Abstract:
OBJECTIVE:Using structural equation modeling, we sought to assess the system of services for children with special health care needs (CSHCN) and their families by using 14 key indicators of functional abilities of CSHCN, health insurance coverage, access to care, and the impact of their conditions on their families. METHODS:With data from the 2001 and 2005-2006 National Surveys of Children With Special Health Care Needs, we used confirmatory factor analysis for ordered-categorical measures to model the relationship between an indirectly observed (ie, latent) variable and the key indicators and evaluate changes in this relationship over time. RESULTS:For both survey periods, a single-factor model fit well. The latent construct was defined as the well-being of the health care environment for CSHCN and their families. Family financial problems caused by the child's condition, unmet needs for family support services, and negative impact on employment were most strongly related to the latent well-being construct. The lowest levels of the well-being construct were associated with families that had unmet needs for support services, CSHCN who lacked a usual place for care, and families that spent > or = 11 hours/week providing or coordinating care. CSHCN and their families with family-centered care and with adequate health insurance were likely to have average or better levels of the well-being construct. Mean levels of the well-being construct were unchanged over time. CONCLUSIONS:The 14 key indicators can be used to reliably assess a single latent construct. The relative ordering of the indicators' thresholds (a model parameter) may be useful for guiding pediatricians' evaluations of the health care environment for CSHCN and their families. Researchers may use the scores available from the latent-variable model to assess outcomes related to the health care environment and the system of services for CSHCN and their families.
journal_name
Pediatricsjournal_title
Pediatricsauthors
Blumberg SJ,Carle ACdoi
10.1542/peds.2009-1255Fsubject
Has Abstractpub_date
2009-12-01 00:00:00pages
S361-7eissn
0031-4005issn
1098-4275pii
124/Supplement_4/S361journal_volume
124 Suppl 4pub_type
杂志文章相关文献
PEDIATRICS文献大全abstract:OBJECTIVES:Adverse drug events (ADEs) occur more frequently in pediatric patients than adults. ADEs frequently cause serious harm to children and increase the cost of care. The purpose of this study was to decrease ADEs by targeting the entire medication-delivery system for all high-risk medications. METHODS:Thirteen ...
journal_title:Pediatrics
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1542/peds.2010-3772
更新日期:2011-08-01 00:00:00
abstract:OBJECTIVE:Data from the 1988 National Health Interview Survey--Child Health Supplement were used to examine the prevalence of selected developmental disabilities and their impact among children ages 0 through 17 years. DESIGN:The following conditions, identified through a structured in-person interview with a parent o...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1994-03-01 00:00:00
abstract:OBJECTIVE:Childhood sleep-disordered breathing has an adverse impact on cognitive development, behavior, quality of life, and use of health care resources. Early viral infections and other immune-mediated responses may contribute to development of the chronic inflammation of the upper airway and hypertrophic upper airw...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2007-0722
更新日期:2007-11-01 00:00:00
abstract::The place of causal inference in clinical practice is considered. One function relates to the validation of existing knowledge, as in the evaluation of the medical literature, and is exemplified by the process of editorial selection. A second function relates to the validation of potential knowledge, as in the testing...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1984-11-01 00:00:00
abstract:OBJECTIVE:To mitigate the risks of fatigue-related medical errors, the Accreditation Council for Graduate Medical Education introduced work hour limits for resident physicians in 2003. Our goal was to determine whether work hours, sleep, and safety changed after implementation of the Accreditation Council for Graduate ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2007-2306
更新日期:2008-08-01 00:00:00
abstract:OBJECTIVE:To verify and determine the cause of an increase in the referral of infants with plagiocephaly without synostosis (PWS) to a single tertiary craniofacial center. DESIGN:A chart review was performed for 269 infants with a diagnosis of PWS who presented to a single tertiary craniofacial center between 1979 and...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1996-06-01 00:00:00
abstract::Neurologically impaired children have an increased frequency of recurrent pain and irritability that persist in some despite comprehensive evaluation and management of possible pain sources. We hypothesized that visceral hyperalgesia was a source of chronic unexplained irritability and report the outcome of gabapentin...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2006-1609
更新日期:2007-02-01 00:00:00
abstract::For the past several years in the United States, there have been more than 800 000 divorces and parent separations annually, with over 1 million children affected. Children and their parents can experience emotional trauma before, during, and after a separation or divorce. Pediatricians can be aware of their patients'...
