Advance directives in the Netherlands: an empirical contribution to the exploration of a cross-cultural perspective on advance directives.

Abstract:

RESEARCH OBJECTIVE:This study focuses on ADs in the Netherlands and introduces a cross-cultural perspective by comparing it with other countries. METHODS:A questionnaire was sent to a panel comprising 1621 people representative of the Dutch population. The response was 86%. RESULTS:95% of the respondents didn't have an AD, and 24% of these were not familiar with the idea of drawing up an AD. Most of those familiar with ADs knew about the Advanced Euthanasia Directive (AED, 64%). Both low education and the presence of a religious conviction that plays an important role in one's life increase the chance of not wanting to draw up an AD. Also not having experienced a request for euthanasia from someone else, and the inconceivability of asking for euthanasia yourself, increase the chance of not wanting to draw up an AD. DISCUSSION:This study shows that the subjects of palliative care and end-of-life-decision-making were very much dominated by the issue of euthanasia in the Netherlands. The AED was the best known AD; and factors that can be linked to euthanasia play an important role in whether or not people choose to draw up an AD. This differentiates the Netherlands from other countries and, when it comes to ADs, the global differences between countries and cultures are still so large that the highest possible goals, at this moment in time, are observing and possibly learning from other cultural settings.

journal_name

Bioethics

journal_title

Bioethics

authors

van Wijmen MP,Rurup ML,Pasman HR,Kaspers PJ,Onwuteaka-Philipsen BD

doi

10.1111/j.1467-8519.2009.01788.x

subject

Has Abstract

pub_date

2010-03-01 00:00:00

pages

118-26

issue

3

eissn

0269-9702

issn

1467-8519

pii

BIOT1788

journal_volume

24

pub_type

杂志文章
  • Getting a Fair Share: Attitudes and Perceptions of Biobank Stakeholders Concerning the Fairness of Sample Sharing.

    abstract::Biobanks are essential tools for furthering a broad range of medical research areas. However, despite the plethora of national and international laws and guidelines which apply to them, the access and sharing policies of biobanks are only sparsely addressed by regulatory bodies. The 'give and take' process of biosampl...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12134

    authors: Colledge F,Elger B

    更新日期:2015-07-01 00:00:00

  • Alternative Medicine and the Ethics Of Commerce.

    abstract::Is it ethical to market complementary and alternative medicines? Complementary and alternative medicines (CAM) are medical products and services outside the mainstream of medical practice. But they are not just medicines (or supposed medicines) offered and provided for the prevention and treatment of illness. They are...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12226

    authors: Macdonald C,Gavura S

    更新日期:2016-02-01 00:00:00

  • Competence and risk-relativity.

    abstract::In this paper I discuss the view that the appropriate concept of competence is a decision-relative one: that a person may be competent to make one decision but not another. The argument that I present is that neither of the two competing theories supporting the decision-relative approach, internalism and externalism, ...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/1467-8519.00218

    authors: Buller T

    更新日期:2001-04-01 00:00:00

  • The genesis of public health ethics.

    abstract::As bioethics emerged in the 1960s and 1970s and began to have enormous impacts on the practice of medicine and research--fuelled, by broad socio-political changes that gave rise to the struggles of women, African Americans, gay men and lesbians, and the antiauthoritarianism impulse that characterised the New Left in d...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2004.00412.x

    authors: Bayer R,Fairchild AL

    更新日期:2004-11-01 00:00:00

  • Consequentialism, reasons, value and justice.

    abstract::Over the past 10 years, John Harris has made important contributions to thinking about distributive justice in health care. In his latest work, Harris controversially argues that clinicians should stop prioritising patients according to prognosis. He argues that the good or benefit of health care is providing each ind...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/1467-8519.00109

    authors: Savulescu J

    更新日期:1998-07-01 00:00:00

  • Gestation as mothering.

    abstract::Some commentators maintain that gestational surrogates are not 'mothers' in a way capable of grounding a claim to motherhood. These commentators find that the practices that constitute motherhood do not extend to gestational surrogates. We argue that gestational surrogates should be construed as mothers of the childre...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12808

    authors: Murphy TF,Parks JA

    更新日期:2020-11-01 00:00:00

  • Misplaced Paternalism and other Mistakes in the Debate over Kidney Sales.

    abstract::Erik Malmqvist defends the prohibition on kidney sales as a justifiable measure to protect individuals from harms they have not autonomously chosen. This appeal to 'group soft paternalism' requires that three conditions be met. It must be shown that some vendors will be harmed, that some will be subject to undue press...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12303

    authors: Semrau L

    更新日期:2017-03-01 00:00:00

  • Regret, shame, and denials of women's voluntary sterilization.

