Abstract:
BACKGROUND:Active Rehabilitation (AR) is a community peer-based concept for people with spinal cord injury (SCI) that is primarily delivered through brief residential training programmes. Despite a plethora of positive anecdotal evidence of AR programmes as life-changing experiences, the effects of AR-programmes have not been evaluated scientifically. Here, we present the protocol of the INTERnational Project for the Evaluation of "activE Rehabilitation" (inter-PEER) aiming to evaluate the effects of AR training programmes on community-dwelling individuals with SCI. METHODS:International prospective cohort study that recruits consecutive participants in AR training programmes. Evaluation is conducted through a web-based survey at 3 time-points: at the commencement and completion of the training programme, and 3 months after the end of the training programme. Evaluation also includes a practical wheelchair skills test at the first two time-points. The primary outcome measures are the Spinal Cord Independence Measure Self-report (SCIM-SR), the Queensland Evaluation of Wheelchair Skills test (QEWS), the Wheelchair Skills Test Questionnaire (WST-Q) and the Moorong Self-Efficacy Scale (MSES). The secondary outcome measures are the 11-item Life Satisfaction Questionnaire (LiSat-11), the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation), the Leisure Time Physical Activity Questionnaire for people with SCI (LTPAQ-SCI) and the 10-item Connor-Davidson Resilience Scale (CD-RISC-10). We piloted the implementation of the protocol in Sweden in 7 participants with diverse SCI and sociodemographic characteristics and collected feedback from participants and peer-mentors about study procedures through interviews, a workshop and field observations. DISCUSSION:Inter-PEER is the first initiative to propose a systematic evaluation of the effects of AR training programmes among individuals with SCI. The project is a collaborative work of multiple stakeholders, including researchers, clinicians, peer mentors with SCI, and administrators of organisations providing AR programmes. The inter-PEER uses standardised outcome measures relevant to the AR context, it will facilitate quality evaluations of community peer-based programmes, stimulate international collaborations, and inform the design of randomised controlled trials on the effects of AR training programmes.
journal_name
BMC Neuroljournal_title
BMC neurologyauthors
Divanoglou A,Tasiemski T,Jörgensen Sdoi
10.1186/s12883-019-1546-5subject
Has Abstractpub_date
2020-01-11 00:00:00pages
14issue
1issn
1471-2377pii
10.1186/s12883-019-1546-5journal_volume
20pub_type
杂志文章相关文献
BMC Neurology文献大全abstract:BACKGROUND:Economic costs related to treatment of multiple sclerosis (MS) must be justified by health state, quality of life (QOL) and social participation improvement. This study aims to describe correlations between social participation, economic costs, utility and MS-specific QOL in a sample of patients with MS (pwM...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/1471-2377-14-115
更新日期:2014-05-27 00:00:00
abstract:BACKGROUND:This study aimed to determine the risk of thromboembolic events in patients with junctional bradycardia(JB). METHODS:We retrospectively reviewed electrocardiograms(ECGs) for 380,682 patients. Those with JB on an ECG at least twice over a ≥3-month interval were included for analysis. We additionally included...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-016-0645-9
更新日期:2016-07-25 00:00:00
abstract:BACKGROUND:Eosinophilic granulomatosis with polyangiitis (EGPA) is a rare systemic vasculitis of unknown cause involving the brain and accompanied by prominent eosinophilia. Intracardiac thrombosis is a major cardiac complication of EGPA that may cause thromboembolism. CASE PRESENTATION:A 53-year-old man presenting wi...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-019-1515-z
更新日期:2019-11-15 00:00:00
abstract:BACKGROUND:Although the precise etiology of multiple sclerosis is largely unknown, there is some speculation that a prior history of surgery may be associated with the subsequent risk for developing the disease. Therefore, we aimed to examine surgery as a risk factor for the diagnosis of multiple sclerosis. METHODS:We...
