Abstract:
:Many barriers to the provision of general practice (GP) care for people with intellectual disabilities (ID) relate to problems in exchanging health information. Deficits in the exchange of health information may have an adverse impact on healthcare access and health outcomes in individuals with ID. The aim of this paper is to report how health information exchange (HIE) in GP care for people with ID is being described in the ID healthcare literature. Thematic analysis of 19 included articles resulted in six major themes: (1) communication skills; (2) organisational factors; (3) record keeping and sharing; (4) health literacy and self-advocacy; (5) carers and health professionals' knowledge; and (6) third parties. The results indicate that HIE takes place in a chain of events happening before, during, and after a medical consultation, depending on specific contextual care factors. The included papers lack a broad focus on the entire HIE process, and causes and effects of gaps in health information are described only marginally or on a very general level. However, a study of the HIE process in its entirety is imperative in order to identify weak links and gaps in information pathways. The themes presented here provide a starting point for an in-depth study on the HIE process in GP care for individuals with ID that may facilitate future research on health interventions in this setting.
journal_name
Res Dev Disabiljournal_title
Research in developmental disabilitiesauthors
Mastebroek M,Naaldenberg J,Lagro-Janssen AL,van Schrojenstein Lantman de Valk Hdoi
10.1016/j.ridd.2014.04.029subject
Has Abstractpub_date
2014-09-01 00:00:00pages
1978-87issue
9eissn
0891-4222issn
1873-3379pii
S0891-4222(14)00186-3journal_volume
35pub_type
杂志文章,评审abstract:BACKGROUND:Although characterised by motor impairments, children with Developmental Coordination Disorder (DCD) also show high rates of psychopathology (anxiety, depression, low self-esteem). Such findings have led to calls for the screening of mental health problems in this group. AIMS:To investigate patterns and pro...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2017.08.001
更新日期:2017-11-01 00:00:00
abstract::The prevalence of co-morbid depression in people with intellectual disability (ID) provides a strong rationale for the early identification and treatment of individuals at risk. The aim of this study was to evaluate a staff-administered group CBT program for the treatment of depression in people with mild ID. A sample...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2007.09.005
更新日期:2008-11-01 00:00:00
abstract::This study examined the effects of training and feedback on instructor performance of Discrete Trial Teaching (DTT) and support skills. This included an examination of the generalization and maintenance of instructor skills, and the impact of instructor skills on student performance. Six undergraduate research assista...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2007.05.001
更新日期:2008-05-01 00:00:00
abstract::A multiple-baseline across-subjects design was used to determine whether reinforcement alone or in combination with sentence-combining exercises would increase the number of descriptive adjectives used in daily writing samples by three adolescents with autism. The cumulative number of new adjectives (adjectives never ...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/0891-4222(94)90036-1
更新日期:1994-01-01 00:00:00
abstract::Children with intellectual disabilities show deficits in cognitive abilities and adaptive behavior which increase the risk of psychopathological disorders. This exploratory study aims at delineating profiles of children based on their cognitive functioning and adaptive behaviors, and to compare them on psychopathologi...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2009.07.016
更新日期:2010-01-01 00:00:00
abstract::This article reviews the literature on correspondence training and discusses issues of theoretical, conceptual, or applied importance. Generalization, maintenance, and application to mentally retarded individuals are addressed. The relationship between correspondence training procedures and the concept of self-control...
