Health-related quality of life in childhood cerebral palsy.

Abstract:

OBJECTIVE:To describe the health-related quality of life (HRQOL) of a cross-section of children with cerebral palsy (CP) using the Child Health Questionnaire. DESIGN:Survey of the parents or guardians of children with CP. SETTING:Outpatient clinics at a tertiary care children's hospital. PARTICIPANTS:Children (N=177; 98 boys, 79 girls; mean age +/- standard deviation [SD], 8.6+/-4.2y) with CP were enrolled as a convenience sample. Study subjects were stratified by severity of CP using the Gross Motor Function Classification System. INTERVENTIONS:Not applicable. MAIN OUTCOME MEASURE:HRQOL scores, as determined by the Child Health Questionnaire-Parent Form 50. RESULTS:Parents reported reduced HRQOL for their children with CP. In the physical function domain, most children scored over 3 SDs below a normative sample, and scores in parental impact domains were at least 1 SD below the normative sample. Psychosocial domains were less impaired. Most of the effects on physical and parent impact domains were greater in children with more severe CP, although they were significant in most strata of severity. CONCLUSIONS:Children with CP have reduced HRQOL and the degree to which it is reduced is related to the severity of their CP.

journal_name

Arch Phys Med Rehabil

authors

Vargus-Adams J

doi

10.1016/j.apmr.2004.10.036

subject

Has Abstract

pub_date

2005-05-01 00:00:00

pages

940-5

issue

5

eissn

0003-9993

issn

1532-821X

pii

S0003-9993(04)01479-0

journal_volume

86

pub_type

杂志文章
  • Mandated Quality of Care Metrics for Medicare Patients: Examining New or Worsened Pressure Ulcers and Rehabilitation Outcomes in United States Inpatient Rehabilitation Facilities.

    abstract:OBJECTIVE:To examine the association between the Medicare pressure ulcer quality indicator (the development of new or worsened pressure ulcers) and rehabilitation outcomes among Medicare patients seen in an inpatient rehabilitation facility (IRF). DESIGN:Retrospective descriptive study. SETTING:IRFs subscribed to the...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2018.03.007

    authors: DiVita MA,Granger CV,Goldstein R,Niewczyk PM,Freudenheim JL

    更新日期:2018-08-01 00:00:00

  • Paraparesis in a child with a herniated thoracic disc.

    abstract::Herniated thoracic disc after minor trauma, causing paraparesis in an 11-year-old boy, proved difficult to diagnose. Myelogram and computer tomography of the thoracic spine appeared normal, but magnetic resonance imaging demonstrated a small herniation at T4-T5. Disc material adherent to the dura was found at laminect...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Brennan M,Perrin JC,Canady A,Wesolowski D

    更新日期:1987-11-01 00:00:00

  • Rehabilitation in joint and connective tissue diseases. 3. Limb disorders.

    abstract::This self-directed learning module highlights new advances in this topic area. It is part of the chapter on rehabilitation in joint and connective tissue diseases in the Self-Directed Physiatric Education Program for practitioners and trainees in physical medicine and rehabilitation. This article discusses the followi...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1016/s0003-9993(95)80599-0

    authors: Brander VA,Hinderer SR,Alpiner N,Oh TH

    更新日期:1995-05-01 00:00:00

  • Behavioral assessment of unilateral neglect: study of the psychometric properties of the Catherine Bergego Scale.

    abstract:OBJECTIVE:To assess the psychometric properties of a scale for spatial neglect in everyday life. DESIGN:Validation study. SETTING:A neurologic rehabilitation unit in a university hospital. PARTICIPANTS:Eighty-three consecutive right-hemisphere stroke patients. INTERVENTIONS:Not applicable. MAIN OUTCOME MEASURES:Th...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1053/apmr.2003.50062

    authors: Azouvi P,Olivier S,de Montety G,Samuel C,Louis-Dreyfus A,Tesio L

    更新日期:2003-01-01 00:00:00

  • Return to productive activity after traumatic brain injury: relationship with measures of disability, handicap, and community integration.

    abstract:OBJECTIVES:To identify which factors are associated with successful return to productive activity (RTPA) 1 year after hospitalization with traumatic brain injury (TBI) and to examine the relations between successful RTPA and other measures of impairment, disability, handicap, and integration into the community. DESIGN...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1053/apmr.2002.27470

    authors: Wagner AK,Hammond FM,Sasser HC,Wiercisiewski D

    更新日期:2002-01-01 00:00:00

  • Substance use and receipt of treatment by persons with long-term spinal cord injuries.