    abstract::Women face extraordinary difficulty in seeking sterilization as physicians routinely deny them the procedure. Physicians defend such denials by citing the possibility of future regret, a well-studied phenomenon in women's sterilization literature. Regret is, however, a problematic emotion upon which to deny reproducti...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12431

    authors: Lalonde D

    更新日期:2018-06-01 00:00:00

  • Privacy and disclosure in medical genetics examined in an ethics of care.

    abstract::The progress of genetic knowledge magnifies existing ethical problems in medical genetics. Among the most troubling types of problems -- for medicine, patients, and the larger society -- are those of privacy and disclosure. Examples of the range of problems involving privacy and disclosure are: 1) disclosure of fals...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.1991.tb00161.x

    authors: Wertz DC,Fletcher JC

    更新日期:1991-07-01 00:00:00

  • When speed truly matters, openness is the answer.

    abstract::In this paper I analyse the ethical implications of the two main competing methodologies in genomic research. I do not aim to provide another contribution from the mainstream legal and public policy perspective; rather I offer a novel approach in which I analyse and describe the patent-and-publish regime (the propriet...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2009.01723.x

    authors: Marturano A

    更新日期:2009-09-01 00:00:00

  • Autonomy and social influence in predictive genetic testing decision-making: A qualitative interview study.

    abstract::Beauchamp and Childress' definition of autonomous decision-making includes the conditions of intentionality, understanding, and non-control. In genetics, however, a relational conception of autonomy has been increasingly recognized. This article aims to empirically assess aspects of social influence in genetic testing...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12816

    authors: Zimmermann BM,Koné I,Shaw D,Elger B

    更新日期:2021-02-01 00:00:00

  • Ethics and drug resistance.

    abstract::This paper reviews the dynamics behind, and ethical issues associated with, the phenomenon of drug resistance. Drug resistance is an important ethical issue partly because of the severe consequences likely to result from the increase in drug resistant pathogens if more is not done to control them. Drug resistance is a...

    journal_title:Bioethics

    pub_type: 杂志文章,评审

    doi:10.1111/j.1467-8519.2006.00542.x

    authors: Selgelid MJ

    更新日期:2007-05-01 00:00:00

  • Overstating values: medical facts, diverse values, bioethics and values-based medicine.

    abstract::Fulford has argued that (1) the medical concepts illness, disease and dysfunction are inescapably evaluative terms, (2) illness is conceptually prior to disease, and (3) a model conforming to (2) has greater explanatory power and practical utility than the conventional value-free medical model. This 'reverse' model em...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2011.01902.x

    authors: Parker M

    更新日期:2013-02-01 00:00:00

  • Duties to stakeholders amidst pressures from shareholders: lessons from an advisory panel on transplant policy.

    abstract::The distinction between stakeholders and shareholders frequently employed in business ethics can illuminate challenges faced by a bioethics advisory panel. I use the distinction to reflect back on the work of an advisory panel on which I served, a panel on US transplant policy. The panel hearings were akin to a shareh...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/1467-8519.00348

    authors: Mongoven AM

    更新日期:2003-08-01 00:00:00

  • Killing, letting die and moral perception: a reply to Grant Gillett.

    abstract::A number of philosophers in recent times have employed arguments to show that there is no morally relevant difference between killing a patient and allowing that patient to die in those circumstances where the outcome is virtually identical and where death is preventable, at least for a significant time. From his per...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/1467-8519.00169

    authors: Thornton J

    更新日期:1999-10-01 00:00:00

  • An Eliminativist Approach to Vulnerability.

    abstract::The concept of vulnerability has been subject to numerous different interpretations but accounts are still beset with significant problems as to their adequacy, such as their contentious application or the lack of genuine explanatory role for the concept. The constant failure to provide a compelling conceptual analysi...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12144

    authors: Wrigley A

    更新日期:2015-09-01 00:00:00

  • Does human genome editing reinforce or violate human dignity?

    abstract::Germline genome editing is often disapproved of at the international policy level because of its possible threats to human dignity. However, from a critical perspective the relationship between this emerging technology and human dignity is relatively understudied. We explore the main principles that are referred to wh...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12607

    authors: Segers S,Mertes H

    更新日期:2020-01-01 00:00:00

  • Racist organ donors and saving lives.

    abstract::This paper considers what should be done about offers of organs for transplant that come with racist strings attached. Saving lives or improving their quality seem powerful reasons to accept the offer. Fairness, justice, and rejecting racism seem like powerful reasons against. This paper argues that conditional alloca...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2007.00526.x

    authors: Wilkinson TM

    更新日期:2007-02-01 00:00:00

  • Report from China social and ethical influence of some pain: the causes of lower incidences of some pain syndromes in Chinese people.

