Impact of a Nurse-Led Advance Care Planning Intervention on Satisfaction, Health-Related Quality of Life, and Health Care Utilization Among Patients With Severe Respiratory Disease: A Randomized Patient-Preference Trial.

Abstract:

CONTEXT:Previous work has found that facilitated advance care planning (ACP) interventions are effective in increasing ACP uptake among patients with severe respiratory disease. OBJECTIVES:The objective of this study was to investigate whether a nurse-led, facilitated ACP intervention among participants with severe respiratory disease impacts self-reported or clinical outcomes. METHODS:A multicenter, open-label, patient-preference, randomized controlled trial of a nurse-led facilitated ACP intervention was performed. Outcome measures included self-report scales (health care satisfaction and EQ-5D-5L health-related quality of life at three- and six-month follow-up), 12-month mortality, and health care utilization during the final 90 days of life. RESULTS:One hundred forty-nine participants were recruited across two study settings (metropolitan tertiary hospital respiratory department and rural sites) and 106 were allocated to receive the ACP intervention. There was no effect of the intervention on satisfaction with health care, health-related quality of life, or 12-month mortality rates. Among those participants who died during the follow-up period (N = 54), those allocated to the ACP intervention had significantly fewer outpatient consultations (7.51 vs. 13.6, P < 0.001). There were no changes in emergency department attendances, total hospital admissions or length of stay, or home nursing visits. Among those allocated to the ACP intervention, there was a reduced length of stay in acute hospital settings (7.76 vs. 11.5 nights, P < 0.001) and increased length of stay in palliative hospital settings (5.54 vs. 2.08, P < 0.001) during the final 90 days of life. CONCLUSION:A facilitated ACP intervention among patients with severe respiratory disease did not have an impact on satisfaction, health-related quality of life, or 12-month mortality rate. Facilitated ACP may be associated with a different type of health care utilization during the end-of-life period.

journal_name

J Pain Symptom Manage

authors

Sinclair C,Auret KA,Evans SF,Jane F,Dormer S,Wilkinson A,Greeve K,Koay MA,Brims F

doi

10.1016/j.jpainsymman.2019.11.018

subject

Has Abstract

pub_date

2020-04-01 00:00:00

pages

848-855

issue

4

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(19)30673-6

journal_volume

59

pub_type

杂志文章
  • Comparing Symptom Ratings by Staff and Family Carers in Residents Dying in Long-Term Care Facilities in Three European Countries, Results From a PACE Survey.

    abstract:CONTEXT:Symptom management is essential in the end-of-life care of long-term care facility residents. OBJECTIVES:To study discrepancies and possible associated factors in staff and family carers' symptom assessment scores for residents in the last week of life. METHODS:A postmortem survey in Belgium, The Netherlands,...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.03.002

    authors: Tanghe M,Van Den Noortgate N,Deliens L,Smets T,Onwuteaka-Philipsen B,Finne-Soveri H,Van den Block L,Piers R,PACE.

    更新日期:2020-08-01 00:00:00

  • Cancer Treatment Side Effects: A Meta-analysis of the Relationship Between Response Expectancies and Experience.

    abstract:CONTEXT:Although previous research has, overall, suggested a moderate relationship between response expectancies (REs) and cancer treatment-related side effects, empirical results have been mixed. OBJECTIVES:We aimed to further explore these relationships, hypothesizing that REs would predict subsequent toxicities wit...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,评审

    doi:10.1016/j.jpainsymman.2017.03.017

    authors: Devlin EJ,Denson LA,Whitford HS

    更新日期:2017-08-01 00:00:00

  • High-dose epidural infusion of opioids for cancer pain: cost issues.

    abstract::The safety and efficacy of intraspinal opioids as therapy for selected patients with cancer pain are well-established. The choice of the appropriate drug is influenced by many variables that are to date incompletely elucidated. The cost of therapy is an increasingly important component of decision-making. This report ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(96)00266-7

    authors: Manfredi PL,Chandler SW,Patt R,Payne R

    更新日期:1997-02-01 00:00:00

  • The need for palliative care in Ireland: a population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions.

    abstract:CONTEXT:Over the history of palliative care provision in Ireland, services have predominantly provided care to those with cancer. Previous estimates of palliative care need focused primarily on specialist palliative care and included only a limited number of nonmalignant diseases. OBJECTIVES:The primary aim of this st...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2014.09.011

    authors: Kane PM,Daveson BA,Ryan K,McQuillan R,Higginson IJ,Murtagh FE,BuildCARE.

