Suffering with dementia: the other side of "living well''.

Abstract:

:In this editorial, we challenge the current understanding of "Living Well with Dementia." Such discourse introduces the possibility of not living well with the condition or even of "living badly with dementia." Numerous words might be relevant here - grief, pain, anguish, depression - but in this editorial we consciously use the word "suffering." This term is used for two reasons; one, because it captures the attributes of other more limited words, and, two because the language of "suffering" is contentious, making it suitable for debate. We speak of suffering, not to deny the positive aspects of life with dementia or to concentrate just on the negative, but to redress the balance that is disturbed by a relentlessly positive view of living with the condition. Our aim is to promote a more realistic understanding of the dementia experience, one based on actualities and evidence rather than presumption and sentiment.

journal_name

Int Psychogeriatr

authors

Bartlett R,Windemuth-Wolfson L,Oliver K,Dening T

doi

10.1017/S104161021600199X

subject

Has Abstract

pub_date

2017-02-01 00:00:00

pages

177-179

issue

2

eissn

1041-6102

issn

1741-203X

pii

S104161021600199X

journal_volume

29

pub_type

社论
  • The evolution of dementia in idiopathic Parkinson's disease: neuropsychological and clinical evidence in support of subtypes.

    abstract::One hundred and seven newly diagnosed, untreated patients with Parkinson's disease (PD) were divided into two groups according to their age at reported onset of symptoms. Of these, 79 patients were under age 70 (early-onset) and 28 patients were age 70 and over (late-onset). The group of 50 control subjects comprised ...

    journal_title:International psychogeriatrics

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:

    authors: Reid WG

    更新日期:1992-01-01 00:00:00

  • The concept of quality of life in dementia in the different stages of the disease.

    abstract::In order to conceptually define quality of life (QOL) in dementia, the literature on QOL in the elderly population, in chronic disease and in dementia was studied. Dementia is a progressive, age-related, chronic condition and to avoid omissions within the dementia-specific concept of QOL, a broad orientation was the p...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,评审

    doi:10.1017/s1041610205002073

    authors: Ettema TP,Dröes RM,de Lange J,Ooms ME,Mellenbergh GJ,Ribbe MW

    更新日期:2005-09-01 00:00:00

  • Older women who died by suicide: suicide means, sociodemographic and psychiatric risk factors, and other precipitating circumstances.

    abstract::ABSTRACTBackground:US suicide rates among older women have substantially increased over the past decade. We examined potential differences in sociodemographic and risk/precipitating factors among older female suicide decedents who died by drug overdose versus firearms, hanging/suffocation, and other means, and postmor...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610218000212

    authors: Choi NG,DiNitto DM,Sagna AO,Marti CN

    更新日期:2018-10-01 00:00:00

  • Neuropsychiatric symptom clusters of Alzheimer's disease in Hong Kong Chinese: prevalence and confirmatory factor analysis of the Neuropsychiatric Inventory.

    abstract:BACKGROUND:The aim of this study was to investigate the clustering of symptoms on the Neuropsychiatric Inventory (NPI) and the relative prevalence of symptom clusters in mild and moderate Alzheimer's disease (AD). METHODS:Confirmatory factor analysis (CFA) was performed on the polychoric correlation matrix of 12 NPI i...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610212000609

    authors: Cheng ST,Kwok T,Lam LC

    更新日期:2012-09-01 00:00:00

  • Characteristics and diagnostic profile of patients seeking dementia care in a memory clinic in Hong Kong.

    abstract:BACKGROUND:Seeking medical advice for dementia involves an understanding of norms, values and attitudes towards care-giving and inter-dependency, which are culturally bounded. We hypothesize that local culture and socioeconomic structure affect our Chinese patients who present with forgetfulness to our memory clinic. ...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S104161020800817X

    authors: Sheng B,Law CB,Yeung KM

    更新日期:2009-04-01 00:00:00

  • Joining forces to prevent dementia: The International Research Network On Dementia Prevention (IRNDP).

    abstract::Dementia is a neurodegenerative disorder with global impact, with the largest proportion of cases occurring in low- and middle-income countries. It is estimated that there are 46.8 million cases globally with approximately 10 million new cases each year or a new case occurring every 3 sec (Prince et al., 2015). For co...

    journal_title:International psychogeriatrics

    pub_type: 社论

    doi:10.1017/S1041610217001685

    authors: Anstey KJ,Peters R,Clare L,Lautenschlager NT,Dodge HH,Barnes DE,Shahar S,Brodaty H,Rees G

    更新日期:2017-11-01 00:00:00

  • Caregivers' perspectives on the pre-diagnostic period in early onset dementia: a long and winding road.