    abstract::The purpose of this study was to assess the rate of self-reported substance use, consequent problems, perceived need for treatment, and receipt of treatment by persons with long-term spinal cord injury (SCI). Information was obtained from 86 persons with traumatic SCI who were between 13 and 58 years of age at injury,...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Heinemann AW,Doll MD,Armstrong KJ,Schnoll S,Yarkony GM

    更新日期:1991-06-01 00:00:00

  • International efforts in independent living.

    abstract::Several nations currently share a major concern for provision of services to severely disabled persons. The focus of this concern has been upon those services which promote maximum integration and independence of severely disabled individuals in the community. Recent efforts in this direction by governments, private c...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Tate DG,Jarvis RL,Juhr GD

    更新日期:1979-10-01 00:00:00

  • Prediction of ambulatory performance based on motor scores derived from standards of the American Spinal Injury Association.

    abstract::Assessment of strength using motor scores derived from the standards of the American Spinal Injury Association (ASIA) was compared with assessment using motor scores based on biomechanical aspects of walking in the prediction of ambulatory performance. Measurements of strength, gait performance, and the energy expendi...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Waters RL,Adkins R,Yakura J,Vigil D

    更新日期:1994-07-01 00:00:00

  • Evaluation of upper-limb spasticity after stroke: A clinical and neurophysiologic study.

    abstract:OBJECTIVES:To assess upper-limb spasticity after stroke by means of clinical and instrumental tools and to identify possible variables influencing the clinical pattern. DESIGN:Descriptive measurement study of a consecutive sample of patients with upper-limb spasticity after stroke. SETTING:Neurorehabilitation hospita...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2004.10.022

    authors: Pizzi A,Carlucci G,Falsini C,Verdesca S,Grippo A

    更新日期:2005-03-01 00:00:00

  • Electric muscle stimulation of the quadriceps in the treatment of patellofemoral pain.

    abstract:OBJECTIVE:To compare a commercially available electric muscle stimulation regimen with a novel form of stimulation for the rehabilitation of the quadriceps muscle, in patients with patellofemoral pain syndrome. DESIGN:Double-blinded randomized trial with a parallel control group and stratified randomization. SETTING:...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/j.apmr.2003.07.021

    authors: Callaghan MJ,Oldham JA

    更新日期:2004-06-01 00:00:00

  • Diabetic Charcot spine as cauda equina syndrome: an unusual presentation.

    abstract::Some 6% to 21% of Charcot joints occur in the spine. The underlying disease is usually tabes dorsalis, but diabetes mellitus is another etiology. Degeneration of spinal elements is accelerated and lumbar spinal stenosis with weakness may occur, as has been reported in tabetic arthropathy. The case presented is unusual...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Race MC,Keppler JP,Grant AE

    更新日期:1985-07-01 00:00:00

  • Pain rehabilitation. 3. Cancer pain, pelvic pain, and age-related considerations.

    abstract::This self-directed learning module highlights assessment and therapeutic options in the management of cancer pain, pelvic pain, and the pain problems of the elderly and children. It is part of the chapter on pain rehabilitation in the Self-Directed Medical Knowledge Program for practitioners and trainees in physical m...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Williams FH,Maly BJ

    更新日期:1994-05-01 00:00:00

  • Graded exercise testing of mentally retarded adults: a study of feasibility.

    abstract::There is a striking absence of data on the cardiovascular fitness of mentally retarded adults and what limited data are reported reflect field or submaximal laboratory tests. This study sought to develop a protocol that would allow maximal aerobic testing (VO2max) of mentally retarded adults in the laboratory. Of 21 s...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Fernhall B,Tymeson G

    更新日期:1987-06-01 00:00:00

  • Neurologic disorders of attention and arousal: assessment and treatment.

    abstract::Disorders of attention are common after a variety of insults to the central nervous system. Clinically observable disorders of attention have complex relationships to the hypothesized underlying core deficits that were reviewed in a previous article. Thus, the process of evaluating such deficits is equally complex. Tr...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章,评审

    doi:

    authors: Whyte J

    更新日期:1992-11-01 00:00:00

  • Altered vastii recruitment when people with patellofemoral pain syndrome complete a postural task.

