How and when do patients request life-expectancy estimates? Evidence from hospice medical consultations and insights for practice.

Abstract:

OBJECTIVE:To break new ground by directly examining how patients seek life-expectancy estimates, and how doctors support them in doing so. METHODS:Conversation analytic examination of 10 recorded UK hospice consultations involving 3 palliative specialists. RESULTS:Life-expectancy estimate episodes frequently begin after a doctor has given a patient an opportunity to shape the consultation agenda. Rather than posing direct questions, patients cautiously display their interest in receiving an estimate using statements. These often contain preparatory information about: what they already know about their prognosis, their perspective on it, and readiness to hear more. When patients do not provide this information, doctors invite it before giving an estimate. Patients' companions also contribute to this preparatory work. CONCLUSION:Doctors, patients, and companions collaboratively work to prepare a conversational environment wherein emotional states and uncertainties have been addressed prior to delivery of the actual estimate. This helps manage both possible emotional distress, and prognostic uncertainty entailed in seeking and delivering estimates. PRACTICE IMPLICATIONS:Clinicians should be mindful that rather than overtly requesting estimates, patients may seek them more cautiously. Before delivering estimates, doctors can support patients to articulate their existing understanding and perspective regarding prognosis, and their readiness to hear more.

journal_name

Patient Educ Couns

authors

Pino M,Parry R

doi

10.1016/j.pec.2018.03.026

subject

Has Abstract

pub_date

2019-02-01 00:00:00

pages

223-237

issue

2

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(18)30151-4

journal_volume

102

pub_type

杂志文章
  • The prenatal triad: The importance of provider-patient communication with expectant fathers throughout the prenatal care process.

    abstract::Previous research has primarily focused on the relationship between providers and expectant mothers as a key element of quality prenatal care. Significantly less attention has been directed toward expectant fathers and the importance of their communication with prenatal care providers and involvement in the prenatal c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.11.005

    authors: Varga S,Mackert M,Mandell DJ

    更新日期:2020-11-06 00:00:00

  • Perception of diagnosis and openness of patients about infertility.

    abstract::The perception of the diagnosis of infertility and the openness of patients about infertility was investigated among 108 infertile couples. Husbands and wives answered a structured questionnaire. The perception of diagnosis was in 38% of the cases different from the medical diagnosis. Patients perceived the diagnosis ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(95)00852-7

    authors: van Balen F,Trimbos-Kemper T,Verdurmen J

    更新日期:1996-08-01 00:00:00

  • Development and feasibility of a patient feedback programme to improve consultation skills in general practice training.

    abstract:OBJECTIVE:To develop an attractive and effective patient feedback training programme for general practice trainees (GPTs). METHODS:First, an exploratory study was conducted in which patients and GPTs were interviewed after they had worked with patient feedback. This contributed to the development of the patient feedba...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2008.01.016

    authors: Reinders ME,Blankenstein AH,van Marwijk HW,Schleypen H,Schoonheim PL,Stalman WA

    更新日期:2008-07-01 00:00:00

  • A Canadian experiment with breast cancer information exchange pilot projects.

    abstract::Responding to concerns articulated by Canadian women living with breast cancer and their families, the federal government has provided $2.7 million over five years to establish five regional information exchange pilot projects. Women experience considerable variation in access to information reflecting different resou...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(96)00898-1

    authors: Bradbury J,Bryant H,Casebolt T,Latreille J,Pawelek J,Olivotto I

    更新日期:1996-07-01 00:00:00

  • Effective or ineffective: attribute framing and the human papillomavirus (HPV) vaccine.

    abstract:OBJECTIVE:To experimentally test whether presenting logically equivalent, but differently valenced effectiveness information (i.e. attribute framing) affects perceived effectiveness of the human papillomavirus (HPV) vaccine, vaccine-related intentions and policy opinions. METHODS:A survey-based experiment (N=334) was ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2010.08.014

    authors: Bigman CA,Cappella JN,Hornik RC

    更新日期:2010-12-01 00:00:00

  • HIV-1 antibody testing among drug users participating in AIDS education.