    abstract:BACKGROUND:Recognizing and diagnosing early onset dementia (EOD) can be complex and often takes longer than for late onset dementia. The objectives of this study are to investigate the barriers to diagnosis and to develop a typology of the diagnosis pathway for EOD caregivers. METHODS:Semi-structured interviews with 9...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610211001013

    authors: van Vliet D,de Vugt ME,Bakker C,Koopmans RT,Pijnenburg YA,Vernooij-Dassen MJ,Verhey FR

    更新日期:2011-11-01 00:00:00

  • Implementation of evidence-based, non-pharmacological interventions addressing behavior and psychological symptoms of dementia: a systematic review focused on implementation strategies.

    abstract:OBJECTIVE:This study aimed to identify the nature and effects of implementation strategies to increase the use of evidence-based, non-pharmacological interventions designed to reduce the frequency and/or severity of behavioral and psychological symptoms associated with dementia, for people living in the community. DES...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610220001702

    authors: Bennett S,Laver K,MacAndrew M,Beattie E,Clemson L,Runge C,Richardson L

    更新日期:2020-11-16 00:00:00

  • Success at 100 is easier said than done--comments on Araújo et al: successful aging at 100 years.

    abstract::Few would argue that achieving the age of 100 years is extraordinary, but what about the quality of life at this extreme age? Is it worth it to live to 100 and beyond? The study by Araújo, Ribero, Teixeira, and Paúl (2015) in three ways provided an answer to this question substantiating and complementing recent findin...

    journal_title:International psychogeriatrics

    pub_type: 评论,杂志文章

    doi:10.1017/S1041610215002021

    authors: Martin P,Poon LW

    更新日期:2016-02-01 00:00:00

  • A randomized, placebo-controlled trial of the discontinuation of long-term antipsychotics in dementia.

    abstract::The objectives of this randomized clinical trial were to investigate the impact of the discontinuation of long-term antipsychotics in residents with dementia in chronic care institutions and to identify clinical predictors of safe discontinuation. Subjects included 34 residents with dementia who were on antipsychotics...

    journal_title:International psychogeriatrics

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1017/s1041610202008396

    authors: van Reekum R,Clarke D,Conn D,Herrmann N,Eryavec G,Cohen T,Ostrander L

    更新日期:2002-06-01 00:00:00

  • Family caregiving in dementia: prediction of caregiver burden 12 months after relocation to group-living care.

    abstract::The strain of caregiving associated with the care of demented persons living at home often continues after relocation and group-living care units (GL), designed for a small number of subjects, have been developed. The aim was to prospectively describe caregiver burden in relationship to symptoms of patients with demen...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/s1041610298005249

    authors: Elmståhl S,Ingvad B,Annerstedt L

    更新日期:1998-06-01 00:00:00

  • Age of onset and brain atrophy in Alzheimer's disease.

    abstract::Using magnetic resonance imaging-based planimetry, we measured cortical and cerebral (cortical and ventricular) atrophy in 26 patients with Alzheimer's disease (AD) (age, 72.2 +/- 7.0) according to NINCDS-ADRDA criteria and 22 control subjects (age, 71.5 +/- 5.4). AD patients exhibited greater cerebral atrophy (p < .0...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/s104161029700433x

    authors: Woo JI,Kim JH,Lee JH

    更新日期:1997-06-01 00:00:00

  • Exploring dementia management attitudes in primary care: a key informant survey to primary care physicians in 25 European countries.

    abstract::I read with great interest the study of Petrazzuoli et al. (2017) on exploring dementia management attitudes in primary care. The authors made a laudable effort to evaluate this important issue, which certainly needs timely attention. The high response rate from 25 member countries of the European General Practice Res...

    journal_title:International psychogeriatrics

    pub_type: 评论,信件

    doi:10.1017/S1041610217003003

    authors: Yaman H

    更新日期:2018-09-01 00:00:00

  • Do interventions with staff in long-term residential facilities improve quality of care or quality for life people with dementia? A systematic review of the evidence.

    abstract:BACKGROUND:Common sense suggests and research indicates relationships between staff factors in residential dementia care and quality of life (QOL) for residents, with poor care increasing suffering. However, we do not have a coherent picture of which staff interventions have an impact on quality of care (QOC) or reside...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610216001083

    authors: Bird M,Anderson K,MacPherson S,Blair A

    更新日期:2016-12-01 00:00:00

  • Drug-related problems in community-dwelling primary care patients screened positive for dementia.

