Abstract:
:Across Australia, prostate cancer support groups (PCSG) have emerged to fill a gap in psychosocial care for men and their families. However, an understanding of the triggers and influencers of the PCSG movement is absent. We interviewed 21 SG leaders (19 PC survivors, two partners), of whom six also attended a focus group, about motivations, experiences, past and future challenges in founding and leading PCSGs. Thematic analysis identified four global themes: illness experience; enacting a supportive response; forming a national collective and challenges. Leaders described men's feelings of isolation and neglect by the health system as the impetus for PCSGs to form and give/receive mutual help. Negotiating health care systems was an early challenge. National affiliation enabled leaders to build a united voice in the health system and establish a group identity and collective voice. Affiliation was supported by a symbiotic relationship with tensions between independence, affiliation and governance. Future challenges were group sustainability and inclusiveness. Study findings describe how a grassroots PCSG movement arose consistent with an embodied health movement perspective. Health care organisations who seek to leverage these community resources need to be cognisant of SG values and purpose if they are to negotiate effective partnerships that maximise mutual benefit.
journal_name
Eur J Cancer Care (Engl)journal_title
European journal of cancer careauthors
Dunn J,Casey C,Sandoe D,Hyde MK,Cheron-Sauer MC,Lowe A,Oliffe JL,Chambers SKdoi
10.1111/ecc.12644subject
Has Abstractpub_date
2018-03-01 00:00:00pages
e12644issue
2eissn
0961-5423issn
1365-2354journal_volume
27pub_type
杂志文章abstract::Literature has documented personality and coping strategies as valuable intrapersonal resources for cancer adjustment among Caucasians. Nevertheless, it remains unclear whether these personal characteristics operate in a similar manner among cancer patients of different ages and cultural backgrounds. This study examin...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12781
更新日期:2018-01-01 00:00:00
abstract::We assessed the quality of life (QoL) associated with patient's characteristics and different cancer treatments among Chinese breast cancer survivors in Taiwan. A cross-sectional survey was conducted in 2017 where 193 patients with hormone receptor-positive/human epidermal growth factor receptor-2-negative metastatic ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13069
更新日期:2019-07-01 00:00:00
abstract::This study examined the content covered by radiation therapists (RTs) during education sessions; the frequency and types of questions asked by patients; and the relationship between patient characteristics and the number of questions asked. Fifty-eight education sessions were audio-recorded and transcribed verbatim. A...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12911
更新日期:2019-01-01 00:00:00
abstract::Cancer-related pain (CRP) is common and many patients continue to experience pain in spite of advances in pain management modalities. The lack of knowledge, inadequate assessment of CRP and/or organisational factors, such as lack of time due to heavy workload, can be a barrier to effective pain management of healthcar...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/ecc.12625
更新日期:2017-11-01 00:00:00
abstract::This study examines the prevalence of suspected cervical cancer (established through the use of visual inspection with Lugol's Iodine - VILI) among outpatients attending Surat Municipal Institute of Medical Education & Research Hospital, India. A cross-sectional study was conducted on 356 patients; 178 with an establi...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12626
更新日期:2017-01-01 00:00:00
abstract::Chemotherapy side effects (CSE) have a strong impact on patients' quality of life (QOL). To assess patient perceptions of CSE, their impact on QOL and doctor-patient communication regarding these aspects, a survey was conducted among Italian cancer patients. Patients at least 18 years of age, who received chemotherapy...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12618
更新日期:2017-03-01 00:00:00
abstract::The endometrial cancer (EC)-specific Quality of Life module of the European Organization for Research and Treatment of Cancer (EORTC QLQ-EN24), was developed and validated in one study. We independently validated and assessed the psychometric properties of the instrument. Two hundred and eight women with EC before sur...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12639
更新日期:2018-01-01 00:00:00
abstract::The purpose of this study was to evaluate the efficacy of a web-based cognitive rehabilitation intervention in survivors of adult-onset cancer and a sample of non-cancer community dwelling adults. Fifty-one participants were recruited and allocated to a cancer intervention group, a non-cancer intervention group, or a ...
