OAKHQOL: a new instrument to measure quality of life in knee and hip osteoarthritis.

Abstract:

OBJECTIVE:To develop a questionnaire with which to measure quality of life (QoL) in patients with knee and hip osteoarthritis (OA). STUDY DESIGN AND SETTING:Thirty-two caregivers and 96 OA patients were interviewed individually (using cognitive and face-to-face techniques) and in focus groups. A group of experts working independently at first and then consensually used the interview transcripts to generate a 46-item questionnaire. RESULTS:Analysis of questionnaires completed by 263 patients with hip or knee OA resulted in the exclusion of three items (two because of low reliability and one because of a low response rate). Principal component analysis revealed four factors: physical activity, mental health, social functioning, and social support. A pain dimension was individualized. Preliminary testing showed the reliability of the five dimensions to be satisfactory (intraclass correlation coefficients: 0.70-0.85), construct validity was adequate when correlated with the SF36 (Spearman correlation coefficients: 0.43-0.75), and discrimination was satisfactory. The osteoarthritis knee and hip quality of life questionnaire (OAKHQOL) consists of 43 items in five dimensions and three independent items. CONCLUSION:The OAKHQOL is the first specific knee and hip OA quality of life instrument. Its development followed an a priori structured strategy to ensure content validity. It meets psychometric requirements for validity and reliability.

journal_name

J Clin Epidemiol

authors

Rat AC,Coste J,Pouchot J,Baumann M,Spitz E,Retel-Rude N,Le Quintrec JS,Dumont-Fischer D,Guillemin F

doi

10.1016/j.jclinepi.2004.04.011

subject

Has Abstract

pub_date

2005-01-01 00:00:00

pages

47-55

issue

1

eissn

0895-4356

issn

1878-5921

pii

S0895-4356(04)00179-9

journal_volume

58

pub_type

杂志文章,多中心研究
  • Parents were accurate proxy reporters of urgent pediatric asthma health services: a retrospective agreement analysis.

    abstract:OBJECTIVE:To assess agreement between parents' proxy reports of children's respiratory-related health service use and administrative data. STUDY DESIGN AND SETTING:A retrospective analysis of statistical agreement between clinical and claims data for reports of physician visits, emergency department (ED) visits, and h...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2007.02.002

    authors: Ungar WJ,Davidson-Grimwood SR,Cousins M

    更新日期:2007-11-01 00:00:00

  • Studies with group treatments required special power calculations, allocation methods, and statistical analyses.

    abstract:OBJECTIVE:In some trials, the intervention is delivered to individuals in groups, for example, groups that exercise together. The group structure of such trials has to be taken into consideration in the analysis and has an impact on the power of the trial. Our aim was to provide optimal methods for the design and analy...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2011.05.007

    authors: Faes MC,Reelick MF,Perry M,Olde Rikkert MG,Borm GF

    更新日期:2012-02-01 00:00:00

  • Clinical economics education in the International Clinical Epidemiology Network. INCLEN Economics Faculty.

    abstract::The application of rigorous epidemiologic methods to clinical questions has broadened the scope of research in epidemiology and enhanced the quality of clinical research. The International Clinical Epidemiology Network (INCLEN) has enabled physicians from developing countries to obtain training in epidemiologic method...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(89)90013-9

    authors: Eisenberg JM,Freund D,Glick H,Hall J,Halstead S,Labelle R

    更新日期:1989-01-01 00:00:00

  • The Kaiser Permanente inpatient risk adjustment methodology was valid in an external patient population.

    abstract:OBJECTIVES:Accurately predicting hospital mortality is necessary to measure and compare patient care. External validation of predictive models is required to truly prove their utility. This study assessed the Kaiser Permanente inpatient risk adjustment methodology for hospital mortality in a patient population distinct...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jclinepi.2009.08.020

    authors: van Walraven C,Escobar GJ,Greene JD,Forster AJ

    更新日期:2010-07-01 00:00:00

  • Cochrane Qualitative and Implementation Methods Group guidance series-paper 6: reporting guidelines for qualitative, implementation, and process evaluation evidence syntheses.

    abstract:OBJECTIVES:To outline contemporary and novel developments for the presentation and reporting of syntheses of qualitative, implementation, and process evaluation evidence and provide recommendations for the use of reporting guidelines. STUDY DESIGN AND SETTING:An overview of reporting guidelines for qualitative, implem...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2017.10.022

    authors: Flemming K,Booth A,Hannes K,Cargo M,Noyes J

    更新日期:2018-05-01 00:00:00

  • Bias in estimates of confidence intervals for health outcome report cards.

