Abstract：
:Presymptomatic DNA-testing for adult-onset diseases has serious psychological consequences. Here the psychological consequences of presymptomatic DNA-testing for Huntington's disease are reviewed. Both carriers and non-carriers experience emotional reactions after disclosure of their test result. However, up to today no long-term adverse emotional consequences have been revealed. Future research on other adult-onset genetic diseases should provide information about the reactions of children. In genetic counselling, attention should be paid to the reactions of people with a decreased risk. Genetic counselling must focus on the whole family and not on the individual applicant.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
van 't Spijker A,ten Kroode HFdoi
10.1016/s0738-3991(97)00066-9subject
Has Abstractpub_date
1997-09-01 00:00:00pages
33-40issue
1-2eissn
0738-3991issn
1873-5134pii
S0738-3991(97)00066-9journal_volume
32pub_type
杂志文章,评审abstract：OBJECTIVE:Adherence to self-care behaviors improves heart failure (HF) morbidity and life quality. We examined short-term impact of video education (VE) in addition to standard education (SE) on HF healthcare utilization and self-care behavior adherence. METHODS:One hundred and twelve hospitalized patients were random...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2007.08.007
更新日期：2007-12-01 00:00:00
abstract：:It is important that congestive heart failure (CHF) patients know how to monitor and manage disease-associated signs and symptoms. CHF patients were randomised to follow-up at a nurse-based outpatient clinic (intervention group (IG); n = 103), or to follow-up in primary healthcare (control group (CG); n = 105). Patien...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,随机对照试验
doi：10.1016/j.pec.2004.08.005
更新日期：2005-08-01 00:00:00
abstract：OBJECTIVE:To explore how effectively information presentation formats used in a patient decision aid communicated the ability of a disease modifying anti-rheumatic drug to slow the rate of progression of rheumatoid arthritis related structural joint damage (SJD). METHODS:91 first year psychology students and 91 RA pat...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2011.06.001
更新日期：2012-03-01 00:00:00
abstract：:Previous studies reported inconsistent relationship between the preference for information and that for decisional autonomy in medical encounters. We hypothesized that the relationship may be dependent on people's attribution beliefs on health. To test the hypothesis, demographically representative sample of Japanese ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2003.09.010
更新日期：2004-11-01 00:00:00
abstract：OBJECTIVE:Using Skype and remote standardized patients (RSPs), investigators sought to evaluate user acceptance of a web-based objective structured clinical examination (OSCE) among resident physicians. METHODS:After participating in four web-based clinical encounters addressing pain with RSPs, 59 residents from diffe...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.04.016
更新日期：2014-07-01 00:00:00
abstract：OBJECTIVE:To explore treatment decision-making experiences of Australian migrants with cancer from Arabic, Chinese, or Greek backgrounds and their relatives. METHODS:73 patients and 18 caregivers from cancer support groups and oncology clinics participated in either a focus group (n=14) or semi-structured interview (n...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.01.012
更新日期：2015-06-01 00:00:00
abstract：OBJECTIVE:To compare and contrast the duration and content of physician-patient interaction for patients presenting to an emergency department with problems of low acuity in 1990 and 2005 treated by different grades of physician. METHODS:Observational study with data collection in May-July 1990 and May-July 2005. Pati...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2008.02.005
更新日期：2008-08-01 00:00:00
abstract：OBJECTIVE:To assess the effect of a patient decision aid on the quality of decision-making for patients with age-related cataracts. METHODS:773 patients with cataracts aged 50-80 years were randomly assigned to receive either the intervention decision aid (including standard information, quantitative information on th...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.10.036
更新日期：2020-11-09 00:00:00
abstract：OBJECTIVE:To conduct a scoping literature review to understand the conceptualization and nature of the research on patient-provider language concordance (LC) in health care. METHODS:We searched PubMed, EMBASE, CINAHL, PsycINFO, and Scopus to identify peer-reviewed articles between January 1961 and August 2018. We extr...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2020.05.025
更新日期：2020-10-01 00:00:00
abstract：OBJECTIVE:To evaluate a web-based self-management training for health professionals. Patients spend 99% of their time outside the healthcare system. Thus self-management support from health professionals is central to optimal care. Our objective was to teach health professionals the skills to provide this support. MET...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2012.09.003
更新日期：2013-01-01 00:00:00
abstract：OBJECTIVE:To fill a gap in research by examining cancer patient-provider communication regarding tobacco use and patients' perspectives regarding their experiences with smoking cessation and relapse. METHODS:In-depth interviews were conducted with 20 lung and head and neck cancer patients and 11 health care providers....
