The Family Perspective on Hospital to Home Transitions: A Qualitative Study.

Abstract:

BACKGROUND AND OBJECTIVE:Transitions from the hospital to home can be difficult for patients and families. Family-informed characterization of this vulnerable period may facilitate the identification of interventions to improve transitions home. Our objective was to develop a comprehensive understanding of hospital-to-home transitions from the family perspective. METHODS:Using qualitative methods, focus groups and individual interviews were held with caregivers of children discharged from the hospital in the preceding 30 days. Focus groups were stratified based upon socioeconomic status. The open-ended, semistructured question guide included questions about communication and understanding of care plans, transition home, and postdischarge events. Using inductive thematic analysis, investigators coded the transcripts, resolving differences through consensus. RESULTS:Sixty-one caregivers participated across 11 focus groups and 4 individual interviews. Participants were 87% female and 46% nonwhite; 38% were the only adult in their household, and 56% resided in census tracts with ≥15% of residents living in poverty. Responses from participants yielded a conceptual model depicting key elements of families' experiences with hospital-to-home transitions. Four main concepts resulted: (1) "In a fog" (barriers to processing and acting on information), (2) "What I wish I had" (desired information and suggestions for improvement), (3) "Am I ready to go home?" (discharge readiness), and (4) "I'm home, now what?" (confidence and postdischarge care). CONCLUSIONS:Transitions from hospital to home affect the lives of families in ways that may affect patient outcomes postdischarge. The caregiver is key to successful transitions, and the family perspective can inform interventions that support families and facilitate an easier re-entry to the home.

journal_name

Pediatrics

journal_title

Pediatrics

authors

Solan LG,Beck AF,Brunswick SA,Sauers HS,Wade-Murphy S,Simmons JM,Shah SS,Sherman SN,H2O Study Group.

doi

10.1542/peds.2015-2098

subject

Has Abstract

pub_date

2015-12-01 00:00:00

pages

e1539-49

issue

6

eissn

0031-4005

issn

1098-4275

pii

peds.2015-2098

journal_volume

136

pub_type

杂志文章
  • Development of eating behaviors among children and adolescents.

    abstract::The prevalence of obesity among children is high and is increasing. We know that obesity runs in families, with children of obese parents at greater risk of developing obesity than children of thin parents. Research on genetic factors in obesity has provided us with estimates of the proportion of the variance in a pop...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:

    authors: Birch LL,Fisher JO

    更新日期:1998-03-01 00:00:00

  • Nocturnal arterial oxygen saturation and academic performance in a community sample of children.

    abstract:OBJECTIVE:Hypoxemia, often assessed via pulse oximetry, is associated with neurocognitive deficits in children. The best way to qualify hypoxemia, or which level of hypoxemia already affects cognition, is unknown. METHODS:We assessed the association of pulse oximetry-derived variables that qualify hypoxemia with impai...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2004-1256

    authors: Urschitz MS,Wolff J,Sokollik C,Eggebrecht E,Urschitz-Duprat PM,Schlaud M,Poets CF

    更新日期:2005-02-01 00:00:00

  • Effects of polycythemia and hyperviscosity on cutaneous blood flow and transcutaneous PO2 and PCO2 in the neonate.

    abstract::Neonatal hyperviscosity syndrome is known to affect multiple organ systems. The effects of polycythemic hyperviscosity on cutaneous blood flow and transcutaneous PO2 and PCO2 were compared in ten term infants prior to and following correction of the hyperviscous state. Cutaneous blood flow was measured by the heat cle...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Waffarn F,Tolle CD,Huxtable RF

    更新日期:1984-09-01 00:00:00

  • Are Patients With Loeys-Dietz Syndrome Misdiagnosed With Beals Syndrome?

    abstract::Beals syndrome, also known as congenital contractural arachnodactyly (Online Mendelian Inheritance in Man: 121050), is an autosomal dominant disorder caused by a mutation in FBN2 that is typically characterized by congenital contractures and arachnodactyly. It shares a number of phenotypic features with Loeys-Dietz sy...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2016-1281

    authors: Woolnough R,Dhawan A,Dow K,Walia JS

    更新日期:2017-03-01 00:00:00

  • Neonatal apnea: diagnosis by nurse versus computer.

    abstract::In an effort to characterize significant neonatal apnea and evaluate the nursing diagnosis of apnea, apnea type and frequency were determined in 27 infants by continuous computer recording of heart rate, respiratory impedance, end-tidal CO2, and either or both transcutaneous oxygen and pulse oximetry. Of the 1,266 rec...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Muttitt SC,Finer NN,Tierney AJ,Rossmann J

    更新日期:1988-11-01 00:00:00

  • The adverse effect of negative comments about weight and shape from family and siblings on women at high risk for eating disorders.

