Abstract:
PURPOSE:This study explores the experiences of lower middle class Ladino and Indígena parents and caregivers of adolescents with severe physical disabilities as they negotiate Guatemala's urban health care and education systems. METHOD:Interviews with parents and guardians regarding the diagnostic period, current functioning in several domains and resources were analysed using Constructivist Grounded Theory with 15 families in Guatemala City. RESULTS:Juxtaposing economic resources with preparation for adult roles along two dimensions in an axial grid, individual differences were identified. When families experience financial urgency, finding it difficult to meet even basic needs, securing employment immediately is most salient in the transition to adulthood (Low Resources, High Preparation); when families have greater resources, they are less pressed for economic input and, instead, describe a longer-term concern for the educational and professional development of their child (High Resources, High Preparation) or worry about the care of their offspring after their demise (High Resources, Low Preparation). CONCLUSIONS:Practitioners, therapists, parents and policy-makers can be more effectual in providing targeted services by understanding individual differences in the perception of disability, economic resources, and the need for other resources that ensure viable adult roles for young people with disabilities in Guatemala and elsewhere.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Saetermoe C,Gómez J,Bámaca M,Gallardo Cdoi
10.1080/09638280410001703512subject
Has Abstractpub_date
2004-09-02 00:00:00pages
1032-47issue
17eissn
0963-8288issn
1464-5165pii
8DWWHYBUKRJ2FWJJjournal_volume
26pub_type
杂志文章abstract:PURPOSE:To evaluate the quality of life of mothers with children suffering from cerebral palsy compared with those who have children with minor health problems. METHOD:Forty mothers with a child suffering from cerebral palsy and 44 mothers with a child suffering from minor health problems participated in a comparative...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400000187
更新日期:2004-12-02 00:00:00
abstract:PURPOSE:With the aim of improving the measurement of child health and disability in survey research, this paper reviews the coverage of chronic health conditions and the domains of disability and related environmental factors as they are laid out in the ICD-10 and ICF, respectively, in national surveys of school-aged c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/0963828031000122249
更新日期:2003-08-19 00:00:00
abstract::Purpose To investigate shoulder function, pain and Health-Related Quality of life (HRQoL) among adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type (JHS/EDS-HT), compared with the general population (controls). Method In a cross-sectional study using postal survey, 110 patients diagnosed...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1102336
更新日期:2016-07-01 00:00:00
abstract:PURPOSE:To investigate; (i) the relationship between the 5STS-test and lower extremity muscle strength and balance, and (ii) the variability of the 5STS-test in multiple sclerosis (MS) patients. METHOD:22 MS patients were divided into two groups (Group A and Group B) who completed one 5STS familiarization test session...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.683479
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:Supportive interventions to enhance return to work (RTW) in cancer survivors hardly showed positive effects so far. Behavioral determinants might have to be considered in the development of interventions to achieve sustained employability. This study aimed to explore cancer survivors' perspectives and experienc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1219924
更新日期:2017-10-01 00:00:00
abstract:PURPOSE:This systematic review evaluated and compared the effectiveness of non-surgical and surgical interventions for managing shoulder pain in patients with diabetes. METHODS:PubMed, Scopus, CINAHL, EMBASE, Sport Discus, and Cochrane library were searched for studies published in the last 20 years. Randomized clinic...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1811783
更新日期:2020-09-15 00:00:00
abstract:PURPOSE:The study had two aims: (2) To explore whether knowledge about HIV and AIDS was similar among adolescents with disabilities compared with their non-disabled peers; and (2) To determine factors which may increase vulnerability of disabled adolescents to HIV infection and/or inappropriate access to HIV-related se...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500164297
更新日期:2005-11-30 00:00:00
abstract::Purpose: Scholars agree that effective rehabilitation relies on a bedrock of reciprocity, relational trust, and authenticity. It is therefore essential for practitioners to develop insight into the complex dynamics within helping relationships. This study aims to provide an in-depth understanding of visually impaired ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1450454
更新日期:2019-08-01 00:00:00
abstract:PURPOSE:Quality of Life (QoL) is an important outcome measure in health care and pharmacological trials. The trend towards multinational clinical trials may be problematic because it is unclear as to whether, or to what extent, QoL-measures are comparable across cultures. This study compared QoL between English and Ger...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110072913
更新日期:2001-12-15 00:00:00
abstract::Purpose: A mental model is the collection of an individual's perceptions, values, and expectations about a particular aspect of their life, which strongly influences behaviors. This study explored orthopedic outpatients mental models of adherence to prescribed home exercise programs and how they related to mental mode...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1466923
更新日期:2019-10-01 00:00:00
abstract:BACKGROUND:Childhood mild traumatic brain injury (mTBI) has been associated with negative adult outcomes. Effective interventions require identification of the injury event. There is currently little information regarding the accuracy of adult recall of childhood mTBI. METHOD:Prospectively collected information from a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1193905
