Abstract:
:This paper explores whether donor-parents felt coerced to donate a kidney to their child. There is a paucity of UK literature on parental live kidney donors and the voluntariness of their decision-making. Data were gathered as part of a study exploring parental experiences of consenting for live donation at a UK specialist children's hospital. Parents who donated a kidney to their child between September 2006 and December 2010 and who consented at their child's hospital to be referred to an adult unit for consideration for live donation were invited to participate. Of the 19 eligible parents, seven fathers and three mothers consented to be interviewed. Their primary motivation for donation was being a parent (more specifically, the parent of a sick child). Participants expressed this in terms of parental love and concern. Participants conveyed certainty about their decision and viewed live donation as a positive opportunity. Most participants regarded the decision to donate, or not donate, as one every parent is entitled to make for their own reasons. In discussing our findings, we argue that when parents do not separate their child's interests from their own, this does not necessarily compromise autonomous decision-making: using one's own moral values to constrain one's own choices can be compatible with voluntary decision-making. Indeed, choices may be more constrained when parents are unable to donate, because this reduces the options available to parents to help their child.
journal_name
J Med Ethicsjournal_title
Journal of medical ethicsauthors
Burnell P,Hulton SA,Draper Hdoi
10.1136/medethics-2013-101988subject
Has Abstractpub_date
2015-04-01 00:00:00pages
304-9issue
4eissn
0306-6800issn
1473-4257pii
medethics-2013-101988journal_volume
41pub_type
杂志文章abstract::In debates over life and death it is often said that one should err on the side of caution--that is, on the side of life. In the light of the recent case of Terri Schiavo, it is explained how the "err-on-the-side-of-life" argument proceeds, and an objection to it is offered. ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2007.023002
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journal_title:Journal of medical ethics
pub_type: 历史文章,杂志文章
doi:10.1136/jme.2008.028852
更新日期:2009-09-01 00:00:00
abstract::Ancillary care is care that research participants need that is not essential to make the research safe or scientifically valid and is not needed to remedy injuries that eventuate as a result of the research project itself. Ancillary care duties have recently been defended on the grounds of beneficence, entrustment, ut...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.035758
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abstract::The aim of regenerative medicine is to reconstruct tissue that has been lost or pathologically altered. Therapeutic cloning seems to offer a method of achieving this aim; however, the ethical debate surrounding human therapeutic cloning is highly controversial. Artificial parthenogenesis-obtaining embryos from unferti...
journal_title:Journal of medical ethics
pub_type: 历史文章,杂志文章,评审
doi:10.1136/jme.2004.010199
更新日期:2005-12-01 00:00:00
abstract::Public and healthcare professionals differ in their attitudes towards euthanasia and physician-assisted suicide (PAS), the legal status of which is currently in the spotlight in the UK. In addition to medical training and experience, religiosity, locus of control and patient characteristics (eg, patient age, pain leve...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2012-100729
更新日期:2013-11-01 00:00:00
abstract::Non-therapeutic circumcision violates boys' right to bodily integrity as well as to self-determination. There is neither any verifiable medical advantage connected with the intervention nor is it painless nor without significant risks. Possible negative consequences for the psychosexual development of circumcised boys...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2012-101284
更新日期:2013-07-01 00:00:00
abstract::A patient is described, a woman of 60, who at that age was diagnosed as having Huntington's chorea, a genetic disease which is transmitted as an autosomal dominant. She had one daughter, who was married and lived abroad. The patient's mother and maternal aunt, it emerged during the consultations, had had the disease, ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:
更新日期:1976-03-01 00:00:00
abstract:OBJECTIVE:This article describes a method for investigating attitudes towards prioritisation in medicine. SETTING:University of Kuopio, Finland. DESIGN:The method consisted of a set of 24 paired scenarios, which were imaginary patient cases, each containing three different ethical indicators randomly selected from a ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.22.4.238
更新日期:1996-08-01 00:00:00
abstract::The Belgian model of 'integral' end-of-life care consists of universal access to palliative care (PC) and legally regulated euthanasia. As a first worldwide, the Flemish PC organisation has embedded euthanasia in its practice. However, some critics have declared the Belgian-model concepts of 'integral PC' and 'palliat...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2016-103511
更新日期:2017-08-01 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2012-101315
更新日期:2014-10-01 00:00:00
abstract::Sterilisation is the most desired method of contraception worldwide. In 1996, the Brazilian Congress approved a family planning law that legitimised female and male sterilisation, but forbade sterilisation during childbirth. As a result of this law, procedures currently occur in a clandestine nature upon payment. Desp...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2012-101142
更新日期:2013-11-01 00:00:00
