Abstract:
:The advent of prenatal genetic diagnosis has sparked debates among ethicists and philosophers regarding parental responsibility towards potential offspring. Some have attempted to place moral obligations on parents to not bring about children with certain diseases in order to prevent harm to such children. There has been no rigorous evaluation of cystic fibrosis in this context. This paper will demonstrate cystic fibrosis to have unique properties that make it difficult to categorize among other diseases with the goal of promulgating a reproductive rule. Once this is established, it will be demonstrated that procreative rules that appeal to future health are inadequate in the era of advancing genetic knowledge. Utilising a specification of Joel Feinberg's 'open future' concept outlined by Matteo Mameli, it will offer an analysis of parental obligation that does not constrain parents of potential children with cystic fibrosis with a moral obligation not to bring them about.
journal_name
J Med Ethicsjournal_title
Journal of medical ethicsauthors
Bosslet GTdoi
10.1136/jme.2010.039230subject
Has Abstractpub_date
2011-05-01 00:00:00pages
280-4issue
5eissn
0306-6800issn
1473-4257pii
jme.2010.039230journal_volume
37pub_type
杂志文章abstract:AIM:Facebook is an increasingly popular online social networking site. The purpose of this study was to describe the Facebook activity of residents and fellows and their opinions regarding the impact of Facebook on the doctor-patient relationship. METHODS:An anonymous questionnaire was emailed to 405 residents and fel...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.036293
更新日期:2011-02-01 00:00:00
abstract::Conflict is an important consideration in the intensive care unit (ICU). In this setting, conflict most commonly occurs over the 'best interests' of the incapacitated adult patient; for instance, when families seek aggressive life-sustaining treatments, which are thought by the medical team to be potentially inappropr...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2020-106177
更新日期:2020-07-06 00:00:00
abstract::Opioid and sedative use are common 'active' practices in the provision of mainstream palliative care services, and are typically distinguished from euthanasia on the basis that they do not shorten survival time. Even supposing that they did, it is often argued that they are justified and distinguished from euthanasia ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2018-105074
更新日期:2019-02-01 00:00:00
abstract:OBJECTIVES:to assess physicians' and patients' views in Saudi Arabia (KSA) towards involving the patient versus the family in the process of diagnosis disclosure and decision-making, and to compare them with views from the USA and Japan. DESIGN:A self-completion questionnaire (used previously to study these issues in ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2006.019638
更新日期:2008-04-01 00:00:00
abstract::As the demand for healthcare rises, so does the need for priority setting in healthcare. In this paper, I consider a prominent priority-setting principle: proportional shortfall. My purpose is to argue that proportional shortfall, as a principle, should not be adopted. My key criticism is that proportional shortfall f...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2017-104488
更新日期:2018-05-01 00:00:00
abstract:BACKGROUND:There is little evidence of junior trainee perspectives in the design and implementation of medical ethics and law (MEL) curriculum in UK medical schools. AIM:To determine the ethical issues the foundation year 1 (FY1) doctors (first year after graduation) encountered during clinical practice and the skill...
journal_title:Journal of medical ethics
pub_type: 杂志文章,多中心研究
doi:10.1136/medethics-2011-100391
更新日期:2014-04-01 00:00:00
abstract::According to estimates more than 400 biobanks currently operate across Europe. The term 'biobank' indicates a specific field of genetic study that has quietly developed without any significant critical reflection across European societies. Although scientists now routinely use this phrase, the wider public is still co...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.041632
更新日期:2012-06-01 00:00:00
abstract:BACKGROUND:Financial conflict of interest in clinical research is an area of active debate. While data exist on the perspectives and roles of academic institutions, investigators, industry sponsors, and scientific journals, little is known about the perspectives of potential research participants. METHODS:The authors ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2002.001461
更新日期:2004-02-01 00:00:00
abstract:OBJECTIVE:This article describes a method for investigating attitudes towards prioritisation in medicine. SETTING:University of Kuopio, Finland. DESIGN:The method consisted of a set of 24 paired scenarios, which were imaginary patient cases, each containing three different ethical indicators randomly selected from a ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.22.4.238
更新日期:1996-08-01 00:00:00
abstract::The Brisbane Supreme Court has denied an Australian woman's request to harvest and freeze her dead fiancé's sperm for future impregnation. After she was denied access to the sperm, the woman learnt that her fiancé may have been a sperm donor and she began checking to find out if his sperm was still available. Given wh...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2003.004432
更新日期:2004-08-01 00:00:00
abstract::Dolores Dooley Clarke describes how the course in medical ethics at University College, Cork is structured, how it has changed and how it is likely to change as time goes on. Originally, the students seemed to view it as an intrusion 'to be tolerated' in their programme of 'strictly medical' studies. However, having m...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.4.1.36
更新日期:1978-03-01 00:00:00
abstract:OBJECTIVES:A statute enacted in 2005 modified the legislative framework of the rights of terminally ill persons in France. Ten years after the EURONIC study, which described the self-reported practices of neonatal caregivers towards ethical decision-making, a new study was conducted to assess the impact of the new law ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.038356
更新日期:2011-04-01 00:00:00
abstract::This essay argues that the field of bioethics should concern itself especially with the process of making moral sense that unfolds among clinicians, patients and family members during common but high-stakes conversations occurring on the front lines of practice. The essay outlines the parameters of a bioethics grounde...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2011-100084
更新日期:2012-04-01 00:00:00
abstract::In this paper, I explore the ethics of subject selection in the context of biomedical research. I reject a key principle of what I shall refer to as the standard view According to this principle, investigators should select participants so as to minimise aggregate risk to participants and maximise aggregate benefits t...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2015-103311
更新日期:2016-10-01 00:00:00
abstract::What happens when we discover that a severely mentally handicapped girl, resident under our care, is heavily pregnant? What options are open to us in her management? What are the legal and ethical issues involved? How do we ensure that she receives the best possible care and protection and will the involvement of the ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.15.4.197
更新日期:1989-12-01 00:00:00
abstract::The "standard position" on organ donation is that the donor must be dead in order for vital organs to be removed, a position with which we agree. Recently, Robert Truog and Walter Robinson have argued that (1) brain death is not death, and (2) even though "brain dead" patients are not dead, it is morally acceptable to...