    abstract:BACKGROUND:Older people have a higher risk of drug-related problems (DRPs). However, little is known about the prevalence of DRPs in community-dwelling people who screened positive for dementia. Our study aimed to determine (1) the prevalence and types of DRPs and (2) the socio-demographic and clinical variables associ...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610217001442

    authors: Wucherer D,Thyrian JR,Eichler T,Hertel J,Kilimann I,Richter S,Michalowsky B,Zwingmann I,Dreier-Wolfgramm A,Ritter CA,Teipel S,Hoffmann W

    更新日期:2017-11-01 00:00:00

  • Prevalence, neurobiology, and treatments for apathy in prodromal dementia.

    abstract:BACKGROUND:Apathy, characterized by diminished motivation, is a highly prevalent neuropsychiatric symptom in dementia. However, there is a substantial knowledge gap with regard to prevalence rates, neurobiological underpinnings, and effective treatments for apathy in pre-dementia states, including mild cognitive impair...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,评审

    doi:10.1017/S1041610217000527

    authors: Sherman C,Liu CS,Herrmann N,Lanctôt KL

    更新日期:2018-02-01 00:00:00

  • Capgras syndrome in Dementia with Lewy Bodies.

    abstract:BACKGROUND:Capgras syndrome is characterized by the recurrent, transient belief that a person has been replaced by an identical imposter. We reviewed clinical characteristics of Dementia with Lewy Bodies (DLB) patients with Capgras syndrome compared to those without Capgras. METHODS:We identified 55 consecutive DLB pa...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610212002189

    authors: Thaipisuttikul P,Lobach I,Zweig Y,Gurnani A,Galvin JE

    更新日期:2013-05-01 00:00:00

  • Comprehensive assessment of depression and behavioral problems in long-term care.

    abstract:BACKGROUND:The IPA Taskforce on Mental Health Issues in Long-Term Care Homes seeks to improve mental health care in long-term care (LTC) homes. The aim of this paper is to provide recommendations on comprehensive assessment of depression and behavioral problems in order to further stimulate countries and professionals ...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,评审

    doi:10.1017/S1041610210000736

    authors: Koopmans RT,Zuidema SU,Leontjevas R,Gerritsen DL

    更新日期:2010-11-01 00:00:00

  • Suicide and aging in Japan: an examination of treated elderly suicide attempters.

    abstract::Although individuals aged 65 and over accounted for 12% of the total population of Japan in 1990, suicides in this age group consisted of 29% of all suicides. The elderly population of Japan is expected to grow rapidly to 24% of the total population by the year 2020, and suicide prevention for the elderly is an urgent...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/s1041610295002006

    authors: Takahashi Y,Hirasawa H,Koyama K,Asakawa O,Kido M,Onose H,Udagawa M,Ishikawa Y,Uno M

    更新日期:1995-07-01 00:00:00

  • Suicidal ideation in elderly Korean population: a two-year longitudinal study.

    abstract:BACKGROUND:This study aimed to assess the prevalence, incidence, and persistence of suicidal ideation (SI), and to investigate the psychosocial factors associated with these. METHODS:A total of 1,204 community dwelling elderly adults aged 65 years or older were evaluated at baseline, 909 (75%) of whom were followed tw...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610213001634

    authors: Kang HJ,Stewart R,Jeong BO,Kim SY,Bae KY,Kim SW,Kim JM,Shin IS,Yoon JS

    更新日期:2014-01-01 00:00:00

  • Midlife improvements in financial situation are associated with a reduced dementia risk later in life: the CAIDE 30-year study.

    abstract:OBJECTIVES:Perceived financial strain is associated with various health conditions, but it is unknown whether it is associated with an increased risk for dementia. The goal is to examine the associations between midlife perceptions of financial situation and dementia risk later in life. METHODS:Participants were deriv...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S104161021900173X

    authors: Sindi S,Darin-Mattsson A,Kåreholt I,Kulmala J,Ngandu T,Laatikainen T,Soininen H,Kivipelto M

    更新日期:2020-11-01 00:00:00

  • Psychotropic medication use and cognition in institutionalized older adults with mild to moderate dementia.

    abstract:BACKGROUND:Most studies examining psychotropic medication use on cognition in older persons with dementia include measures of global cognitive function. The present study examined the relationship between different types of psychotropic medication and specific cognitive functions in older people with dementia. METHODS...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610209008552

    authors: Eggermont LH,de Vries K,Scherder EJ

    更新日期:2009-04-01 00:00:00

  • Validation of the Rowland Universal Dementia Assessment Scale (RUDAS) in a multicultural sample across five Western European countries: diagnostic accuracy and normative data.