journal_title:Research in developmental disabilities
pub_type: 杂志文章,评审
doi:10.1016/0891-4222(90)90024-3
更新日期:1990-01-01 00:00:00
abstract:BACKGROUND:Screening and diagnostic assessments tools for autism spectrum disorder (ASD) are important to administer during childhood to facilitate timely entry into intervention services that can promote developmental outcomes across the lifespan. However, assessment services are not always readily available to famili...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2021.103852
更新日期:2021-01-08 00:00:00
abstract:BACKGROUND:Neurodevelopmental learning and attentional disorders (NLAD) such as dyslexia, dyscalculia and attention deficit hyperactivity disorder (ADHD) affect at least 6% of the adult population or more. They are associated with atypical cognitive patterns in early and adult life. The cognitive patterns of affected i...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2018.03.009
更新日期:2018-06-01 00:00:00
abstract::This study aimed to explore the generalization of contextual integration from within-modality (visual-visual) to cross-modal (visual-auditory) processing in people with Williams syndrome (WS), and to clarify whether the concreteness or social relatedness of stimuli contributed to contextual coherence using pictures. C...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.09.002
更新日期:2013-12-01 00:00:00
abstract::The current study examined the relations among components of a physical activity program, Special Olympics (SO), and the self-concepts (i.e., perceived physical competence, social acceptance, and general self-worth) and adaptive behaviors of individuals with developmental disabilities. This research can assist in the ...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/s0891-4222(03)00043-x
更新日期:2003-07-01 00:00:00
abstract::Developmental Coordination Disorder (DCD) affects around 2-6% of the population and is diagnosed on the basis of poor motor coordination in the absence of other neurological disorders. Its psychosocial impact has been delineated in childhood but until recently there has been little understanding of the implications of...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.01.003
更新日期:2013-04-01 00:00:00
abstract::Previous studies have shown that deficiencies in visuospatial perception and semantic processing in people with Williams syndrome (WS) are due to deficient central cohesiveness. Unlike previous studies that used abstract stimuli, this study used pictures to determine the relative ability of people with WS to integrate...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2012.11.015
更新日期:2013-03-01 00:00:00
abstract::Research has shown that physical exercise enhances cognitive performance in individuals with intact cognition as well as in individuals diagnosed with intellectual and developmental disabilities. Although well identified in the field of health (for example, the transient hypofrontality theory), the underlying neurocog...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.05.037
更新日期:2013-09-01 00:00:00
abstract:BACKGROUND:Children with autism spectrum disorder (ASD) often suffer from sleep problems that in turn correlate with behavioral problems. However, in Japan, there have been few studies of sleep problems in children with ASD. AIMS:This study compared sleep problems in preschoolers from the community and preschoolers wi...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2015.11.002
更新日期:2016-02-01 00:00:00
abstract::Recent studies indicate that children with intellectual disabilities have functional limitations primarily in the phonological loop of working memory (Baddeley, 1986). These findings are indicative of a specific structural deficit. Building on this research, the present study examines whether it is possible to identif...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2011.03.022
更新日期:2011-09-01 00:00:00
abstract::The context for the present study was a cluster-randomized controlled trial of a group-based anger-management intervention, delivered by day-service staff. We aimed to develop a scale to measure the fidelity of manualized cognitive-behavioural therapy (CBT) delivered to adults with intellectual disabilities in group-b...
