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Quality of Life Trends in People With and Without Cancer Referred to Volunteer-Provided Palliative Care Services (ELSA): A Longitudinal Study.

Abstract：

CONTEXT:Trends in symptoms and functional ability are known toward the end of life, but less is understood about quality of life, particularly prospectively following service referral. OBJECTIVES:This study compares quality of life trajectories of people with and without cancer, referred to volunteer-provided palliative care services. METHODS:A secondary analysis of the ELSA trial (n = 85 people with cancer and n = 72 without cancer) was performed. Quality of life data (WHOQOL-BREF) were collected at baseline (referral), four weeks, eight weeks, and 12 weeks. Sociodemographic data were collected at baseline. We specified a series of joint models to estimate differences on quality of life trajectories between groups adjusting for participants who die earlier in the study. RESULTS:People with cancer had a significantly better quality of life at referral to the volunteer-provided palliative care services than those with nonmalignant disease despite similar demographic characteristics (Cohen d's = 0.37 to 0.45). More people with cancer died during the period of the study. We observed significant differences in quality of life physical and environmental domain trajectories between groups (b = -2.35, CI -4.49, -0.21, and b = -4.11, CI -6.45, -1.76). People with cancer experienced a greater decline in quality of life than those with nonmalignant disease. CONCLUSION:Referral triggers for those with and without cancer may be different. People with cancer can be expected to have a more rapid decline in quality of life from the point of service referral. This may indicate greater support needs, including from volunteer-provided palliative care services.

journal_name

J Pain Symptom Manage

journal_title

Journal of pain and symptom management

authors

Walshe C,Preston N,Payne S,Dodd S,Perez Algorta G

doi

10.1016/j.jpainsymman.2018.07.020

subject

Has Abstract

pub_date

2018-11-01 00:00:00

pages

689-698

issue

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(18)30394-4

journal_volume

pub_type

杂志文章,多中心研究

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Quality of Life Trends in People With and Without Cancer Referred to Volunteer-Provided Palliative Care Services (ELSA): A Longitudinal Study.