    abstract:OBJECTIVE:Our purpose with this work was to examine the relationship between negative comments about weight, shape, and eating and social adjustment, social support, self-esteem, and perceived childhood abuse and neglect. METHODS:A retrospective study was conducted with 455 college women with high weight and shape con...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2005-1806

    authors: Taylor CB,Bryson S,Celio Doyle AA,Luce KH,Cunning D,Abascal LB,Rockwell R,Field AE,Striegel-Moore R,Winzelberg AJ,Wilfley DE

    更新日期:2006-08-01 00:00:00

  • Features of invasive staphylococcal disease in neonates.

    abstract:OBJECTIVE:Most clinical descriptions of invasive staphylococcal disease (ISD) in neonates date from before the mid-1980s, when neonatal viability and intensive care differed substantially from current standards. We aimed to describe the contemporary incidence, clinical features, and outcome of infants with ISD in a neo...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2004-0043

    authors: Healy CM,Palazzi DL,Edwards MS,Campbell JR,Baker CJ

    更新日期:2004-10-01 00:00:00

  • Recognizing and responding to medical neglect.

    abstract::A caregiver may fail to recognize or respond to a child's medical needs for a variety of reasons. An effective response by a health care professional to medical neglect requires a comprehensive assessment of the child's needs, the parents' resources, the parents' efforts to provide for the needs of the child, and opti...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:10.1542/peds.2007-2903

    authors: Jenny C,Committee on Child Abuse and Neglect, American Academy of Pediatrics.

    更新日期:2007-12-01 00:00:00

  • Human metapneumovirus infection in the United States: clinical manifestations associated with a newly emerging respiratory infection in children.

    abstract:OBJECTIVE:Respiratory tract infections are a leading cause of morbidity and mortality worldwide. Recently, a newly identified human respiratory virus, human metapneumovirus (hMPV), was reported by investigators in the Netherlands. We sought to determine whether hMPV was circulating in our community and to determine the...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.111.6.1407

    authors: Esper F,Boucher D,Weibel C,Martinello RA,Kahn JS

    更新日期:2003-06-01 00:00:00

  • Safety and efficacy of filtered sunlight in treatment of jaundice in African neonates.

    abstract:OBJECTIVES:Evaluate safety and efficacy of filtered-sunlight phototherapy (FS-PT). METHODS:Term/late preterm infants #14 days old with clinically significant jaundice, assessed by total bilirubin (TB) levels, were recruited from a maternity hospital in Lagos, Nigeria. Sunlight was filtered with commercial window-tinti...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2013-3500

    authors: Slusher TM,Vreman HJ,Olusanya BO,Wong RJ,Brearley AM,Vaucher YE,Stevenson DK

    更新日期:2014-06-01 00:00:00

  • An overview of the effects of dietary fiber on gastrointestinal transit.

    abstract::This article is a review of the effects that ingested dietary fiber has on gastrointestinal transit time. The various phases of gastrointestinal motility are considered, and the effect of fiber on these various components is explored. Fiber affects each phase of gastrointestinal motility differently; however, the most...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:

    authors: Hillemeier C

    更新日期:1995-11-01 00:00:00

  • Injury patterns in obese versus nonobese children presenting to a pediatric emergency department.

    abstract:BACKGROUND:Two of the most prevalent problems facing youth in the United States are injury and obesity. Obesity increases the risk of injury, prolongs recovery time, and increases morbidity among injured children. OBJECTIVE:The purpose of this study was to compare characteristics of injuries between obese and nonobese...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2009-2367

    authors: Pomerantz WJ,Timm NL,Gittelman MA

    更新日期:2010-04-01 00:00:00

  • Prospective diagnosis of 2-methylbutyryl-CoA dehydrogenase deficiency in the Hmong population by newborn screening using tandem mass spectrometry.

    abstract:OBJECTIVE:2-methylbutyryl-CoA dehydrogenase deficiency, also known as short/branched-chain acyl-CoA dehydrogenase (SBCAD) deficiency, is a recently described autosomal recessive disorder of L-isoleucine metabolism. Only 4 affected individuals in 2 families have been described. One patient developed athetoid cerebral pa...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:10.1542/peds.112.1.74

    authors: Matern D,He M,Berry SA,Rinaldo P,Whitley CB,Madsen PP,van Calcar SC,Lussky RC,Andresen BS,Wolff JA,Vockley J

    更新日期:2003-07-01 00:00:00

  • Screening for Speech and Language Delay and Disorders in Children Aged 5 Years or Younger: US Preventive Services Task Force Recommendation Statement.

    abstract:BACKGROUND:This report is an update of the US Preventive Services Task Force (USPSTF) 2006 recommendation on screening for speech and language delay in preschool-aged children. METHODS:The USPSTF reviewed the evidence on screening for speech and language delay and disorders in children aged 5 years or younger, includi...

    journal_title:Pediatrics

    pub_type: 杂志文章,实务指引

    doi:10.1542/peds.2015-1711

    authors: Siu AL,US Preventive Services Task Force.

