Development and testing of a CD-ROM program for improving adolescent knowledge of inflammatory bowel disease.

Abstract:

OBJECTIVE:The aim of this study was to design a theory-based educational program for adolescents with inflammatory bowel disease (IBD) using an interactive multimedia CD-ROM and to test its effectiveness in improving knowledge in IBD. MATERIALS AND METHODS:Curriculum-based instruction using educational theory and principles was designed for adolescents on an interactive multimedia CD-ROM. Twenty subjects completed summative evaluation of the CD-ROM measuring gain in knowledge about IBD immediately and 9 months after instruction. RESULTS:Subjects found the CD-ROM to be informative, appealing, and easy to use. The mean baseline score of the adolescents on the Crohn's and Colitis Knowledge questionnaire was 12.2 (standard deviation 5.14, range 3-24). After an average of 30 minutes of self-directed learning, adolescent subjects increased their posttest score to a mean of 19.8, a gain of 7.6 points over baseline (95% confidence interval 5.2-10.1, P < 0.0001). Knowledge of medications, disease complications, and gastrointestinal structure and function was gained and retained upon retesting at 9 months with a mean Crohn's and Colitis Knowledge questionnaire score of 17.5 (standard deviation 3.9, range 12-26), which was still an improvement over the mean pretest knowledge score of 12.2 (P < 0.001). CONCLUSIONS:Adolescents with IBD have low baseline knowledge about their disease. A rigorously developed interactive educational tool is now available for instructing adolescent patients about their IBD.

authors

Boamah LM,Bohren JR,Pentiuk S,Baker R,Yi M,Moyer MS

doi

10.1097/MPG.0b013e3181b1356a

subject

Has Abstract

pub_date

2010-05-01 00:00:00

pages

521-5

issue

5

eissn

0277-2116

issn

1536-4801

pii

00005176-201005000-00010

journal_volume

50

pub_type

杂志文章
  • Clostridium difficile in inflammatory bowel disease relapse.

    abstract::Stools of 65 patients with exacerbation of symptoms of inflammatory bowel disease were examined for the presence of enteric pathogens and Clostridium difficile. Ten (16%) had C. difficile toxin. Symptoms in all patients cleared after therapy, with improvement correlating with elimination of toxin from the stool. ...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-199107000-00007

    authors: Gryboski JD

    更新日期:1991-07-01 00:00:00

  • Tissue transglutaminase antibodies are a useful serological marker for the diagnosis of celiac disease in patients with Down syndrome.

    abstract:BACKGROUND:Celiac disease (CD) is overrepresented among patients with Down syndrome (DS), who frequently lack any typical symptoms. Therefore, screening for CD is recommended in this high-risk group. The aim of the study was to determine the prevalence of CD in Arab children with DS and evaluate the contribution of imm...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0b013e3180320679

    authors: Shamaly H,Hartman C,Pollack S,Hujerat M,Katz R,Gideoni O,Shamir R

    更新日期:2007-05-01 00:00:00

  • Hypereosinophilic syndrome in childhood appearing as inflammatory bowel disease.

    abstract::A 7-year-old girl with hypereosinophilic syndrome is described, the first such patient to present with inflammatory bowel disease. Hepatosplenomegaly, anaemia, and hypergammaglobulinaemia were also prominent features. Colonoscopy revealed a frank colitis of nonspecific histologic appearance. An elemental diet was unhe...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-199102000-00023

    authors: Falade AG,Darbyshire PJ,Raafat F,Booth IW

    更新日期:1991-02-01 00:00:00

  • Update on progressive familial intrahepatic cholestasis.

    abstract::Three distinct forms of familial intrahepatic cholestasis are the result of mutations in the ATP8B1, ABCB11, and ABCB4 genes. The pathophysiologies of the latter 2 of these diseases are well characterized and are the result of abnormalities in canalicular excretion of bile acids and phospholipids, respectively. The mo...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章,评审

    doi:10.1097/MPG.0b013e3181596060

    authors: Alissa FT,Jaffe R,Shneider BL

    更新日期:2008-03-01 00:00:00

  • Value of Fecal Calprotectin as a Biomarker for Juvenile Polyps in Children Investigated With Colonoscopy.

