Abstract:
OBJECTIVE:Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. METHODS:Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. RESULTS:A consensus statement is presented for epilepsy mHealth CDEs. SIGNIFICANCE:Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
journal_name
Epilepsiajournal_title
Epilepsiaauthors
Goldenholz DM,Moss R,Jost DA,Crone NE,Krauss G,Picard R,Caborni C,Cavazos JE,Hixson J,Loddenkemper T,Salazar TD,Lubbers L,Harte-Hargrove LC,Whittemore V,Duun-Henriksen J,Dolan E,Kasturia N,Oberemk M,Cook MJ,Lehmkuhldoi
10.1111/epi.14066subject
Has Abstractpub_date
2018-05-01 00:00:00pages
1020-1026issue
5eissn
0013-9580issn
1528-1167journal_volume
59pub_type
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