journal_title:Research in developmental disabilities
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.ridd.2013.09.006
更新日期:2013-11-01 00:00:00
abstract:BACKGROUND/OBJECTIVES:Obesity is a health problem in China, but there are no reports on the obesity status of Chinese citizens with intellectual disabilities (ID). Research has shown that adults with ID have higher body mass index (BMI) than adults without ID, but this information is primarily based on populations resi...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2015.05.005
更新日期:2015-06-01 00:00:00
abstract::The aim of this study was to investigate orthostatic reactions in females with Rett syndrome (RTT), and also whether the severity of the syndrome had an impact on autonomic reactions. Based on signs of impaired function of the central autonomic system found in RTT, it could be suspected that orthostatic reactions were...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2013.02.027
更新日期:2013-06-01 00:00:00
abstract::Information was collected from 88 staff about their observations of the occurrence and frequency of challenging behaviors in 22 individuals with developmental disabilities with whom they worked. Staff reports suggested considerable variability in challenging behavior in the presence of different staff and, from day to...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/s0891-4222(01)00069-5
更新日期:2001-05-01 00:00:00
abstract::Misconceptions and stigma associated with autism vary across cultures and may be influenced by various factors. Undergraduates in Japan (N = 212) and the United States (US) (N = 365) completed an online autism training, with pre- and posttest surveys assessing autism-related stigma (i.e., social distance) and knowledg...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2018.02.016
更新日期:2018-05-01 00:00:00
abstract::This study examines the motor skills and motor-related daily functions of higher education students with and without dysgraphia, and their contribution in predicting handwriting performance. The sample included 82 higher education students aged 20-35 years old. Thirty-four were students without any known developmental...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2019.103479
更新日期:2019-11-01 00:00:00
abstract::A multiple baseline across tasks design was used to evaluate the production effects of video self-modeling on three activities of daily living tasks of an adult male with Autism Spectrum Disorder and Intellectual Disability. Results indicated large increases in task accuracy after the production of a self-modeling vid...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2017.09.012
更新日期:2017-12-01 00:00:00
abstract::Self-management procedures, such as self-monitoring, self-administering consequences, and self-instructing, are frequently taught to people with developmental disabilities. In this paper, research examining the use of self-management procedures is reviewed and critiqued. Areas for future investigation are discussed. ...
journal_title:Research in developmental disabilities
pub_type: 杂志文章,评审
doi:10.1016/0891-4222(92)90026-3
更新日期:1992-01-01 00:00:00
abstract:BACKGROUND:Like any child, children with Down syndrome (DS) affect the lives of their families. Most studies focus on the adaptation of parents and families of young children with DS, while relatively few studies include the perspective of fathers. AIMS:To determine 1) whether mothers and fathers of 11 to 13-year-olds...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2016.09.014
更新日期:2016-12-01 00:00:00
abstract:BACKGROUND:Approximately 71,454 children younger than 5 years old have a disability in Ecuador. AIMS:Our objective was to compare and relate family cohesion, adaptability, coping, perceived stress, and control with family satisfaction of Ecuadorian mothers of preschool children with and without intellectual disabiliti...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2020.103735
更新日期:2020-10-01 00:00:00
abstract::The latest researches have adopted software technology by applying the Nintendo Wii Remote Controller to the correction of hyperactive limb behavior. This study extended Wii Remote Controller functionality for improper head position (posture) correction (i.e. actively adjusting abnormal head posture) to assess whether...
journal_title:Research in developmental disabilities
pub_type: 临床试验,杂志文章
doi:10.1016/j.ridd.2011.04.008
更新日期:2011-09-01 00:00:00
abstract::Three analyses were conducted to assess the effects of different consequent stimuli on the rate of stereotypical and self-injurious behavior performed by two individuals with severe developmental disabilities and dual sensory impairments. An analogue functional analysis documented an undifferentiated pattern of proble...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/s0891-4222(96)00038-8
更新日期:1997-01-01 00:00:00
abstract::Predictors of depression over time were examined in parental carers of children with developmental disabilities (DD) and parents of typically developing children (controls) who participated in the Growing up in Ireland Study. Parents completed measures of depression, the Centre for Epidemiological Depression Scale (CE...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2018.07.001
更新日期:2018-09-01 00:00:00
abstract:BACKGROUND:Separation anxiety among intellectually disabled (ID) persons with comorbid visual impairment could be rooted in a weak sense of person permanence. Technology-assisted Therapy for Separation Anxiety (TTSA) was used to address this problem. AIMS:The primary aim was to determine whether technology alone or in...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2015.08.005
更新日期:2015-12-01 00:00:00
abstract::Research on adult typically-developing (TD) siblings of individuals with developmental disabilities remains limited, and outcomes for TD siblings appear to vary widely. For the current study, 82 adult TD siblings of individuals with autism spectrum disorder (ASD) or intellectual disability (ID) completed questionnaire...
journal_title:Research in developmental disabilities
pub_type: 杂志文章
doi:10.1016/j.ridd.2017.01.008
更新日期:2017-03-01 00:00:00