The responsibilities of the engaged bioethicist: Scholar, advocate, activist.

abstract：:In 1991, the Israeli Minister of Health and the Minister of Justice jointly nominated a commission to consider the subject of IVF in all its aspects. Heyd summarizes the commission's recommendations on the following issues as put forth in an interim report: access to fertility treatments, financing of treatment, couns...

journal_title：Bioethics

authors： Heyd D

更新日期：1993-04-01 00:00:00

abstract：:The future development of bioethics has been discussed in a number of articles in recent years, principally with regard to the trend towards empirical studies. However, what is meant by empirical studies in this context and how it is to be used concretely have been subject to varying interpretations. The purpose of th...

journal_title：Bioethics

authors： Nikku N,Eriksson BE

更新日期：2006-08-01 00:00:00

abstract：:Mohr argues that coercive government policies in response to the AIDS crisis are unjustified and pose a serious threat to the rights of homosexuals. AIDS presently can be transmitted only to those whose actions place them at risk. Paternalistic state coercion is warranted only when a person has diminished capacity o...

journal_title：Bioethics

authors： Mohr RD

更新日期：1987-01-01 00:00:00

abstract：:Medical tourism (MT) can be conceptualized as the intentional pursuit of non-emergency surgical interventions by patients outside their nation of residence. Despite increasing popular interest in MT, the ethical issues associated with the practice have thus far been under-examined. MT has been associated with a range ...

journal_title：Bioethics

authors： Snyder J,Crooks V,Johnston R,Kingsbury P

更新日期：2013-06-01 00:00:00

abstract：:A common reason for giving research participants post-trial access (PTA) to the trial intervention appeals to reciprocity, the principle, stated most generally, that if one person benefits a second, the second should reciprocate: benefit the first in return. Many authors consider it obvious that reciprocity supports P...

journal_title：Bioethics

authors： Sofaer N

更新日期：2014-11-01 00:00:00

abstract：:Peter Singer has argued that nothing done to a fetus before it acquires consciousness can harm it. At the same time, he concedes that a child can be harmed by something done to it when it was a non-conscious fetus. But this implies that the non-conscious fetus can be harmed. The mistake lies in thinking that, since ex...

journal_title：Bioethics

authors： Persson I

更新日期：1999-07-01 00:00:00

abstract：:Variation in decision-making about end-of-life care among ethnic groups creates clinical conflicts. In order to understand changes in preferences for end-of-life care among Japanese who immigrate to the United States, we conducted 18 focus groups with 122 participants: 65 English-speaking Japanese Americans, 29 Japane...

journal_title：Bioethics

authors： Bito S,Matsumura S,Singer MK,Meredith LS,Fukuhara S,Wenger NS

更新日期：2007-06-01 00:00:00

abstract：:This paper explores the legal and ethical concept of human subject research in order to determine whether genetic research with already available biosamples and data falls within this concept. Although the ethical concept seems to have evolved to recognize research based on data as human research, from a supranational...

journal_title：Bioethics

authors： Pormeister K

更新日期：2019-03-01 00:00:00

abstract：:Following Bernheim,(1) we examine aspects of 'felicitometrics,'(2) the measurement of the 'quality' term in Quality of Life (QOL). Bernheim argued that overall QOL is best captured as the Gestalt(3) of a global self-assessment and suggested that the Anamnestic Comparative Self Assessment (ACSA) approach, in which subj...

journal_title：Bioethics

authors： Kowalski C,Pennell S,Vinokur A

更新日期：2008-07-01 00:00:00

abstract：:The progress of genetic knowledge magnifies existing ethical problems in medical genetics. Among the most troubling types of problems -- for medicine, patients, and the larger society -- are those of privacy and disclosure. Examples of the range of problems involving privacy and disclosure are: 1) disclosure of fals...

journal_title：Bioethics

authors： Wertz DC,Fletcher JC

更新日期：1991-07-01 00:00:00

abstract：:This article introduces questions in psychiatric ethics regarding the substantial field of qualitative and quantitative research into 'posttraumatic growth', which investigates how, after devastating experiences, individuals can come to feel that they have developed warmer relationships, increased spirituality, or a c...

journal_title：Bioethics

authors： Harbin A

更新日期：2015-11-01 00:00:00

abstract：:Are fetuses, at any stage of their development, capable of feeling pain? In his paper, "Locating the Beginnings of Pain," Stuart Derbyshire argues that they are not. We argue that he reaches this conclusion by way of conceptual confusion, a misreading of the available scientific data and the inclusion of irrelevant da...

journal_title：Bioethics

authors： Benatar D,Benatar M

更新日期：2001-02-01 00:00:00

abstract：:Germline genome editing is often disapproved of at the international policy level because of its possible threats to human dignity. However, from a critical perspective the relationship between this emerging technology and human dignity is relatively understudied. We explore the main principles that are referred to wh...

journal_title：Bioethics

authors： Segers S,Mertes H

更新日期：2020-01-01 00:00:00

abstract：:In this paper I analyse the ethical implications of the two main competing methodologies in genomic research. I do not aim to provide another contribution from the mainstream legal and public policy perspective; rather I offer a novel approach in which I analyse and describe the patent-and-publish regime (the propriet...

journal_title：Bioethics

authors： Marturano A

更新日期：2009-09-01 00:00:00

abstract：:Prominent international and national ethics commissions such as the UNESCO International Bioethics Committee rarely achieve anything remotely resembling gender equality, although local research and ethics committees are somewhat more egalitarian. Under-representation of women is particularly troubling when the subject...

