Abstract:
:Therapeutic misconception involves the failure of subjects either to understand or to incorporate into their own expectations the distinctions in nature and purpose of personally responsive therapeutic care, and the generic relationship between subject and investigator which is constrained by research protocols. Researchers cannot disregard this phenomenon if they are to ensure that subjects engage in research on the basis of genuine informed consent. However, our presumption of patient autonomy must be sustained unless we have compelling evidence of serious misunderstanding. This article argues that the mere expression of aspects of therapeutic misconception should not necessarily displace the presumption of subject autonomy or undermine ethical inclusion in research for at least three reasons. First, some interpretations of the empirical data do not suggest misunderstanding. Second, assessment of misestimation and optimism are delicate and value-laden, and turn quickly from questions of autonomy to questions of judgment. Third, incomplete understanding may yet be sufficient to allow a subject to engage in a substantially autonomous decision-making process. Our point is not to dismiss the possibility of genuine therapeutic misconception, but to question its frequency and fatality to the consent process.
journal_name
Bioethicsjournal_title
Bioethicsauthors
McConville Pdoi
10.1111/bioe.12384subject
Has Abstractpub_date
2017-11-01 00:00:00pages
711-715issue
9eissn
0269-9702issn
1467-8519journal_volume
31pub_type
杂志文章相关文献
BIOETHICS文献大全abstract::The distinction between stakeholders and shareholders frequently employed in business ethics can illuminate challenges faced by a bioethics advisory panel. I use the distinction to reflect back on the work of an advisory panel on which I served, a panel on US transplant policy. The panel hearings were akin to a shareh...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/1467-8519.00348
更新日期:2003-08-01 00:00:00
abstract::This paper argues that the convention of allocating donated gametes on a 'first come, first served' basis should be replaced with an allocation system that takes into account more morally relevant criteria than waiting time. This conclusion was developed using an empirical bioethics methodology, which involved a study...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12411
更新日期:2018-01-01 00:00:00
abstract::The progress of genetic knowledge magnifies existing ethical problems in medical genetics. Among the most troubling types of problems -- for medicine, patients, and the larger society -- are those of privacy and disclosure. Examples of the range of problems involving privacy and disclosure are: 1) disclosure of fals...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.1991.tb00161.x
更新日期:1991-07-01 00:00:00
abstract::Human cloning has been simultaneously a running joke for massive worldwide publicity of fringe groups like the Raelians, and the core issue of an international movement at the United Nations in support of a treaty to ban the use of cloning techniques to produce a child (so called reproductive cloning). Yet, even thoug...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/1467-8519.00365
更新日期:2003-10-01 00:00:00
abstract::The recent case of the UK woman who lost her legal struggle to be impregnated with her own frozen embryos, raises critical issues about the meaning of reproductive autonomy and the scope of regulatory practices. I revisit this case within the context of contemporary debate about the moral and legal dimensions of assis...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2008.00676.x
更新日期:2009-01-01 00:00:00
abstract::This article will explore whether the law should allow people with anorexia nervosa to refuse nutrition and hydration with special reference to the English decision in Re E (Medical Treatment: Anorexia). It argues that the judge in that case made the correct decision in holding that the patient, who suffered from seve...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12593
更新日期:2019-10-01 00:00:00
abstract::An educated guess about the future of academic bioethics can only be made on the basis of the historical conditions of its success. According to its official history, which attributes its success primarily to the service it has done for the patient, it should be safe at least as long as the patient still needs its ser...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2010.01807.x
更新日期:2010-06-01 00:00:00
abstract::Antibiotic resistance is one of the most pressing public health problems humanity faces. Research into new classes of antibiotics and new kinds of treatments - including risky experimental treatments such as phage therapy and vaccines - is an important part of improving our ability to treat infectious diseases. In ord...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12596
更新日期:2019-09-01 00:00:00
abstract::It has been claimed in several places that the new genetic technologies allow humanity to achieve in a generation or two what might take natural selection hundreds of millennia in respect of the elimination of certain diseases and an increase in traits such as intelligence. More radically, it has been suggested that t...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2008.01703.x
更新日期:2010-10-01 00:00:00
abstract:RESEARCH OBJECTIVE:This study focuses on ADs in the Netherlands and introduces a cross-cultural perspective by comparing it with other countries. METHODS:A questionnaire was sent to a panel comprising 1621 people representative of the Dutch population. The response was 86%. RESULTS:95% of the respondents didn't have ...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2009.01788.x
更新日期:2010-03-01 00:00:00
abstract::The purpose of this paper is to describe the scientific background to the current ethical and legislative debates about the generation and use of human stem cells, and to give an overview of the ethical issues underlying these debates. The ethical issues discussed are 1) stem cells and the status of the embryo, 2) wom...
