Psychometric properties and parental reported utility of the 19-item 'About My Child' (AMC-19) measure.

Abstract:

BACKGROUND:'About My Child' 19-item version (AMC-19) is a parent-report measure developed to assess the complexity of a child's life due to biological, psychological, social and environmental issues, that can be completed in approximately 5 min. AMC measures two dimensions of complexity: parental concerns and impact on the child. This paper examines the psychometric properties and parent-reported utility of the AMC-19 for children with disabilities or special health care needs. METHOD:Data were gathered from two Canadian studies at CanChild: the 'AMC-19 Pilot' study and the 'Service Utilization and Outcomes (SUO)' study. The AMC-19 Pilot study data allowed us to explore internal consistency and test-retest reliability, as well as parental responses to two open-ended questions on the utility of the AMC-19. The SUO study provided data for analyses of internal consistency and scale property validation with type of diagnosis and service needs. RESULTS:The test-retest ICC was r = 0.83 for concerns and r = 0.87 for impact. Cronbach's alpha across both studies ranged from 0.80 to 0.90. Parents' comments on the AMC-19's utility indicated support for the AMC-19, in particular to identify therapy needs and goals. CONCLUSIONS:The AMC-19 demonstrates strong psychometric properties supporting it as a valuable measure for describing the level of complexity among children with disabilities. We recommend using the AMC-19 in health services research and clinical settings to build dialogue between family and therapists due to its utility reported by parents.

journal_name

BMC Pediatr

journal_title

BMC pediatrics

authors

Williams U,Rosenbaum P,Gorter JW,McCauley D,Gulko R

doi

10.1186/s12887-018-1147-2

subject

Has Abstract

pub_date

2018-05-25 00:00:00

pages

174

issue

1

issn

1471-2431

pii

10.1186/s12887-018-1147-2

journal_volume

18

pub_type

杂志文章
  • Pilot study of a model-based approach to blood glucose control in very-low-birthweight neonates.

    abstract:BACKGROUND:Hyperglycemia often occurs in premature, very low birthweight infants (VLBW) due to immaturity of endogenous regulatory systems and the stress of their condition. Hyperglycemia in neonates has been linked to increased morbidities and mortality and occurs at increasing rates with decreasing birthweight. In th...

    journal_title:BMC pediatrics

    pub_type: 临床试验,杂志文章

    doi:10.1186/1471-2431-12-117

    authors: Le Compte AJ,Lynn AM,Lin J,Pretty CG,Shaw GM,Chase JG

    更新日期:2012-08-07 00:00:00

  • Effectiveness of physical therapy interventions for children with cerebral palsy: a systematic review.

    abstract:BACKGROUND:To assess the effectiveness of physical therapy (PT) interventions on functioning in children with cerebral palsy (CP). METHODS:A search was made in Medline, Cinahl, PEDro and the Cochrane library for the period 1990 to February 2007. Only randomized controlled trials (RCTs) on PT interventions in children ...

    journal_title:BMC pediatrics

    pub_type: 杂志文章,评审

    doi:10.1186/1471-2431-8-14

    authors: Anttila H,Autti-Rämö I,Suoranta J,Mäkelä M,Malmivaara A

    更新日期:2008-04-24 00:00:00

  • Atypical microbial infections of digestive tract may contribute to diarrhea in mucopolysaccharidosis patients: a MPS I case study.

    abstract:BACKGROUND:Mucopolysaccharidoses are heritable, metabolic diseases caused by deficiency in an activity of one of specific lysosomal enzymes involved in degradation of mucoplysaccharides (glycosaminoglycans). Among many medical problems of patients with mucopolysaccharidoses, there are frequent episodes of diarrhea of u...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-5-9

    authors: Wegrzyn G,Kurlenda J,Liberek A,Tylki-Szymanska A,Czartoryska B,Piotrowska E,Jakóbkiewicz-Banecka J,Wegrzyn A

