Discovering misattributed paternity in genetic counselling: different ethical perspectives in two countries.

Abstract:

:Misattributed paternity or 'false' paternity is when a man is wrongly thought, by himself and possibly by others, to be the biological father of a child. Nowadays, because of the progression of genetics and genomics the possibility of finding misattributed paternity during familial genetic testing has increased. In contrast to other medical information, which pertains primarily to individuals, information obtained by genetic testing and/or pedigree analysis necessarily has implications for other biologically related members in the family. Disclosing or not a misattributed paternity has a number of different biological and social consequences for the people involved. Such an issue presents important ethical and deontological challenges. The debate centres on whether or not to inform the family and, particularly, whom in the family, about the possibility that misattributed paternity might be discovered incidentally, and whether or not it is the duty of the healthcare professional (HCP) to disclose the results and to whom. In this paper, we consider the different perspectives and reported problems, and analyse their cultural, ethical and legal dimensions. We compare the position of HCPs from an Italian and British point of view, particularly their role in genetic counselling. We discuss whether the Oviedo Convention of the Council of Europe (1997) can be seen as a basis for enriching the debate.

journal_name

J Med Ethics

authors

Tozzo P,Caenazzo L,Parker MJ

doi

10.1136/medethics-2012-101062

subject

Has Abstract

pub_date

2014-03-01 00:00:00

pages

177-81

issue

3

eissn

0306-6800

issn

1473-4257

pii

medethics-2012-101062

journal_volume

40

pub_type

杂志文章
  • What does 'quality' add? Towards an ethics of healthcare improvement.

    abstract::In this paper, we argue that there are important ethical questions about healthcare improvement which are underexplored. We start by drawing on two existing literatures: first, the prevailing, primarily governance-oriented, application of ethics to healthcare 'quality improvement' (QI), and second, the application of ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2019-105635

    authors: Cribb A,Entwistle V,Mitchell P

    更新日期:2020-02-01 00:00:00

  • "Idiots, infants, and the insane": mental illness and legal incompetence.

    abstract::Prior to the second world war, most persons confined in insane asylums were regarded as legally incompetent and had guardians appointed for them. Today, most persons confined in mental hospitals (or treated involuntarily, committed to outpatient treatment) are, in law, competent; nevertheless, in fact, they are treate...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章,评审

    doi:10.1136/jme.2004.008748

    authors: Szasz T

    更新日期:2005-02-01 00:00:00

  • Examining consent within the patient-doctor relationship.

    abstract::The notion of consent which rose to the forefront in biomedical ethics as an attempt to safeguard patients' autonomy, is relatively new. The notion itself requires qualification, for it precludes neither duress nor ignorance. More seriously, I argue here that consent is redundant except in situations where paternalism...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.26.3.183

    authors: Habiba MA

    更新日期:2000-06-01 00:00:00

  • Publish or be damned: Individual Funding Requests and the publicity condition.

    abstract::Many jurisdictions have processes to consider Individual Funding Requests but, with few exceptions, the decisions made with respect to these are not made public. Drawing upon Daniels and Sabin's account of the requirements of procedural justice, Accountability for Reasonableness, this paper considers several arguments...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2013-101578

    authors: Jonas M,Kolbe A,Warin B

    更新日期:2014-12-01 00:00:00

  • Genetic privacy: orthodoxy or oxymoron?

    abstract::In this paper we question whether the concept of "genetic privacy" is a contradiction in terms. And, if so, whether the implications of such a conclusion, inevitably impact on how society comes to perceive privacy and responsibility generally. Current law and ethical discourse place a high value on self-determination ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.25.2.144

    authors: Sommerville A,English V

    更新日期:1999-04-01 00:00:00

  • Potential research participants' views regarding researcher and institutional financial conflicts of interest.

    abstract:BACKGROUND:Financial conflict of interest in clinical research is an area of active debate. While data exist on the perspectives and roles of academic institutions, investigators, industry sponsors, and scientific journals, little is known about the perspectives of potential research participants. METHODS:The authors ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2002.001461

    authors: Kim SY,Millard RW,Nisbet P,Cox C,Caine ED

    更新日期:2004-02-01 00:00:00

  • Medical decision making in scarcity situations.

    abstract::The issue of the allocation of resources in health care is here to stay. The goal of this study was to explore the views of physicians on several topics that have arisen in the debate on the allocation of scarce resources and to compare these with the views of policy makers. We asked physicians (oncologists, cardiolog...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2003.003681

    authors: van Delden JJ,Vrakking AM,van der Heide A,van der Maas PJ

    更新日期:2004-04-01 00:00:00

  • A comparison of journal instructions regarding institutional review board approval and conflict-of-interest disclosure between 1995 and 2005.