    abstract::This study aimed to identify factors which predict participation of drug users in HIV-1 antibody testing. The study was part of a randomized controlled trial of three small group AIDS educational programs, in a 21-day in-patient drug detoxification and rehabilitation program. Subjects (n = 497) were clients admitted t...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/0738-3991(94)90070-1

    authors: McCusker J,Bigelow C,Zapka JG,Zorn M,Stoddard AM,Lewis BF

    更新日期:1994-12-01 00:00:00

  • Attitudes of nursing staff towards involvement in medical end-of-life decisions: a national survey study.

    abstract:OBJECTIVES:To investigate nursing staff attitudes towards involvement and role in end-of-life decisions (ELDs) and the relationships with sociodemographic and work-related characteristics. METHODS:Survey study among nationally representative Dutch research sample consisting of care professionals. Nursing staff working...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2013.09.018

    authors: Albers G,Francke AL,de Veer AJ,Bilsen J,Onwuteaka-Philipsen BD

    更新日期:2014-01-01 00:00:00

  • Themes affecting health-care consumers' choice of a hospital for elective surgery when receiving web-based comparative consumer information.

    abstract:OBJECTIVE:To get insights into the decision-making strategy of health-care consumers when confronted with comparative consumer information. METHODS:Qualitative descriptive study among 18 consumers who had a hip or knee replacement no longer than five years ago. To study their decision-making strategies a paper draft f...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.10.027

    authors: Moser A,Korstjens I,van der Weijden T,Tange H

    更新日期:2010-03-01 00:00:00

  • Impact of telephone counseling on the quality of life of patients discharged after coronary artery bypass grafts.

    abstract:BACKGROUND:This study aimed to assess the impact of telephone counseling on quality of life in patients with coronary artery bypass graft. METHODS:A quasi-experimental study was conducted with 71 discharged patients after coronary artery bypass graft surgery at Ekbatan Edcuational hospital in Hamadan, Iran, in 2014. T...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2017.06.010

    authors: Bikmoradi A,Masmouei B,Ghomeisi M,Roshanaei G,Masiello I

    更新日期:2017-12-01 00:00:00

  • Empowerment in healthcare: A thematic synthesis and critical discussion of concept analyses of empowerment.

    abstract:OBJECTIVE:The objective of this study is to shed light on common characteristics revealed in concept analyses of empowerment to contribute to further understanding. A further objective is to discuss how the perspective of healthcare service users appeared in the concept analyses. METHODS:The review was performed by sy...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2020.02.017

    authors: Halvorsen K,Dihle A,Hansen C,Nordhaug M,Jerpseth H,Tveiten S,Joranger P,Ruud Knutsen I

    更新日期:2020-07-01 00:00:00

  • The prepared family caregiver: a problem-solving approach to family caregiver education.

    abstract::Early hospital discharges, greater reliance on outpatient care, and the growing prevalence of chronic diseases has increased the demands on family members who care for patients at home. Family caregivers need information and training to insure that patients' needs are met and that home care is coordinated with that of...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(95)00790-3

    authors: Houts PS,Nezu AM,Nezu CM,Bucher JA

    更新日期:1996-01-01 00:00:00

  • Face-to-face communication between patients and family physicians in Canada: A scoping review.

    abstract:OBJECTIVE:Patient-provider communication is critical in primary care. Canada's unique health system, population distribution, and cultural context suggest there is value in addressing the topic in the Canadian context. We conducted a scoping review to synthesize recent Canadian literature to inform practice in primary ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2017.11.008

    authors: Armas A,Meyer SB,Corbett KK,Pearce AR

    更新日期:2018-05-01 00:00:00

  • Examination of standardized patient performance: accuracy and consistency of six standardized patients over time.

    abstract:OBJECTIVE:To explore the accuracy and consistency of standardized patient (SP) performance in the context of routine genetic counseling, focusing on elements beyond scripted case items including general communication style and affective demeanor. METHODS:One hundred seventy-seven genetic counselors were randomly assig...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.10.005

    authors: Erby LA,Roter DL,Biesecker BB

    更新日期:2011-11-01 00:00:00

  • Multidimensional analysis of treatment adherence in patients with multiple chronic conditions. A cross-sectional study in a tertiary hospital.

    abstract:OBJECTIVE:Determine treatment adherence in patients with multiple chronic conditions (MCC). METHODS:A random patient sample ≥ 15 years, discharged from hospital with ≥1 chronic conditions (CC) was interviewed after 6-12 months. Analysis included variables in 5 dimensions (WHO): socio-demographics, disease, treatment, ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.12.012

    authors: Jansà M,Hernández C,Vidal M,Nuñez M,Bertran MJ,Sanz S,Castell C,Sanz G

    更新日期:2010-11-01 00:00:00

  • A randomised controlled trial of lay-led self-management for people with multiple sclerosis.