abstract:OBJECTIVES:To explore attitudes and reasoning among Swedish physicians and the general public regarding the withdrawal of life-sustaining treatment at a competent patient's request. DESIGN:A vignette-based postal questionnaire including 1202 randomly selected individuals in the county of Stockholm and 1200 randomly se...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2009.034967
更新日期:2010-05-01 00:00:00
abstract::A National Committee for the Ethics of Research could consider new questions arising from innovations in research or practice, deal with multi-centre trials, adjudicate when separate local committees give conflicting advice about similar projects, or oversee the work of district committees. The value of each of these ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.16.3.146
更新日期:1990-09-01 00:00:00
abstract::Recently, there has been a lot of enthusiasm for mindfulness practice and its use in healthcare, businesses and schools. An increasing number of studies give us ground for cautious optimism about the potential of mindfulness-based interventions (MBIs) to improve people's lives across a number of dimensions. This paper...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2015-102942
更新日期:2016-07-01 00:00:00
abstract::In their paper 'The "serious" factor in germline modification', Kleiderman, Ravitsky and Knoppers rightly highlight the ambiguity in the oft-utilised term 'serious' in legal discussions of human germline genome modification.1 They suggest interpretation of this term may benefit from a framework based on human rights r...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/medethics-2019-105764
更新日期:2020-02-01 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.8.1.21
更新日期:1982-03-01 00:00:00
abstract:AIM:The primary aim of the study was to evaluate two different methods of communicating information on cardiopulmonary resuscitation (CPR) to patients admitted to general medical and elderly care wards. The information was either in the form of a detailed information leaflet (appendix I) or a summary document (appendix...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2002.002915
更新日期:2004-06-01 00:00:00
abstract:BACKGROUND:There is little research into medical students' or doctors' attitudes to abortion, yet knowing this is important, as policy makers should be aware of the views held by professionals directly involved in abortion provision and changing views may have practical implications for the provision of abortion in the...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2007.023416
更新日期:2008-11-01 00:00:00
abstract::On 9 May 2005, the Israeli Ministry of Health issued guidelines spelling out the conditions under which sex selection by preimplantation genetic diagnosis (PGD) for social purposes is to be permitted in Israel. This article first reviews the available medical methods for sex selection, the preference for children of a...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2007.023226
更新日期:2008-09-01 00:00:00
abstract::Transplant coordinators play a pivotal role in the process of obtaining consent for live or dead donation of organs. The objective of the project is to unveil emotional experiences and ethical conduct of transplant coordinators using a qualitative research methodology. Ten transplant coordinators who have worked for m...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2019-105593
更新日期:2020-07-28 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2020-106192
更新日期:2020-11-25 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2011-100194
更新日期:2012-07-01 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2010.036293
更新日期:2011-02-01 00:00:00
abstract::'Futility' is a contentious term that has eluded clear definition, with proposed descriptions either too strict or too vague to encompass the many facets of medical care. Requests for futile care are often surrogates for requests of a more existential character, covering the whole range of personal, emotional, cultura...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/medethics-2020-106232
更新日期:2020-04-24 00:00:00
abstract:BACKGROUND:Financial conflict of interest in clinical research is an area of active debate. While data exist on the perspectives and roles of academic institutions, investigators, industry sponsors, and scientific journals, little is known about the perspectives of potential research participants. METHODS:The authors ...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2002.001461
更新日期:2004-02-01 00:00:00
abstract::This reply to John F Catherwood's criticism of brain-related criteria for death argues that brainstem criteria are neither reductionist nor do they presuppose a materialist theory of mind. Furthermore, it is argued that brain-related criteria are compatible with the majority of religious views concerning death. ...
journal_title:Journal of medical ethics
pub_type: 评论,杂志文章
doi:10.1136/jme.18.1.40
更新日期:1992-03-01 00:00:00
abstract::With so much attention being paid to the development and refinement of appropriate criteria and tests for death, little attention has been given to the broader conceptual issues having to do with its definition or with the relation of a definition to its criterion. The task of selecting the correct criterion is, howev...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.21.5.270
更新日期:1995-10-01 00:00:00
abstract:OBJECTIVE:To study the preferences of patients for information related to elective procedures. METHODS:A survey was carried out using a sample of 187 women. The majority of whom were on a low-income, who obtained obstetric or gynaecological services at St Joseph Regional Medical Center in Milwaukee, Wisconsin, while t...
journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.2005.014274
更新日期:2006-08-01 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章
doi:10.1136/jme.29.2.97
更新日期:2003-04-01 00:00:00
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journal_title:Journal of medical ethics
pub_type: 杂志文章,评审
doi:10.1136/medethics-2017-104705
更新日期:2018-07-01 00:00:00