Patient and Family Engagement in Designing and Implementing a Weaning Trial: A Novel Research Paradigm in Critical Care.

Abstract:

:The call for meaningful patient and family engagement in research has recently gained considerable momentum. This article defines patient and family engagement broadly and specifically in clinical research. Using a multicenter, North American weaning trial as an exemplar, we describe our early experiences as clinical researchers with patient and family engagement. The role of our Patient and Family Advisory Committee in trial design and implementation is illustrated. Through our experiences, we share our insights regarding the perceived opportunities and also highlight some challenges associated with engaging patients and family engagement in critical care research. Although "engagement science" is in its infancy, engaging patients and families in research holds promise as a novel research paradigm that will not only provide new insights into the questions, methods, and outcomes used in ICU research, but it will also make investments in research more accountable and ensure a strong "patient- and family-centered focus" of our research.

journal_name

Chest

journal_title

Chest

authors

Burns KEA,Devlin JW,Hill NS

doi

10.1016/j.chest.2017.06.028

subject

Has Abstract

pub_date

2017-10-01 00:00:00

pages

707-711

issue

4

eissn

0012-3692

issn

1931-3543

pii

S0012-3692(17)31204-7

journal_volume

152

pub_type

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