    abstract:OBJECTIVE:To determine the impact of the Chronic Disease Self-Management Course (CDSMC) on people with multiple sclerosis (MS). METHODS:2-group, randomised, controlled trial with Intervention Group (IG) and Waiting-List Control Group (WLCG). Additional data were collected from a Comparison Group (CG) who chose not to ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.pec.2009.02.009

    authors: Barlow J,Turner A,Edwards R,Gilchrist M

    更新日期:2009-10-01 00:00:00

  • The theory of planned behaviour in a randomized trial of a decision aid on cardiovascular risk prevention.

    abstract:OBJECTIVE:To assess the feasibility and outcome of measuring the theory of planned behaviour (TPB) in patients receiving routine counselling versus counselling with a decision aid (DA) during primary care consultation on cardiovascular risk prevention. METHODS:A DA was developed, based on models of shared decision-mak...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2009.06.010

    authors: Krones T,Keller H,Becker A,Sönnichsen A,Baum E,Donner-Banzhoff N

    更新日期:2010-02-01 00:00:00

  • Men considering a hypothetical treatment for prostate cancer: a comparison to patients.

    abstract:BACKGROUND:In facilitating informed decision making about PSA screening, men are often asked to consider the potential consequences of the test, including a diagnosis of prostate cancer and how they would want to be treated. However, there is no empirical evidence thus far demonstrating that men are able to consider th...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2005.02.002

    authors: Van Manen L,Feldman-Stewart D,Brundage MD

    更新日期:2006-04-01 00:00:00

  • The self-care behavior inventory: a model for behavioral instrument development.

    abstract::The Self-Care Behavior (SCB) Inventory was developed as part of a long-term study of self-care practices of persons who have multiple sclerosis (MS) in Denmark. The universe of behaviors regarding the physical, social, emotional, environmental, and spiritual aspects of coping with the illness was ascertained by inform...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(85)90036-9

    authors: McLaughlin J,Sliepcevich EM

    更新日期:1985-09-01 00:00:00

  • Readability comparison of pro- and anti-HPV-vaccination online messages in Japan.

    abstract:OBJECTIVE:In Japan, the HPV vaccination rate has sharply fallen to nearly 0% due to a series of sensational media reports of adverse events. Online anti-HPV-vaccination activists often warn readers of the vaccine's dangers. We aimed to examine distribution and readability of pro-and anti-vaccination online messages wit...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2017.04.013

    authors: Okuhara T,Ishikawa H,Okada M,Kato M,Kiuchi T

    更新日期:2017-10-01 00:00:00

  • Patients should participate in designing diabetes educational content.

    abstract::Patients with diabetes are ultimately responsible for their disease management, but many patients with diabetes do not have the necessary knowledge or skill. Recently developed National Standards for diabetes care include patient education. A nonprobability, convenience sample of 50 patients and 50 staff nurses was se...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(90)90074-u

    authors: Duchin SP,Brown SA

    更新日期:1990-12-01 00:00:00

  • Belief in numbers: When and why women disbelieve tailored breast cancer risk statistics.

    abstract:OBJECTIVE:To examine when and why women disbelieve tailored information about their risk of developing breast cancer. METHODS:690 women participated in an online program to learn about medications that can reduce the risk of breast cancer. The program presented tailored information about each woman's personal breast c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.03.016

    authors: Scherer LD,Ubel PA,McClure J,Greene SM,Alford SH,Holtzman L,Exe N,Fagerlin A

    更新日期:2013-08-01 00:00:00

  • Patient education for children with interstitial lung diseases and their caregivers: A pilot study.

    abstract:OBJECTIVE:Patient education in children with rare chronic diseases like children's interstitial lung disease (chILD) remains a challenge. AIMS:To develop and evaluate a component-based educational program for individual counselling and to improve patients' and caregivers' self-efficacy and treatment satisfaction. Furt...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.pec.2019.01.016

    authors: Niemitz M,Schrader M,Carlens J,Hengst M,Eismann C,Goldbeck L,Griese M,Schwerk N

