The impact of an inpatient family-oriented rehabilitation program on parent-reported psychological symptoms of chronically ill children.

Abstract:

OBJECTIVE:To investigate the change of psychological symptoms and quality of life in children and adolescents with congenital heart disease, cancer, or cystic fibrosis after a family-oriented inpatient rehabilitation program. METHODS:302 participants in the intervention (aged 4-17 years, mean=8.7) were assessed using standard questionnaires at admission to the rehabilitation program, at discharge, and 6 months post discharge. Parent-reported behavioral and emotional symptoms were compared to a healthy control group from the National Health Interview and Examination Survey for Children and Adolescents (n=903). RESULTS:At admission, 27.5% of patients showed abnormal levels on the total difficulties score of the Strengths and Difficulties Questionnaire - parent version (SDQ), while an additional 16.9% had slightly elevated symptoms (relative risk=2.16). Patients' psychological symptoms were negatively correlated with their quality of life (QoL) and with parental QoL. After rehabilitation, the patients' symptoms improved significantly, and the improvement persisted for 6 months in those patients who could be followed. CONCLUSIONS:The rehabilitation program can be considered a promising strategy to improve the patients' psychological adaptation.

journal_name

Klin Padiatr

journal_title

Klinische Padiatrie

authors

Goldbeck L,Hölling I,Schlack R,West C,Besier T

doi

10.1055/s-0030-1262831

subject

Has Abstract

pub_date

2011-03-01 00:00:00

pages

79-84

issue

2

eissn

0300-8630

issn

1439-3824

journal_volume

223

pub_type

杂志文章
  • Probiotics for prevention of necrotising enterocolitis: an updated meta-analysis.

    abstract::Several randomized controlled trials (RCTs) have investigated the prophylactic use of probiotics in preterm infants aimed at reducing the rate of necrotising enterocolitis (NEC). There are 4 meta-analyses on this subject. 2 more RCTs have been published since these meta-analyses were completed. Each meta-analysis, as ...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章,meta分析

    doi:10.1055/s-0030-1254113

    authors: Guthmann F,Kluthe C,Bührer C

    更新日期:2010-09-01 00:00:00

  • Growth in children with adrenocortical tumors.

    abstract::Longitudinal growth was assessed in 10 children aged 0.8 to 11.8 years with adrenocortical tumors. All children had signs of androgen excess. In addition, 5 children had glucocorticoid excess, 1 child had estrogen excess. Multiple height recordings, expressed as height standard deviation score for chronological age, w...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2007-1025405

    authors: Hauffa BP,Roll C,Mühlenberg R,Havers W

    更新日期:1991-03-01 00:00:00

  • [Treatment of hemophagocytic lymphohistiocytosis, HLH, with bone marrow transplantation].

    abstract::Hemophagocytic lymphohistiocytosis (HLH) is a rare disease of infancy and young childhood. The clinical presentation includes recurrent unexplained fever with hepatosplenomegaly. Cytopenia, hypofibrinogenemia and/or hypertriglyceridemia and hemophagocytosis in bone marrow, spleen and lymphnode confirm the diagnosis. H...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1043876

    authors: Dürken M,Schneider EM,Blütters-Sawatzki R,Stollmann-Gibbels B,Nessler G,Bretz R,Körholz D,Probst EN,Holsten-Griffin H,Harps E,Zander AR,Janka GE

    更新日期:1998-07-01 00:00:00

  • [Tumor necrosis factor in the serum--a useful supplemental parameter in the diagnosis of infection in cystic fibrosis?].

    abstract::In 15 patients with cystic fibrosis 18 blood samples were investigated for signs of infection including full white blood count, c-reactive protein (CRP) and tumour-necrosis-factor alpha (TNF). Ten patients were hospitalized for pulmonary exacerbation, one for orthostatic collapse and one for equivalent of meconium ile...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2007-1025422

    authors: Heininger U,Böwing B,Forster D,Berthold M

    更新日期:1991-05-01 00:00:00

  • [True hermaphroditism with 46, XY/46, XX/47 XXY mosaicism (author's transl)].

    abstract::A case of true hermaphroditism was described. The patient had an uterus, a fallopian tube, a testide on the left in the position of the ovary and an ovary on the right side. The chromosome picture corresponded to a 47, XXY/46, XX/46 XXY mosaic. The phenotype of the patient was male so the decision for male sex seemed ...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:

    authors: Barta L,Konyar E,Regöly-Merei A,Toth J

    更新日期:1976-09-01 00:00:00

  • [Transmission of the human immunodeficiency virus by a dry heat-treated Factor VIII concentrate?].

