Abstract:
:This small-scale study aimed to provide an insight into the time between first noticing a symptom, attending a healthcare provider and obtaining a cancer diagnosis. Previous research showed that the pre-diagnostic moments on the illness trajectory were important to people with cancer and could influence levels of satisfaction with subsequent care. This article provides an overview of the qualitative component (phase 2) of a three-pronged study that involved a workshop, a literature review and focus groups and interviews with people affected by cancer. Results highlighted some of the difficulties encountered during the complex journey towards a diagnosis of cancer. These included fear of what might be found, communication of symptoms to healthcare practitioners, the influence of family on decisions to attend a primary care practitioner and the importance of a person's gender on perceptions of health-seeking behaviour. Results presented warrant further investigation and suggest the importance of viewing the 'cancer journey' as including the journey leading up to a diagnosis of cancer.
journal_name
Eur J Cancer Care (Engl)journal_title
European journal of cancer careauthors
Leydon GM,Bynoe-Sutherland J,Coleman MPdoi
10.1046/j.1365-2354.2003.00418.xsubject
Has Abstractpub_date
2003-12-01 00:00:00pages
317-26issue
4eissn
0961-5423issn
1365-2354journal_volume
12pub_type
杂志文章,评审abstract::The endometrial cancer (EC)-specific Quality of Life module of the European Organization for Research and Treatment of Cancer (EORTC QLQ-EN24), was developed and validated in one study. We independently validated and assessed the psychometric properties of the instrument. Two hundred and eight women with EC before sur...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12639
更新日期:2018-01-01 00:00:00
abstract::Randomized controlled trials are accepted to be the research design of choice to evaluate the effectiveness of health care interventions and are commonly used to evaluate cancer treatments. There are concerns, however, that levels of recruitment to trials are often much lower than anticipated, particularly in cancer t...
journal_title:European journal of cancer care
pub_type: 杂志文章,meta分析
doi:10.1046/j.1365-2354.2002.00341.x
更新日期:2002-09-01 00:00:00
abstract::The aim of this study is to investigate chemotherapy-induced alterations in the functional framework of the brain, and probe the relationship between these changes and executive function impairments in breast cancer patients. Thirty-three breast cancer patients (BC) after receiving chemotherapy and 31 matched healthy ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12553
更新日期:2017-11-01 00:00:00
abstract::Many studies show that chronic fatigue is the most frequently reported symptom related to cancer and its treatment. In order to evaluate the problem in Sweden, a questionnaire was mailed to 442 registered nurses in the autumn of 1995 with the aim of determining cancer nurses' views of the nature and causes of cancer-r...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.1997.00024.x
更新日期:1997-09-01 00:00:00
abstract:OBJECTIVE:Prehabilitation is increasingly being used to mitigate treatment-related complications and enhance recovery. An individual's state of health at diagnosis, including obesity, physical fitness and comorbidities, are influencing factors for the occurrence of adverse effects. This review explores whether prehabil...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13023
更新日期:2019-07-01 00:00:00
abstract::Effective patient-professional communication can be of crucial importance to long-term psycho-social outcomes in patients with cancer. This study identifies patient satisfaction with regard to various aspects of communication and perceived quality of care. A well-validated questionnaire was administered to 435 cancer ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2005.00530.x
更新日期:2005-03-01 00:00:00
abstract::This study aims to describe the experiences of nurses caring for cancer patients in non-specialist wards. The study was conducted in a large (420 beds) and small (32 beds) hospital in an area health service with urban and rural populations in the west of Sydney. A qualitative descriptive approach was utilized to colle...