    abstract:OBJECTIVE:To investigate the recruitment of the vastus medialis obliquus (VMO) and vastus lateralis during voluntary tasks that challenge the stability of the knee and to evaluate whether there is a change in the coordination of the postural response by the central nervous system in subjects with patellofemoral pain sy...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 临床试验,杂志文章

    doi:10.1053/apmr.2002.33234

    authors: Cowan SM,Hodges PW,Bennell KL,Crossley KM

    更新日期:2002-07-01 00:00:00

  • Electromyographic insertional activity in normal limb muscles.

    abstract::A mechanical electrode inserter was used to allow reproducible electromyographic (emg) electrode insertions. The electrical activity provoked by the mechanical insertion was recorded and quantitatively analyzed in the anterior tibialis, the extensor hallucis longus, and the extensor digitorum brevis of unimpaired huma...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Wiechers DO

    更新日期:1979-08-01 00:00:00

  • Shoulder impingement in tennis/racquetball players treated with subscapularis myofascial treatments.

    abstract::Conservative care of the athlete with shoulder impingement includes activity modification, application of ice, nonsteroidal anti-inflammatory drugs, subacromial corticosteroid injections, and physiotherapy. This case report describes the clinical treatment and outcome of three patients with shoulder impingement syndro...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/s0003-9993(00)90053-4

    authors: Ingber RS

    更新日期:2000-05-01 00:00:00

  • Acute weakness syndromes in the critically ill patient.

    abstract::Over the past three decades there has been increasing interest in acute weakness syndromes in critically ill mechanically ventilated patients. Many of these patients require rehabilitation, and some understanding of potential etiologies and functional outcomes for these syndromes is useful to rehabilitation practition...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1016/s0003-9993(00)80010-6

    authors: Sliwa JA

    更新日期:2000-03-01 00:00:00

  • Obesity and inpatient rehabilitation outcomes for patients with a traumatic spinal cord injury.

    abstract:OBJECTIVE:To examine the effect of obesity on change in FIM self-care and mobility ratings and community discharge for patients with traumatic spinal cord injury (SCI). DESIGN:Retrospective cohort study analyzing National Model Systems SCI Database data. SETTING:Fourteen Model Systems SCI programs. PARTICIPANTS:Pati...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2010.07.235

    authors: Stenson KW,Deutsch A,Heinemann AW,Chen D

    更新日期:2011-03-01 00:00:00

  • Magnetic resonance imaging evidence of progression of subacute brain atrophy in moderate to severe traumatic brain injury.

    abstract:OBJECTIVE:To demonstrate subacute progression of brain atrophy (from 4.5-29mo postinjury) in moderate to severe traumatic brain injury (TBI) using structural magnetic resonance imaging (MRI). DESIGN:Within-subjects, repeated-measures design. SETTING:Inpatient neurorehabilitation program and teaching hospital (MRI dep...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2008.07.006

    authors: Ng K,Mikulis DJ,Glazer J,Kabani N,Till C,Greenberg G,Thompson A,Lazinski D,Agid R,Colella B,Green RE

    更新日期:2008-12-01 00:00:00

  • Isotopic Scintigraphy Coupled With Computed Tomography for the Investigation of Intrathecal Baclofen Device Malfunction.

    abstract:OBJECTIVE:To assess the potential use of indium-111 diethylenetriamine pentaacetic acid ((111)In-DTPA) scintigraphy coupled with computed tomography (CT) for the investigation of intrathecal baclofen (ITB) device malfunction. DESIGN:Retrospective study of a case series of patients. SETTING:Neurosurgical and physical ...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2015.10.101

    authors: Frémondière F,Lacoeuille F,Sher A,Couturier O,Menei P,Richard I,Dinomais M

    更新日期:2016-04-01 00:00:00

  • Adrenergic receptors in insensitive skin of spinal cord injured patients.

    abstract::The factors responsible for the increased susceptibility to decubitus ulcers of the insensitive skin of spinal cord injury (SCI) patients are not known. Autonomic dysfunction leading to defective vascularity is a possibility. SCI removes cerebral control of the isolated nervous system which may mimic denervation hyper...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/0003-9993(86)90073-0

    authors: Rodriguez GP,Claus-Walker J,Kent MC,Stal S

    更新日期:1986-03-01 00:00:00

  • The relationship between electrodiagnostic findings and patient symptoms and function in carpal tunnel syndrome.