    abstract:OBJECTIVES:The clinical presentation of colonic juvenile polyps with abdominal discomfort and occult rectal bleedings make them difficult to recognize. The aim of this study was to report the clinical features of colonic juvenile polyps in children referred to colonoscopy and evaluate fecal calprotectin (FCP) as a scre...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0000000000000893

    authors: Olafsdottir I,Nemeth A,Lörinc E,Toth E,Agardh D

    更新日期:2016-01-01 00:00:00

  • Direct medical costs of constipation from childhood to early adulthood: a population-based birth cohort study.

    abstract:BACKGROUND:Although direct medical costs for constipation-related medical visits are thought to be high, to date there have been no studies examining whether longitudinal resource use is persistently elevated in children with constipation. Our aim was to estimate the incremental direct medical costs and types of health...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0b013e3181e67058

    authors: Choung RS,Shah ND,Chitkara D,Branda ME,Van Tilburg MA,Whitehead WE,Katusic SK,Locke GR 3rd,Talley NJ

    更新日期:2011-01-01 00:00:00

  • Pilot Study of Functional Magnetic Resonance Imaging Responses to Somatic Pain Stimuli in Youth With Functional and Inflammatory Gastrointestinal Disease.

    abstract:BACKGROUND:Brain-gut axis signaling modifies gastrointestinal symptomatology. Altered neural processing of intestinal pain signals involves interoceptive brain regions in adults with functional and inflammatory gastrointestinal disorders. Although these disorders frequently present in childhood, there are no published ...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0000000000001390

    authors: Huang JS,Terrones L,Simmons AN,Kaye W,Strigo I

    更新日期:2016-11-01 00:00:00

  • Gastric acid hypersecretion in short bowel syndrome in infants: association with extent of resection and enteral feeding.

    abstract::To determine the frequency of gastric acid hypersecretion in infants with chronic malabsorption due to short bowel syndrome, acid secretory function was determined in 23 infants with malabsorption 2-22 months following small bowel resection and in a control group of 14 chronically ill, age- and weight-matched infants ...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:

    authors: Hyman PE,Everett SL,Harada T

    更新日期:1986-03-01 00:00:00

  • North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition Position Paper on Entrustable Professional Activities: Development of Pediatric Gastroenterology, Hepatology, and Nutrition Entrustable Professional Activities.

    abstract::Quality training in pediatric gastroenterology, hepatology, and nutrition is essential for the future of our specialty from advancing the science through research to providing clinical care for children with gastrointestinal, hepatic and nutritional disorders. As educational theory has developed, both the American Boa...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0000000000002684

    authors: Sauer CG,Robson J,Turmelle YP,Cerezo CS,Loomes KM,Huang JS,Quiros-Tejeira RE,Benkov KJ,Narkewicz MR,Leichtner A,Weinstein T

    更新日期:2020-07-01 00:00:00

  • Immune status of infants fed soy-based formulas with or without added nucleotides for 1 year: part 1: vaccine responses, and morbidity.

    abstract:BACKGROUND:Immunologic development of soy-fed infants has not been extensively studied. Early studies of soy flour-based formulas showed decreased immunoglobulin production when soy protein intake was limited. However, there were no significant differences in rotavirus vaccine responses between breast-fed and soy prote...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1097/00005176-200202000-00007

    authors: Ostrom KM,Cordle CT,Schaller JP,Winship TR,Thomas DJ,Jacobs JR,Blatter MM,Cho S,Gooch WM 3rd,Granoff DM,Faden H,Pickering LK

    更新日期:2002-02-01 00:00:00

  • Applied potential tomography in the measurement of gastric emptying in infants.