    abstract::ABSTRACTBackground:With increasing cultural diversity and growing elderly immigrant populations in Western European countries, the availability of brief cognitive screening instruments adequate for assessment of dementia in people from diverse backgrounds becomes increasingly important. The aim of the present study wa...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,多中心研究

    doi:10.1017/S1041610218000832

    authors: Nielsen TR,Segers K,Vanderaspoilden V,Bekkhus-Wetterberg P,Bjørkløf GH,Beinhoff U,Minthon L,Pissiota A,Tsolaki M,Gkioka M,Waldemar G

    更新日期:2019-02-01 00:00:00

  • Ethnic disparities in the uptake of anti-dementia medication in young and late-onset dementia.

    abstract:OBJECTIVES:People with dementia can face barriers when trying to access care after a diagnosis, particularly in young-onset dementia (YOD). Little is known about the effects of ethnicity on the use of anti-dementia medication and variations between age groups. The aim of this study was to analyze national data on varia...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610220000794

    authors: Giebel C,Cations M,Draper B,Komuravelli A

    更新日期:2020-06-02 00:00:00

  • Stability of the factor structure of the Neuropsychiatric Inventory in a 31-month follow-up study of a large sample of nursing-home patients with dementia.

    abstract:BACKGROUND:Neuropsychiatric symptoms (NPS) are highly prevalent among nursing home patients with dementia. Several studies have investigated subsyndromes of NPS but the stability of these subsyndromes over time has rarely been examined. We have examined the stability over time of the factor structure of the Neuropsychi...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S104161021100086X

    authors: Selbæk G,Engedal K

    更新日期:2012-01-01 00:00:00

  • A meta-analysis of the accuracy of the Addenbrooke's Cognitive Examination (ACE) and the Addenbrooke's Cognitive Examination-Revised (ACE-R) in the detection of dementia.

    abstract:BACKGROUND:The Addenbrooke's Cognitive Examination (ACE) and its Revised version (ACE-R) are relatively new screening tools for cognitive impairment that may improve upon the well-known Mini-Mental State Examination (MMSE) and other brief batteries. We systematically reviewed diagnostic accuracy studies of ACE and ACE-...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,meta分析,评审

    doi:10.1017/S1041610213002329

    authors: Larner AJ,Mitchell AJ

    更新日期:2014-04-01 00:00:00

  • Changes in depressive symptoms and functional disability among community-dwelling depressive older adults.

    abstract:BACKGROUND:Previous studies have shown that the presence of depressive symptoms among older persons was evidently associated with subsequent physical and functional decline. However, few studies have directly examined the impact of changes in depressive symptoms or depressed mood on changes in functional ability. The p...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610212000890

    authors: Nyunt MS,Lim ML,Yap KB,Ng TP

    更新日期:2012-10-01 00:00:00

  • Clinical and economic characteristics associated with direct costs of Alzheimer's, frontotemporal and vascular dementia in Argentina.

    abstract:BACKGROUND:The economic cost of dementia is high and can be predicted by cognitive and neuropsychiatric profiles. The differential costs of the various subtypes of dementia are unknown in Argentina, and this study therefore aimed to compare these costs. METHODS:Patients with a diagnosis of dementia of Alzheimer-type (...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610210002012

    authors: Rojas G,Bartoloni L,Dillon C,Serrano CM,Iturry M,Allegri RF

    更新日期:2011-05-01 00:00:00

  • Estimating antemortem cognitive status of deceased subjects in a longitudinal study of dementia.

    abstract::There was a five-year delay between the two waves of the Canadian Study of Health and Aging during which 2,982 participants died. Their cognitive status before death should be taken into account in estimating the incidence of dementia in the cohort. Information concerning antemortem cognitive status was available from...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章,多中心研究

    doi:10.1017/s1041610202008037

    authors: Stewart M,McDowell I,Hill G,Aylesworth R

    更新日期:2001-01-01 00:00:00

  • Factors associated with long-term impact on informal caregivers during Alzheimer's disease dementia progression: 36-month results from GERAS.

    abstract:OBJECTIVE:To identify, in caregivers of patients with Alzheimer's disease (AD) dementia, factors associated with subjective (personal, physical, emotional, and social) and objective (informal caregiver time and costs) caregiver burden. DESIGN:Prospective longitudinal European observational study: post-hoc analysis. S...

    journal_title:International psychogeriatrics

    pub_type: 杂志文章

    doi:10.1017/S1041610219000425

    authors: Reed C,Belger M,Scott Andrews J,Tockhorn-Heidenreich A,Jones RW,Wimo A,Dodel R,Haro JM

    更新日期:2020-02-01 00:00:00