    更新日期:2015-08-01 00:00:00

  • Intima-media thickness and flow-mediated dilatation in the Helsinki study of very low birth weight adults.

    abstract:BACKGROUND:Adults born at a very low birth weight (VLBW) (< 1500 g), compared with those born at term, bear risk factors for cardiovascular disease, including higher blood pressure and insulin resistance. OBJECTIVE:We studied, in young adults born at a VLBW, early signs of an accelerated atherosclerotic process and th...

    journal_title:Pediatrics

    pub_type: 杂志文章,随机对照试验

    doi:10.1542/peds.2010-2199

    authors: Hovi P,Turanlahti M,Strang-Karlsson S,Wehkalampi K,Järvenpää AL,Eriksson JG,Kajantie E,Andersson S

    更新日期:2011-02-01 00:00:00

  • Sleep parameters and respiratory variables in "near miss' sudden infant death syndrome infants.

    abstract::Twenty-nine near miss for sudden infant death syndrome and thirty normal infants between the ages of 3 weeks and 6 months were monitored polygraphically for 24 hours. The distribution of sleep and abnormal respiratory events were analyzed for both groups. On the basis of mixed and obstructive apnea, 12-hour nocturnal ...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Guilleminault C,Ariagno R,Korobkin R,Coons S,Owen-Boeddiker M,Baldwin R

    更新日期:1981-09-01 00:00:00

  • Principles of Care for Young Adults With Co-Occurring Psychiatric and Substance Use Disorders.

    abstract::Over 50% of young adults (defined as individuals aged 18-25 years) with substance use disorders (SUDs) have at least 1 co-occurring psychiatric disorder, and the presence of co-occurring disorders worsens SUD outcomes. Treatment of both co-occurring psychiatric disorders and SUDs in young adults is imperative for opti...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2020-023523F

    authors: Spencer AE,Valentine SE,Sikov J,Yule AM,Hsu H,Hallett E,Xuan Z,Silverstein M,Fortuna L

    更新日期:2021-01-01 00:00:00

  • Inhaled nitric oxide in preterm infants: an individual-patient data meta-analysis of randomized trials.

    abstract:BACKGROUND:Inhaled nitric oxide (iNO) is an effective therapy for pulmonary hypertension and hypoxic respiratory failure in term infants. Fourteen randomized controlled trials (n = 3430 infants) have been conducted on preterm infants at risk for chronic lung disease (CLD). The study results seem contradictory. DESIGN/...

    journal_title:Pediatrics

    pub_type: 杂志文章,meta分析

    doi:10.1542/peds.2010-2725

    authors: Askie LM,Ballard RA,Cutter GR,Dani C,Elbourne D,Field D,Hascoet JM,Hibbs AM,Kinsella JP,Mercier JC,Rich W,Schreiber MD,Wongsiridej PS,Subhedar NV,Van Meurs KP,Voysey M,Barrington K,Ehrenkranz RA,Finer NN,Meta-analys

    更新日期:2011-10-01 00:00:00

  • Absorption of protein and protein fragments in the developing intestine: role in immunologic/allergic reactions.

    abstract::An important adaptation of the gastrointestinal tract to the extrauterine environment is its development of a mucosal barrier against the penetration of proteins and protein fragments. To combat the potential danger of invasion across the mucosal barrier the newborn infant must develop within the lumen and on the lumi...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Walker WA

    更新日期:1985-01-01 00:00:00

  • First-week protein and energy intakes are associated with 18-month developmental outcomes in extremely low birth weight infants.

    abstract:OBJECTIVE:We sought to evaluate the association between early protein and energy intake and neurodevelopment and growth of extremely low birth weight (<1000 g) infants. STUDY DESIGN:Daily protein and energy intakes were collected by chart review for the first 4 weeks of life on 148 extremely low birth weight survivors...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2008-0211

    authors: Stephens BE,Walden RV,Gargus RA,Tucker R,McKinley L,Mance M,Nye J,Vohr BR

    更新日期:2009-05-01 00:00:00

  • Superiority of oral agar and phototherapy combination in the treatment of neonatal hyperbilirubinemia.

    abstract:OBJECTIVE:To determine the value of oral agar in the treatment of neonatal hyperbilirubinemia and to compare it with two other treatment modalities: phototherapy alone and phototherapy plus oral agar. METHODS:Two hundred eight jaundiced full-term newborns were divided into four groups. They were given either photother...

    journal_title:Pediatrics

    pub_type: 临床试验,杂志文章

    doi:

    authors: Caglayan S,Candemir H,Aksit S,Kansoy S,Asik S,Yaprak I

    更新日期:1993-07-01 00:00:00

  • Hearing assessment in infants and children: recommendations beyond neonatal screening.

    abstract::Congenital or acquired hearing loss in infants and children has been linked with lifelong deficits in speech and language acquisition, poor academic performance, personal-social maladjustments, and emotional difficulties. Identification of hearing loss through neonatal hearing screening, regular surveillance of develo...

    journal_title:Pediatrics

    pub_type: 杂志文章,实务指引

    doi:10.1542/peds.2009-1997

    authors: Harlor AD Jr,Bower C,Committee on Practice and Ambulatory Medicine.,Section on Otolaryngology-Head and Neck Surgery.