journal_title:Bioethics
pub_type: 杂志文章,评审
doi:10.1111/1467-8519.00307
更新日期:2002-11-01 00:00:00
abstract::In this article I consider the case of the surgical separation of conjoined twins resulting in the immediate and predictable death of the weaker one. The case was submitted to English law by the hospital, and the operation permitted against the parents' wishes. I consider the relationship between the legal decision an...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/1467-8519.00322
更新日期:2003-02-01 00:00:00
abstract::The New Zealand health service has been extensively changed over the past four years, with the introduction of four new Regional Health Authorities, required to purchase services on behalf of the Government from a range of providers. In order to ensure fairness across the four regions a Core Services Committee has bee...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.1995.tb00359.x
更新日期:1995-07-01 00:00:00
abstract::Following Bernheim,(1) we examine aspects of 'felicitometrics,'(2) the measurement of the 'quality' term in Quality of Life (QOL). Bernheim argued that overall QOL is best captured as the Gestalt(3) of a global self-assessment and suggested that the Anamnestic Comparative Self Assessment (ACSA) approach, in which subj...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2008.00642.x
更新日期:2008-07-01 00:00:00
abstract::Incompetent patients need to have someone else make decisions on their behalf. According to the Substituted Judgment Standard the surrogate decision maker ought to make the decision that the patient would have made, had he or she been competent. Objections have been raised against this traditional construal of the sta...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2009.01768.x
更新日期:2011-06-01 00:00:00
abstract::Germline genome editing is often disapproved of at the international policy level because of its possible threats to human dignity. However, from a critical perspective the relationship between this emerging technology and human dignity is relatively understudied. We explore the main principles that are referred to wh...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12607
更新日期:2020-01-01 00:00:00
abstract::Many neuroscientists have claimed that our minds are just a function of and thus reducible to our brains. I challenge neuroreductionism by arguing that the mind emerges from and is shaped by interaction among the brain, body, and environment. The mind is not located in the brain but is distributed among these three en...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2009.01727.x
更新日期:2009-07-01 00:00:00
abstract::Are fetuses, at any stage of their development, capable of feeling pain? In his paper, "Locating the Beginnings of Pain," Stuart Derbyshire argues that they are not. We argue that he reaches this conclusion by way of conceptual confusion, a misreading of the available scientific data and the inclusion of irrelevant da...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/1467-8519.00212
更新日期:2001-02-01 00:00:00
abstract::Anderson was a member of the writing group for the recent revision of Australia's national Code of Practice for the use of animals in scientific research. Here he outlines the major features of the Code. These deal with animal experimentation ethics committees, with levels of pain and distress in subjects, with stan...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.1990.tb00065.x
更新日期:1990-01-01 00:00:00
abstract::Warnock, chair of Britain's Committee of Inquiry into Human Fertilisation and Embryology, discusses the implications of the "artificial family" for children born through the use of reproductive technologies. She considers both treatment of infertility and the possible use of assisted reproduction to enable persons ot...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.1987.tb00023.x
更新日期:1987-04-01 00:00:00
abstract::When applying moral principles to concrete cases, we assume a background shared understanding of the boundaries of the persons to whom the principles apply. In most contexts, this assumption is unproblematic. However, in end-of-life contexts, when patients are receiving 'artificial' life-support, judgments about where...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2006.00481.x
更新日期:2006-04-01 00:00:00
abstract::In this paper we consider the three categories offered by Howard Brody for understanding power in medicine. In his book The Healer's Power, Brody separates out power in medicine into the categories of Aesculapian, Social, and Charismatic power. We examine these three categories and then apply them to a case. In this c...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/1467-8519.00065
更新日期:1997-07-01 00:00:00
abstract::In this article, we argue that a critical examination of epistemological and anthropological presuppositions might lead to a more fruitful use of theory in clinical-ethical practice. We differentiate between two views of conceptualizing ethics, referring to Charles Taylors' two epistemological models: 'monological' ve...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2011.01912.x
更新日期:2011-09-01 00:00:00
abstract::The work of a bioethicist carries distinctive responsibilities. Alongside those of any worker, there are responsibilities associated with giving guidance to practitioners, policy makers and the public. In addition, bioethicists are professionally exposed to and required to identify situations of moral trouble, and as ...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12659
更新日期:2019-10-01 00:00:00
abstract::Several recent articles have weighed in on the question of whether moral philosophers can be counted as moral experts. One argument denying this has been rejected by both sides of the debate. According to this argument, the extent of disagreement in modern moral philosophy prevents moral philosophers from being classi...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12173
更新日期:2016-03-01 00:00:00
abstract::Respect for confidentiality is firmly established in codes of ethics and law. Medical care and the patients' trust depend on the ability of the doctors to maintain confidentiality. Without a guarantee of confidentiality, many patients would want to avoid seeking medical assistance The principle of confidentiality, how...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/j.1467-8519.2008.00654.x
更新日期:2008-08-01 00:00:00
abstract::Uterus transplants provide another treatment for infertility. Some might think that we should embrace such transplants as one more way to assist people to have children. However, in this paper I argue that uterus transplants are not something that we ought to fund, nor something that we should make easy to access. Fir...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12523
更新日期:2018-10-01 00:00:00
abstract::This paper contends that a research ethics approach to the regulation of health data research is unhelpful in the era of population-level research and big data because it results in a primary focus on consent (meta-, broad, dynamic and/or specific consent). Two recent guidelines - the 2016 WMA Declaration of Taipei on...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12551
更新日期:2019-03-01 00:00:00
abstract::In 'New Threats to Academic Freedom' Francesca Minerva argues that anonymity for the authors of controversial articles is a prerequisite for academic freedom in the Internet age. This argument draws its intellectual and emotional power from the author's account of the reaction to the on-line publication of ' After-bir...
journal_title:Bioethics
pub_type: 评论,杂志文章
doi:10.1111/bioe.12093
更新日期:2014-05-01 00:00:00
abstract::We explore whether a Rawlsian approach might provide a guiding philosophy for the development of a healthcare system, in particular with regard to resolving tensions between different groups within it. We argue that an approach developed from some of Rawls' principles - using his 'veil of ignorance' and both the 'diff...
journal_title:Bioethics
pub_type: 杂志文章
doi:10.1111/bioe.12568
更新日期:2019-06-01 00:00:00