Abstract：
BACKGROUND:Caregivers of children with fetal alcohol spectrum disorders (FASD) have elevated levels of stress, which can negatively impact family functioning and caregivers' mental and physical health. Self-care is a critical resource to address caregivers' stress. AIMS:This study describes strategies and obstacles related to self-care reported by caregivers of children with FASD. It also examines how caregivers' perceived confidence in and frequency of self-care is related to stress, parenting attitudes, and family needs. METHODS & PROCEDURES:Forty-six caregivers of children with FASD identified self-care strategies and obstacles and rated their confidence and frequency of self-care. Additional measures of perceived parenting efficacy, stress, family needs, child behavior, and family demographics were administered. Correlation analyses examined associations between self-care and measures of child and family functioning. RESULTS:Self-care strategies and obstacles were varied. Greater reported confidence in self-care was associated with less parental distress and more satisfaction in the parenting role. Frequency of self-care was positively associated with confidence in self-care but not with any other measure of family functioning. CONCLUSIONS:Caregivers use a variety of strategies and face significant obstacles in self-care. Confidence in self-care may be associated with lower stress and greater satisfaction in the parenting role.
journal_name
Res Dev Disabiljournal_title
Research in developmental disabilitiesauthors
Kautz C,Parr J,Petrenko CLMdoi
10.1016/j.ridd.2020.103578subject
Has Abstractpub_date
2020-01-31 00:00:00pages
103578eissn
0891-4222issn
1873-3379pii
S0891-4222(20)30008-1journal_volume
99pub_type
杂志文章abstract：:The Test of Gross Motor Development-II (TGMD-II) is a frequently used assessment tool for measuring motor ability. The purpose of this study is to investigate the reliability and validity of TGMD-II's weighting scores (by comparing pre-weighted TGMD-II scores with post ones) as well as examine applicability of the TGM...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.01.019
更新日期：2014-04-01 00:00:00
abstract：:Raising a child with Down syndrome (DS) has been found to be associated with lowered health related quality of life (HRQoL) in the domains cognitive functioning, social functioning, daily activities and vitality. We aimed to explore which socio-demographics, child functioning and psychosocial variables were related to...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2013.09.011
更新日期：2013-11-01 00:00:00
abstract：:This study estimated medical expenditures attributable to cerebral palsy (CP) among children enrolled in Medicaid, stratified by the presence of co-occurring intellectual disability (ID), relative to children without CP or ID. The MarketScan(®) Medicaid Multi-State database was used to identify children with CP for 20...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2011.12.001
更新日期：2012-05-01 00:00:00
abstract：:Errorless learning is an instructional strategy used widely with individuals with intellectual and developmental disabilities. The present systematic review aims to update the literature on the application of 'within-stimulus' errorless procedures. The protocol was registered with PROSPERO (CRD42018118385). Twenty-eig...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2019.103521
更新日期：2020-02-01 00:00:00
abstract：:This meta-analysis examined the effect of behavioral parent training on child and parental outcomes for children with attention deficit hyperactivity disorder. Meta-analytic procedures were used to estimate the effect of behavioral parent training on children with attention deficit hyperactivity disorder. Variables mo...
journal_title：Research in developmental disabilities
pub_type： 杂志文章,meta分析
doi：10.1016/j.ridd.2012.05.011
更新日期：2012-11-01 00:00:00
abstract：:The relationship between behavior problems and psychiatric disorders in individuals with intellectual disability is still unresolved. The present study compares the prevalence and pattern of psychiatric disorders in individuals with intellectual disability who were assessed on the ABC to have moderate and severe behav...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2007.06.002
更新日期：2008-07-01 00:00:00
abstract：:A review of the literature on unemployment rates among adults with mental retardation is presented and the societal impact of the number of adults with mental retardation who remain unemployed is discussed. The supported competitive employment model is presented as illustrative of a habilitation program allowing great...
