An Integrated Approach to Selecting a Prepared Medical Decision-Maker.

Abstract:

BACKGROUND:We implemented a systematic multidisciplinary process to engage new outpatients with cancer in selecting and preparing a medical decision-maker. MEASURES:Templated advance care planning notes and medical power of attorney documents were used in the electronic health record by the third office visit. INTERVENTION:Patients were coached to meet with social work from a "culture of yes," viewed a video about the importance of selecting a prepared medical a decision-maker in English or in Spanish, and referenced cards containing simple explanations of advance directives when responding to advance directive questions. OUTCOMES:A total of 351 patients were evaluated. By visit 3, there was no increase in documented social work advance care planning notes in intervention or scanned medical power of attorney documents in the electronic health record. CONCLUSIONS/LESSONS LEARNED:This systematic multidisciplinary approach did not engage new outpatients with cancer in preparing a medical decision-maker. More active physician involvement and varied ways of engagement are needed.

journal_name

J Pain Symptom Manage

authors

Zhukovsky DS,Haider A,Williams JL,Naqvi S,Joshi N,Mills S,Soliman PT,Mathew B,Bodurka D,Meyer LA,Westin S,Frumovitz M,Nowitz MB,Archie L,Fenton S,Lang K,Boving V,Bruera E

doi

10.1016/j.jpainsymman.2020.12.006

subject

Has Abstract

pub_date

2020-12-24 00:00:00

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(20)30938-6

pub_type

杂志文章
  • Effects of prophylactic subcutaneous fentanyl on exercise-induced breakthrough dyspnea in cancer patients: a preliminary double-blind, randomized, controlled trial.

    abstract:CONTEXT:Dyspnea is one of the most distressing symptoms in patients with cancer, and often worsens with breakthrough episodes on exertion. We hypothesized that fentanyl given prophylactically may alleviate breakthrough dyspnea. OBJECTIVES:To determine the feasibility of conducting a randomized trial of subcutaneous fe...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2013.03.017

    authors: Hui D,Xu A,Frisbee-Hume S,Chisholm G,Morgado M,Reddy S,Bruera E

    更新日期:2014-02-01 00:00:00

  • Managing pain in advanced cancer: a survey of United kingdom general practitioners and community nurses.

    abstract:CONTEXT:General practitioners (GPs) and community nurses (CNs) have a central role in palliative care. With health policy focusing more and more on enabling patients to die at home, primary health care professionals are increasingly responsible for symptom management of patients near the end of life. OBJECTIVES:1) To ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2012.09.004

    authors: Momen N,Hadfield P,Harrison K,Barclay S

    更新日期:2013-09-01 00:00:00

  • "I'd Recommend …" How to Incorporate Your Recommendation Into Shared Decision Making for Patients With Serious Illness.

    abstract::Patients and families facing serious illness often want and need their clinicians to help guide medical decision making by offering a recommendation. Yet clinicians worry that recommendations are not compatible with shared decision making and feel reluctant to offer them. We describe an expert approach to formulating ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.12.488

    authors: Jacobsen J,Blinderman C,Alexander Cole C,Jackson V

    更新日期:2018-04-01 00:00:00

  • Improving availability of and access to opioids in Colombia: description and preliminary results of an action plan for the country.

    abstract::Latin America consumes less than 2.7% of the morphine in the world, as reported by the governments to the International Narcotics Control Board. Methods to improve access to opioids for the treatment of pain have been developed by the Pain & Policy Studies Group (PPSG), a World Health Organization Collaborating Center...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2009.03.007

    authors: Leon MX,De Lima L,Florez S,Torres M,Daza M,Mendoza L,Agudelo N,Guerra L,Ryan K

    更新日期:2009-11-01 00:00:00

  • COMPASS: A Pilot Trial of an Early Palliative Care Intervention for Patients With End-Stage Liver Disease.

    abstract:CONTEXT:Palliative care interventions have shown promise in improving quality of life and reducing health-care utilization among patients with chronic organ failure. OBJECTIVES:To evaluate the effect of a palliative care intervention for adults with end-stage liver disease. METHODS:A randomized controlled trial of pa...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2019.06.023

    authors: Shinall MC Jr,Karlekar M,Martin S,Gatto CL,Misra S,Chung CY,Porayko MK,Scanga AE,Schneider NJ,Ely EW,Pulley JM,Jerome RN,Dear ML,Conway D,Buie R,Liu D,Lindsell CJ,Bernard GR