    abstract::Short presentation of the common procedures to avoid transmission of human-immunodeficiency-virus (HIV) by hemoderivates especially clotting-factor-preparations. The stepwise seroconversion (ELISA, IFT, Western-blot) of HIV is shown in a 7 5/12 ys old boy with hemophilia A after administration of a dry-heated factor V...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1033736

    authors: Weisser J

    更新日期:1988-09-01 00:00:00

  • [Treatment of chronic myeloid leukemia in children and adolescents--concept of the multicenter pilot study CML-ped].

    abstract::CML is a rare malignancy in childhood not yet being treated by an established protocol of the Society of Pediatric Oncology and Hematology (GPOH). Up to now only allogeneic bone marrow transplantation (BMT) offers a curative treatment option. After being enrolled into the study "CML-päd" patients with a matched siblin...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章,多中心研究

    doi:10.1055/s-2008-1046480

    authors: Suttorp M,Lion T,Creutzig U,Klingebiel T,Gadner H

    更新日期:1996-07-01 00:00:00

  • [Hearing screening of newborn infants at risk for perinatal hearing damage].

    abstract::630 neonates with risk factors of perinatal hearing impairment were screened of hearing loss by means of registration of transient otoacoustic emissions before discharge from the newborn nursery. Neonates were screened additionally by means of brainstem evoked response audiometry, if they had bilateral negative emissi...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1043853

    authors: Sitka U,Rehm K,Rasinski C

    更新日期:1998-03-01 00:00:00

  • [Sweat testing practices in German cystic fibrosis centres].

    abstract:BACKGROUND:Surveys in USA and UK have shown inconsistencies between practice of sweat testing and guidelines of the National Committee for Clinical Laboratory Standards (NCCLS), which could increase the risk of false-positive and -negative results. To determine the current practice of sweat testing in German cystic fib...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2007-872458

    authors: Naehrlich L

    更新日期:2007-03-01 00:00:00

  • [Echocardiographic diagnosis of congenital diverticuli of the right and left ventricle].

    abstract::A congenital diverticulum of the ventricle is a very rare cardiac lesion which is almost always associated with additional cardiovascular anomalies. In the majority of cases a diverticulum of the heart has been diagnosed during cardiac catheterization for evaluation of additional cardiovascular anomalies. We report no...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2007-1025221

    authors: Wild F,Hofbeck M,Singer H,Hammersen G

    更新日期:1993-05-01 00:00:00

  • [Reference values for the concentration of free thyroxine and free triiodothyronine in the serum of euthyroid children].

    abstract::Concentrations of free thyroxine (n = 341, male = 205, female = 136) and free triiodothyronine (n = 318, male = 198, female = 120) were determined using the radioimmunoassay method in blood serum of euthyroid children. Beyond the 30. day of life no significant differences were found in different age groups for the fre...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1026821

    authors: Liappis N,Starke A

    更新日期:1987-09-01 00:00:00

  • [Experiences with enteral nutrition of patients with cystic fibrosis (CF) via a percutaneous endoscopic gastrostomy (PEG)].

    abstract:BACKGROUND:We wanted improve the nutritional status of patients with cystic fibrosis with enteral feeding via a percutaneous endoscopic gastrostomy (PEG). PATIENTS AND METHODS:In a period of 8 years 11 patients underwent a percutaneous endoscopic gastrostomy (PEG), 4 males and 7 females, in the median 14,9 years of ag...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2001-18460

    authors: Richter T,Meier C,Steppberger K,Knorrek G,Lietz T

    更新日期:2001-11-01 00:00:00

  • [Neuralgic shoulder amyotrophy as differential diagnosis of scapula alata].

    abstract::We describe two patients with neuraligic amyotrophia of the shoulder: a 15 year old boy and a girl which was 6 years old at the time of primary manifestation. Mostly adolescent patients are concerned. Beginning is acute, the etiology unclear. The patients initially feel intensive pain in one shoulder, which typically ...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1046558

    authors: Weglage J,Kurlemann G

    更新日期:1995-09-01 00:00:00

  • [Parents and oncology team members are getting together after the death of a child. Report from Children's hospital Tübingen].

    abstract::The death of a child after an oncologic disease gives rise to feelings of mourning, loss and anger in family members and often also in oncology team members. All people involved need to find ways of coping with these emotions and thought. Therefore, the oncology team of the Children's Hospital Tuebingen has, for many ...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2002-33178

    authors: Kochendörfer S

    更新日期:2002-07-01 00:00:00

  • [Duchenne-type muscular dystrophy: problems, early diagnosis, early treatment (author's transl)].

