Understanding respect: learning from patients.

Abstract:

BACKGROUND:The importance of respecting patients and participants in clinical research is widely recognised. However, what it means to respect persons beyond recognising them as autonomous is unclear, and little is known about what patients find to be respectful. OBJECTIVE:To understand patients' conceptions of respect and what it means to be respected by medical providers. DESIGN:Qualitative study from an academic cardiology clinic, using semistructured interviews with 18 survivors of sudden cardiac death. RESULTS:Patients believed that respecting persons incorporates the following major elements: empathy, care, autonomy, provision of information, recognition of individuality, dignity and attention to needs. CONCLUSIONS:Making patients feel respected, or valued as a person, is a multi-faceted task that involves more than recognising autonomy. While patients' views of respect do not determine what respect means, these patients expressed important intuitions that may be of substantial conceptual relevance.

journal_name

J Med Ethics

authors

Dickert NW,Kass NE

doi

10.1136/jme.2008.027235

subject

Has Abstract

pub_date

2009-07-01 00:00:00

pages

419-23

issue

7

eissn

0306-6800

issn

1473-4257

pii

35/7/419

journal_volume

35

pub_type

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