journal_title：Research in developmental disabilities
pub_type： 杂志文章,评审
doi：10.1016/0891-4222(87)90041-2
更新日期：1987-01-01 00:00:00
abstract：:Individuals with the neurodevelopmental disorder Williams syndrome (WS) often report difficulty processing and acting in depth, such as crossing roads or reaching for objects; however little research attention has been directed at understanding depth perception and action in depth in WS and whether deficits in depth p...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.04.013
更新日期：2014-08-01 00:00:00
abstract：:The stress of caring for a loved one with chronic illness has been linked with impairments in cognitive processes such as attention and problem solving, though few studies have examined the impact on memory. Compromised cognition, in particular, aspects of everyday functioning such as remembering medical instructions ...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.07.019
更新日期：2014-11-01 00:00:00
abstract：PURPOSE:The early identification of motor coordination challenges before school age may enable close monitoring of a child's development and perhaps ameliorate some of the social, psychological and behavioral sequela that often accompany unrecognized Developmental Coordination Disorder (DCD). The purpose of this study ...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2010.12.040
更新日期：2011-07-01 00:00:00
abstract：BACKGROUND:Serial lower limb intramuscular Botulinum toxin-A (BoNT-A) injections are administered to children with bilateral spastic cerebral palsy (BCP) to reduce spasticity, improve walking and functional mobility, and delay the need for orthopaedic surgery. Gait quality is clinically assessed following BoNT-A with 2...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2017.07.002
更新日期：2017-09-01 00:00:00
abstract：BACKGROUND:Angelman syndrome (AS) is a neurogenetic disorder characterized by intellectual disability, epilepsy, and low threshold for laughter. AIMS:We investigated the occurrence and severity of epilepsy and laughter-induced loss of postural muscle tone determined by the different genetic subtypes. METHODS:This stu...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2016.06.002
更新日期：2016-09-01 00:00:00
abstract：PURPOSE:To systematically review all literature published in peer reviewed journals from January 1995 to July 2008 in order to summarize and describe the activity limitations and participation restrictions of children with developmental coordination disorder (DCD). METHODS:Multiple databases were systematically search...
journal_title：Research in developmental disabilities
pub_type： 杂志文章,评审
doi：10.1016/j.ridd.2011.01.029
更新日期：2011-07-01 00:00:00
abstract：:Functional assessment is a method to identify the relationships between a behavior of interest and an individual's environment. Traditional methods for functional assessment have relied on experimental techniques in which analog sessions are designed to replicate conditions in the individual's environment. However, th...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/s0891-4222(00)00036-6
更新日期：2000-05-01 00:00:00
abstract：:Predictors of depression over time were examined in parental carers of children with developmental disabilities (DD) and parents of typically developing children (controls) who participated in the Growing up in Ireland Study. Parents completed measures of depression, the Centre for Epidemiological Depression Scale (CE...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2018.07.001
更新日期：2018-09-01 00:00:00
abstract：:Skin picking is an extremely distressing and treatment resistant behavior commonly shown by individuals with Prader-Willi syndrome (PWS). However, with the exception of a limited number of published single-case and survey studies, little is known about the environmental determinants of skin picking in this population....
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.05.025
更新日期：2014-10-01 00:00:00
abstract：:Research has shown that physical exercise enhances cognitive performance in individuals with intact cognition as well as in individuals diagnosed with intellectual and developmental disabilities. Although well identified in the field of health (for example, the transient hypofrontality theory), the underlying neurocog...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2013.05.037
更新日期：2013-09-01 00:00:00
abstract：:Facial expression processing and the attribution of facial emotions to a context were investigated in adults with Down syndrome (DS) in two experiments. Their performances were compared with those of a child control group matched for receptive vocabulary. The ability to process faces without emotional content was cont...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2009.02.004
更新日期：2009-09-01 00:00:00
abstract：:Individuals with autism spectrum disorders (ASDs) can demonstrate hypersensitivity to sounds as well as a lack of awareness of them. Several functional imaging studies have suggested an abnormal response in the auditory cortex of such subjects, but it is not known whether these subjects have dysfunction in the auditor...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2011.10.016
更新日期：2012-03-01 00:00:00
abstract：:Oxytocin plays an important role in the modulation of social behavior in both typical and atypical contexts. Also, the quality of early parental care sets the foundation for long-term psychosocial development. Here, we review studies that investigated how oxytocin receptor (OXTR) interacts with early parental care exp...
