Compensation for cures: Why we should pay a premium for participation in 'challenge studies'.

abstract：:In democratic theory, "legitimacy" refers to the set of conditions that must be in place in order for the claims to authority of somebody to be deemed appropriate, and for their claims to compliance to be warranted. Though criteria of legitimacy have been elaborated in the context of democratic states, there is no rea...

journal_title：Bioethics

authors： Smith MJ,Weinstock D

更新日期：2019-03-01 00:00:00

abstract：:The discussion on ethical issues, it is said, should not be confined to experts but should be extended to patients and local communities, because of the real need to engage stakeholders and non-stakeholders alike not only in carrying out any biomedical research project, but also in the drafting and legislation of bioe...

journal_title：Bioethics

authors： Manaloto RB,Alvarez AA,Alvarez MA

更新日期：2005-10-01 00:00:00

abstract：:Biobanks are essential tools for furthering a broad range of medical research areas. However, despite the plethora of national and international laws and guidelines which apply to them, the access and sharing policies of biobanks are only sparsely addressed by regulatory bodies. The 'give and take' process of biosampl...

journal_title：Bioethics

authors： Colledge F,Elger B

更新日期：2015-07-01 00:00:00

abstract：:Respect for confidentiality is firmly established in codes of ethics and law. Medical care and the patients' trust depend on the ability of the doctors to maintain confidentiality. Without a guarantee of confidentiality, many patients would want to avoid seeking medical assistance The principle of confidentiality, how...

journal_title：Bioethics

authors： Papadodima SA,Spiliopoulou CA,Sakelliadis EI

更新日期：2008-08-01 00:00:00

abstract：:Some bioethicists argue that conscientious objectors in health care should have to justify themselves, just as objectors in the military do. They should have to provide reasons that explain why they should be exempt from offering the services that they find offensive. There are two versions of this view in the literat...

journal_title：Bioethics

authors： Kantymir L,McLeod C

更新日期：2014-01-01 00:00:00

abstract：:If we have a duty not to infect others, how far does it go? This question is often discussed with respect to HIV transmission, but reflection on other diseases like influenza raises a number of interesting theoretical issues. I argue that a duty to avoid infection not only yields requirements for persons who know they...

journal_title：Bioethics

authors： Verweij M

更新日期：2005-08-01 00:00:00

abstract：:In a Living Donor List Exchange program, the donor makes his kidney available for allocation to patients on the postmortal waiting-list and receives in exchange a postmortal kidney, usually an O-kidney, to be given to the recipient he favours. The program can be a solution for a candidate donor who is unable to donate...

journal_title：Bioethics

authors： den Hartogh G

更新日期：2010-05-01 00:00:00

abstract：:Mohr argues that coercive government policies in response to the AIDS crisis are unjustified and pose a serious threat to the rights of homosexuals. AIDS presently can be transmitted only to those whose actions place them at risk. Paternalistic state coercion is warranted only when a person has diminished capacity o...

journal_title：Bioethics

authors： Mohr RD

更新日期：1987-01-01 00:00:00

abstract：:This article is a response to McLeod and Baylis (2007) who speculate on the dangers of requesting fresh 'spare' embryos from IVF patients for human embryonic stem cell (hESC) research, particularly when those embryos are good enough to be transferred back to the woman. They argue that these embryos should be frozen in...

journal_title：Bioethics

authors： Haimes E,Taylor K

更新日期：2011-07-01 00:00:00

abstract：:This article introduces questions in psychiatric ethics regarding the substantial field of qualitative and quantitative research into 'posttraumatic growth', which investigates how, after devastating experiences, individuals can come to feel that they have developed warmer relationships, increased spirituality, or a c...

journal_title：Bioethics

authors： Harbin A

更新日期：2015-11-01 00:00:00

abstract：:When patients refuse to receive medical treatment, the consequences of honouring their decisions can be tragic. This is no less true of patients who autonomously decide to refuse treatment. I distinguish three possible implications of these autonomous decisions. According to the Permissibility Claim, such a decision i...

journal_title：Bioethics

authors： Murphy P

更新日期：2005-06-01 00:00:00

abstract：:Following Bernheim,(1) we examine aspects of 'felicitometrics,'(2) the measurement of the 'quality' term in Quality of Life (QOL). Bernheim argued that overall QOL is best captured as the Gestalt(3) of a global self-assessment and suggested that the Anamnestic Comparative Self Assessment (ACSA) approach, in which subj...

journal_title：Bioethics

authors： Kowalski C,Pennell S,Vinokur A

更新日期：2008-07-01 00:00:00

abstract：:Uterus transplants provide another treatment for infertility. Some might think that we should embrace such transplants as one more way to assist people to have children. However, in this paper I argue that uterus transplants are not something that we ought to fund, nor something that we should make easy to access. Fir...

journal_title：Bioethics

authors： McTernan E

更新日期：2018-10-01 00:00:00

abstract：:Political communities across the world have recently sought to tackle rising rates of vaccine hesitancy and refusal, by implementing coercive immunization programs, or by making existing immunization programs more coercive. Many academics and advocates of public health have applauded these policy developments, and the...

journal_title：Bioethics

authors： Navin MC,Attwell K

更新日期：2019-11-01 00:00:00

abstract：:Incompetent patients need to have someone else make decisions on their behalf. According to the Substituted Judgment Standard the surrogate decision maker ought to make the decision that the patient would have made, had he or she been competent. Objections have been raised against this traditional construal of the sta...