journal_title:BMC neurology
pub_type: 杂志文章,meta分析,评审
doi:10.1186/1471-2377-13-41
更新日期:2013-05-06 00:00:00
abstract:BACKGROUND:Despite substantial research into the topic and valiant surgical efforts, reconstruction of peripheral nerve injury remains a challenging surgery. This study was conducted to evaluate the effectiveness of axonal regeneration of a transected sciatic nerve through a vein conduit containing degenerated skeletal...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-016-0768-z
更新日期:2016-11-22 00:00:00
abstract:BACKGROUND:Interleukin 36 (IL-36) cytokines belong to the IL-1 family and play an important role in some autoimmune diseases. However, the relationship between IL-36 and neuromyelitis optica spectrum disorders (NMOSD) remains unclear. METHODS:We determined serum IL-36α, IL-36β and IL-36γ levels and assessed correlatio...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-019-1415-2
更新日期:2019-08-05 00:00:00
abstract:BACKGROUND:Multiple pathogenic factors may contribute to the pathophysiology of Alzheimer's disease (AD). Peripheral blood markers have been used to assess biochemical changes associated with AD and mild cognitive impairment (MCI) and involved in their pathophysiology. METHODS:Plasma samples and clinical data were obt...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/1471-2377-11-51
更新日期:2011-05-12 00:00:00
abstract:BACKGROUND:Migraine and Attention Deficit and Hyperactivity Disorder (ADHD) have been found to be associated in child and adolescent cohorts; however, the association has not been assessed in adults or otherwise healthy population. Assessing the comorbidity between ADHD and migraine may clarify the etiopathology of bot...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-018-1149-6
更新日期:2018-10-16 00:00:00
abstract:BACKGROUND:Given the increasing emphasis on the community management of spinal cord injury (SCI), strategies that could be developed and implemented in order to empower and engage individuals with SCI in promoting their health and minimizing the risk of health conditions are required. A self-management program could be...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-014-0209-9
更新日期:2014-10-21 00:00:00
abstract:BACKGROUND:Acute ischemic stroke attack with and without a recent TIA may differ in clinical risk factors, and this may affect treatment outcomes following thrombolytic therapy. We examined whether the odds of exclusion or inclusion for thrombolytic therapy are greater in ischemic stroke with TIA less than 24 h precedi...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-020-01782-5
更新日期:2020-05-19 00:00:00
abstract:BACKGROUND:Assessment of subjective quality of life (QOL) of persons with multiple sclerosis (MS) could facilitate the detection of psychosocial aspects of disease that may otherwise go unrecognized. The objectives of the study were to (i) compare the QOL ratings of relapsing remitting (RRMS) and progressive (PMS) type...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/1471-2377-7-31
更新日期:2007-09-18 00:00:00
abstract:BACKGROUND:Gall bladder cancer (GBC) is associated with abdominal pain, lump, nausea, vomiting, and jaundice due to either gall bladder mass or the involved adjacent peritoneal structures. Gall bladder cancer presenting as refractory epilepsy is rare. Here we report a young female GBC patient who presented with an atyp...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-019-1318-2
更新日期:2019-05-10 00:00:00
abstract:BACKGROUND:Anticoagulation using vitamin K antagonists (VKAs) significantly reduces the risk of recurrent stroke in stroke patients with atrial fibrillation (AF) and is recommended by guidelines. METHODS:The German Competence NETwork on Atrial Fibrillation established a nationwide prospective registry including 9,574 ...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-015-0371-8
更新日期:2015-08-05 00:00:00
abstract:BACKGROUND:Neuromuscular electrical stimulation (NMES) is commonly used to activate skeletal muscles and reverse muscle atrophy in clinical populations. Clinical recommendations for NMES suggest the use of short pulse widths (100-200 μs) and low-to-moderate pulse frequencies (30-50 Hz). However, this type of NMES cause...
journal_title:BMC neurology
pub_type: 临床试验,杂志文章
doi:10.1186/s12883-017-0862-x
更新日期:2017-05-02 00:00:00
abstract:BACKGROUND:Cubital tunnel syndrome is common nerve compression syndrome among peripheral nerve compression diseases. However, the syndrome caused by intraneural ganglion cysts has been rarely reported. Medical approaches, like ultrasound-guided aspiration and open surgical treatment remain to be discussed. CASE PRESEN...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-018-1229-7
更新日期:2018-12-22 00:00:00
abstract:BACKGROUND:Chronic fatigue syndrome (CFS) is a disabling condition that affects approximately 800,000 adult Americans. The pathophysiology remains unknown and there are no diagnostic markers or characteristic physical signs or laboratory abnormalities. Most CFS patients complain of unrefreshing sleep and many of the po...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/1471-2377-4-6
更新日期:2004-04-19 00:00:00
abstract:BACKGROUND:Cerebrospinal fluid (CSF) biomarkers Aβ1-42, t-tau and p-tau have a characteristic pattern in Alzheimer's Disease (AD). Their roles in HIV-associated neurocognitive disorder (HAND) remains unclear. METHODS:Adults with chronic treated HIV disease were recruited (n = 43, aged 56.7 ± 7.9; 32% aged 60+; median ...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-015-0298-0
更新日期:2015-04-01 00:00:00
abstract:BACKGROUND:Chronic headache (headache ≥ 15 days/month for at least 3 months) affects 2-5% of the general population. Medication overuse contributes to the problem. Medication-overuse headache (MOH) can be identified by using the Severity of Dependence Scale (SDS). A "brief intervention" scheme (BI) has previously been ...