journal_title：Research in developmental disabilities
pub_type： 杂志文章,评审
doi：10.1016/j.ridd.2017.10.007
更新日期：2018-11-01 00:00:00
abstract：BACKGROUND:Research has demonstrated evidence for increased perceptual capacity in autism: autistic people can process more information at any given time than neurotypical individuals. The implications of this for educating autistic pupils have not been investigated. For example, this ability to process more informatio...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2018.12.006
更新日期：2019-02-01 00:00:00
abstract：:Parental resolution of diagnosis represents coming to terms with and accepting the diagnosis of a serious condition in their child. As risk factors for achieving resolution, we investigated: a child's functional status, cumulative stress, and maternal depression. The current study tested the hypothesis that mothers wh...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2015.09.009
更新日期：2015-12-01 00:00:00
abstract：:A multiple-baseline across-subjects design was used to determine whether reinforcement alone or in combination with sentence-combining exercises would increase the number of descriptive adjectives used in daily writing samples by three adolescents with autism. The cumulative number of new adjectives (adjectives never ...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/0891-4222(94)90036-1
更新日期：1994-01-01 00:00:00
abstract：:This proof of principle study was designed to evaluate whether excessively high rates of social approach behaviors in children with Angelman syndrome (AS) can be modified using a multiple schedule design. Four children with AS were exposed to a multiple schedule arrangement, in which social reinforcement and extinctio...
journal_title：Research in developmental disabilities
pub_type： 临床试验,杂志文章
doi：10.1016/j.ridd.2013.02.012
更新日期：2013-05-01 00:00:00
abstract：:It is widely acknowledged that people with Down syndrome (Ds) have less highly developed morphosyntactic abilities than typically developing (TD) children. However, little is known about the morphological processing of this population. In this paper we carry out two experiments in which the morphological Base Frequenc...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2013.03.027
更新日期：2013-07-01 00:00:00
abstract：BACKGROUND:Screening and diagnostic assessments tools for autism spectrum disorder (ASD) are important to administer during childhood to facilitate timely entry into intervention services that can promote developmental outcomes across the lifespan. However, assessment services are not always readily available to famili...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2021.103852
更新日期：2021-01-08 00:00:00
abstract：BACKGROUND:Single-case research (SCR) has been a valuable methodology in special education research. Montrose Wolf (1978), an early pioneer in single-case methodology, coined the term "social validity" to refer to the social importance of the goals selected, the acceptability of procedures employed, and the effectivene...
journal_title：Research in developmental disabilities
pub_type： 杂志文章,评审
doi：10.1016/j.ridd.2018.01.007
更新日期：2018-03-01 00:00:00
abstract：:Possible links between lower birth weight, childhood diet, and learning in Taiwan are evaluated. The population representative Elementary School Children's Nutrition and Health Survey in Taiwan 2001-2002 and the national birth registry were used to examine school and social performance using the modified Scale for Ass...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2012.06.008
更新日期：2012-11-01 00:00:00
abstract：:Little information is available on the prevalence and determinants of lifestyle related risk factors for poor health (obesity, poor diet, physical inactivity, smoking and alcohol abuse) among people with intellectual disabilities. This study reports the prevalence of these risk factors for 500 people with intellectual...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/s0891-4222(00)00053-6
更新日期：2000-11-01 00:00:00
abstract：:Children and adolescents with developmental disorders suffer from a wide range of psychopathology. However, there are no published studies examining this subject exclusively in this population using recent diagnostic criteria. The primary purpose of this paper is to report on the diagnosis encountered in a clinical se...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/s0891-4222(97)00016-4
更新日期：1997-09-01 00:00:00