journal_title:Journal of medical ethics
pub_type: 杂志文章,评审
doi:10.1136/jme.2004.010298
更新日期:2005-07-01 00:00:00
abstract::In popular lay discourse, objections to human biological enhancement technologies are sometimes expressed in terms of the charge that they are unnatural. This paper critiques the literal claim that seems to be presented here, namely that such technologies are in some ordinary sense 'unnatural' and that it follows from...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2018-104991
更新日期:2019-02-01 00:00:00
abstract::The feasibility of a common European code of medical ethics is discussed, with consideration and evaluation of the difficulties such a project is going to face, from both the legal and ethical points of view. On the one hand, the analysis will underline the limits of a common European code of medical ethics as an inst...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2015-102963
更新日期:2017-01-01 00:00:00
abstract::Dual-track assessment directs research ethics committees (RECs) to assess the risks of research interventions based on the unclear distinction between therapeutic and non-therapeutic interventions. The net risks test, in contrast, relies on the clinically familiar method of assessing the risks and benefits of interven...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2005.014043
更新日期:2007-08-01 00:00:00
abstract::With the increase in the proportion of hospital deaths there is increasing debate about appropriateness of place of death. Death should be a family affair but is increasingly hidden from public view. In contrast to those who die at home, most of those who die in hospital die alone with no relatives or friends with the...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.9.3.158
更新日期:1983-09-01 00:00:00
abstract::Human embryo models formed from stem cells-known as embryoids-allow scientists to study the elusive first stages of human development without having to experiment on actual human embryos. But clear ethical guidelines for research involving embryoids are still lacking. Previously, a handful of researchers put forward n...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2020-106493
更新日期:2021-01-05 00:00:00
abstract::For a few decades, patients with Parkinson's disease (PD) have been treated with intracerebral transplantations of fetal mesencephalic tissue. The results of open trials have been variable. Double blind, placebo-controlled studies have recently been started in order to further investigate the efficacy of this new medi...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.27.3.151
更新日期:2001-06-01 00:00:00
abstract::To many in India and elsewhere, the life and thoughts of Mohandas Karamchand Gandhi are a source of inspiration. The idea of non-violence was pivotal in his thinking. In this context, Gandhi reflected upon the possibility of what is now called 'euthanasia' and 'assisted suicide'. So far, his views on these practices h...
journal_title:Journal of medical ethics
pub_type: 传,历史文章,杂志文章
doi:10.1136/medethics-2011-100268
更新日期:2012-07-01 00:00:00
abstract::A considerable amount of publicity has recently centred on a few Lesbian couples who have successfully obtained artificial insemination by donor (AID) in order to have a child. Advice was orginally sought on a private basis from the Journal on the following case: now the issue is public knowledge, the doctor presentin...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.4.2.91
更新日期:1978-06-01 00:00:00
abstract::Understanding dental ethics as a field separate from its much better known counterpart, medical ethics, is a relatively new, but necessary approach in bioethics. This need is particularly felt in dental education and establishing a curriculum specifically for dental ethics is a challenging task. Although certain topic...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2011-100067
更新日期:2012-01-01 00:00:00
abstract:BACKGROUND:Discussing treatment risks has become increasingly important in medical communication. Still, despite regulations, physicians must decide how much and what kind of information to present. OBJECTIVE:To investigate patients' preference for information about a small risk of a complication of colonoscopy, and w...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2008.025031
更新日期:2009-05-01 00:00:00
abstract:OBJECTIVE:To study the preferences of patients for information related to elective procedures. METHODS:A survey was carried out using a sample of 187 women. The majority of whom were on a low-income, who obtained obstetric or gynaecological services at St Joseph Regional Medical Center in Milwaukee, Wisconsin, while t...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2005.014274
更新日期:2006-08-01 00:00:00
abstract::The Belgian model of 'integral' end-of-life care consists of universal access to palliative care (PC) and legally regulated euthanasia. As a first worldwide, the Flemish PC organisation has embedded euthanasia in its practice. However, some critics have declared the Belgian-model concepts of 'integral PC' and 'palliat...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2016-103511
更新日期:2017-08-01 00:00:00
abstract::Recently, there has been a lot of enthusiasm for mindfulness practice and its use in healthcare, businesses and schools. An increasing number of studies give us ground for cautious optimism about the potential of mindfulness-based interventions (MBIs) to improve people's lives across a number of dimensions. This paper...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2015-102942
更新日期:2016-07-01 00:00:00
abstract::In a recent case in the UK, six men stored their sperm before undergoing chemotherapy treatment for cancer in case they proved to be infertile after the treatment. The sperm was not properly stored and as a result was inadvertently destroyed. The men sued the NHS Trust that stored the sperm and were in the end success...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.042036
更新日期:2011-12-01 00:00:00