journal_title：Bioethics

authors： Johansson M,Broström L

更新日期：2011-06-01 00:00:00

abstract：:Over the past 10 years, John Harris has made important contributions to thinking about distributive justice in health care. In his latest work, Harris controversially argues that clinicians should stop prioritising patients according to prognosis. He argues that the good or benefit of health care is providing each ind...

journal_title：Bioethics

authors： Savulescu J

更新日期：1998-07-01 00:00:00

abstract：:Warnock, chair of Britain's Committee of Inquiry into Human Fertilisation and Embryology, discusses the implications of the "artificial family" for children born through the use of reproductive technologies. She considers both treatment of infertility and the possible use of assisted reproduction to enable persons ot...

journal_title：Bioethics

authors： Warnock M

更新日期：1987-04-01 00:00:00

abstract：:It has been argued that there can be no person-regarding reasons for practising genetic therapy, since it affects identity and causes to exist an individual who would not otherwise have existed. And there can be no such reasons for causing somebody to exist because existing cannot be better for an individual than neve...

journal_title：Bioethics

authors： Persson I

更新日期：1995-01-01 00:00:00

abstract：:The New Zealand health service has been extensively changed over the past four years, with the introduction of four new Regional Health Authorities, required to purchase services on behalf of the Government from a range of providers. In order to ensure fairness across the four regions a Core Services Committee has bee...

journal_title：Bioethics

authors： Campbell AV

更新日期：1995-07-01 00:00:00

abstract：:In the past decade, the perception of a bioterrorist threat has increased and created a demand on life scientists to consider the potential security implications of dual use research. This article examines a selection of proposed moral obligations for life scientists that have emerged to meet these concerns and the ex...

journal_title：Bioethics

authors： Kuhlau F,Eriksson S,Evers K,Höglund AT

更新日期：2008-11-01 00:00:00

abstract：:In this paper we argue that sex-selective abortion (SSA) cannot be morally justified and that it should be prohibited. We present two main arguments against SSA. First, we present reasons why the decision for a woman to seek SSA in cultures with strong son-preference cannot be regarded as autonomous on either a narrow...

journal_title：Bioethics

authors： Rogers W,Ballantyne A,Draper H

更新日期：2007-11-01 00:00:00

abstract：:In 1991, the Israeli Minister of Health and the Minister of Justice jointly nominated a commission to consider the subject of IVF in all its aspects. Heyd summarizes the commission's recommendations on the following issues as put forth in an interim report: access to fertility treatments, financing of treatment, couns...

journal_title：Bioethics

authors： Heyd D

更新日期：1993-04-01 00:00:00

abstract：:Are fetuses, at any stage of their development, capable of feeling pain? In his paper, "Locating the Beginnings of Pain," Stuart Derbyshire argues that they are not. We argue that he reaches this conclusion by way of conceptual confusion, a misreading of the available scientific data and the inclusion of irrelevant da...

journal_title：Bioethics

authors： Benatar D,Benatar M

更新日期：2001-02-01 00:00:00

abstract：:Human cloning has been simultaneously a running joke for massive worldwide publicity of fringe groups like the Raelians, and the core issue of an international movement at the United Nations in support of a treaty to ban the use of cloning techniques to produce a child (so called reproductive cloning). Yet, even thoug...

journal_title：Bioethics

authors： Shuster E

更新日期：2003-10-01 00:00:00

abstract：:This paper considers Habermas' model of a post-secular political order in the light of the debate on male circumcision that arose in Germany after a court ruled that male circumcision was an unjustifiable act of bodily harm. Central to this model is the idea that religious reasons can only become effective in central ...

journal_title：Bioethics

authors： Greve J

更新日期：2019-05-01 00:00:00

abstract：:The ethical concept of responsiveness has largely been interpreted in the context of international clinical research. In light of the increasing conduct of externally funded health systems research (HSR) in low- and middle-income countries (LMICs), this article examines how responsiveness might be understood for such ...

journal_title：Bioethics

authors： Pratt B,Hyder AA

更新日期：2015-07-01 00:00:00

abstract：:In 'New Threats to Academic Freedom' Francesca Minerva argues that anonymity for the authors of controversial articles is a prerequisite for academic freedom in the Internet age. This argument draws its intellectual and emotional power from the author's account of the reaction to the on-line publication of ' After-bir...

journal_title：Bioethics

authors： Baker R

更新日期：2014-05-01 00:00:00

abstract：:Erik Malmqvist defends the prohibition on kidney sales as a justifiable measure to protect individuals from harms they have not autonomously chosen. This appeal to 'group soft paternalism' requires that three conditions be met. It must be shown that some vendors will be harmed, that some will be subject to undue press...

journal_title：Bioethics

authors： Semrau L

更新日期：2017-03-01 00:00:00

abstract：:Scientists seeking to conduct research with human subjects must first submit their proposals to research ethics committees (Institutional Review Boards [IRBs], in the United States). Some of these studies pose risks to "bystanders," i.e., people who may be affected by the research but who are not enrolled as study sub...

journal_title：Bioethics

authors： Wikler D

更新日期：2020-11-01 00:00:00

abstract：:Working as clinical ethicists in an academic hospital, we find that practitioners tend to take a principle-based approach to moral dilemmas when it comes to (not) treating patients who feel like a burden, in which respect for autonomy tends to trump other principles. We argue that this approach insufficiently deals wi...

journal_title：Bioethics

authors： Metselaar S,Widdershoven G

更新日期：2019-05-01 00:00:00