    abstract:OBJECTIVES:To compare 2005 and 1995 ethics guidelines from journal editors to authors regarding requirements for institutional review board (IRB) approval and conflict-of-interest (COI) disclosure. DESIGN:A descriptive study of the ethics guidelines published in 103 English-language biomedical journals listed in the A...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2008.024299

    authors: Rowan-Legg A,Weijer C,Gao J,Fernandez C

    更新日期:2009-01-01 00:00:00

  • Ethically complex decisions in the neonatal intensive care unit: impact of the new French legislation on attitudes and practices of physicians and nurses.

    abstract:OBJECTIVES:A statute enacted in 2005 modified the legislative framework of the rights of terminally ill persons in France. Ten years after the EURONIC study, which described the self-reported practices of neonatal caregivers towards ethical decision-making, a new study was conducted to assess the impact of the new law ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2010.038356

    authors: Garel M,Caeymaex L,Goffinet F,Cuttini M,Kaminski M

    更新日期:2011-04-01 00:00:00

  • A reply to Joseph Bernstein.

    abstract::Dr. Bernstein suggests that anti-vivisectionists should be able to fill in a directive requesting that they receive no medical treatment developed through work on animals. It is replied that this would only be reasonable if research not using animals had long been funded as adequately and its results were currently av...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.22.5.302

    authors: Sprigge T

    更新日期:1996-10-01 00:00:00

  • Confidentiality and the law.

    abstract::Codes of medical ethics issued by professional organizations typically contain statements affirming the importance of confidentiality between patients and health-care practitioners. Seldom, however, is the confidentiality obligation depicted as absolute. Instead, exceptions are noted, the most common of which is that ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.20.1.47

    authors: McConnell T

    更新日期:1994-03-01 00:00:00

  • Whatever happened to medical politics?

    abstract::This paper argues the case for coming to see 'medical politics' as a topic or subject within medical education. First, its absence is noted from the wide array of paramedical subjects (medical ethics, history of medicine, the medical humanities, etc) currently given attention in both the medical education literature a...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2010.041277

    authors: Emmerich N

    更新日期:2011-10-01 00:00:00

  • Limits of confidentiality.

    abstract::A patient is described, a woman of 60, who at that age was diagnosed as having Huntington's chorea, a genetic disease which is transmitted as an autosomal dominant. She had one daughter, who was married and lived abroad. The patient's mother and maternal aunt, it emerged during the consultations, had had the disease, ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:

    authors:

    更新日期:1976-03-01 00:00:00

  • Lesbian couples: should help extend to AID?

    abstract::A considerable amount of publicity has recently centred on a few Lesbian couples who have successfully obtained artificial insemination by donor (AID) in order to have a child. Advice was orginally sought on a private basis from the Journal on the following case: now the issue is public knowledge, the doctor presentin...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.4.2.91

    authors:

    更新日期:1978-06-01 00:00:00

  • Sex selection and regulated hatred.

    abstract::This paper argues that the HFEA's recent report on sex selection abdicates its responsibility to give its own authentic advice on the matters within its remit, that it accepts arguments and conclusions that are implausible on the face of it and where they depend on empirical claims, produces no empirical evidence what...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2003.007526

    authors: Harris J

    更新日期:2005-05-01 00:00:00

  • Low risk research using routinely collected identifiable health information without informed consent: encounters with the Patient Information Advisory Group.

    abstract::Current UK legislation is impacting upon the feasibility and cost-effectiveness of medical record-based research aimed at benefiting the NHS and the public heath. Whereas previous commentators have focused on the Data Protection Act 1998, the Health and Social Care Act 2001 is the key legislation for public health res...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2006.019661

    authors: Metcalfe C,Martin RM,Noble S,Lane JA,Hamdy FC,Neal DE,Donovan JL

    更新日期:2008-01-01 00:00:00

  • Coercive offers and research participation: a comment on Wertheimer and Miller.

    abstract::Concepts such as 'coercion' and 'inducement' are often used within bioethics without much reflection upon what they mean. This is particularly so in research ethics where they are assumed to imply that payment for research participation is unethical. Wertheimer and Miller advance our thinking about these concepts and ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2010.035931

    authors: McMillan J

    更新日期:2010-07-01 00:00:00

  • The great slippery-slope argument.

    abstract::Whenever some form of beneficent killing--for example, voluntary euthanasia--is advocated, the proposal is greeted with a flood of slippery-slope arguments warning of the dangers of a Nazi-style slide into genocide. This paper is an attempt systematically to evaluate arguments of this kind. Although there are slippery...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.19.3.169

    authors: Burgess JA

    更新日期:1993-09-01 00:00:00

  • A television triumph about death and dying.

    abstract::Towers reviews Joan Robinson: One Woman's Story, an American documentary film about a terminal cancer patient that was first broadcast by the Public Broadcasting Service on 21 January 1980. The film was made at the instigation of Robinson, a writer and editor, and covers the last twenty-two months of her life from th...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.6.2.101

    authors: Towers B

    更新日期:1980-06-01 00:00:00

  • The medical student global health experience: professionalism and ethical implications.

