Abstract:
:Health-related quality of life (HRQoL) measurement in cystic fibrosis (CF) allows the inclusion of the patient's perspective in research and clinical practice. HRQoL scales have been used for many purposes and this review focuses on how HRQoL measurement has been implemented in CF research and care. Specifically, the review considers 1) the instruments used to measure HRQoL, 2) the factors that influence how people report HRQoL, 3) the monitoring of HRQoL in clinical practice, 4) HRQoL as an outcome measure in interventions and clinical trials and 5) whether HRQoL can predict survival. The challenge for the future is to use the available information to develop and evaluate psychological interventions that would be expected to improve HRQoL in children and adults with CF.
journal_name
Chron Respir Disjournal_title
Chronic respiratory diseaseauthors
Abbott Jdoi
10.1177/1479972308098159subject
Has Abstractpub_date
2009-01-01 00:00:00pages
31-41issue
1eissn
1479-9723issn
1479-9731pii
6/1/31journal_volume
6pub_type
杂志文章,评审abstract::Pulmonary rehabilitation (PR) is an effective treatment for people with chronic obstructive pulmonary disease (COPD). However, uptake and adherence to rehabilitation is poor and non-adherence is associated with poorer clinical outcomes. This study investigated the factors that might predict an individual completing hi...
journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479972314527469
更新日期:2014-05-01 00:00:00
abstract::The objective of this study was to investigate the discriminant validity of commonly used depression and anxiety screening tools in order to determine the most suitable tool for patients with chronic obstructive pulmonary disease (COPD). COPD patients (n = 56) completed the Hospital Anxiety and Depression Scale (HADS)...
journal_title:Chronic respiratory disease
pub_type: 杂志文章,多中心研究
doi:10.1177/1479972316634604
更新日期:2016-08-01 00:00:00
abstract::We report here an unusual case of a 25-year old male with juvenile onset recurrent respiratory papillomatosis who developed an infestation of papillomata 'papillomatization' of an old abscess cavity that, when removed, was coincidently found to contain a 2 cm well differentiated squamous cell carcinoma. The abscess ca...
journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1191/1479972304cd042cr
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abstract::Cough-suppression physiotherapy is a novel self-help therapy for chronic cough. We evaluated the effectiveness of cough physiotherapy in a pilot prospective observational study. We assessed cough-specific health-related quality of life (HRQOL) with the Leicester Cough Questionnaire (LCQ) and subjectively reported coug...
journal_title:Chronic respiratory disease
pub_type: 临床试验,杂志文章
doi:10.1177/1479972311422547
更新日期:2011-01-01 00:00:00
abstract::The spread of the SARS-CoV-2 infection among population has imposed a re-organization of healthcare services, aiming at stratifying patients and dedicating specific areas where patients with suspected COVID-related respiratory disease could receive the necessary health care assistance while waiting for the confirmatio...
journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479973120961843
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abstract::The aim of the study was to determine if there was a difference in 6-minute walk distance (6MWD) when two 6-minute walk tests (6MWTs) were performed at the initial assessment prior to attendance at the pulmonary hypertension (PH) clinic and at the 6-month follow-up. Two 6MWTs were performed at both visits on a 32-m co...
journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479972317752762
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abstract::Home noninvasive ventilation (NIV) is widely used to correct nocturnal alveolar hypoventilation in patients with chronic respiratory failure of various etiologies. The most commonly used ventilation mode is pressure support with a backup respiratory rate. This mode requires six main settings, as well as some additiona...
journal_title:Chronic respiratory disease
pub_type: 杂志文章,评审
doi:10.1177/1479973119844090
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abstract::Acute effects of music and relaxation have not been evaluated in hospitalized subjects with chronic obstructive pulmonary disease (COPD). This study aims to evaluate the acute effects of music and progressive muscle relaxation (PMR) in hospitalized COPD subjects after a recent episode of exacerbation. A Randomized con...
journal_title:Chronic respiratory disease
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1177/1479972309346754
更新日期:2009-01-01 00:00:00
abstract::To help answer the question of length of intravenous antibiotics during an acute exacerbation of cystic fibrosis (CF), we had subjects to follow daily home spirometry while on intravenous antibiotics. CF patients, 18 and older, with an acute exacerbation requiring intravenous antibiotics had a daily FEV1. The average ...
journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479972317743756
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abstract::The objective of this study is to review available functional status measures (FSMs) validated for use in the chronic obstructive pulmonary disease (COPD) population and categorizing the measures by their commonalities to formulate a framework that supports clinicians in the selection and application of FSMs. A litera...
journal_title:Chronic respiratory disease
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更新日期:2019-01-01 00:00:00
abstract::In a world where digital technology has revolutionized the way we work, shop and manage our finances it is unsurprising that digital systems are suggested as potential solutions to delivering clinically and cost-effective care for an aging population with one or more long-term conditions. However, recent evidence sugg...
journal_title:Chronic respiratory disease
pub_type: 杂志文章,评审
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journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479973119867949
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abstract::The objective of this study was to evaluate task performance and handling errors with soft mist inhalers (SMIs) or pressurized metered-dose inhalers (pMDIs) among patients with chronic obstructive pulmonary disease (COPD) experienced with, but not recently trained in, using these devices. This exploratory, noninterven...
journal_title:Chronic respiratory disease
pub_type: 杂志文章,多中心研究
doi:10.1177/1479972318787914
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abstract::The aim of this study was to evaluate the clinical effects of cognitive impairment in patients with chronic obstructive pulmonary disease (COPD). A total of 91 patients with stable moderate to very severe COPD were included in this study. Cognitive functions of the patients were evaluated using the mini-mental state e...
journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479972317743757
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abstract::Dyspnea-related anxiety may lead to reduced quality of life and functional disability through fearful avoidance of dyspnea-evoking activity. We describe the validation of a generic - diagnosis-independent - instrument assessing dyspnea-related anxiety. A total of 187 patients with respiratory diseases completed the Br...
journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479972310383592
更新日期:2011-01-01 00:00:00
abstract:BACKGROUND:Many deaths are now preceded by an end of life decision, particularly in the intensive care unit (ICU), but such practices vary considerably between countries, ICUs and individuals, depending on many factors including cultural and religious background, family and peer pressure and local practice. AIMS:In th...
journal_title:Chronic respiratory disease
pub_type: 杂志文章,评审
doi:10.1191/1479972304cd021rs
更新日期:2004-01-01 00:00:00
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journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479972310396737
更新日期:2011-01-01 00:00:00
abstract::Dixon and coworkers (Dixon AE, Sugar EA, Zinreich SJ, et al. Criteria to screen for chronic sinonasal disease. Chest 2009; 136: 1324-1332.) recently developed a five-item questionnaire for diagnosing chronic sinonasal disease in patients with asthma. Our study was designed to determine how frequently patients attendin...
journal_title:Chronic respiratory disease
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doi:10.1177/1479972313485457
更新日期:2013-05-01 00:00:00
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journal_title:Chronic respiratory disease
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journal_title:Chronic respiratory disease
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journal_title:Chronic respiratory disease
pub_type: 杂志文章
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更新日期:2008-01-01 00:00:00
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journal_title:Chronic respiratory disease
pub_type: 杂志文章
doi:10.1177/1479972309104419
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journal_title:Chronic respiratory disease
pub_type: 信件,随机对照试验
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更新日期:2018-05-01 00:00:00
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journal_title:Chronic respiratory disease
pub_type: 杂志文章,评审
doi:10.1177/1479972313516882
更新日期:2014-02-01 00:00:00
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journal_title:Chronic respiratory disease
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journal_title:Chronic respiratory disease
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