journal_title：Bioethics

authors： Dickenson D

更新日期：2006-06-01 00:00:00

abstract：:Jansen and Wall suggest a new way of defending hard paternalism in clinical research. They argue that non-therapeutic research exposing people to more than minimal risk should be banned on egalitarian grounds: in preventing poor decision-makers from making bad decisions, we will promote equality of welfare. We argue t...

journal_title：Bioethics

authors： Edwards SJ,Wilson J

更新日期：2012-02-01 00:00:00

abstract：:Intersexuality, particularly in the global South, remains an under-researched field of study. In my in-progress doctoral research project, I explore the cultural, social, and medical discourses that influence how key stakeholders such as healthcare providers make decisions about the sex and gender assignment of the in...

journal_title：Bioethics

authors： Das A

更新日期：2020-07-01 00:00:00

abstract：:It has been claimed in several places that the new genetic technologies allow humanity to achieve in a generation or two what might take natural selection hundreds of millennia in respect of the elimination of certain diseases and an increase in traits such as intelligence. More radically, it has been suggested that t...

journal_title：Bioethics

authors： Brassington I

更新日期：2010-10-01 00:00:00

abstract：:I argue that appeals to conscience do not constitute reasons for granting healthcare professionals exemptions from providing services they consider immoral (e.g. abortion). My argument is based on a comparison between a type of objection that many people think should be granted, i.e. to abortion, and one that most peo...

journal_title：Bioethics

authors： Giubilini A

更新日期：2017-06-01 00:00:00

abstract：BACKGROUND:Empirical studies in Muslim communities on organ donation and blood transfusion show that Muslim counsellors play an important role in the decision process. Despite the emerging importance of online English Sunni fatwas, these fatwas on organ donation and blood transfusion have hardly been studied, thus crea...

journal_title：Bioethics

authors： Van den Branden S,Broeckaert B

更新日期：2011-03-01 00:00:00

abstract：:In 'New Threats to Academic Freedom' Francesca Minerva argues that anonymity for the authors of controversial articles is a prerequisite for academic freedom in the Internet age. This argument draws its intellectual and emotional power from the author's account of the reaction to the on-line publication of ' After-bir...

journal_title：Bioethics

authors： Baker R

更新日期：2014-05-01 00:00:00

abstract：:An educated guess about the future of academic bioethics can only be made on the basis of the historical conditions of its success. According to its official history, which attributes its success primarily to the service it has done for the patient, it should be safe at least as long as the patient still needs its ser...

journal_title：Bioethics

authors： Epstein M

更新日期：2010-06-01 00:00:00

abstract：:Women face extraordinary difficulty in seeking sterilization as physicians routinely deny them the procedure. Physicians defend such denials by citing the possibility of future regret, a well-studied phenomenon in women's sterilization literature. Regret is, however, a problematic emotion upon which to deny reproducti...

journal_title：Bioethics

authors： Lalonde D

更新日期：2018-06-01 00:00:00

abstract：:Like any discipline, bioethics is a developing field of academic inquiry; and recent trends in scholarship have been towards more engagement with empirical research. This 'empirical turn' has provoked extensive debate over how such 'descriptive' research carried out in the social sciences contributes to the distinctiv...

journal_title：Bioethics

authors： Frith L

更新日期：2012-05-01 00:00:00

abstract：:This paper considers what should be done about offers of organs for transplant that come with racist strings attached. Saving lives or improving their quality seem powerful reasons to accept the offer. Fairness, justice, and rejecting racism seem like powerful reasons against. This paper argues that conditional alloca...

journal_title：Bioethics

authors： Wilkinson TM

更新日期：2007-02-01 00:00:00

abstract：:In 2015, the Chinese pharmacologist, Tu Youyou, was awarded the Nobel Prize for Physiology or Medicine for the discovery of artemisinin. Traditional Chinese medicine (TCM) was the source of inspiration for Tu's discovery and provides an opportunity for the world to know more about TCM as a source of medical knowledge ...

journal_title：Bioethics

authors： Zheng WR,Li EC,Peng S,Wang XS

更新日期：2020-02-01 00:00:00

abstract：:Recent ethical and legal challenges have arisen concerning the rights of individuals over their IVF embryos, leading to questions about how, when the wishes of parents regarding their embryos conflict, such situations ought to be resolved. A notion commonly invoked in relation to frozen embryo disputes is that of repr...

journal_title：Bioethics

authors： Chan S,Quigley M

更新日期：2007-10-01 00:00:00

abstract：:Funders (located primarily in high-income countries) and high-income country researchers have historically dominated decision-making within global health research collaborations: from setting agendas and research design to determining how data are collected and analysed and what happens with findings and outputs. The ...

journal_title：Bioethics

authors： Pratt B

更新日期：2020-11-01 00:00:00

abstract：:Do biological relations ground responsibilities between biological fathers and their offspring? Few think biological relations ground either necessary or sufficient conditions for responsibility. Nevertheless, many think biological relations ground responsibility at least partially. Various scenarios, such as cases co...

journal_title：Bioethics

authors： Beverley J

更新日期：2016-06-01 00:00:00

abstract：:Political communities across the world have recently sought to tackle rising rates of vaccine hesitancy and refusal, by implementing coercive immunization programs, or by making existing immunization programs more coercive. Many academics and advocates of public health have applauded these policy developments, and the...

journal_title：Bioethics

authors： Navin MC,Attwell K

更新日期：2019-11-01 00:00:00