    abstract::Medical student and resident participation in global health experiences (GHEs) has significantly increased over the last decade. In response to growing student interest and the proven impact of such experiences on the education and career decisions of resident physicians, many medical schools have begun to establish p...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.2006.019265

    authors: Shah S,Wu T

    更新日期:2008-05-01 00:00:00

  • Spontaneous abortion and unexpected death: a critical discussion of Marquis on abortion.

    abstract::In his classic paper, 'Why abortion is immoral', Don Marquis argues that what makes killing an adult seriously immoral is that it deprives the victim of the valuable future he/she would have otherwise had. Moreover, Marquis contends, because abortion deprives a fetus of the very same thing, aborting a fetus is just as...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2012-100604

    authors: Coleman MC

    更新日期:2013-02-01 00:00:00

  • Publication ethics and the research assessment exercise: reflections on the troubled question of authorship.

    abstract::The research assessment exercise (RAE) forms the basis for determining the funding of higher education institutions in the UK. Monies are distributed according to a range of performance criteria, the most important of which is "research outputs". Problems to do with publication misconduct, and in particular, issues of...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.26.6.422

    authors: Sheikh A

    更新日期:2000-12-01 00:00:00

  • The ethics of clinical trials.

    abstract::In summary, the discussion by Professors Helmchen and Müller-Oerlinghausen of the morality of clinical trials has emphasized a point that is frequently overlooked. It is an essential to consider those situations in which it might be unethical not to conduct a trial as it is to be concerned about the ways in which tria...

    journal_title:Journal of medical ethics

    pub_type: 临床试验,杂志文章

    doi:10.1136/jme.1.4.174

    authors: Wing JK

    更新日期:1975-12-01 00:00:00

  • The criminalisation of HIV transmission.

    abstract::Since Bennett, Draper, and Frith published a paper in this journal in 2000 considering the possible criminalisation of HIV transmission, an important legal development has taken place. February 2001 saw the first successful United Kingdom prosecution for the sexual transmission of disease for over a century, when Step...

    journal_title:Journal of medical ethics

    pub_type: 评论,杂志文章

    doi:10.1136/jme.28.3.160

    authors: Chalmers J

    更新日期:2002-06-01 00:00:00

  • Artificial nutrition and hydration in the patient with advanced dementia: is withholding treatment compatible with traditional Judaism?

    abstract::Several religious traditions are widely believed to advocate the use of life-sustaining treatment in all circumstances. Hence, many believe that these faiths would require the use of a feeding tube in patients with advanced dementia who have lost interest in or the capacity to swallow food. This article explores wheth...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.27.1.12

    authors: Gillick MR

    更新日期:2001-02-01 00:00:00

  • Medicine as an essentially contested concept.

    abstract::W B Gallie's notion of essentially contested concepts remains of philosophical interest. I argue that medicine is one such concept and look at the consequences of this as regards the inappropriateness of looking for definitions and necessary and sufficient conditions to settle debates about what medicine is and is not...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.29.4.261

    authors: McKnight C

    更新日期:2003-08-01 00:00:00

  • Boxing clever.

    abstract::This is the first contribution to a new JME column, "At the coalface," to which readers are invited to relate ethical problems they have encountered in their work. An adolescent patient requested that the author, a general practitioner, certify that he was medically fit to box. Toon attempted to dissuade him from bo...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.14.2.69

    authors: Toon PD

    更新日期:1988-06-01 00:00:00

  • What (or sometimes who) are organoids? And whose are they?

    abstract::In terms of ethical implications, Boers, van Delden and Bredenoord (2018) have made an interesting step forward with their model of organoids as hybrids, which seeks to find a balance between subject-like value and object-like value. Their framework aims to introduce effective procedures not to exploit donors and to i...

    journal_title:Journal of medical ethics

    pub_type: 评论,杂志文章

    doi:10.1136/medethics-2018-105268

    authors: Lavazza A

    更新日期:2019-02-01 00:00:00

  • A matter of life and death: controversy at the interface between clinical and legal decision-making in prolonged disorders of consciousness.

    abstract::Best interests decision-making and end-of-life care for patients in permanent vegetative or minimally conscious states (VS/MCS) is a complex area of clinical and legal practice, which is poorly understood by most clinicians, lawyers and members of the public. In recent weeks, the Oxford Shrieval lecture by Mr Justice ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/medethics-2016-104057

    authors: Turner-Stokes L

    更新日期:2017-07-01 00:00:00

  • Learning about death: a project report from the Edinburgh University Medical School.

    abstract::A report of a problem-based learning project on the ethics of terminal care, offered as one of the options available to first year MB ChB students in Edinburgh University Medical School. The project formed part of the 'clinical correlation course' in the new curriculum. Six students took part under the supervision of ...

    journal_title:Journal of medical ethics

    pub_type: 杂志文章

    doi:10.1136/jme.7.2.62

    authors: Thompson IE,Lowther CP,Doyle D,Bird J,Turnbull J

    更新日期:1981-06-01 00:00:00