    更新日期:2005-05-09 00:00:00

  • Causes and differentials of childhood mortality in Iraq.

    abstract:BACKGROUND:Limited information is available in Iraq regarding the causes of under-five mortality. The vital registration system is deficient in its coverage, particularly from rural areas where access to health services is limited and most deaths occur at home, i.e. outside the health system, and hence the cause of dea...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-9-40

    authors: Awqati NA,Ali MM,Al-Ward NJ,Majeed FA,Salman K,Al-Alak M,Al-Gasseer N

    更新日期:2009-06-22 00:00:00

  • The Preschool Activity, Technology, Health, Adiposity, Behaviour and Cognition (PATH-ABC) cohort study: rationale and design.

    abstract:BACKGROUND:Prevalence estimates internationally suggest that many preschool-aged children (3-5 years) are insufficiently physically active and engage in high levels of screen-based entertainment. Early childhood is the developmental period for which we know the least about the effects of physical activity on developmen...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-017-0846-4

    authors: Cliff DP,McNeill J,Vella S,Howard SJ,Kelly MA,Angus DJ,Wright IM,Santos R,Batterham M,Melhuish E,Okely AD,de Rosnay M

    更新日期:2017-04-04 00:00:00

  • Television viewing in Thai infants and toddlers: impacts to language development and parental perceptions.

    abstract:BACKGROUND:Effects of television to language development in infants and toddlers, especially in the Asian children, are inconclusive. This study aimed to (a) study time spent on television in Thai infants and toddlers (age < 2 years), (b) investigate the association between time spent on television (as recommended by t...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-9-34

    authors: Ruangdaraganon N,Chuthapisith J,Mo-suwan L,Kriweradechachai S,Udomsubpayakul U,Choprapawon C

    更新日期:2009-05-22 00:00:00

  • Nasal carriage and antimicrobial susceptibility of Staphylococcus aureus in healthy preschool children in Ujjain, India.

    abstract:BACKGROUND:There is increasing evidence that community acquired S. aureus infections are spreading among healthy children. Nasal colonization with S. aureus plays pivotal role in the increasing prevalence of resistant community acquired S. aureus infections worldwide. A regular surveillance system is important in ensur...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-10-100

    authors: Pathak A,Marothi Y,Iyer RV,Singh B,Sharma M,Eriksson B,Macaden R,Lundborg CS

    更新日期:2010-12-29 00:00:00

  • The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish children.

    abstract:BACKGROUND:The Pediatric Quality of Life Inventory (PedsQL) is a modular instrument, designed to integrate generic and disease specific measures, and includes both self- and proxy-reports. The aim of the study was to assess the reliability and limited validity of the Swedish version of the disease specific Pediatric Qu...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02387-0

    authors: Sand P,Kleiberg AN,Kljajić M,Lannering B

    更新日期:2020-10-28 00:00:00

  • Blood pressure percentiles by age and height for non-overweight Chinese children and adolescents: analysis of the China Health and Nutrition Surveys 1991-2009.

    abstract:BACKGROUND:Hypertension is an important health problem in China and raised blood pressure in children may lead to future hypertension. Accordingly we aimed to provide a reference blood pressure table for age, gender and height in Chinese children. METHODS:A reference sample of subjects was drawn from the Chinese Healt...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-13-195

    authors: Yan W,Liu F,Li X,Wu L,Zhang Y,Cheng Y,Zhou W,Huang G

    更新日期:2013-11-25 00:00:00

  • Negative exploration for pyloric stenosis--is it preventable?

    abstract:BACKGROUND:The diagnosis of infantile hypertrophic pyloric stenosis (IHPS), although traditionally clinical, is now increasingly dependent on radiological corroboration. The rate of negative exploration in IHPS has been reported as 4%. The purpose of our study was to look at elements of supportive clinical evidence lea...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-8-37

    authors: Mullassery D,Mallappa S,Shariff R,Craigie RJ,Losty PD,Kenny SE,Pilling D,Baillie CT

