies and because they are generally expected to take primary responsibility for child rearing. In 2005, the factors that influence their autonomy most strongly are poverty and belief systems that devalue such autonom...
journal_title:Journal of medical ethics
pub_type: 杂志文章,评审
doi:10.1136/jme.2004.013193
更新日期:2006-05-01 00:00:00
abstract::In this article, we discuss the ethical dimensions for the prescribing behaviours of opioids for a chronic pain patient, a scenario commonly witnessed by many physicians. The opioid epidemic in the USA and Canada is well known, existing since the late 1990s, and individuals are suffering and dying as a result of the e...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2018-105099
更新日期:2019-04-01 00:00:00