journal_title:European journal of cancer care
pub_type: 杂志文章,随机对照试验
doi:10.1111/ecc.12805
更新日期:2018-03-01 00:00:00
abstract::This study was undertaken to gain insight in the views and experiences of oncology healthcare providers in Flanders, the Dutch-speaking part of Belgium, on caring for patients of non-Western descent. A qualitative research design with the constant comparative method was used. Data were collected through five focus gro...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12481
更新日期:2017-11-01 00:00:00
abstract::Art therapy in psycho-oncology is gaining increasing importance, but systematic evaluations of its effects are rare. The aim of this study is to investigate the effects of an art therapy intervention for cancer patients in ambulant aftercare on psychological distress and coping. The intervention consisted of 22 sessio...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12037
更新日期:2013-05-01 00:00:00
abstract::This small-scale study aimed to provide an insight into the time between first noticing a symptom, attending a healthcare provider and obtaining a cancer diagnosis. Previous research showed that the pre-diagnostic moments on the illness trajectory were important to people with cancer and could influence levels of sati...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1046/j.1365-2354.2003.00418.x
更新日期:2003-12-01 00:00:00
abstract::Haematological cancers are becoming more prevalent, however, survival is also increasing. Many survivors are faced with psychosocial issues after treatment ends, and they may not receive the support they need. This review aims to examine peer reviewed literature reporting psychosocial distress faced by haematological ...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/ecc.12640
更新日期:2017-11-01 00:00:00
abstract:OBJECTIVE:Prehabilitation is increasingly being used to mitigate treatment-related complications and enhance recovery. An individual's state of health at diagnosis, including obesity, physical fitness and comorbidities, are influencing factors for the occurrence of adverse effects. This review explores whether prehabil...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13023
更新日期:2019-07-01 00:00:00
abstract::This cross-sectional mixed methods survey explores healthcare professionals' perspective on their management of cancer patients' psychosocial concerns, and barriers to integrate the psychosocial approach in their work. An invitation for participation was sent to 4,965 inpatient and outpatient working professionals, of...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12936
更新日期:2019-01-01 00:00:00
abstract:OBJECTIVE:Breast cancer treatments not only affect body image but also other aspects of women's lives. Women try to accept their appearance through coping strategies. This study aimed to determine the relationship between body image and coping strategies in women with breast cancer following surgery in southeast Iran. ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13191
更新日期:2020-01-01 00:00:00
abstract::Close monitoring of chemotherapy toxicity can be instrumental in ensuring prompt symptom management and quality care. Our aim was to develop a brief clinical tool to enable daily assessment of chemotherapy toxicity and investigate/establish its content validity, feasibility/applicability, internal consistency and stab...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12890
更新日期:2018-11-01 00:00:00
abstract::The aim was to explore what expectations patients have concerning the recovery period after completed curative cancer treatment and the degree to which these expectations were realized slightly more than 1 year later. A purposeful sample of 16 patients was selected from a larger study and those patients were interview...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2008.00933.x
更新日期:2009-11-01 00:00:00
abstract::The aim of this prospective multi-centre study was to evaluate the level of psychological distress (PD) and adjustment to disease in patients who underwent radical prostatectomy. Furthermore, the impact of urinary incontinence and erectile dysfunction on PD was assessed. Anxiety, depression and PD were evaluated using...
journal_title:European journal of cancer care
pub_type: 杂志文章,多中心研究
doi:10.1111/ecc.12186
更新日期:2014-11-01 00:00:00
abstract::Surgery is the treatment of choice in most head and neck cancers. Very often, the surgery is radical with high impact on the psychosocial, functional and aesthetic fields. The aim of this study is to gain a deeper understanding of the patient's, clinician's and key informant's point of view when surgery is proposed, t...