    abstract::Health researchers commonly use logistic regression when profiling health providers. Data from the patients treated by the providers are used to construct models predicting the expected number of outcomes for providers and the ratio of observed to expected outcomes (O/E ratio) used as a risk-adjusted measure of provid...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/s0895-4356(03)00048-9

    authors: Faris PD,Ghali WA,Brant R

    更新日期:2003-06-01 00:00:00

  • Reproducibility and validity of a food frequency questionnaire in a case-control study on breast cancer.

    abstract::A 110-item food frequency questionnaire was tested among 152 community controls of the Kuopio Breast Cancer Study. They completed the questionnaire twice and kept two 7-day diet records at 3-month intervals. The intraclass correlations for nutrients varied from 0.49 (thiamine with supplements) to 0.81 (lactose), and f...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(95)00551-x

    authors: Männistö S,Virtanen M,Mikkonen T,Pietinen P

    更新日期:1996-04-01 00:00:00

  • Inadequate use and regulation of interventions against publication bias decreases their effectiveness: a systematic review.

    abstract:OBJECTIVES:To determine the effectiveness of interventions designed to prevent or reduce publication and related biases. STUDY DESIGN AND SETTING:We searched multiple databases and performed manual searches using terms related to publication bias and known interventions against publication bias. We dually reviewed cit...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章,评审

    doi:10.1016/j.jclinepi.2015.01.008

    authors: Thaler K,Kien C,Nussbaumer B,Van Noord MG,Griebler U,Klerings I,Gartlehner G,UNCOVER Project Consortium.

    更新日期:2015-07-01 00:00:00

  • Psychosocial adjustment and quality of life in women with breast cancer and benign breast problems: a controlled comparison.

    abstract::Comparison of psychosocial adjustment in women with breast cancer (BC) and women with benign breast problems (BBP) has been hampered by a failure to control for age differences between these groups, as well as a failure to assess positive psychosocial adaptation in addition to psychological distress. Age-matched women...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(96)00028-5

    authors: Andrykowski MA,Curran SL,Studts JL,Cunningham L,Carpenter JS,McGrath PC,Sloan DA,Kenady DE

    更新日期:1996-08-01 00:00:00

  • A simulation study into the performance of "optimal" diagnostic thresholds in the population:"Large" effect sizes are not enough.

    abstract:OBJECTIVES:Many diagnostic studies are aimed at defining "optimal" thresholds. Here, we evaluate the performance of empirically defined optimal thresholds (1) in the sample in which they were defined and (2) in the population from which the sample was drawn. STUDY DESIGN AND SETTING:We simulated test results for 120,0...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2013.07.018

    authors: Hirschfeld G,do Brasil PE

    更新日期:2014-04-01 00:00:00

  • Time-dependent variability in repeated measurements of cholesterol levels: clinical implications for risk misclassification and intervention monitoring.

    abstract::Intraindividual variability (IIV) in total cholesterol levels based on measurements taken 1 week apart is compared with an estimate based on measurements taken 2 years apart. Single-subject 95% confidence intervals around the mean of two repeated measurements were Xi +/- 21 and +/- 28 mg/dl, respectively, and Xi +/- 3...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(93)90115-h

    authors: Roeback JR,Cook JR,Guess HA,Heyse JF

    更新日期:1993-10-01 00:00:00

  • Use of global assessment measures in dementia drug trials.

    abstract::I argue in this paper that the use of a global clinical impression of change as a primary measure in dementia drug trials is appropriate, given that we do not yet understand clearly enough what Alzheimer's disease looks like as it gets better. ...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(94)90039-6

    authors: Rockwood K

    更新日期:1994-01-01 00:00:00

  • International classification of diseases codes showed modest sensitivity for detecting community-acquired pneumonia.

    abstract:OBJECTIVE:To estimate the sensitivity of International Classification of Diseases (ICD-9-CM) coding for detecting hospitalized community-acquired pneumonia and to assess possible determinants for misclassification. STUDY DESIGN AND SETTING:Based on microbiological analysis data, 293 patients with a principal diagnosis...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2006.10.018

    authors: van de Garde EM,Oosterheert JJ,Bonten M,Kaplan RC,Leufkens HG

    更新日期:2007-08-01 00:00:00

  • Gender differences in the reliability of reporting symptoms of angina pectoris.

    abstract::Numerous studies have shown that the symptoms of angina pectoris are more prevalent in women than men, than other manifestations of coronary heart disease, with the greatest discrepancies at younger ages. Variation in symptom reliability between genders could be a potential explanation for these differences. The Lipid...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(91)90009-x

    authors: Harris RB,Weissfeld LA

    更新日期:1991-01-01 00:00:00

  • Estimating age incidence from survey data with adjustments for recall errors.

