[Evaluation of a Self-Help Supported Counseling Concept for Children and Adolescents with Disproportional Short Stature].

Abstract:

BACKGROUND:Disproportionate short stature may impair the quality of life (QoL) of patients and their families. This study aimed to evaluate a self-help supported counseling concept to increase the QoL of the participants. METHODS:QoL data from 58 children/adolescents (8-17 years) with a diagnosis of achondroplasia was collected at 2 measurement points during one year using the the QoLISSY questionnaire (self-/parental report). Differences before and after participation vs. non-participation in the intervention were evaluated using a linear mixed model. RESULTS:The longitudinal results show a greater increase of QoL in the active intervention group compared to a passive control group (p=0,005). The increase in the self-reported QoL of affected patients was significantly higher than for the parent-report (p=0,048). CONCLUSIONS:The study shows that patients with achondroplasia benefit from a self-help supported counseling concept. However, this should be tested in a randomized trial.

journal_name

Klin Padiatr

journal_title

Klinische Padiatrie

authors

Rohenkohl AC,Sommer R,Kahrs S,Bullinger M,Klingebiel KH,Quitmann JH

doi

10.1055/s-0035-1564106

subject

Has Abstract

pub_date

2016-01-01 00:00:00

pages

17-23

issue

1

eissn

0300-8630

issn

1439-3824

journal_volume

228

pub_type

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