journal_title:European journal of cancer care
pub_type: 杂志文章,多中心研究
doi:10.1111/ecc.13062
更新日期:2019-07-01 00:00:00
abstract:OBJECTIVE:To evaluate the efficacy of a reinforcement message (RM) administered by a hospital pharmacist on adherence, through a randomised study involving patients undergoing oral chemotherapy from which an objective outcome measure and patients' subjective opinions were collected. A secondary aim was to detect which ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13336
更新日期:2021-01-01 00:00:00
abstract::Open learning is increasing in importance in nurse education. In this article the author considers open learning and discusses its use in palliative care education. Advantages and disadvantages of this learning method are considered and guidelines are offered to the teacher to assist them to evaluate existing learning...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.1994.tb00028.x
更新日期:1994-09-01 00:00:00
abstract::Cancer care is complex, and made more so by multimorbidity and ageing. Multimorbidity affects all stages of cancer care from prevention and early detection through to end of life care. The effectiveness of cancer treatments in multimorbid patients may not be understood, as many conditions common in older people may be...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12717
更新日期:2017-05-01 00:00:00
abstract::Threatening nature of childhood cancer and the aggressiveness of prescribed treatments place enormous stress on the family of children suffering from cancer. This study was conducted to better understand the lived experiences of parents of children suffering from cancer and to document their account of such experience...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2011.01307.x
更新日期:2012-05-01 00:00:00
abstract::This study explored men's experiences of transrectal prostate biopsy. Fifty men who had had a prostate biopsy talked about the experience as part of an in-depth interview; 36 were interviewed in 2000 about all aspects of prostate cancer, and 14 in 2005 about their experience of prostate-specific antigen testing, subse...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2006.00766.x
更新日期:2007-05-01 00:00:00
abstract::To examine the incidence, characteristics, therapeutic approach and survival of diagnosed lung cancer (LC) in the Santiago de Compostela Health Area. A retrospective study was carried out on LC for a period of 3 years. Of the 481 cases collected, 92.7% were male. The median age was 66.93 years. The crude incidence for...
journal_title:European journal of cancer care
pub_type: 杂志文章,多中心研究
doi:10.1111/j.1365-2354.2008.01008.x
更新日期:2010-03-01 00:00:00
abstract::Depression might be associated with shorter disease specific survival. Selective serotonin reuptake inhibitors (SSRIs) were previously reported to increase the risk of certain malignancies. We aimed to evaluate the impact of SSRIs on cancer mortality. Five retrospective cohort studies were conducted in a UK population...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12666
更新日期:2018-01-01 00:00:00
abstract::Invasive procedures, such as the lumbar puncture, can cause anxiety and pain in children undergoing treatment for acute lymphoblastic leukaemia (ALL). We investigated the safety and efficacy of two different protocols for analgo-sedation in 20 children with ALL undergoing lumbar puncture. We have conducted a prospecti...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2008.01006.x
更新日期:2010-03-01 00:00:00
abstract::The Edinburgh Malawi Breast Cancer Project, a collaborative partnership project between the Queen Elizabeth Central Hospital (QECH) Oncology Unit, Blantyre, Malawi and the Edinburgh Cancer Centre, UK, was established in 2015. The principal objective of the project is to help to develop high quality multi-disciplinary ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12658
更新日期:2017-01-01 00:00:00
abstract::Patients at risk of developing lymphoedema following local treatment for cancer will also have compromised local immunity. Inflammation or infection may be the precipitating factor for the development of chronic swelling. A small group of breast cancer patients, who identified venepuncture as a significant event in th...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.1998.00089.x
更新日期:1998-06-01 00:00:00
abstract:OBJECTIVE:We aimed to compare frailty status between patients with head and neck cancer (HNC) and other solid malignancies. METHODS:Data collection was prospective, and the following were compared between cohorts at baseline: patient and tumour characteristics, Charlson Comorbidity Index (CCI), Groningen Frailty Indic...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13170
更新日期:2020-01-01 00:00:00