    更新日期:2008-09-24 00:00:00

  • Exploring infant feeding practices: cross-sectional surveys of South Western Sydney, Singapore, and Ho Chi Minh City.

    abstract:BACKGROUND:Infant feeding practices are known to influence the child's long-term health. Studies have associated obesity and other diseases with reduced breastfeeding and early introduction of high calorie beverages (HCBs). The rising prevalence of obesity is already a problem in most developed countries, especially Au...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-017-0902-0

    authors: Leow TYQ,Ung A,Qian S,Nguyen JT,An Y,Mudgil P,Whitehall J

    更新日期:2017-06-13 00:00:00

  • Systematic review of outcome measures in trials of pediatric anaphylaxis treatment.

    abstract:BACKGROUND:Considerable heterogeneity has been observed in the selection and reporting of disease-specific pediatric outcome measures in randomized controlled trials (RCTs). This makes interpretation of results and comparison across trials challenging. Outcome measures in pediatric anaphylaxis trials have never previou...

    journal_title:BMC pediatrics

    pub_type: 杂志文章,评审

    doi:10.1186/1471-2431-14-158

    authors: Rubin T,Clayton J,Adams D,Jou H,Vohra S

    更新日期:2014-06-20 00:00:00

  • Factors associated with asthma among under-fives in Mulago hospital, Kampala Uganda: a cross sectional study.

    abstract:BACKGROUND:Asthma is the most common chronic childhood illness, with rapidly increasing prevalence in low-income countries. Among young children, asthma is often under-diagnosed.We investigated the factors associated with asthma among under-fives presenting with acute respiratory symptoms at Mulago hospital, Uganda. M...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-13-141

    authors: Nantanda R,Ostergaard MS,Ndeezi G,Tumwine JK

    更新日期:2013-09-11 00:00:00

  • The usefulness of growth hormone treatment for psychological status in young adult survivors of childhood leukaemia: an open-label study.

    abstract:BACKGROUND:To reduce the risk of brain damage children with acute lymphoblastic leukaemia (ALL) are nowadays mainly treated with intrathecal chemotherapy (ITC) instead of central nervous system (CNS) radiation therapy (CRT) to prevent CNS relapse. However, chemotherapy may also lead to cognitive deficits. As growth hor...

    journal_title:BMC pediatrics

    pub_type: 临床试验,杂志文章

    doi:10.1186/1471-2431-8-25

    authors: Huisman J,Aukema EJ,Deijen JB,van Coeverden SC,Kaspers GJ,van der Pal HJ,Delemarre-van de Waal HA

    更新日期:2008-06-20 00:00:00

  • Percentile curves for cardiometabolic disease markers in Canadian children and youth: a cross-sectional study.

    abstract:BACKGROUND:The objective of this study to develop percentile curves for cardiometabolic disease markers in a population-based sample of Canadian children and youth. METHODS:The analysis used data from 6116 children and adolescents between 6 and 19 years of age who participated in the Canadian Health Measures Survey cy...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-018-1289-2

    authors: Ata N,Maguire B,Hamilton DC,Kuhle S

    更新日期:2018-09-28 00:00:00

  • Immunization coverage of 12-23 months old children and its associated factors in Minjar-Shenkora district, Ethiopia: a community-based study.

    abstract:BACKGROUND:Childhood vaccinations have been shown to be effective in protecting children against vaccine-preventable diseases. The systematic investigation of the causes of incomplete immunization is critical for the full immunization and develop health system interventions to improve immunization coverage. To date, no...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-019-1575-7

    authors: Mekonnen AG,Bayleyegn AD,Ayele ET

    更新日期:2019-06-14 00:00:00

  • COVID-19 related reduction in pediatric emergency healthcare utilization - a concerning trend.