    abstract:OBJECTIVE:To examine whether, in patients with carpal tunnel syndrome (CTS), electrodiagnostic study findings were associated with patient symptom severity and functional limitations after controlling for potentially confounding variables including depression, somatization, and pain-related catastrophizing. DESIGN:Cro...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2006.10.013

    authors: Chan L,Turner JA,Comstock BA,Levenson LM,Hollingworth W,Heagerty PJ,Kliot M,Jarvik JG

    更新日期:2007-01-01 00:00:00

  • Strength training improves the tri-digit finger-pinch force control of older adults.

    abstract:OBJECTIVE:To investigate the effect of unilateral upper-limb strength training on the finger-pinch force control of older men. DESIGN:Pretest and post-test 6-week intervention study. SETTING:Exercise science research laboratory. PARTICIPANTS:Eleven neurologically fit older men (age range, 70-80y). INTERVENTION:The ...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.apmr.2007.05.014

    authors: Keogh JW,Morrison S,Barrett R

    更新日期:2007-08-01 00:00:00

  • Caregivers: Do They Make a Difference to Patient Recovery in Subacute Stroke?

    abstract:OBJECTIVE:To evaluate the relationship between caregiver nature and availability, and rehabilitation outcomes in subacute stroke. DESIGN:Retrospective cohort study. SETTING:Four community rehabilitation hospitals. PARTICIPANTS:Patients with subacute, first-time stroke (N=4042; 48.5% men; mean age ± SD, 70.12±10.4y; ...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2017.02.021

    authors: Ong PH,Tai BC,Wong WP,Wee LE,Chen C,Cheong A,Fong NP,Chan KM,Tan BY,Menon E,Lee KK,Ee CH,Petrella R,Thind A,Koh GC

    更新日期:2017-10-01 00:00:00

  • The relationship between self-reports and objective measures of disability in patients with late sequelae of poliomyelitis: a validation study.

    abstract:OBJECTIVE:To establish the validity of 2 objective measures of disability based on 2 self-reports in individuals with the late sequelae of poliomyelitis (LSP). DESIGN:Nonexperimental research design. SETTING:Regional ambulatory clinic specializing in the management of patients with LSP. PARTICIPANTS:Seventeen commun...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1053/apmr.2000.9172

    authors: Noonan VK,Dean E,Dallimore M

    更新日期:2000-10-01 00:00:00

  • The effect of visual biofeedback on the propulsion effectiveness of experienced wheelchair users.

    abstract:OBJECTIVE:To determine the effect of visual feedback on the propulsion effectiveness of experienced manual wheelchair users. DESIGN:Controlled trial. SETTING:A motion analysis laboratory. PARTICIPANTS:A convenience sample of 16 healthy men and 2 healthy women with T4-L2 traumatic paraplegia, a mean age of 38+/-9 yea...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2005.12.033

    authors: Kotajarvi BR,Basford JR,An KN,Morrow DA,Kaufman KR

    更新日期:2006-04-01 00:00:00

  • Ulnar conduction block at the wrist.

    abstract::Two cases of ulnar nerve lesions at the wrist are reported. The lesions had an acute onset and exclusively impaired the ulnar motor deep branch. The coexistence of carpal tunnel syndrome in each case allowed an early diagnosis but was somewhat misleading. In both cases, the use of classic motor and sensory conduction ...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/s0003-9993(99)90042-4

    authors: Seror P

    更新日期:1999-10-01 00:00:00

  • Motor performance in children after traumatic brain injury.

    abstract::Traumatic brain injury can result in persistent impairments of motor performance that interfere with functional activities. This study compared the gross and fine motor performance of 14 traumatically brain-injured children (five to 15 years old, with loss of consciousness for at least 24 hours) to 14 normal children ...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Chaplin D,Deitz J,Jaffe KM

    更新日期:1993-02-01 00:00:00

  • Factors associated with older patients' engagement in exercise after hospital discharge.

    abstract:OBJECTIVES:To identify factors that are associated with older patients' engagement in exercise in the 6 months after hospital discharge. DESIGN:A prospective observational study using qualitative and quantitative evaluation. SETTING:Follow-up of hospital patients in their home setting after discharge from a metropoli...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2011.04.009

    authors: Hill AM,Hoffmann T,McPhail S,Beer C,Hill KD,Brauer SG,Haines TP

    更新日期:2011-09-01 00:00:00