    更新日期:2015-04-01 00:00:00

  • Level of cancer pain knowledge among baccalaureate student nurses.

    abstract::Inadequate nursing education is a major impediment to effective pain relief for cancer patients throughout the world. This study was conducted to identify the level of cancer pain knowledge among baccalaureate student nurses and to determine whether specific activities affect this level of knowledge. Two questionnaire...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(92)90134-4

    authors: Sheehan DK,Webb A,Bower D,Einsporn R

    更新日期:1992-11-01 00:00:00

  • The Family Caregiving Crisis Meets an Actual Pandemic.

    abstract::The coronavirus disease 2019 (COVID-19) pandemic presents unique challenges to those who work with the seriously ill population, including both health care providers and the family caregivers providing unpaid care. We rely on this lay workforce as health care routinely transitions care to the home, and now more than e...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.04.006

    authors: Kent EE,Ornstein KA,Dionne-Odom JN

    更新日期:2020-07-01 00:00:00

  • Development and validation of the breakthrough pain assessment tool (BAT) in cancer patients.

    abstract:CONTEXT:The successful management of breakthrough pain depends on a combination of adequate assessment, appropriate (individualized) treatment, and adequate re-assessment. Currently, there is no fully validated clinical assessment tool for breakthrough pain in cancer patients. OBJECTIVES:The aim of this project was to...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2013.10.026

    authors: Webber K,Davies AN,Zeppetella G,Cowie MR

    更新日期:2014-10-01 00:00:00

  • Predicting complaints of impaired cognitive functioning in patients with chronic pain.

    abstract::Patients with chronic pain often complain of difficulties with cognitive functioning. Previous studies suggest that these occur with no history of head trauma or neurological disease. This study examined potential predictors of cognitive complaints in 275 consecutive patients referred to a university pain management c...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(01)00267-6

    authors: McCracken LM,Iverson GL

    更新日期:2001-05-01 00:00:00

  • Hypodermoclysis for the administration of fluids and narcotic analgesics in patients with advanced cancer.

    abstract::Fifty-eight consecutive patients with advanced cancer who required parenteral hydration were treated with hypodermoclysis. A solution of two-thirds 5% dextrose and one-third saline was used in all cases at a rate of 20-100 cc/hr, with 750 units of hyaluronidase per liter, and 20-40 mEq KCl/L were administered in all p...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(90)90014-b

    authors: Bruera E,Legris MA,Kuehn N,Miller MJ

    更新日期:1990-08-01 00:00:00

  • Clinicians' Views of Educational Interventions for Carers of Patients With Breathlessness Due to Advanced Disease: Findings From an Online Survey.

    abstract:CONTEXT:Carers' needs in advanced disease, and specifically in relation to breathlessness, are well evidenced. Publications on educational interventions for carers of patients with advanced disease that focus on symptoms are scarce and absent for breathlessness. OBJECTIVES:To establish current education provided by cl...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2016.08.015

    authors: Ewing G,Penfold C,Benson JA,Mahadeva R,Howson S,Burkin J,Booth S,Lovick R,Gilligan D,Todd C,Farquhar M

    更新日期:2017-02-01 00:00:00

  • The opioid contract in the management of chronic pain.

    abstract::Although the "opioid contract" is widely used in the administration of chronic opioid therapy, its use has not been well defined and there are few guidelines for developing or revising such tools. We reviewed opioid contracts from 39 major academic pain centers and analyzed every statement for its core meaning. These ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/s0885-3924(99)00035-4

    authors: Fishman SM,Bandman TB,Edwards A,Borsook D

    更新日期:1999-07-01 00:00:00

  • Could Objective Tests Be Used to Measure Fatigue in Patients With Advanced Cancer?

    abstract:CONTEXT:Assessment of cancer-related fatigue is currently based on patient-reported outcomes. We asked whether objective assessments, such as muscle strength and nutritional markers, can be used as surrogate measures of cancer-related fatigue. OBJECTIVE:We examined the association among three fatigue scales, muscle st...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2016.12.343

    authors: Schvartsman G,Park M,Liu DD,Yennu S,Bruera E,Hui D

    更新日期:2017-08-01 00:00:00

  • Influenza vaccination for terminally ill cancer patients receiving palliative care: a preliminary report.

    abstract:CONTEXT:Cancer patients have impaired humoral and cellular immunity, and are more susceptible to infections; their immunological response is expected to be less effective than that of healthy people. OBJECTIVES:To assess the immune response to influenza vaccine in terminally ill cancer patients in a home palliative ca...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2010.05.016

    authors: Sasson M,Mandelboim M,Shvartzman P

    更新日期:2011-02-01 00:00:00

  • Prostate cancer in African Americans: relationship of patient and partner self-efficacy to quality of life.

    abstract::This study examined the relationship between patient and partner ratings of self-efficacy for symptom control and quality of life (QOL) among 40 African American prostate cancer survivors and their intimate partners. Data analyses revealed that cancer survivors who had rated their self-efficacy for symptom control hig...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2004.02.020

    authors: Campbell LC,Keefe FJ,McKee DC,Edwards CL,Herman SH,Johnson LE,Colvin OM,McBride CM,Donattuci CF

