Abstract:
:No instrument to assess autonomy problems in palliative care is currently available. The purpose of this study was to develop a comprehensive and concise questionnaire to measure autonomy problems in palliative cancer patients and to study its validity and reliability. We systematically developed a questionnaire through: a) a literature review of the concepts and elements of autonomy; b) qualitative analysis of interviews with patients and professional carers; c) the construction of questionnaires; and d) testing validity and reliability. The basic conceptual elements were: dependency, losing control, and limitation of activities. Patients with disseminated cancer in the palliative stage of the disease (n = 64) participated in the study. A 9-item Patient Autonomy Questionnaire (PAQ) was developed (Cronbach's alpha 0.86), followed by a concise 4-item version (PAQs) (Cronbach's alpha 0.71). Autonomy problems were more prevalent than pain problems. The development of the PAQ may help draw attention to autonomy problems.
journal_name
J Pain Symptom Managejournal_title
Journal of pain and symptom managementauthors
Vernooij-Dassen MJ,Osse BH,Schadé E,Grol RPdoi
10.1016/j.jpainsymman.2005.03.010subject
Has Abstractpub_date
2005-09-01 00:00:00pages
264-70issue
3eissn
0885-3924issn
1873-6513pii
S0885-3924(05)00321-0journal_volume
30pub_type
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
doi:10.1016/j.jpainsymman.2005.07.008
更新日期:2006-03-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
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更新日期:2015-01-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
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更新日期:2011-07-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章,meta分析,评审
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更新日期:2013-10-01 00:00:00
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journal_title:Journal of pain and symptom management
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journal_title:Journal of pain and symptom management
pub_type: 临床试验,杂志文章,多中心研究
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journal_title:Journal of pain and symptom management
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journal_title:Journal of pain and symptom management
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journal_title:Journal of pain and symptom management
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更新日期:2001-12-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
doi:10.1016/j.jpainsymman.2008.02.013
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
doi:10.1016/0885-3924(90)90027-h
更新日期:1990-12-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
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journal_title:Journal of pain and symptom management
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journal_title:Journal of pain and symptom management
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pub_type: 杂志文章,多中心研究,随机对照试验
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
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更新日期:2004-11-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
doi:10.1016/j.jpainsymman.2011.11.010
更新日期:2012-11-01 00:00:00
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journal_title:Journal of pain and symptom management
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
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更新日期:2021-02-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章,多中心研究
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journal_title:Journal of pain and symptom management
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更新日期:2015-05-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章,评审
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更新日期:1991-05-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
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更新日期:1996-09-01 00:00:00
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journal_title:Journal of pain and symptom management
pub_type: 杂志文章
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