    更新日期:2019-10-01 00:00:00

  • Can senior volunteers deliver reminiscence and creative activity interventions? Results of the legacy intervention family enactment randomized controlled trial.

    abstract:CONTEXT:Palliative care patients and their family caregivers may have a foreshortened perspective of the time left to live, or the expectation of the patient's death in the near future. Patients and caregivers may report distress in physical, psychological, or existential/spiritual realms. OBJECTIVES:To conduct a rand...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2013.11.012

    authors: Allen RS,Harris GM,Burgio LD,Azuero CB,Miller LA,Shin HJ,Eichorst MK,Csikai EL,DeCoster J,Dunn LL,Kvale E,Parmelee P

    更新日期:2014-10-01 00:00:00

  • A double-blind, randomized, crossover comparison between single-dose and double-dose immediate-release oral morphine at bedtime in cancer patients.

    abstract::The European Association for Palliative Care guidelines for treatment of cancer pain recommend a double dose (DD) of immediate-release morphine at bedtime instead of single doses (SD) repeated every four hours throughout the night. A previous open controlled study reported more side effects after DD than after SD. The...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2007.12.016

    authors: Dale O,Piribauer M,Kaasa S,Moksnes K,Knobel H,Klepstad P

    更新日期:2009-01-01 00:00:00

  • Celiac plexus blockade in a 7-year-old child with neuroblastoma.

    abstract::Celiac plexus blockade with ethanol is a widely accepted modality of pain control for adults with cancer pain. The role of interventional strategies in children is less well established. A 7-year-old child with abdominal pain secondary to a Wilms tumor was treated with neurolytic celiac plexus blockade. This resulted ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(95)00014-P

    authors: Staats PS,Kost-Byerly S

    更新日期:1995-05-01 00:00:00

  • Effects of a continuing education program on nurses' practices of cancer pain assessment and their acceptance of patients' pain reports.

    abstract::A hospital-based quasi-experimental (pretest and post-test) study was conducted in Kaohsiung Veteran General Hospital, Taiwan. This study was to evaluate a continuing education program (CEP) on nurses' practices of cancer pain assessment and their acceptance of patients' pain reports with respect to four types of misc...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2003.05.006

    authors: Ger LP,Chang CY,Ho ST,Lee MC,Chiang HH,Chao CS,Lai KH,Huang JM,Wang SC

    更新日期:2004-01-01 00:00:00

  • The Alberta Breakthrough Pain Assessment Tool for cancer patients: a validation study using a delphi process and patient think-aloud interviews.

    abstract::Breakthrough pain is a prevalent cancer pain syndrome, and research is needed to identify more effective interventions to manage it. A validated tool to assess breakthrough pain in a standard and reliable manner is urgently needed to support the conduct of clinical trials in breakthrough pain. To address this need, we...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2007.03.016

    authors: Hagen NA,Stiles C,Nekolaichuk C,Biondo P,Carlson LE,Fisher K,Fainsinger R

    更新日期:2008-02-01 00:00:00

  • Transnasal butorphanol for the treatment of opioid-induced pruritus unresponsive to antihistamines.

    abstract::Pruritus is a common opioid side effect and can be so severe that opioid therapy must be modified or abandoned. Antihistamines, opioid antagonists, and propofol have been proposed as treatment options, but none is universally effective. The use of intranasal butorphanol, an opioid agonist-antagonist, for pruritus has ...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/0885-3924(96)00154-6

    authors: Dunteman E,Karanikolas M,Filos KS

    更新日期:1996-10-01 00:00:00

  • HIV/AIDS symptom management in Southern Africa.

    abstract::We describe self-reported strategies used by persons living with HIV/AIDS in Botswana, Lesotho, South Africa, and Swaziland to manage common HIV-related symptoms. A questionnaire asked participants to list three to six symptoms they had recently experienced, the care strategies they had used to make them better, where...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2004.05.007

    authors: Sukati NA,Mndebele SC,Makoa ET,Ramukumba TS,Makoae LN,Seboni NM,Human S,Holzemer WL

    更新日期:2005-02-01 00:00:00

  • Consideration of hastening death among hospice patients and their families.

    abstract::The purpose of this study was to describe hospice social workers' perceptions of cases where hospice patients or their family members expressed a desire to hasten the patient's death. Surveys were mailed to hospice social workers (n=212) in two Southeastern states. Response rate was 36%. Of the 73 respondents, 56.2% h...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2003.10.010

    authors: Arnold EM,Artin KA,Person JL,Griffith DL

    更新日期:2004-06-01 00:00:00

  • Morphine and morphine-6-glucuronide plasma concentrations and effect in cancer pain.

