Perception of discomfort by relatives and nurses in unresponsive terminally ill patients with cancer: a prospective study.

Abstract:

:Perception of discomfort in dying patients is a risk factor for distress and bereavement among relatives. This study determined the perception of discomfort, the frequency of observed behaviors, and their association among relatives and among nurses who care for unresponsive dying patients. Sixty unresponsive dying patients' relatives and their nurses were asked to evaluate patient discomfort levels, the frequencies of six observed behaviors, and the suspected reasons for the patient discomfort. The mean levels of perceived discomfort were similar, but the association was poor between the relatives and the nurses. Relatives reported significantly more observed behaviors and associated more pain as a reason for patient discomfort than did nurses. The findings suggest that relatives are intensely attuned to their loved ones' conditions and reactions, and nurses' responses are fairly similar. Further research is warranted, however, to distinguish between the distress that the relatives perceive and the actual suffering of patients.

journal_name

J Pain Symptom Manage

authors

Bruera E,Sweeney C,Willey J,Palmer JL,Strasser F,Strauch E

doi

10.1016/s0885-3924(03)00286-0

subject

Has Abstract

pub_date

2003-09-01 00:00:00

pages

818-26

issue

3

eissn

0885-3924

issn

1873-6513

pii

S0885392403002860

journal_volume

26

pub_type

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