    abstract::In this paper we propose a method and discuss the type of data required to estimate age incidence rates from population survey data. While surveys are typically designed to estimate the prevalence of a disease or medical condition, they can also be used to estimate incidence rates. A limitation of survey data, however...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(89)90100-5

    authors: Stewart W,Brookmyer R,Van Natta M

    更新日期:1989-01-01 00:00:00

  • An analysis of administrative data found that proximate clinical event ratios provided a systematic approach to identifying possible iatrogenic risk factors or complications.

    abstract:OBJECTIVE:A method to generate hypotheses about iatrogenic risk factors and complications from administrative data was developed and tested using hospitalization of the elderly for depression as a model. STUDY DESIGN AND SETTING:Hospital claims were selected for 30,998 elderly inpatients admitted for the first time fo...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2004.08.002

    authors: Baine WB,Kazakova SV

    更新日期:2005-02-01 00:00:00

  • Psychiatric and physical illness, sociodemographic characteristics, and the use of psychotropic drugs in the community: results from the Upper Bavarian Field Study.

    abstract::In the Upper Bavarian Field Study a total of 1536 persons (15 years and older) were interviewed by research psychiatrists. 8.1% of all respondents took a psychotropic drug during the 7 days prior to the interview. The consumption rate among women was about three times as high as that for men. The use of psychotropic d...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(91)90042-8

    authors: Weyerer S,Dilling H

    更新日期:1991-01-01 00:00:00

  • Improving GRADE evidence tables part 1: a randomized trial shows improved understanding of content in summary of findings tables with a new format.

    abstract:OBJECTIVES:The current format of summary of findings (SoFs) tables for presenting effect estimates and associated quality of evidence improve understanding and assist users finding key information in systematic reviews. Users of SoF tables have demanded alternative formats to express findings from systematic reviews. ...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jclinepi.2015.12.007

    authors: Carrasco-Labra A,Brignardello-Petersen R,Santesso N,Neumann I,Mustafa RA,Mbuagbaw L,Etxeandia Ikobaltzeta I,De Stio C,McCullagh LJ,Alonso-Coello P,Meerpohl JJ,Vandvik PO,Brozek JL,Akl EA,Bossuyt P,Churchill R,Glenton C,

    更新日期:2016-06-01 00:00:00

  • A novel research design can aid disinvestment from existing health technologies with uncertain effectiveness, cost-effectiveness, and/or safety.

    abstract:OBJECTIVES:Disinvestment is critical for ensuring the long-term sustainability of health-care services. Key barriers to disinvestment are heterogeneity between research and clinical settings, absence of evidence of effectiveness of some health technologies, and exposure of patients and organizations to risks and poor o...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章,评审

    doi:10.1016/j.jclinepi.2013.08.014

    authors: Haines T,O'Brien L,McDermott F,Markham D,Mitchell D,Watterson D,Skinner E

    更新日期:2014-02-01 00:00:00

  • Developing a condition-specific measure of health for patients with dyspepsia and ulcer-related symptoms.

    abstract::A patient-administered instrument for dyspepsia and symptoms suggestive of duodenal or gastric ulcer, based on the type of questions asked when taking a patient's history, was developed and tested using the following steps: literature reviews, devising the questions, testing the responses to the questions using factor...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(95)00584-6

    authors: Garratt AM,Ruta DA,Russell I,Macleod K,Brunt P,McKinlay A,Mowat A,Sinclair T

    更新日期:1996-05-01 00:00:00

  • Variation in the duration of protection given by screening using the Pap test for cervical cancer.

    abstract::The duration of protection offered by Pap screening for cervical cancer was examined using data on 101 cases of invasive cervical cancer and 396 controls from a Maryland case-control study. Receipt of a Pap test up to 4 years ago afforded significant protection, compared to women screened 11 or more years ago, or neve...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/0895-4356(89)90166-2

    authors: Klassen AC,Celentano DD,Brookmeyer R

    更新日期:1989-01-01 00:00:00

  • "Precision" and "accuracy": two terms that are neither.

    abstract:OBJECTIVE:In some publications, the terms "precision" and "accuracy" are used as if they were synonyms for "reliability" and "validity." METHODS AND RESULTS:This article shows that these terms are neither precise nor accurate when used in this way. Scales can demonstrate high test-retest or interrater reliability (i.e...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章,评审

    doi:10.1016/j.jclinepi.2005.09.005

    authors: Streiner DL,Norman GR

    更新日期:2006-04-01 00:00:00

  • Controversy and Debate Series on Core Outcome Sets. Paper 1: Improving the generalizability and credibility of core outcome sets (COS) by a large and international participation of diverse stakeholders.