journal_title:European journal of cancer care
pub_type: 杂志文章,多中心研究
doi:10.1111/j.1365-2354.2005.00566.x
更新日期:2005-07-01 00:00:00
abstract:INTRODUCTION:Ecological momentary assessment (EMA) is an emerging method to assess an individual's current thoughts, affect, behaviour, physical states and contextual factors as they occur in real-time and in their natural environment. Whereas EMA is frequently used in mental health, little is known about the added val...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/ecc.13095
更新日期:2019-05-01 00:00:00
abstract::This study aimed at developing and measuring quality indicators for oesophageal cancer (OC) and gastric cancer (GC) and to support quality improvement for practitioners. Quality indicators were identified from a systematic literature search including clinical guidelines. The selection process involved experts evaluati...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/ecc.12279
更新日期:2015-05-01 00:00:00
abstract::Fatigue has been recognized as the most frequently reported symptom of cancer and cancer therapy. There is a lack of research on such aspects as the pattern of fatigue which accompanies treatment, its exacerbating and relieving factors, the different mechanisms of fatigue and its relationship with the factors purporte...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.1996.tb00248.x
更新日期:1996-06-01 00:00:00
abstract::In order to improve outcomes, identification of the epidermal growth factor receptor (EGFR) and anaplastic lymphoma kinase (ALK) genes has become crucial in advanced non-small-cell lung cancer (NSCLC). The aim of the present study is to analyse time trends and frequency of testing, factors affecting testing as well as...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12721
更新日期:2017-11-01 00:00:00
abstract::Although it is quite rare, second primary neoplasms in cancer patients may present with the signs and symptoms of malignant spinal cord compression. Primary spinal cord tumours in the cancer patients may be deceptive and considered as the recurrent first cancer. Therefore, it should be precisely differentiated and app...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/j.1365-2354.2006.00708.x
更新日期:2006-12-01 00:00:00
abstract::Cancers metastatic to the eye are the most common intraocular malignancies. Breast, lung and gastrointestinal malignancies are the most common to the eye, with others forming a smaller group. This communication presents a very rare case of a choroidal secondary from a squamous cell carcinoma of the thyroid. ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1046/j.1365-2354.2001.00239.x
更新日期:2001-03-01 00:00:00
abstract:OBJECTIVE:To examine follow-up procedures after men are discharged into primary care following prostate cancer and highlight any areas for service improvement. METHODS:Patient record data from two Greater Manchester boroughs were retrieved retrospectively to investigate discharge instructions and monitoring adherence....
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13389
更新日期:2020-12-18 00:00:00
abstract::Cancer-related fatigue (CRF) is a burdensome symptom for breast cancer (BC) patients. In this pilot study, we tested several questionnaires as predictors for treatment responsiveness, along with the implementation of a multimodal therapy concept consisting of sleep, psycho-education, eurythmy, painting therapy and sta...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12278
更新日期:2015-09-01 00:00:00
abstract::The need for information by the caregiving family of an adult patient with cancer has been identified by research. This paper is a literature review of the information and learning needs of caregiving relatives. By meeting these needs the health care professional is able to help support the family, and therefore the p...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/j.1365-2354.1995.tb00068.x
更新日期:1995-09-01 00:00:00
abstract::Sarcomas often occur in patients' extremities and treatment typically involves bone resection/limb salvage surgery. Such treatments leave survivors with physical disfigurements, functional disabilities, and/or emotional traumas. Our post-surgery psychological intervention investigated how these experiences impinge on ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12667
更新日期:2017-11-01 00:00:00
abstract:OBJECTIVE:Cancer-related fatigue (CRF) is among the most common and distressing side effects of cancer treatment. Different types of interventions, including physical activity (PA), psychosocial and mind-body interventions, have been shown to reduce CRF. We aimed to explore HCPs' practices and barriers to refer patient...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13370
更新日期:2020-11-15 00:00:00