    更新日期:2009-10-01 00:00:00

  • High-Expenditure Pharmaceutical Use Among Children in Medicaid.

    abstract:BACKGROUND AND OBJECTIVES:Medication use may be a target for quality improvement, cost containment, and research. We aimed to identify medication classes associated with the highest expenditures among pediatric Medicaid enrollees and to characterize the demographic, clinical, and health service use of children prescrib...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2017-1095

    authors: Cohen E,Hall M,Lopert R,Bruen B,Chamberlain LJ,Bardach N,Gedney J,Zima BT,Berry JG

    更新日期:2017-09-01 00:00:00

  • Ethical issues in pediatric surgery: a national survey of pediatricians and pediatric surgeons.

    abstract::The findings reported in this article are based on a nationwide survey of the attitudes and practices of pediatric surgeons and pediatricians with respect to some of the difficult ethical choices confronting them in medical practice. Four hundred fifty-seven physicians completed a questionnaire in the spring of 1975 i...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Shaw A,Randolph JG,Manard B

    更新日期:1977-10-01 00:00:00

  • Left atrial myxoma: association with acute coronary embolization in an 11-year-old boy.

    abstract::An 11-year-old boy had clinical signs of an acute inferior wall myocardial infarction. On echocardiography, a left atrial myxoma was demonstrated. Coronary artery embolization from myxoma was confirmed by selective coronary arteriography. The tumor was removed 12 days after acute coronary embolization. The clinical va...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Tanabe J,Williams RL,Diethrich EB

    更新日期:1979-05-01 00:00:00

  • Predictors of Medication Continuity in Children With ADHD.

    abstract:OBJECTIVES:To identify predictors of attention-deficit/hyperactivity disorder (ADHD) medication continuity, hypothesizing greater continuity among children with (1) greater child acceptance of treatment, (2) parent belief in longer time course for ADHD, (3) positive differential between parent-perceived need for and co...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2017-2580

    authors: Brinkman WB,Sucharew H,Majcher JH,Epstein JN

    更新日期:2018-06-01 00:00:00

  • Sleep-wake transitions in premature neonates predict early development.

    abstract:OBJECTIVE:To identify patterns of sleep-wake transitions in the neonatal period that might differentiate premature infants who would show better or worse outcomes in multiple developmental domains across the first 5 years of life. METHODS:Participants were 143 low birth weight premature infants (mean birth weight: 148...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2011-0047

    authors: Weisman O,Magori-Cohen R,Louzoun Y,Eidelman AI,Feldman R

    更新日期:2011-10-01 00:00:00

  • Interventions to improve cortisol regulation in children: a systematic review.

    abstract::Childhood adversity is associated with physiologic dysregulation across multiple biological systems; however, relatively little is known about whether these changes are reversible with intervention. The objective of this review was to examine evidence for the effectiveness of interventions to promote healthy cortisol ...

    journal_title:Pediatrics

    pub_type: 杂志文章,评审

    doi:10.1542/peds.2013-1632

    authors: Slopen N,McLaughlin KA,Shonkoff JP

    更新日期:2014-02-01 00:00:00

  • Energy dose for ventricular defibrillation of children.

    abstract::Transthoracic direct current shock is the recommended treatment for ventricular fibrillation in children as in adults. To determine the appropriate energy dose, data were collected from 71 defibrillation attempts in 27 children. Sixty-three of the 71 shocks (89%) were successful in terminating fibrillation. Fifty-seve...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:

    authors: Gutgesell HP,Tacker WA,Geddes LA,Davis S,Lie JT,McNamara DG

    更新日期:1976-12-01 00:00:00

  • Physician advice to adolescents about drinking and other health behaviors.

    abstract:BACKGROUND:This report assessed the proportion of US 10th graders (average age, 16) who saw a physician in the past year and were asked and given advice about their drinking. We hypothesized that advice would vary by whether students were asked about drinking and their drinking, bingeing, and drunkenness frequency. ME...

    journal_title:Pediatrics

    pub_type: 杂志文章

    doi:10.1542/peds.2012-1496

    authors: Hingson RW,Zha W,Iannotti RJ,Simons-Morton B

    更新日期:2013-02-01 00:00:00