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.09.024
更新日期：2009-12-01 00:00:00
abstract：:The effect of a pre-coronary angioplasty education and counselling program on knowledge and psychological status of patients and on knowledge and quality of life/coping status of their spouses was evaluated. Forty patients and their spouses participated in a pre-coronary angioplasty education and counselling program a...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(97)00040-2
更新日期：1997-11-01 00:00:00
abstract：OBJECTIVE:"Pick-Klop" is a game based on cognitive behavioral therapy. It aims to change smokers' attitudes towards tobacco addiction. This study tests the feasibility and the impact of one brief session of the intervention in a naturalistic setting within a psychiatric hospital. METHOD:Fifty-one smokers were recruite...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.10.006
更新日期：2008-02-01 00:00:00
abstract：OBJECTIVE:Communication in healthcare has influenced and been influenced by the COVID-19 pandemic. In this position paper, we share observations based on the latest available evidence and experiential knowledge that have emerged during the pandemic, with a specific focus on policy and practice. METHODS:This is a posit...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2020.12.025
更新日期：2021-02-01 00:00:00
abstract：OBJECTIVE:Smokers who are not ready to quit are a very difficult group to treat. Physicians, nurses, and nurse practitioners are in a unique position to encourage patients to quit smoking. However, the best approach to do so is not clear. METHODS:A two-group randomized controlled trial with 218 pack-a-day precontempla...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2010.04.024
更新日期：2011-04-01 00:00:00
abstract：OBJECTIVE:We aimed to specifically examine patients' and caregivers' perspectives about the use of the vignette technique (VT) integrating clinical scenarios, as a potential tool for facilitating advance care planning (ACP) discussions. METHODS:Secondary analysis of data from three studies that incorporated the VT, fo...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.03.021
更新日期：2016-08-01 00:00:00
abstract：OBJECTIVE:To evaluate residents' ability to engage standardized patients in informed decision making during a pregnancy loss scenario. METHODS:Forty patient encounters between interns and standardized patients were coded to assess informed decision-making practices, exploration of unexpressed concerns, and support pro...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.06.016
更新日期：2017-12-01 00:00:00
abstract：OBJECTIVE:To determine the literacy skill sets of patients in the context of graphical interpretation of interactive dashboards. METHODS:We assessed literacy characteristics of prostate cancer patients and assessed comprehension of quality of life dashboards. Health literacy, numeracy and graph literacy were assessed ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.09.009
更新日期：2016-03-01 00:00:00
abstract：OBJECTIVE:The current study tested in two online experiments whether manipulating normative beliefs about cancer screening uptake increases intention to attend colorectal screening among previously disinclined individuals. METHODS:2461 men and women from an Internet panel (Experiment 1 N = 1032; Experiment 2, N = 1423...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.04.001
更新日期：2019-09-01 00:00:00
abstract：OBJECTIVES:To validate 2 new patient-reported measures of self-management support from health professionals for mood and emotional problems. METHODS:The sample comprised primary care patients with chronic physical conditions and co-morbid depressive symptoms enrolled in a randomized trial of telephone coaching of a de...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2017.06.002
更新日期：2017-12-01 00:00:00
abstract：:An explanatory framework, referred to as the attitude/social influence/self-efficacy-model (ASE-model), was utilised to explain future self-reported adherence of adolescents to daily inhaled prophylactic asthma medication. The objective was to investigate the long-term influence of these earlier reported cognitive var...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(01)00195-1
更新日期：2002-06-01 00:00:00
abstract：:Studies among patients, nurses, and doctors in Dutch hospitals reveal the need for health education. Patients are dissatisfied with the information received and feel that nurses and doctors fail to meet their expectations regarding health education. More attention needs to be given to older, alienated, and low socioec...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/0738-3991(84)90054-5
更新日期：1984-01-01 00:00:00
abstract：OBJECTIVE:A comprehensive review was conducted of the theoretical and empirical work that addresses the preference-match strategy in physician-patient communication. METHODS:Searches were conducted on Medline, PsychINFO, InFoTrac One File Plus, Sociological Abstracts, and Dissertation Abstracts through 2004. The follo...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2005.08.002
更新日期：2006-06-01 00:00:00
abstract：OBJECTIVE:The current objective is to validate the Medical Consultation Experience Questionnaire (MCEQ) and to examine distinctions between constructs of patient perceived alliance and experienced confusion in relation to key health outcomes. METHODS:A total of 857 participants were recruited online across two samples...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.09.028
更新日期：2020-02-01 00:00:00
abstract：:The Russian Federation's recently adopted family medicine as a specialty, but with little or no training in psychosocial and behavioral issues, unlike many training programs in other countries. The purpose of this qualitative study was to explore the perceptions and experiences of Russian primary care physicians regar...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2004.11.006
更新日期：2005-11-01 00:00:00
abstract：:Despite believing end-of-life (EOL) discussions with patients are important, doctors often do not have them. Multiple factors contribute to this shortfall, which interventions including reimbursement changes and communication skills training have not significantly improved to date. One commonly cited but under-researc...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.12.008
更新日期：2018-05-01 00:00:00
abstract：:The perception of the diagnosis of infertility and the openness of patients about infertility was investigated among 108 infertile couples. Husbands and wives answered a structured questionnaire. The perception of diagnosis was in 38% of the cases different from the medical diagnosis. Patients perceived the diagnosis ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(95)00852-7
更新日期：1996-08-01 00:00:00
abstract：OBJECTIVE:We describe and compare the perceptions of professional and family member interpreters concerning their roles and tasks as interpreters in primary care clinical encounters. METHODS:Encounters between physicians (19) and patients (24) accompanied by a professional (6) or a family (9) interpreter were videotap...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.09.015
更新日期：2008-01-01 00:00:00
abstract：:From the viewpoint of quality of care, doctor-patient communication has become more and more important. Gender is an important factor in communication. Besides, cultural norms and values are likely to influence doctor-patient communication as well. This study examined (1). whether or not communication patterns of gend...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(02)00178-7
更新日期：2002-12-01 00:00:00
abstract：OBJECTIVES:To evaluate the Flinders Program in improving self-management in common chronic conditions. To examine properties of the Partners in Health scale (PIH). METHODS:Participants were randomized to usual care or Flinders Program plus usual care. Self-management competency, quality of life, and other outcomes wer...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2015.06.003
更新日期：2015-11-01 00:00:00