    abstract::Western studies of national differences in pain have indicated that pain tolerance is higher in white than in Asian patients. The authors' clinical experiences in China seem to contradict this conclusion, and they have investigated the incidence or prevalence of some pain syndromes and have made comparisons with West...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.1989.tb00343.x

    authors: Hu YH,Fang NY

    更新日期:1989-07-01 00:00:00

  • Medical confidentiality: legal and ethical aspects in Greece.

    abstract::Respect for confidentiality is firmly established in codes of ethics and law. Medical care and the patients' trust depend on the ability of the doctors to maintain confidentiality. Without a guarantee of confidentiality, many patients would want to avoid seeking medical assistance The principle of confidentiality, how...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2008.00654.x

    authors: Papadodima SA,Spiliopoulou CA,Sakelliadis EI

    更新日期:2008-08-01 00:00:00

  • The injustice of fat stigma.

    abstract::Fatness stigma is pervasive. Being fat is widely regarded a bad thing, and fat persons suffer numerous social and material disadvantages in virtue of their weight being regarded that way. Despite the seriousness of this problem, it has received relatively little attention from analytic philosophers. In this paper, I s...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12560

    authors: Nath R

    更新日期:2019-06-01 00:00:00

  • In vitro fertilization and the right to reproduce.

    abstract::The assumption that people have a right to have children is considered in relation to the question of whether society has an obligation to allocate resources to make clinical in vitro fertilization available, at least to married couples where the woman is infertile and the couple provides the ovum and sperm. The auth...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.1987.tb00010.x

    authors: Uniacke S

    更新日期:1987-07-01 00:00:00

  • 'The good of the child'

    abstract::Warnock, chair of Britain's Committee of Inquiry into Human Fertilisation and Embryology, discusses the implications of the "artificial family" for children born through the use of reproductive technologies. She considers both treatment of infertility and the possible use of assisted reproduction to enable persons ot...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.1987.tb00023.x

    authors: Warnock M

    更新日期:1987-04-01 00:00:00

  • Conflicting demands on a modern healthcare service: Can Rawlsian justice provide a guiding philosophy for the NHS and other socialized health services?

    abstract::We explore whether a Rawlsian approach might provide a guiding philosophy for the development of a healthcare system, in particular with regard to resolving tensions between different groups within it. We argue that an approach developed from some of Rawls' principles - using his 'veil of ignorance' and both the 'diff...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12568

    authors: Fritz Z,Cox C

    更新日期:2019-06-01 00:00:00

  • Rethinking parenthood within assisted reproductive technology: The need for regulation in Nigeria.

    abstract::In Nigeria, reproduction is highly valued, with many people desiring to produce a child 'in their own image and likeness'. Previously, aspiring parents often resorted to adoption. Today, the availability of assisted reproductive technologies (ARTs) has provided options other than adoption for those desiring to procrea...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12759

    authors: Egbokhare OO,Akintola SO

    更新日期:2020-07-01 00:00:00

  • The conjoined twins and the limits of rationality in applied ethics.

    abstract::In this article I consider the case of the surgical separation of conjoined twins resulting in the immediate and predictable death of the weaker one. The case was submitted to English law by the hospital, and the operation permitted against the parents' wishes. I consider the relationship between the legal decision an...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/1467-8519.00322

    authors: Cowley C

    更新日期:2003-02-01 00:00:00

  • Beyond accountability for reasonableness.

    abstract::This paper is a critique of Norman Daniels' and James Sabin's 'Accountability for Reasonableness' framework for making priority-setting decisions in health care in the face of widespread disagreement about values. Accountability for Reasonableness has been rapidly gaining worldwide acceptance, arguably to the point of...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2007.00605.x

    authors: Friedman A

    更新日期:2008-02-01 00:00:00

  • Adjusting the focus: A public health ethics approach to data research.

    abstract::This paper contends that a research ethics approach to the regulation of health data research is unhelpful in the era of population-level research and big data because it results in a primary focus on consent (meta-, broad, dynamic and/or specific consent). Two recent guidelines - the 2016 WMA Declaration of Taipei on...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12551

    authors: Ballantyne A

    更新日期:2019-03-01 00:00:00

  • Finding A Seat at the Table Together: Recommendations for Improving Collaboration between Social Work and Bioethics.

    abstract::Social work and bioethics are fields deeply committed to cross-disciplinary collaboration to do their respective work. While scholars and practitioners from both fields share a commitment to social justice and to respecting the dignity, integrity and the worth of all persons, the overlap between the fields, including ...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12106

    authors: Brazg T,Dotolo D,Blacksher E

    更新日期:2015-06-01 00:00:00

  • A Defence of the Counterfactual Account of Harm.

    abstract::In order to determine whether a particular course of conduct is ethically permissible it is important to have a concept of what it means to be harmed. The dominant theory of harm is the counterfactual account, most famously proposed by Joel Feinberg. This determines whether harm is caused by comparing what actually ha...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12207

    authors: Purshouse C

    更新日期:2016-05-01 00:00:00