    abstract::The aetiology and pathogenesis of the Duchenne-type muscular dystrophy (pseudohypertrophic muscular dystrophy) are still largely unknown. The possibilities of treating the disease are rather limited. Treatment is the more successful, the earlier diagnosis was possible, and the earlier treatment is initiated. The CK-Sc...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章,评审

    doi:

    authors: Beckmann R

    更新日期:1978-11-01 00:00:00

  • [A case of X/X translocation: t(X;X) (q26;p11)].

    abstract::An eight-year old girl showing a X/X-translocation (45,X/46,Xt(X;X)(q26;p11)) is presented. Besides short stature and congenital heart-anomaly no other phenotypical abnormalities were present. In all cells containing the abnormal X-chromosome, the latter was late labeling as shown by autoradiography and BrdU-labeling....

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:

    authors: Wagenbichler P,Frisch H,Schnedl W

    更新日期:1975-11-01 00:00:00

  • [Long-term course of 6 boys with congenital nephrogenic diabetes insipidus].

    abstract::From 1975-1986 6 boys with congenital nephrogenic diabetes insipidus were diagnosed at the age of 3 months to 10 years. Symptoms appeared within the first few weeks of life. The diagnosis was confirmed by polyuria, low urinary osmolality (97-225 mosm/kg H20), hypernatraemia (max. 171 mmol/l) and the missing response t...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1026741

    authors: Kaulitz R,Brodehl J

    更新日期:1989-11-01 00:00:00

  • CA 19-9, CA 50 and elastase 1 as additional markers of cystic fibrosis.

    abstract::Since reliable diagnosis of cystic fibrosis (CF) is still difficult, the occurrence of serum markers CA 19-9, CA 50 and elastase 1 was analysed. Serum levels of CA 19-9, CA 50, CA 125 and elastase 1 were estimated in 54 CF patients as well as in a control group of 66 children of similar age suffering from various othe...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1033692

    authors: Uhlenbruck G,Scheuring U,Dienst C,Kaiser D,Roth B,Skopnik H

    更新日期:1988-03-01 00:00:00

  • Symptom patterns in childhood arterial ischemic stroke: Analysis of a population-based study in Germany.

    abstract:HINTERGRUND: Die zeitliche Verzögerung zwischen Symptombeginn und Diagnose ist eine Herausforderung in der Behandlung von Kindern mit arteriell ischämischem Schlaganfall. Frühere Studien zur klinischen Präsentation beschäftigten sich v. a. mit kumulativen Symptomen. ZIELSETZUNG: Ziel dieser Studie ist es, mögliche Sym...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/a-0684-9794

    authors: Gerstl L,Weinberger R,von Kries R,Heinen F,Sebastian Schroeder A,Veronika Bonfert M,Borggräfe I,Tacke M,Vill K,N Landgraf M,Kurnik K,Olivieri M

    更新日期:2018-10-01 00:00:00

  • [Creatine kinase "NAC-activated": reference values for children (author's transl)].

    abstract::Reference values for 327 children aged between 1 day and 15 years are given for the revised standard method for the determination of serum creatine kinase (CK) activity by activation with N-acetylcysteine (NAC). No sex-dependence could be observed, but CK activity was found to vary markedly with age. The following val...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1035606

    authors: Kupke IR,Tritschler W,Kather B,Bablok W

    更新日期:1980-07-01 00:00:00

  • [Recurrent subacute endocarditis caused by Streptococcus mutans in a child].

    abstract::Bacterial endocarditis belongs to the rare diseases in childhood. It occurs usually as a single episode and almost exclusively in children with congenital heart disease. In recent years, however, an increased number of renewed endocarditis after the first episode were reported, especially in drug addicts. We present a...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章,评审

    doi:10.1055/s-2008-1046498

    authors: Hunkert F,Handrick W,Kinzel P,Schneider P,Spencker FB,Günther E

    更新日期:1995-01-01 00:00:00

  • [Click-evoked otoacoustic emissions and acoustic brain stem potentials in early detection of hearing disorders in premature and newborn infants after neonatal critical care].