    abstract::The aim of this study was to investigate the feasibility of using applied potential tomography (APT), a noninvasive and nonradioactive method, to measure the rate of gastric emptying in preterm babies and infants < 3 months old. APT, a form of electrical impedance tomography, creates tomographic images of tissue resis...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-199501000-00012

    authors: Nour S,Mangnall YF,Dickson JA,Johnson AG,Pearse RG

    更新日期:1995-01-01 00:00:00

  • Outpatient percutaneous liver biopsy in children.

    abstract::We reviewed data from 184 percutaneous liver biopsies performed as an outpatient procedure in 104 patients (5 weeks to 22 years of age) over a 4-year period. Hepatic allograft rejection was the indication for 130 of the biopsy procedures, while 54 were performed for a variety of indications in patients who had not und...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-199311000-00006

    authors: Gonzalez-Vallina R,Alonso EM,Rand E,Black DD,Whitington PF

    更新日期:1993-11-01 00:00:00

  • Eculizumab Is Safe and Effective as a Long-term Treatment for Protein-losing Enteropathy Due to CD55 Deficiency.

    abstract:OBJECTIVES:Loss of the complement inhibitor CD55 leads to a syndrome of early-onset protein-losing enteropathy (PLE), associated with intestinal lymphangiectasia and susceptibility to large-vein thrombosis. The in vitro and short-term treatment benefits of eculizumab (C5-inhibitor) therapy for CD55-deficiency have been...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0000000000002198

    authors: Kurolap A,Eshach Adiv O,Hershkovitz T,Tabib A,Karbian N,Paperna T,Mory A,Vachyan A,Slijper N,Steinberg R,Zohar Y,Mevorach D,Baris Feldman H

    更新日期:2019-03-01 00:00:00

  • Pediatric Celiac Disease and Eosinophilic Esophagitis: Outcome of Dietary Therapy.

    abstract:OBJECTIVE:The coexistence of celiac disease (CeD) and eosinophilic esophagitis (EoE) in pediatric patients has been increasingly recognized. In the current study, we have aimed to assess the outcomes of therapeutic dietary interventions in a cohort of pediatric patients with CeD and EoE. METHODS:Pediatric patient reco...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 临床试验,杂志文章

    doi:10.1097/MPG.0000000000002343

    authors: Patton T,Chugh A,Padhye L,DeGeeter C,Guandalini S

    更新日期:2019-08-01 00:00:00

  • Monitoring of anti-transglutaminase autoantibodies in pediatric celiac disease using a sensitive radiobinding assay.

    abstract:OBJECTIVES:The diagnosis of celiac disease (CD) is based on the histological identification of gluten-sensitive enteropathy and detection of anti-tissue transglutaminase antibodies (tTGA) and/or endomysial antibodies. Serial measurements of tTGA are now recommended as a follow-up strategy to monitor compliance with a g...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0b013e318232c459

    authors: Candon S,Mauvais FX,Garnier-Lengliné H,Chatenoud L,Schmitz J

    更新日期:2012-03-01 00:00:00

  • Fecal alpha 1-antitrypsin clearance in patients with inflammatory bowel disease.

    abstract::We evaluated fecal clearance of alpha 1-antitrypsin (alpha 1-AT) as a method of detecting and quantitating intestinal protein loss in patients with inflammatory bowel disease. We investigated alpha 1-AT clearance (C alpha 1-AT) in 14 patients (seven with Crohn's disease, seven with ulcerative colitis) and in 10 childr...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-198401000-00013

    authors: Grill BB,Hillemeier AC,Gryboski JD

    更新日期:1984-01-01 00:00:00

  • Effects of cytochalasin B on the synthesis and secretion of plasma proteins by developing rat liver.