    更新日期:2004-11-01 00:00:00

  • Prevalence of Neuropathic Pain in Cancer Patients: Pooled Estimates From a Systematic Review of Published Literature and Results From a Survey Conducted in 50 Italian Palliative Care Centers.

    abstract:CONTEXT:Because of the increasing body of literature on neuropathic cancer pain (NCP), an accurate estimate of its prevalence requires recurring updates. OBJECTIVES:To provide this estimate using information from a systematic review and a survey. METHODS:Using MEDLINE, Embase, and a previous review, we searched for s...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,多中心研究,评审

    doi:10.1016/j.jpainsymman.2015.12.336

    authors: Roberto A,Deandrea S,Greco MT,Corli O,Negri E,Pizzuto M,Ruggeri F

    更新日期:2016-06-01 00:00:00

  • Validation of single-item linear analog scale assessment of quality of life in neuro-oncology patients.

    abstract::Assessment of patient quality of life (QOL) requires balancing the details provided by multi-item assessments with the reduced burden of single-item assessments. In this project, we investigated the psychometric properties of single-item Linear Analog Scale Assessments (LASAs) for patients with newly diagnosed high-gr...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2007.01.016

    authors: Locke DE,Decker PA,Sloan JA,Brown PD,Malec JF,Clark MM,Rummans TA,Ballman KV,Schaefer PL,Buckner JC

    更新日期:2007-12-01 00:00:00

  • The Alberta Breakthrough Pain Assessment Tool for cancer patients: a validation study using a delphi process and patient think-aloud interviews.

    abstract::Breakthrough pain is a prevalent cancer pain syndrome, and research is needed to identify more effective interventions to manage it. A validated tool to assess breakthrough pain in a standard and reliable manner is urgently needed to support the conduct of clinical trials in breakthrough pain. To address this need, we...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2007.03.016

    authors: Hagen NA,Stiles C,Nekolaichuk C,Biondo P,Carlson LE,Fisher K,Fainsinger R

    更新日期:2008-02-01 00:00:00

  • Oxaliplatin-Induced Peripheral Neuropathy and Identification of Unique Severity Groups in Colorectal Cancer.

    abstract:CONTEXT:Oxaliplatin-induced peripheral neuropathy (OIPN) is a dose-limiting toxicity of oxaliplatin and affects most colorectal cancer patients. OIPN is commonly evaluated by patient symptom report, using scales to reflect impairment. They do not discriminate between unique grouping of symptoms and signs, which impedes...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2017.07.033

    authors: Griffith KA,Zhu S,Johantgen M,Kessler MD,Renn C,Beutler AS,Kanwar R,Ambulos N,Cavaletti G,Bruna J,Briani C,Argyriou AA,Kalofonos HP,Yerges-Armstrong LM,Dorsey SG

    更新日期:2017-11-01 00:00:00

  • Occult infection as a cause of hip pain in a patient with metastatic breast cancer.

    abstract::A 39-year-old woman with breast cancer metastatic to bone presented with acute hip pain marginally responsive to escalating doses of opioid analgesics. Pathologic pelvic fractures were present and there were minimal clinical indicators of infection, but the severity and intractable nature of the pain prompted further ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(95)00065-7

    authors: Mackey JR,Birchall I,MacDonald N

    更新日期:1995-10-01 00:00:00

  • Review of the rectal use of opioids.

    abstract::The rectal route for the administration of opioid analgesics is often forgotten by physicians seeking alternatives to the oral route. This article reviews the physiology of rectal drug absorption and such data as exists on the different opioids that have been administered by this route. Conventional fatty-based suppos...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/s0885-3924(05)80025-9

    authors: Cole L,Hanning CD

    更新日期:1990-04-01 00:00:00

  • A double-blind, randomized, crossover comparison between single-dose and double-dose immediate-release oral morphine at bedtime in cancer patients.

    abstract::The European Association for Palliative Care guidelines for treatment of cancer pain recommend a double dose (DD) of immediate-release morphine at bedtime instead of single doses (SD) repeated every four hours throughout the night. A previous open controlled study reported more side effects after DD than after SD. The...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2007.12.016

    authors: Dale O,Piribauer M,Kaasa S,Moksnes K,Knobel H,Klepstad P

    更新日期:2009-01-01 00:00:00

  • "I'd Recommend …" How to Incorporate Your Recommendation Into Shared Decision Making for Patients With Serious Illness.

    abstract::Patients and families facing serious illness often want and need their clinicians to help guide medical decision making by offering a recommendation. Yet clinicians worry that recommendations are not compatible with shared decision making and feel reluctant to offer them. We describe an expert approach to formulating ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.12.488

    authors: Jacobsen J,Blinderman C,Alexander Cole C,Jackson V

    更新日期:2018-04-01 00:00:00

  • Emergencies in patients with advanced cancer followed at home.

    abstract:CONTEXT:Patients with advanced cancer stay at home for most of their time, and acute problems may occur during home care. Caregivers may call medical services for an emergency, which can result in patients being admitted to the hospital. No data exist on emergencies in patients followed by a home care team. OBJECTIVES...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2011.07.016

    authors: Mercadante S,Porzio G,Valle A,Aielli F,Costanzo V,Adile C,Spedale V,Casuccio A,Home Care Italy Group (HOCAI).