    abstract::Evoked otoacoustic emissions (EOAE) and brainstem acoustic evoked potentials (BAEP) were recorded from 78 children following neonatal intensive care. In 23% no EOAE could be obtained. Hearing impairment in the BAEP was found in 9%. In 22% negative EOAE were found in spite of normal BAEP. According to the latency-inten...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1046586

    authors: Lauffer H,Pröschel U,Gerling S,Wenzel D

    更新日期:1994-03-01 00:00:00

  • [Evaluation of a Self-Help Supported Counseling Concept for Children and Adolescents with Disproportional Short Stature].

    abstract:BACKGROUND:Disproportionate short stature may impair the quality of life (QoL) of patients and their families. This study aimed to evaluate a self-help supported counseling concept to increase the QoL of the participants. METHODS:QoL data from 58 children/adolescents (8-17 years) with a diagnosis of achondroplasia was...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-0035-1564106

    authors: Rohenkohl AC,Sommer R,Kahrs S,Bullinger M,Klingebiel KH,Quitmann JH

    更新日期:2016-01-01 00:00:00

  • [Infectious complications in the child undergoing hematopoietic stem cell transplantation].

    abstract::Infectious complications are a major cause of morbidity and mortality in pediatric and adult patients undergoing hematopoietic stem cell transplantation. The incidence and the severity code of infections depend on the function of the host's immune system. This function is strongly correlated to the application of immu...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章,评审

    doi:10.1055/s-2005-872508

    authors: Schuster FR,Laws HJ

    更新日期:2005-11-01 00:00:00

  • [A familial brain malformation syndrome with symptomatic hypernatremia].

    abstract::A familial cerebral malformation combined with chronic hypernatremia is reported. We found three children of a Moroccan family with microcephaly and hypoplasia of the frontal brain. The frontal parts of the lateral ventricles were absent. Two of the children had a defect of the midline structures with fusion of the la...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1033901

    authors: Franek A,Böcker H,Kahlen T

    更新日期:1986-09-01 00:00:00

  • [D-penicillamine-induced IgA deficiency in the therapy of Wilson's disease].

    abstract::Serum IgA deficiency was first noted in a 10 year old boy 8 months after the onset of D-penicillamine therapy. Special immunological examinations revealed a deficiency of the secretory component of IgA while cellular functions of T- and B-lymphocytes were normal. The patient showed discrete clinical signs compatible w...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2007-1025560

    authors: Ibel H,Feist D,Endres W,Belohradsky BH

    更新日期:1990-11-01 00:00:00

  • [Intrapericardial diaphragmatic hernia].

    abstract::Report of a case with congenital right sided intrapericardial diaphragmatic hernia. This type of a congenital diaphragmatic hernia occurs only rarely. Until 1984 30 cases are recorded in the available literature. ...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2008-1033888

    authors: Langer R,Kaufmann HJ

    更新日期:1986-07-01 00:00:00

  • Clinical outcome of patients with childhood acute lymphoblastic leukaemia and an initial leukaemic blood blast count of less than 1000 per microliter.

    abstract:BACKGROUND:One of the strongest predictive factors for therapy outcome in childhood acute lymphoblastic leukaemia (ALL), treated according to ALL-BFM protocols, is the response to initial prednisone treatment. Prednisone response is characterized by the peripheral leukaemic blast count. The threshold value for the char...

    journal_title:Klinische Padiatrie

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1055/s-2001-16848

    authors: Lauten M,Stanulla M,Zimmermann M,Welte K,Riehm H,Schrappe M

    更新日期:2001-07-01 00:00:00

  • Recent developments in iron chelation therapy.

    abstract::Since 1962, desferrioxamine (deferoxamine, DFO) has been utilized for the treatment of secondary hemosiderosis. For about 30 years, DFO therapy has been performed as nightly continuous subcutaneous infusion. About 20 years ago, the first oral iron chelator (deferiprone, DFP) was presented. Concerns about potential sid...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章,评审

    doi:10.1055/s-2007-973845

    authors: Cario H,Janka-Schaub G,Janssen G,Jarisch A,Strauss G,Kohne E

    更新日期:2007-05-01 00:00:00

  • Pathology and molecular biology of teratomas in childhood and adolescence.

    abstract::The biologic behaviour of teratomas depends on various interdependent clinical and epidemiologic variables such as the age at diagnosis, sex, tumor site, histology which all correlate to different cytogenetic and molecular biologic aberrations. Thus, testicular teratomas of infancy are generally benign. Accordingly, p...

    journal_title:Klinische Padiatrie

    pub_type: 杂志文章

    doi:10.1055/s-2006-942271

    authors: Harms D,Zahn S,Göbel U,Schneider DT

    更新日期:2006-11-01 00:00:00