abstract::In this study, we compared cancer patients preference for computerised (tablet/web-based) surveys versus paper. We also assessed whether the understanding of a cancer-related topic, pharmacogenomics is affected by the survey format, and examined differences in demographic and medical characteristics which may affect p...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12318
更新日期:2016-03-01 00:00:00
abstract::Individuals managing the challenges of life-limiting illness require adequate social support to maintain quality of life. Qualitative research reports that patients value highly the social support obtained in palliative care interventions such as day care and group therapies. This systematic review aims to summarise e...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1111/ecc.12837
更新日期:2018-05-01 00:00:00
abstract::For blood cancer patients, haematopoietic stem cells (HSC) donated by a relative can be lifesaving. However, related donors can face significant physical and psychosocial challenges. As the demand for adult-related HSC donors is increasing, it is important to review our understanding of adult-related HSC donors' need ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12932
更新日期:2019-05-01 00:00:00
abstract:OBJECTIVE:Documentations of the experiences of patients with advanced prostate cancer and their partners are sparse. Views of care and treatment received for metastatic castrate-resistant prostate cancer (mCRPC) are presented here. METHODS:Structured interviews conducted within 14 days of a systemic therapy for mCRPC ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13140
更新日期:2019-11-01 00:00:00
abstract::This study evaluated the patterns of care and health care resource use (HCRU) in patients with metastatic squamous cell carcinoma of the head and neck (SCCHN) who received ≥3 lines of systemic therapy in the United Kingdom (UK). Oncologists (n = 40) abstracted medical records for patients with metastatic SCCHN who ini...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12862
更新日期:2018-09-01 00:00:00
abstract::It is estimated that 20-25% of cancer patients suffer often unrecognized and untreated long-term depression, a condition that can make life miserable. Symptoms can include: lack of sleep; loss of interest in life; anxiety; irritation; loss of concentration; and, in severe cases, thoughts of suicide; leading to an over...
journal_title:European journal of cancer care
pub_type: 杂志文章,评审
doi:10.1046/j.1365-2354.1998.00100.x
更新日期:1998-09-01 00:00:00
abstract::A project was funded by the UK's Department of Health to develop national guidelines for breast cancer related lymphoedema using a Consensus Strategy. This involved the organization of a consensus conference with a multidisciplinary panel of experts, an extensive literature review, the production of clinical guideline...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.1996.tb00243.x
更新日期:1996-12-01 00:00:00
abstract::Literature has documented personality and coping strategies as valuable intrapersonal resources for cancer adjustment among Caucasians. Nevertheless, it remains unclear whether these personal characteristics operate in a similar manner among cancer patients of different ages and cultural backgrounds. This study examin...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12781
更新日期:2018-01-01 00:00:00
abstract::To enable demand-based palliative care, it is important to know the perceptions of terminally ill patients and their family members regarding home and hospice as places of care at the end of life. Eight women and five men suffering from cancer and with a life expectancy of 3 months or less were interviewed. In each ca...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/j.1365-2354.2010.01228.x
更新日期:2011-09-01 00:00:00
abstract:INTRODUCTION:The aim of this study was to identify strategies to implement patient-reported outcome measures (PROMs) into routine oncology outpatients' clinical care. METHODS:Qualitative focus groups were conducted with staff from multiple disciplines using a semistructured interview guide, with supporting data collec...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.13167
更新日期:2019-11-01 00:00:00
abstract::The Edinburgh Malawi Breast Cancer Project, a collaborative partnership project between the Queen Elizabeth Central Hospital (QECH) Oncology Unit, Blantyre, Malawi and the Edinburgh Cancer Centre, UK, was established in 2015. The principal objective of the project is to help to develop high quality multi-disciplinary ...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12658
更新日期:2017-01-01 00:00:00
abstract::This study was conducted to explore the interrelationships among caregiver burden, emotional status and quality of life (QoL) in caregivers of lung cancer patients, and to identify whether caregiver burden and health status are associated with patient emotional status and QoL. Forty-three dyads of lung cancer patients...
journal_title:European journal of cancer care
pub_type: 杂志文章
doi:10.1111/ecc.12691
更新日期:2018-01-01 00:00:00