    abstract::Core outcome sets (COSs) are agreed-on standardized sets of outcomes that should be minimally measured in all trials of a given disease. To enhance the uptake of COSs in trials, their generalizability should be increased by a change in the number and diversity of stakeholders involved in their development. Also, their...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2020.01.004

    authors: Chevance A,Tran VT,Ravaud P

    更新日期:2020-09-01 00:00:00

  • Methodologists and context experts disagreed regarding managing conflicts of interest of clinical practice guidelines panels.

    abstract:OBJECTIVE:A new strategy to manage conflicts of interests (COIs) of a clinical guideline's panelists gives primary responsibility to a methodologist, puts equal emphasis on intellectual and financial COIs, and excludes panelists with primary conflicts from drafting or voting on recommendations. We explored the views of...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2011.12.013

    authors: Akl EA,Karl R,Guyatt GH

    更新日期:2012-07-01 00:00:00

  • Characteristics of nonparticipants differed based on reason for nonparticipation: a study involving the chronically ill.

    abstract:BACKGROUND:Individuals who do and do not participate in studies often have different characteristics. The profile of nonparticipants may vary by type of nonparticipation. Few cross-sectional or longitudinal studies of chronically ill individuals identify these differences at baseline and of those that do; many do not h...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/j.jclinepi.2007.11.002

    authors: Holden L,Ware RS,Passey M

    更新日期:2008-07-01 00:00:00

  • Cohort study of ethnic group and cardiovascular and total mortality over 15 years.

    abstract::Altogether, 3365 men and 3266 women who attended two cardiovascular screenings in 1974-1975 and 1977-1978, have been followed with respect to death for an average of 15 years. The mortality from coronary heart disease was lower in men who reported being of Lappish origin than in men who reported Norse origin at both s...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/s0895-4356(97)00021-8

    authors: Tverdal A

    更新日期:1997-06-01 00:00:00

  • Factors associated with errors in death certificate completion. A national study in Taiwan.

    abstract::To identify characteristics of certifying physicians and the deceased that are associated with errors in death certificate completion in Taiwan, we retrospectively reviewed 4123 systematically sampled death certificates issued in 1994. Multivariate analyses were used to assess the associations of various characteristi...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/s0895-4356(00)00299-7

    authors: Lu TH,Shau WY,Shih TP,Lee MC,Chou MC,Lin CK

    更新日期:2001-03-01 00:00:00

  • Test-retest reliability of an epidemiological instrument for Parkinson's disease.

    abstract::Reliability testing was conducted on a survey instrument for a genetic epidemiological study of Parkinson's disease (PD). Information on demographics, medical history, places of residence, and occupations was collected. The instrument was administered to 11 pairs of siblings discordant for PD and then re-administered ...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章

    doi:10.1016/s0895-4356(00)00229-8

    authors: Reider CR,Hubble JP

    更新日期:2000-08-01 00:00:00

  • Primary Outcomes Reporting in Trials (PORTal): a systematic review of inadequate reporting in pediatric randomized controlled trials.

    abstract:OBJECTIVE:Conduct a systematic review of pediatric randomized controlled trials (RCTs) published in high-impact journals to assess the reporting of primary outcomes and the psychometric properties of their measures. STUDY DESIGN AND SETTING:Systematic review with screening and simultaneous data extraction conducted by...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章,评审

    doi:10.1016/j.jclinepi.2016.09.003

    authors: Bhaloo Z,Adams D,Liu Y,Hansraj N,Hartling L,Terwee CB,Vohra S

    更新日期:2017-01-01 00:00:00

  • Nonrandomized studies using causal-modeling may give different answers than RCTs: a meta-epidemiological study.

    abstract:OBJECTIVES:To evaluate how estimated treatment effects agree between nonrandomized studies using causal modeling with marginal structural models (MSM-studies) and randomized trials (RCTs). STUDY DESIGN:Meta-epidemiological study. SETTING:MSM-studies providing effect estimates on any healthcare outcome of any treatmen...

    journal_title:Journal of clinical epidemiology

    pub_type: 杂志文章,评审

    doi:10.1016/j.jclinepi.2019.10.012

    authors: Ewald H,Ioannidis JPA,Ladanie A,Mc Cord K,Bucher HC,Hemkens LG

    更新日期:2020-02-01 00:00:00