Health-related quality of life in pediatric patients with long-standing pancreatitis.

Abstract:

OBJECTIVES:There are limited data on health-related quality of life (HRQOL) in pediatric patients with long-standing pancreatitis (including acute relapsing and chronic pancreatitis) using age-appropriate measurement instruments. METHODS:We evaluated HRQOL in children with long-standing pancreatitis using the PedsQL 4.0 Generic Core Scales by patient self-report as well as parent proxy report. Additionally, patient self-reports and parent proxy reports were completed for the PedsQL Multidimensional Fatigue Scale. RESULTS:Across all of the dimensions, significantly impaired HRQOL and higher fatigue were noted for both pediatric patient self-report and parent proxy report in comparison with the matched healthy children samples. Higher fatigue was associated with lower HRQOL. There was moderate to good agreement between patient self-reports and parent proxy reports. CONCLUSIONS:Given the impaired HRQOL and fatigue documented in the present study, future studies are needed to determine whether specific factors can modify HRQOL and fatigue in this patient population.

authors

Pohl JF,Limbers CA,Kay M,Harman A,Rollins M,Varni JW

doi

10.1097/MPG.0b013e3182407c4f

subject

Has Abstract

pub_date

2012-05-01 00:00:00

pages

657-63

issue

5

eissn

0277-2116

issn

1536-4801

journal_volume

54

pub_type

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