    abstract::The relationships between plasma morphine and metabolite (M3G and M6G) concentrations and analgesic efficacy were investigated in an open study of 39 cancer pain patients receiving chronic oral morphine therapy with either morphine sulfate solution or controlled-release morphine tablets. There were no differences in m...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/0885-3924(95)00148-4

    authors: Faura CC,Moore RA,Horga JF,Hand CW,McQuay HJ

    更新日期:1996-02-01 00:00:00

  • Language Used by Health Care Professionals to Describe Dying at an Acute Care Hospital.

    abstract:CONTEXT:Clinicians often rely on documentation to relay information, and this remains the mainstay of interprofessional communication regarding patient care. However, there has been scant research focused on clinicians' documentation of dying in hospital and how this is communicated to other team members in patient cha...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2018.05.013

    authors: Wentlandt K,Toupin P,Novosedlik N,Le LW,Zimmermann C,Kaya E

    更新日期:2018-09-01 00:00:00

  • The end-of-life care experiences of relatives of brain dead intensive care patients.

    abstract::Brain death is a traumatic and sudden event following a severe injury to the brain. Most patients with brain death spend the last days of life in an intensive care unit (ICU), where some families will be approached to ask for organ donation. This qualitative study was carried out with relatives of patients who had die...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2008.04.013

    authors: Lloyd-Williams M,Morton J,Peters S

    更新日期:2009-04-01 00:00:00

  • Double-blind, placebo-controlled, randomized trial of octreotide in malignant bowel obstruction.

    abstract:CONTEXT:Does octreotide reduce vomiting in cancer-associated bowel obstruction? OBJECTIVES:To evaluate the net effect of adding octreotide or placebo to standardized therapies on the number of days free of vomiting for populations presenting with vomiting and inoperable bowel obstruction secondary to cancer or its tre...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.jpainsymman.2014.09.013

    authors: Currow DC,Quinn S,Agar M,Fazekas B,Hardy J,McCaffrey N,Eckermann S,Abernethy AP,Clark K

    更新日期:2015-05-01 00:00:00

  • How COVID-19 Changed Advance Care Planning: Insights From the West Virginia Center for End-of-Life Care.

    abstract:CONTEXT:Coronavirus disease 2019 (COVID-19) led to increased attention nationally on advance care planning. OBJECTIVES:To describe the impact COVID-19 had on advance care planning based on changes in the calls to the West Virginia Center for End-of-Life Care (center) and in the volume and types of documents requested ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.09.021

    authors: Funk DC,Moss AH,Speis A

    更新日期:2020-12-01 00:00:00

  • The role of radiotherapy in palliative care.

    abstract::Radiotherapy is an indispensable modality in the palliation of cancer. All palliative care programs should be acquainted with its indications and have a close working relationship with a radiation oncology department. The technical aspects of the subject may be intimidating to many staff and patients, and departments ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/0885-3924(91)90030-8

    authors: Ashby M

    更新日期:1991-08-01 00:00:00

  • Predicting complaints of impaired cognitive functioning in patients with chronic pain.

    abstract::Patients with chronic pain often complain of difficulties with cognitive functioning. Previous studies suggest that these occur with no history of head trauma or neurological disease. This study examined potential predictors of cognitive complaints in 275 consecutive patients referred to a university pain management c...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(01)00267-6

    authors: McCracken LM,Iverson GL

    更新日期:2001-05-01 00:00:00

  • Validation of the Family Inpatient Communication Survey.

    abstract:CONTEXT:Although many family members who make surrogate decisions report problems with communication, there is no validated instrument to accurately measure surrogate/clinician communication for older adults in the acute hospital setting. OBJECTIVES:The objective of this study was to validate a survey of surrogate-rat...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2016.08.010

    authors: Torke AM,Monahan P,Callahan CM,Helft PR,Sachs GA,Wocial LD,Slaven JE,Montz K,Inger L,Burke ES

    更新日期:2017-01-01 00:00:00

  • Hospice partnerships with academic entities: philosophical and historical background and assessment of future needs.

    abstract::There is consensus that more research is needed to help improve care at the end of life. Despite the fact that hospices take care of more and more dying persons every year, hospice organizations have not been highly involved in research. The National Hospice Work Group is comprised of hospice organizations that have m...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2006.10.007

    authors: Tolley DC,Payne R

    更新日期:2007-01-01 00:00:00

  • The Relationship Between Fatigue and Depression in Adults With End-Stage Renal Disease on Chronic In-Hospital Hemodialysis: A Scoping Review.