    abstract:BACKGROUND:The COVID-19 pandemic has disrupted healthcare systems worldwide. In addition to the direct impact of the virus on patient morbidity and mortality, the effect of lockdown strategies on health and healthcare utilization have become apparent. Little is known on the effect of the pandemic on pediatric and adole...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02303-6

    authors: Dopfer C,Wetzke M,Zychlinsky Scharff A,Mueller F,Dressler F,Baumann U,Sasse M,Hansen G,Jablonka A,Happle C

    更新日期:2020-09-07 00:00:00

  • Treatment outcomes of severe acute malnutrition and predictors of recovery in under-five children treated within outpatient therapeutic programs in Ethiopia: a systematic review and meta-analysis.

    abstract:BACKGROUND:Severe acute malnutrition affects around 17 million under-five children in the world, of which the highest burden is accounted by Sub-Saharan Africa where Ethiopia is found. Though there are few individual, inconsistent and inconclusive studies, there is no nationally representative study on treatment outcom...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02188-5

    authors: Bitew ZW,Alemu A,Worku T

    更新日期:2020-07-07 00:00:00

  • Cord blood calcium, phosphate, magnesium, and alkaline phosphatase gestational age-specific reference intervals for preterm infants.

    abstract:BACKGROUND:The objective was to determine the influence of gestational age, maternal, and neonatal variables on reference intervals for cord blood bone minerals (calcium, phosphate, magnesium) and related laboratory tests (alkaline phosphatase, and albumin-adjusted calcium), and to develop gestational age specific refe...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-11-76

    authors: Fenton TR,Lyon AW,Rose MS

    更新日期:2011-08-31 00:00:00

  • Measuring early childhood development with The Early Human Capability Index (eHCI): a reliability and validity study in China.

    abstract:BACKGROUND:With the importance of early childhood development more recognized by the international society, low-cost and cross-culturally comparable measures of early childhood development is in great demand, both in China and worldwide. In this study, we aim to test the psychometrics of the Chinese version of The Earl...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02210-w

    authors: Zhao J,Brinkman SA,Zhang Y,Song Y,Lu C,Young ME,Zhang Y,Ip P,Shan W,Jiang F

    更新日期:2020-06-30 00:00:00

  • Uncorrected amteropia among children hospitalized for headache evaluation: a clinical descriptive study.

    abstract:BACKGROUND:Headache is a common complaint in children occasionally requiring hospital admission. The purposes of the present study were to analyze the prevalence of uncorrected ametropia in children with headache admitted to the hospital, and evaluate the importance of refraction assessment as part of their evaluation....

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-14-241

    authors: Dotan G,Stolovitch C,Moisseiev E,Cohen S,Kesler A

    更新日期:2014-09-29 00:00:00

  • Predictors of the early introduction of solid foods in infants: results of a cohort study.

    abstract:BACKGROUND:The early introduction of solid foods before 4 months of age has been associated with an increased risk of diarrhoea in infancy and a greater risk of wheeze and increased percentage body fat and weight in childhood. The purpose of this study was to identify the level of compliance with national recommendatio...

    journal_title:BMC pediatrics

    pub_type: 杂志文章,多中心研究

    doi:10.1186/1471-2431-9-60

    authors: Scott JA,Binns CW,Graham KI,Oddy WH

    更新日期:2009-09-22 00:00:00

  • Interrelationships between BMI, skinfold thicknesses, percent body fat, and cardiovascular disease risk factors among U.S. children and adolescents.

    abstract:BACKGROUND:Although the estimation of body fatness by Slaughter skinfold thickness equations (PBF(Slaughter)) has been widely used, the accuracy of this method is uncertain. We have previously examined the interrelationships among the body mass index (BMI), PBF(Slaughter), percent body fat from dual energy X-ray absorp...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-015-0493-6

    authors: Freedman DS,Ogden CL,Kit BK

    更新日期:2015-11-18 00:00:00

  • Rosai-Dorfman disease with renal involvement and associated autoimmune haemolytic anaemia in a 12-year-old girl: A case report.

