Pain burden in desmoid tumor patients: a survey of the French Advocacy Group SOS Desmoid.

Abstract:

INTRODUCTION:The French Patient Advocacy Group SOS Desmoid conducted a survey to measure the pain burden of desmoid tumor patients. MATERIAL AND METHODS:We used a structured questionnaire to measure the occurrence and consequences of pain. RESULTS:The pain occurrence was approximately 63%. In one-third of the cases, the pain was permanent. This pain led to severe social and economic consequences. DISCUSSION:The occurrence of pain and its consequences are underestimated among these patients. Pain needs to be closely and precisely measured and monitored in future clinical trials to assess the efficacy of proposed treatments better.

journal_name

Bull Cancer

journal_title

Bulletin du cancer

authors

Rigaux P,Lefebvre-Kuntz D,Penel N,“SOS Desmoïde”.

doi

10.1016/j.bulcan.2015.02.001

subject

Has Abstract

pub_date

2015-03-01 00:00:00

pages

213-6

issue

3

eissn

0007-4551

issn

1769-6917

pii

S0007-4551(15)00049-1

journal_volume

102

pub_type

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