journal_title:Pediatrics
pub_type: 杂志文章,评审
doi:10.1542/peds.2016-3020
更新日期:2016-12-01 00:00:00
abstract:OBJECTIVES:To compare the detection of facial attributes by computer-based facial recognition software of 2-D images against standard, manual examination in fetal alcohol spectrum disorders (FASD). METHODS:Participants were gathered from the Fetal Alcohol Syndrome Epidemiology Research database. Standard frontal and o...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2016-2028
更新日期:2017-12-01 00:00:00
abstract::The purpose of this statement is to update recommendations for routine use of seasonal influenza vaccine and antiviral medications for the prevention and treatment of influenza in children. The American Academy of Pediatrics recommends annual seasonal influenza immunization for all people 6 months and older, including...
journal_title:Pediatrics
pub_type: 杂志文章,实务指引
doi:10.1542/peds.2015-2920
更新日期:2015-10-01 00:00:00
abstract:OBJECTIVES:Children with generalized hypermobility of the joints and musculoskeletal complaints frequently visit pediatric clinics, but many show no currently known collagen or other possibly related diseases. Whether the symptoms are confined to the musculoskeletal system is unknown. We assessed whether such children ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.111.3.e248
更新日期:2003-03-01 00:00:00
abstract::There is general agreement that case management should be provided to children with chronic illnesses, yet it is not clear who should provide this service. A survey of physicians and parents of children with chronic illnesses was conducted to evaluate the practice and views of pediatricians and compare their assessmen...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1989-09-01 00:00:00
abstract:OBJECTIVE:To report on the development of the Questionnaire for Identifying Children with Chronic Conditions (QuICCC). This new instrument identifies children and adolescents who have chronic health conditions based on the noncategorical conceptual framework outlined in our earlier work. It uses the consequences of con...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.99.4.513
更新日期:1997-04-01 00:00:00
abstract:OBJECTIVE:Critical congenital heart disease has been proposed as a target of newborn screening. This study aimed to define the incidence and timing of significant physiologic compromise attributable to critical congenital heart disease as well as the distribution of vulnerable lesions. These descriptive parameters must...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2007-0421
更新日期:2008-04-01 00:00:00
abstract:OBJECTIVE:To test how prevalence estimates and characteristics of children vary by the way that disability is defined. Specifically, to determine 1) the proportions of children identified as disabled by one particular operationalization of disability based on parental reports of three types of consequences (i.e., funct...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.101.6.1025
更新日期:1998-06-01 00:00:00
abstract:OBJECTIVE:We sought to evaluate the association between early protein and energy intake and neurodevelopment and growth of extremely low birth weight (<1000 g) infants. STUDY DESIGN:Daily protein and energy intakes were collected by chart review for the first 4 weeks of life on 148 extremely low birth weight survivors...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2008-0211
更新日期:2009-05-01 00:00:00
abstract:OBJECTIVES:Because children spend a significant proportion of their day in school, pediatric emergencies such as the exacerbation of medical conditions, behavioral crises, and accidental/intentional injuries are likely to occur. Recently, both the American Academy of Pediatrics and the American Heart Association have p...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2005-1474
更新日期:2005-12-01 00:00:00
abstract:OBJECTIVE:To examine whether parent perceptions about care (barriers, disorder knowledge, treatment willingness) vary among children who drop out of or stay in publicly funded care for attention-deficit/hyperactivity disorder (ADHD) and to explore whether parent perceptions are predictive of staying in care over time. ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2012-1427f
更新日期:2013-03-01 00:00:00
abstract:OBJECTIVES:The reported increasing prevalence of autism spectrum disorder (ASD) and attendant health and family impact make monitoring of ASD prevalence a public health priority. METHODS:The prevalence of parent-reported diagnosis of ASD among US children aged 3 to 17 years was estimated from the 2007 National Survey ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2009-1522
