Impact of ethics and economics on end-of-life decisions in an Indian neonatal unit.

Abstract:

OBJECTIVE:The aim of this article was to describe how providers in an Indian NICU reach life-or-death treatment decisions. METHODS:Qualitative in-depth interviews, field observations, and document analysis were conducted at an Indian nonprofit private tertiary institution that provided advanced neonatal care under conditions of resource scarcity. RESULTS:Compared with American and European units with similar technical capabilities, the unit studied maintained a much higher threshold for treatment initiation and continuation (range: 28-32 completed gestational weeks). We observed that complex, interrelated socioeconomic reasons influenced specific treatment decisions. Providers desired to protect families and avoid a broad range of perceived harms: they were reluctant to risk outcomes with chronic disability; they openly factored scarcity of institutional resources; they were sensitive to local, culturally entrenched intrafamilial dynamics; they placed higher regard for "precious" infants; and they felt relatively powerless to prevent gender discrimination. Formal or regulatory guidelines were either lacking or not controlling. CONCLUSIONS:In a tertiary-level academic Indian NICU, multiple factors external to predicted clinical survival of a preterm newborn influence treatment decisions. Providers adjust their decisions about withdrawing or withholding treatment on the basis of pragmatic considerations. Numerous issues related to resource scarcity are relevant, and providers prioritize outcomes that affect stakeholders other than the newborn. These findings may have implications for initiatives that seek to improve global neonatal health.

journal_name

Pediatrics

journal_title

Pediatrics

authors

Miljeteig I,Sayeed SA,Jesani A,Johansson KA,Norheim OF

doi

10.1542/peds.2008-3227

subject

Has Abstract

pub_date

2009-08-01 00:00:00

pages

e322-8

issue

2

eissn

0031-4005

issn

1098-4275

pii

peds.2008-3227

journal_volume

124

pub_type

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