    abstract::Antimicrotubular drugs such as colchicine impair plasma protein secretion markedly less from developing liver than from mature tissue, suggesting the reduced participation of microtubules in hepatic protein secretion during liver development. In order to evaluate the possible contribution of microfilaments to protein ...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-198801000-00020

    authors: Kaufman SS,Tuma DJ,Park JH,Grandjean CJ

    更新日期:1988-01-01 00:00:00

  • Apolipoprotein A-I:B ratio and B screening: a preliminary study of 10- and 11-year-old children.

    abstract::The apolipoprotein (apo) A-I:B ratio and the apo B concentration were determined by radial immunodiffusion in dried blood spot samples from 1,767 10- and 11-year-old children. Children with either apo A-I:B ratios below the first percentile or apo B levels above the 99th were recalled and plasma lipid and apolipoprote...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:

    authors: Sveger T,Fex G,Flodmark CE,Kjellström T,Borgfors N

    更新日期:1990-02-01 00:00:00

  • Neonatal enteropathies: defining the causes of protracted diarrhea of infancy.

    abstract::The underlying causes of chronic diarrhea beginning early in life are increasingly well defined. Infectious and post-infectious enteropathies and food sensitive/allergic enteropathy account for the majority of cases. Recent attention has focused on characterizing defined entities, which cause protracted diarrhea in in...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章,评审

    doi:10.1097/00005176-200401000-00007

    authors: Sherman PM,Mitchell DJ,Cutz E

    更新日期:2004-01-01 00:00:00

  • Predictors of Long-term Clinical and Endoscopic Remission in Children With Crohn Disease Treated With Infliximab.

    abstract:OBJECTIVES:We aimed to identify early noninvasive predictors of clinical and endoscopic remission in children with Crohn disease (CD) under infliximab (IFX). METHODS:Prospective observational study conducted in children with moderate-to-severe CD starting IFX. All patients underwent weighted pediatric CD activity inde...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0000000000002262

    authors: D'Arcangelo G,Oliva S,Dilillo A,Viola F,Civitelli F,Isoldi S,Cucchiara S,Aloi M

    更新日期:2019-06-01 00:00:00

  • Renal excretion of calcium and phosphorus in premature infants with incipient late metabolic acidosis.

    abstract:BACKGROUND:Premature infants receiving alimentation with cow milk-based formulas run a considerably high risk of incipient late metabolic acidosis, an early stage developing of manifest late metabolic acidosis. Is bone metabolism involved in pathophysiologic mechanisms characterizing this early stage of retention acido...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1097/00005176-200111000-00010

    authors: Kalhoff H,Diekmann L,Rudloff S,Manz F

    更新日期:2001-11-01 00:00:00

  • Safety of lansoprazole in the treatment of gastroesophageal reflux disease in children.

    abstract:OBJECTIVES:To evaluate the safety of lansoprazole in children between 1 and 11 years of age. METHODS:In a phase I/II, open-label, multicenter (11 sites) study, children with symptomatic gastroesophageal reflux disease (GERD), erosive esophagitis (> or = grade 2), and/or esophageal pH < 4 for > 4.2% of the 24-hour peri...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1097/00005176-200211004-00002

    authors: Tolia V,Fitzgerald J,Hassall E,Huang B,Pilmer B,Kane R 3rd

    更新日期:2002-01-01 00:00:00

  • Influence of esophageal pH recording on physical activity in children.

    abstract:OBJECTIVES:Twenty-four-hour pH-metry represents the gold standard for the diagnosis of gastroesophageal reflux. Ambulatory esophageal pH recording provides a better reflection of occurrences under normal domestic living conditions, but it may influence physical activity. The aim of this study was to assess the influenc...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/mpg.0b013e31817f2827

    authors: Michaud L,Troadec F,Béghin L,El Rifai N,Guimber D,Turck D,Gottrand F

    更新日期:2009-04-01 00:00:00

  • Development and validation of a pediatric IBD knowledge inventory device: the IBD-KID.