更新日期:2009-11-01 00:00:00
abstract:OBJECTIVES:Trichophyton tonsurans is the single most common cause of pediatric dermatophytoses in North America and is observed with increasing frequency in other countries. This investigation was designed to gain insight into the natural course of T. tonsurans infection. PATIENTS AND METHODS:This 2-year prospective, ...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2006-2065
更新日期:2006-12-01 00:00:00
abstract::To determine the long-term effects of therapeutic pulmonary irradiation and treatment with actinomycin D during a period of lung growth, 12 patients treated for Wilms' tumor metastatic to the lung and 8 patients treated for Wilms' tumor with no evidence of pulmonary metastases were studied 7 to 14 years after their in...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1975-04-01 00:00:00
abstract::Parental requests for gastrostomies, tracheostomies, or assisted ventilation in children with profound disabilities raise ethical concerns about children's interests, parental decision-making, and health care costs. The underlying concern for many relates to the perceived value of these children. Clinicians should mak...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2013-3608H
更新日期:2014-02-01 00:00:00
abstract:BACKGROUND:The success of health care provider counseling-based interventions to address vaccine hesitancy is not clear. In 2011, Washington State implemented Senate Bill 5005 (SB5005), requiring counseling and a signed form from a licensed health care provider to obtain an exemption. Evaluating the impact of a counsel...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2017-2364
更新日期:2018-01-01 00:00:00
abstract::A review of 233 cases of childhood strangulation was made to determine injury epidemiology. Consistent patterns of injury were observed. Crib and playground equipment strangulations are already the subject of Consumer Product Safety Commission (CPSC) preventative regulations. High chair-, playpen mesh-, pacifier cord-...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1980-06-01 00:00:00
abstract::The pharmacokinetics and pharmacodynamics of dobutamine were studied in 13 critically ill neonates requiring inotropic support. Dobutamine was administered as a constant infusion in increasing doses of 2.5, 5, and 7.5 micrograms/kg per minute. During dobutamine infusions, there were significant increases in cardiac ou...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1992-01-01 00:00:00
abstract:BACKGROUND:This report assessed the proportion of US 10th graders (average age, 16) who saw a physician in the past year and were asked and given advice about their drinking. We hypothesized that advice would vary by whether students were asked about drinking and their drinking, bingeing, and drunkenness frequency. ME...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2012-1496
更新日期:2013-02-01 00:00:00
abstract::Three Laotian refugee children with chronic pulmonary complaints and findings were found to have pulmonary paragonimiasis during a one-year period in Chicago. These patients ranged from 8 to 11 years of age and the diagnosis was delayed five to six months in two children because of the unfamiliarity of American physic...
journal_title:Pediatrics
pub_type: 杂志文章
doi:
更新日期:1982-08-01 00:00:00
abstract:OBJECTIVES:To assess trends in incidence of Candida spp. central line-associated bloodstream infections (CLABSIs) in US NICUs, 1999-2009. METHODS:Data from NICUs participating in the National Nosocomial Infections Surveillance (1999-2004) and National Healthcare Safety Network (2006-2009) were analyzed. Overall and bi...
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2011-3620
更新日期:2012-07-01 00:00:00
abstract:BACKGROUND:Disparities in health service use have been described across a range of sociodemographic factors. Patterns of PICU use have not been thoroughly assessed. METHODS:This was a population-level, retrospective analysis of admissions to the Cincinnati Children's Hospital Medical Center PICU between 2011 and 2016....
journal_title:Pediatrics
pub_type: 杂志文章
doi:10.1542/peds.2019-0748
更新日期:2019-12-01 00:00:00
abstract::Kawasaki disease is a childhood vasculitis of medium-sized vessels, affecting the coronary arteries in particular. We have treated a therapy-resistant child who met all diagnostic criteria for Kawasaki disease. After the boy was given intravenous immunoglobulins and salicylates, as well as several courses of pulsed me...
journal_title:Pediatrics
pub_type: 杂志文章,评审
doi:10.1542/peds.112.4.986
更新日期:2003-10-01 00:00:00