    更新日期:2012-08-01 00:00:00

  • "It depends": viewpoints of patients, physicians, and nurses on patient-practitioner prayer in the setting of advanced cancer.

    abstract:CONTEXT:Although prayer potentially serves as an important practice in offering religious/spiritual support, its role in the clinical setting remains disputed. Few data exist to guide the role of patient-practitioner prayer in the setting of advanced illness. OBJECTIVES:To inform the role of prayer in the setting of l...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2010.07.008

    authors: Balboni MJ,Babar A,Dillinger J,Phelps AC,George E,Block SD,Kachnic L,Hunt J,Peteet J,Prigerson HG,VanderWeele TJ,Balboni TA

    更新日期:2011-05-01 00:00:00

  • Association of Persistent Intense Thirst With Delirium Among Critically Ill Patients: A Cross-sectional Study.

    abstract:CONTEXT:Thirst is a prevalent distressing symptom often reported by patients in the intensive care unit (ICU). Little is known about the association of thirst with delirium. OBJECTIVE:We aimed to investigate the relationship between thirst and delirium. METHODS:This retrospective cross-sectional study enrolled 401 pa...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.02.022

    authors: Sato K,Okajima M,Taniguchi T

    更新日期:2019-06-01 00:00:00

  • Risk Factors Associated With Chemotherapy-Induced Nausea in the Week Before the Next Cycle and Impact of Nausea on Quality of Life Outcomes.

    abstract:CONTEXT:Despite current advances in antiemetic treatments, between 19% and 58% of oncology patients experience chemotherapy-induced nausea (CIN). OBJECTIVES:Aims of this post hoc exploratory analysis were to determine occurrence, severity, and distress of CIN and evaluate for differences in demographic and clinical ch...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2018.05.019

    authors: Singh KP,Kober KM,Dhruva AA,Flowers E,Paul SM,Hammer MJ,Cartwright F,Wright F,Conley YP,Levine JD,Miaskowski C

    更新日期:2018-09-01 00:00:00

  • The patient dignity inventory: a novel way of measuring dignity-related distress in palliative care.

    abstract::Quality palliative care depends on a deep understanding of distress facing patients nearing death. Yet, many aspects of psychosocial, existential and spiritual distress are often overlooked. The aim of this study was to test a novel psychometric--the Patient Dignity Inventory (PDI)--designed to measure various sources...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2007.12.018

    authors: Chochinov HM,Hassard T,McClement S,Hack T,Kristjanson LJ,Harlos M,Sinclair S,Murray A

    更新日期:2008-12-01 00:00:00

  • Descriptions by general practitioners and nurses of their collaboration in continuous sedation until death at home: in-depth qualitative interviews in three European countries.

    abstract:CONTEXT:One palliative care approach that is increasingly being used at home for relieving intolerable suffering in terminally ill patients is continuous sedation until death. Its provision requires a multidisciplinary team approach, with adequate collaboration and communication. However, it is unknown how general prac...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2014.05.012

    authors: Anquinet L,Rietjens JA,Mathers N,Seymour J,van der Heide A,Deliens L

    更新日期:2015-01-01 00:00:00

  • Obtaining informed consent for cancer pain research: do patients with advanced cancer and patients with chronic pain have different concerns?

    abstract::To explore the factors that patients with malignant and nonmalignant pain consider when deciding whether to enroll in pain research studies, determine whether their views are different, and determine whether willingness to enroll in research is associated with pain severity, semi-structured interviews were conducted w...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(02)00527-4

    authors: Casarett D,Karlawish J,Sankar P,Hirschman KB,Asch DA

    更新日期:2002-11-01 00:00:00

  • Retrospective analysis of antibiotic use and survival in advanced cancer patients with infections.

    abstract::Infection is common among advanced cancer patients. This study was undertaken to review the pattern of use of antibiotics and to identify potential factors that could affect outcomes after infection. The medical records of all patients with advanced cancer who were enrolled into the palliative care service of a distri...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2005.06.005

    authors: Lam PT,Chan KS,Tse CY,Leung MW

    更新日期:2005-12-01 00:00:00