Impact of dementia on caring for patients' diabetes.

Abstract:

OBJECTIVE:To explore caregivers' challenges and quality-of-life issues managing diabetes in patients with dementia. METHOD:We conducted six focus groups with 21 caregivers of patients with dementia and type 2 diabetes. Focus groups were digitally recorded, transcribed, and translated using a software coding system. Emergent themes were identified and confirmed. RESULTS:Three themes emerged. (1) Memory loss was the first identified cause of self-care neglect leading to caregiver intervention. (2) Behavioral and psychological symptoms of dementia (BPSD) disrupted the daily diabetes care routine, with 'denial' of having diabetes or memory loss (anosognosia) being the most disruptive. (3) Caregivers reported that caring for both diabetes and dementia was highly burdensome, felt overwhelmed with BPSD, and wanted more support from family and patients' healthcare providers. CONCLUSION:Caregivers of patients with dementia and diabetes face extraordinary challenges managing both conditions and the accompanying BPSD. Their identified need for a greater response from the healthcare system should be tested in quality improvement programs for this overlooked yet rapidly growing population.

journal_name

Aging Ment Health

journal_title

Aging & mental health

authors

Feil DG,Lukman R,Simon B,Walston A,Vickrey B

doi

10.1080/13607863.2011.569485

subject

Has Abstract

pub_date

2011-09-01 00:00:00

pages

894-903

issue

7

eissn

1360-7863

issn

1364-6915

pii

937194435

journal_volume

15

pub_type

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