    abstract:CONTEXT:Fatigue and depression are two prominent concerns in patients on in-hospital hemodialysis (IHHD) that have recently been identified as research priorities in the nephrology community. Although they are often reported to co-exist, no synthesis of the literature examining their relationship is available. OBJECTI...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2016.10.365

    authors: Farragher JF,Polatajko HJ,Jassal SV

    更新日期:2017-04-01 00:00:00

  • Distinct Physical Function Profiles in Older Adults Receiving Cancer Chemotherapy.

    abstract:CONTEXT:Although physical function is an important patient outcome, little is known about changes in physical function in older adults receiving chemotherapy (CTX). OBJECTIVES:Identify subgroups of older patients based on changes in their level of physical function; determine which demographic and clinical characteris...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.07.018

    authors: Miaskowski C,Wong ML,Cooper BA,Mastick J,Paul SM,Possin K,Steinman M,Cataldo J,Dunn LB,Ritchie C

    更新日期:2017-09-01 00:00:00

  • The impact of body mass index dynamics on survival of patients with advanced pancreatic cancer receiving chemotherapy.

    abstract:CONTEXT:High body mass index (BMI) is linked to an increased risk of developing pancreatic cancer (PC). However, in patients with advanced PC (APC), especially those receiving palliative chemotherapy, the impact of BMI on survival has not been investigated fully. OBJECTIVES:To assess changes in BMI during the course o...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2013.08.017

    authors: Choi Y,Kim TY,Lee KH,Han SW,Oh DY,Im SA,Kim TY,Bang YJ

    更新日期:2014-07-01 00:00:00

  • Both maintaining hope and preparing for death: effects of physicians' and nurses' behaviors from bereaved family members' perspectives.

    abstract:CONTEXT:Both maintaining hope and preparing for the patient's death are important for families of terminally ill cancer patients. OBJECTIVES:The primary aim of this study was to clarify the level of the family's achievement of maintaining hope and preparing for death and the professional's behavior related to their ev...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2012.05.014

    authors: Shirado A,Morita T,Akazawa T,Miyashita M,Sato K,Tsuneto S,Shima Y

    更新日期:2013-05-01 00:00:00

  • Professional judgments about advance care planning with community-dwelling consumers.

    abstract:CONTEXT:There is limited research on how community-based long-term care (CBLTC) providers' personal characteristics and attitudes affect their decisions to initiate advance care planning (ACP) conversations with consumers. OBJECTIVES:To examine judgments by CBLTC providers as to whether a consumer was in need of ACP a...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.jpainsymman.2011.03.023

    authors: Baughman KR,Ludwick RE,Merolla DM,Palmisano BR,Hazelett S,Winchell J,Hewit M

    更新日期:2012-01-01 00:00:00

  • Determining Palliative Care Penetration Rates in the Acute Care Setting.

    abstract:CONTEXT:Intermountain Healthcare, in collaboration with Cerner Corporation, developed a hospital-based electronic palliative care algorithm. OBJECTIVES:This study aims to improve identification of patients who would benefit from palliative care services, and calculate palliative care penetration rates. METHODS:This s...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.09.013

    authors: Gruhler H,Krutka A,Luetke-Stahlman H,Gardner E

    更新日期:2018-02-01 00:00:00

  • Capacities and limitations of information systems as data sources on quality of care at the end of life.

    abstract::Assessing quality of care at the end of life involves measurements in several domains-use of evidence-based guidelines, patient and family satisfaction, quality of life, and incidence of adverse events, among others. There are several different data sources from which to calculate quality measures. Each data source ha...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(01)00329-3

    authors: Nerenz DR

    更新日期:2001-09-01 00:00:00

  • Effects of a brief coping skills training intervention on nociceptive flexion reflex threshold in patients having osteoarthritic knee pain: a preliminary laboratory study of sex differences.

    abstract::Studies have documented the efficacy of coping skills training (CST) for managing pain, distress, and disability in persons with arthritis. However, no laboratory studies have examined the effects of CST on descending modulation of nociception. This study used the nociceptive flexion reflex (NFR) to document pain and ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2005.07.008

    authors: Emery CF,Keefe FJ,France CR,Affleck G,Waters S,Fondow MD,McKee DC,France JL,Hackshaw KV,Caldwell DS,Stainbrook D

    更新日期:2006-03-01 00:00:00