    abstract:BACKGROUND:Rosai- Dorfman Disease (RDD) is a benign condition of unknown aetiology which is characterized by non-neoplastic proliferation of histiocytes. Pathophysiology and natural history remain obscure due to the low prevalence of disease. It is known to present with nodal or extranodal involvement and occurrence in...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02368-3

    authors: Danisious T,Hettiarachchi M,Dharmadasa C,Jayaweera H

    更新日期:2020-10-08 00:00:00

  • Mother's obesity and high child's waist circumference are predictive factors of severe child's obesity: an observational study in French Guiana.

    abstract:BACKGROUND:This study aims to describe the predictive factors of severe obesity in children followed in French Guiana. METHODS:In this observational study, the patients from the French Guianese Childhood Obesity Group database were prospectively included, after giving a statement of patient's non opposition. RESULTS:...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-018-1158-z

    authors: Njuieyon F,Cuadro-Alvarez E,Martin E,Lachaume N,Mrsic Y,Henaff F,Maniassom C,Defo A,Elenga N

    更新日期:2018-06-09 00:00:00

  • Childhood disability and socio-economic circumstances in low and middle income countries: systematic review.

    abstract:BACKGROUND:The majority of children with disability live in low and middle income (LAMI) countries. Although a number of important reviews of childhood disability in LAMI countries have been published, these have not, to our knowledge, addressed the association between childhood disability and the home socio-economic c...

    journal_title:BMC pediatrics

    pub_type: 杂志文章,评审

    doi:10.1186/1471-2431-11-119

    authors: Simkiss DE,Blackburn CM,Mukoro FO,Read JM,Spencer NJ

    更新日期:2011-12-21 00:00:00

  • Individual approach for treatment of primary intestinal lymphangiectasia in children: single-center experience and review of the literature.

    abstract:BACKGROUND:Intestinal lymphangiectasia is a rare disease. Thus, prospective studies are impossible, and therapy is still controversial. Several medicines are suggested for treatment but there are no existing indications for drug choice and treatment guidelines. We aimed to introduce the action mechanism of each drug an...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-020-02447-5

    authors: Kwon Y,Kim ES,Choe YH,Kim MJ

    更新日期:2021-01-07 00:00:00

  • The use of ciprofloxacin and fluconazole in Italian neonatal intensive care units: a nationwide survey.

    abstract:BACKGROUND:Treatment and prophylaxis of sepsis in very low birth weight neonates is a matter of concern and research is being undertaken with the aim to give rise to shared approaches based on solid evidence. As part of a European initiative, a survey was set up to describe the use of two drugs in this area. The Italia...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-13-5

    authors: Pandolfini C,Marco S,Paolo M,Maurizio B

    更新日期:2013-01-07 00:00:00

  • Sail sign in neonatal pneumomediastinum: a case report.

    abstract:BACKGROUND:Pneumomediastinum is an uncommon cause of neonatal respiratory distress. Clinical history and examination of the neonate may be uninformative in determining the aetiology of the respiratory distress. Chest x-ray can be diagnostic of pneumomediastinum however is often difficult to interpret. CASE PRESENTATIO...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/s12887-019-1397-7

    authors: Teo SSS,Priyadarshi A,Browning Carmo K

    更新日期:2019-01-31 00:00:00

  • Passive smoking as a risk factor of anemia in young children aged 0-35 months in Jordan.

    abstract:BACKGROUND:Passive smoking unfavorably affects pregnancy, child birth and child health. Passive smoking associates with still-birth, premature birth as well as acute respiratory infection, asthma, disorder in red blood cell metabolism in children. This study examined the effects of passive smoking on anemia in young ch...

    journal_title:BMC pediatrics

    pub_type: 杂志文章

    doi:10.1186/1471-2431-7-16

    authors: Hong R,Betancourt JA,Ruiz-Beltran M

    更新日期:2007-04-10 00:00:00