    abstract:OBJECTIVES:Questionnaires exist to assess inflammatory bowel disease (IBD)-related knowledge of adults. Owing to wording and content concerns, these were believed to be inappropriate for use in pediatric patients. The aim of this study was to develop a questionnaire to assess disease-related knowledge of pediatric pati...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0000000000000210

    authors: Haaland D,Day AS,Otley A

    更新日期:2014-03-01 00:00:00

  • Discriminant carbohydrate components of human milk according to donor secretor types.

    abstract::Because of the variability of human milk carbohydrate composition, we determined the discriminant carbohydrate components of the milk of 18 mothers according to their ABH and Lewis secretor types during the first week of lactation. Comparative chromatograms revealed that the presence of neuraminyloligosaccharides is l...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-199010000-00014

    authors: Viverge D,Grimmonprez L,Cassanas G,Bardet L,Solere M

    更新日期:1990-10-01 00:00:00

  • Role of eosinophils in inflammatory bowel and gastrointestinal diseases.

    abstract::Inflammatory bowel diseases (IBD) are characterized by the invasion of leukocytes into the intestinal mucosa. However, a mixed inflammatory picture is observed that includes neutrophils, lymphocytes, monocytes, and eosinophils. To this day, the role of eosinophils in health and in disease remains unclear. Investigatio...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章,评审

    doi:10.1097/MPG.0b013e3182128512

    authors: Woodruff SA,Masterson JC,Fillon S,Robinson ZD,Furuta GT

    更新日期:2011-06-01 00:00:00

  • Immunohistochemical findings in the intestine of IgA-deficient persons: number of intraepithelial T lymphocytes is increased.

    abstract::We studied jejunal biopsy specimens of 13 IgA-deficient persons (IgAdp) and 12 controls. Four Ig-Adp had celiac disease, in the others the jejunal mucosa appeared normal. Monoclonal antibodies and the peroxidase technique were used to identify T lymphocytes, T-lymphocyte subsets, HLA-DR antigens, and IgE-containing ce...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-198807000-00010

    authors: Klemola T

    更新日期:1988-07-01 00:00:00

  • In situ expression of cagA and risk of gastroduodenal disease in Helicobacter pylori-infected children.

    abstract:BACKGROUND AND AIM:Gastroduodenal disease is more common among adults and children with cagA+ Helicobacter pylori infection, but disease severity varies among those infected with cagA+ strains. We examined whether cagA in situ expression can predict disease manifestations among H pylori-infected children. PATIENTS AND...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0b013e3181bab326

    authors: Rick JR,Goldman M,Semino-Mora C,Liu H,Olsen C,Rueda-Pedraza E,Sullivan C,Dubois A

    更新日期:2010-02-01 00:00:00

  • Health-related quality of life in pediatric patients with long-standing pancreatitis.

    abstract:OBJECTIVES:There are limited data on health-related quality of life (HRQOL) in pediatric patients with long-standing pancreatitis (including acute relapsing and chronic pancreatitis) using age-appropriate measurement instruments. METHODS:We evaluated HRQOL in children with long-standing pancreatitis using the PedsQL 4...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/MPG.0b013e3182407c4f

    authors: Pohl JF,Limbers CA,Kay M,Harman A,Rollins M,Varni JW

    更新日期:2012-05-01 00:00:00

  • Severe hemorrhage from intestinal hemangiomatosis in Klippel-Trenaunay syndrome: pitfalls in diagnosis and management.

    abstract::A child with Klippel-Trenaunay syndrome (KTS) and severe anemia caused by bleeding from diffuse intestinal hemangiomatosis is presented. Hemangiomas of the bowel should be considered in any child with unexplained anemia and coexisting cutaneous hemangiomas. The diagnostic workup of patients with KTS and symptomatic he...

    journal_title:Journal of pediatric gastroenterology and nutrition

    pub_type: 杂志文章

    doi:10.1097/00005176-198601000-00031

    authors: Schmitt B,Posselt HG,Waag KL,Müller H,Bender SW

    更新日期:1986-01-01 00:00:00