    更新日期:2019-06-01 00:00:00

  • Evaluation of a computer based interactive diabetes education program designed to train the estimation of the energy or carbohydrate contents of foods.

    abstract::The objective of this study was to evaluate a computer based interactive diabetes education program designed to train patients with diabetes to correctly estimate the energy or carbohydrate contents of foods. The acceptance and the operator convenience of the program were evaluated with an integrated program and writt...

    journal_title:Patient education and counseling

    pub_type:

    doi:10.1016/s0738-3991(01)00159-8

    authors: Nebel IT,Blüher M,Starcke U,Müller UA,Haak T,Paschke R

    更新日期:2002-01-01 00:00:00

  • Do gender-dyads have different communication patterns? A comparative study in Western-European general practices.

    abstract::From the viewpoint of quality of care, doctor-patient communication has become more and more important. Gender is an important factor in communication. Besides, cultural norms and values are likely to influence doctor-patient communication as well. This study examined (1). whether or not communication patterns of gend...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(02)00178-7

    authors: Brink-Muinen Av,van Dulmen S,Messerli-Rohrbach V,Bensing J

    更新日期:2002-12-01 00:00:00

  • Predictors of refusal during a multi-step recruitment process for a randomized controlled trial of arthritis education.

    abstract:OBJECTIVE:Randomized controlled trials in patient education often have difficulty enrolling vulnerable populations-specifically, older, poorer, and less educated individuals. We undertook a randomized controlled trial (RCT) of an educational intervention for arthritis management, which included strategies to remove lit...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2008.06.017

    authors: Blanch DC,Rudd RE,Wright E,Gall V,Katz JN

    更新日期:2008-11-01 00:00:00

  • Perceived body image among African Americans with type 2 diabetes.

    abstract:OBJECTIVE:To assess current, desired and best body image in the opposite sex and examine correlates of body image dissatisfaction. METHODS:We conducted a cross-sectional analysis at baseline of 185 (141 women, 44 men) African Americans with type 2 diabetes in Project Sugar 1, a randomized controlled trial of primary c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2005.01.004

    authors: Baptiste-Roberts K,Gary TL,Bone LR,Hill MN,Brancati FL

    更新日期:2006-02-01 00:00:00

  • Can patients tell when they are unwanted? "Turfing" in residency training.

    abstract:OBJECTIVES:When a physician believes that the troubles of caring for a patient outweigh the rewards, he or she can move--"turf", the unwanted patient from his or her own to another physician's territory. Physicians receiving such patients can feel burdened by, and resentful about, caring for those who are "turfed" to t...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2003.12.014

    authors: Caldicott CV,Dunn KA,Frankel RM

    更新日期:2005-01-01 00:00:00

  • Daily walking and cycling to work: their utility as health-enhancing physical activity.

    abstract::The substantial health-enhancing potential of physical activity can be realised on population level best if people can incorporate physical activity into their daily life routines. Physically active commuting to and from work provides a promising mode for such activity. In a series of three studies we explored more sp...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(98)00013-5

    authors: Oja P,Vuori I,Paronen O

    更新日期:1998-04-01 00:00:00

  • The association of health literacy and blood pressure reduction in a cohort of patients with hypertension: The heart healthy lenoir trial.

    abstract:OBJECTIVE:Lower health literacy is associated with poorer health outcomes. Few interventions poised to mitigate the impact of health literacy in hypertensive patients have been published. We tested if a multi-level quality improvement intervention could differentially improve Systolic Blood Pressure (SBP) more so in pa...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.10.015

    authors: Halladay JR,Donahue KE,Cené CW,Li Q,Cummings DM,Hinderliter AL,Miller CL,Garcia BA,Little E,Rachide M,Tillman J,Ammerman AS,DeWalt D

    更新日期:2017-03-01 00:00:00

  • The impact of tailored interventions on a community health center population.

    abstract::We conducted a 4-year randomized study in a community health center that serves primarily low income Blacks in Durham, North Carolina. Patients (1318 at baseline) were assigned randomly to one of three study groups: provider prompting intervention alone, provider prompting and tailored print materials or the previous ...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0738-3991(98)00122-0

    authors: Rimer BK,Conaway M,Lyna P,Glassman B,Yarnall KS,Lipkus I,Barber LT

    更新日期:1999-06-01 00:00:00