journal_title:BMC neurology
pub_type: 杂志文章,随机对照试验
doi:10.1186/1471-2377-12-70
更新日期:2012-08-10 00:00:00
abstract:BACKGROUND:A frequent disorder after stroke is neglect, resulting in a failure to report or respond to contralesional stimuli. Rehabilitation of neglect is important, given the negative influence on motor recovery, independence in self-care, transfers, and locomotion. Effects of prism adaptation (PA) to alleviate negle...
journal_title:BMC neurology
pub_type: 杂志文章,随机对照试验
doi:10.1186/s12883-015-0263-y
更新日期:2015-02-04 00:00:00
abstract:BACKGROUND:Room tilt illusion (RTI) is a rare symptom of higher vestibular dysfunction, consisting of a transient vertical rotation of the visual scene in the sagittal or coronal plane, most often 90o or 180o, without any alteration in shape, size and color of objects. CASE PRESENTATION:A 63-year-old woman with a hist...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-020-01947-2
更新日期:2020-10-08 00:00:00
abstract:BACKGROUND:The insular cortex is not routinely removed in modified functional hemispherectomy due to the risk of injury to the main arteries and to deep structures. Our study evaluates the safety and usefulness of applying intraoperative electrocorticography (ECoG) on the insular during the hemispherectomy. METHODS:We...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-017-0940-0
更新日期:2017-08-25 00:00:00
abstract:BACKGROUND:Hypertrophic pachymeningitis (HP) is a rare disorder that involves localized or diffuse thickening of the dura mater. HP is associated with various inflammatory, infectious, and malignant diseases, such as rheumatic arthritis, sarcoidosis, anti-neutrophil cytoplasmic antibody-associated vasculitis, IgG4-rela...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-020-1600-3
更新日期:2020-01-09 00:00:00
abstract:BACKGROUND:Patients with multiple sclerosis (MS) have a decreased frequency of CD8+ T cells reactive to their own Epstein-Barr virus (EBV) infected B cells. We have proposed that this might predispose to the development of MS by allowing EBV-infected autoreactive B cells to accumulate in the central nervous system. The...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/1471-2377-11-95
更新日期:2011-08-03 00:00:00
abstract:BACKGROUND:Admission hyperglycemia (HG) has been associated with worse outcomes among acute stroke patients. A better understanding and awareness of the potentially adverse influence of hyperglycemia on the clinical outcome of acute stroke patients would help to provide guidance for acute stroke management and preventi...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-019-1578-x
更新日期:2019-12-27 00:00:00
abstract:BACKGROUND:Autosomal recessive cerebellar ataxias (ARCA) are a group of neurodegenerative disorders characterized by early onset of gait impairment, disturbed limb coordination, dysarthria, and eye movement abnormalities, most likely due to the degeneration of cerebellum, brainstem, and spinal cord. Despite of the rari...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-016-0696-y
更新日期:2016-09-20 00:00:00
abstract:BACKGROUND:The production of inflammatory cytokines resulting from amyloid β (Aβ) is associated with the initiation of Alzheimer's disease (AD). Atorvastatin (ATV) has been reported to improve AD, however, it is unclear how the anti-inflammatory mechanism is linked with its protection against the impairment of spatial ...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-016-0533-3
更新日期:2016-02-04 00:00:00
abstract:BACKGROUND:The clinical features of Alzheimer's disease (AD) are related to brain network degeneration, and hyperhomocysteinemia is related to greater white matter hyperintensities. We investigated the changes in four diffusion tensor imaging parameters in the white matter of patients with early stage AD, examined thei...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-017-0970-7
更新日期:2017-10-06 00:00:00
abstract:BACKGROUND:Hemifacial atrophy (Parry-Romberg syndrome) is a relatively rare disease. The etiology of the disease is not clear. Some authors postulate its relation with limited scleroderma linearis. Linear scleroderma "en coup de sabre" is characterized by clinical presence of most commonly one-sided linear syndrome. In...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/1471-2377-9-39
更新日期:2009-07-27 00:00:00
abstract:BACKGROUND:Road traffic accidents are known to be the main cause of traumatic brain injury (TBI). TBI is also a leading cause of death and disability. This study, by means of the idiographic approach (single-case experimental designs using multiple-baseline designs), has examined whether methylphenidate (MPH - trade na...
journal_title:BMC neurology
pub_type: 临床试验,杂志文章
doi:10.1186/s12883-020-01663-x
更新日期:2020-03-19 00:00:00
abstract:BACKGROUND:Patients often report neurocognitive difficulties after neuroborreliosis (NB). The frequency and extent of cognitive problems in European patients have been studied incompletely. METHODS:Sixty patients received a neurological and neuropsychological work-up 6 months or longer after treatment for proven NB. Q...
journal_title:BMC neurology
pub_type: 杂志文章
doi:10.1186/s12883-015-0386-1
更新日期:2015-08-19 00:00:00