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:The problem of complex healthcare to MS patients, together with the rising prevalence of MS and escalating costs, has caused healthcare policy makers to consider innovative approaches to controlling costs and improving the quality of care. An integrated care approach may provide a means for better coordination ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280600845555
更新日期:2007-04-15 00:00:00
abstract:PURPOSE:Community-based rehabilitation (CBR) has been practiced in mainland China for over three decades. This study reviews the development of CBR and describes its practice in Chinese communities in order to discuss current controversies within CBR practice internationally and in the Chinese context. METHOD:Review o...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2010.506240
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:The aim of the present study was to investigate sense of coherence (SOC) in adults with cerebral palsy (CP) compared to the general population. METHOD:A questionnaire was sent to a representative sample of adults with CP, including the 3-item version of SOC and items on their life situation and follow-up progr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110108805
更新日期:2002-07-10 00:00:00
abstract::Purpose: The aim was to explore personal experiences of pain in people with motor neuron disease.Materials and methods: Sixteen participants were individually interviewed on one occasion concerning their experiences of presentation, consequences, and management of pain. Qualitative content analysis with researcher tri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1555615
更新日期:2020-07-01 00:00:00
abstract:PURPOSE:This article examines the distinctive opportunities and challenges involved in treating sub-acute low back pain (LBP). Several risk factors have been identified. Thus, a multi-disciplinary design and a comprehensive bio-psycho-social approach seem to be the best modality of intervention to improve outcome. MET...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638281003797349
更新日期:2010-01-01 00:00:00
abstract::The consequences of asthma are described in accordance with the definitions of the three levels of the International Classification of Impairments, Disabilities and Handicaps (ICIDH). Because asthma is a chronic disease, health care should emphasize how to cope with it. The goal of physical activities for persons with...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289509166726
更新日期:1995-10-01 00:00:00
abstract:PURPOSE:This study systematically review and meta-analyse the effectiveness of inspiratory muscle training (IMT) to reduce postoperative pulmonary complications (PPC) and length of hospital stay (LOS), both in the preoperative and/or postoperative periods of cardiac, pulmonary, and abdominal surgical patients. Sensitiv...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析,评审
doi:10.1080/09638288.2016.1277396
更新日期:2018-04-01 00:00:00
abstract:PURPOSE:Studies of occupational low back pain (OLBP) have shown that return to work after injury is influenced by workers' concerns and expectations; however, these theoretical constructs have not been explored. The specific aim of this study was to identify themes related to self-efficacy and outcome expectancy for re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500076269
更新日期:2005-11-15 00:00:00
abstract:PURPOSE:The purpose of this study was to identify what acute care variables and/or perceived recovery factors could predict decreased participation in physical activities post-mild stroke. METHODS:Secondary analysis of persons with mild stroke. Participants were split into two groups based on the percentage of high-de...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.720635
更新日期:2013-07-01 00:00:00
abstract::Purpose: Peer support can be helpful in rehabilitation from breast cancer, but participation in peer support groups is low. Groups that provide support opportunities in physical activity contexts are an attractive alternative for some survivors. This study examined survivors' reasons for joining and maintaining partic...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1449259
更新日期:2019-07-01 00:00:00
abstract:PURPOSE:The aim of this study was to describe prevalence of fatigue and its relationship with demographic and clinical variables during the first 2 weeks (acute phase) following a stroke. METHOD:Data were collected in a cross-sectional correlational study from face-to-face interviews using structured questionnaires an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.490867
更新日期:2011-01-01 00:00:00
abstract::Purpose: The purpose of this study was to explore rehabilitation clinicians' understanding of how sex and gender facilitate or hinder care provided to patients with traumatic brain injury (TBI).Materials and methods: Sixteen clinicians from various specialities, attending to patients with TBI from a large rehabilitati...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1774670
更新日期:2020-06-23 00:00:00
abstract:BACKGROUND:Few functional outcomes scales have used Item Response Theory (IRT) for validation. IRT allows individual line item validations and offers substantial advantages over classic methods of scale validation or the simplest from of IRT known as Rasch. Rasch analysis reduces data to dichotomous variables thus decr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500404263
更新日期:2006-08-15 00:00:00
abstract:PURPOSE:The impact of moving out of nursing homes into community-based settings for adults with cerebral palsy was assessed by comparing the health and community functioning of movers and non-movers at time 1 and 3 years later at time 2. SUBJECTS:The sample included 83 non-movers and 28 movers age 30 years and older w...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/096382899297701
更新日期:1999-05-01 00:00:00
abstract::Purpose: The purpose of this scoping review was to explore the literature on experiences and perspectives of patients with hip fractures and their caregivers during transitions in care.Methods: Seven databases were searched for studies published between 1 January 2000 and 3 July 2018. Grey literature was also searched...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1595181
更新日期:2020-12-01 00:00:00
abstract:PURPOSE:To investigate patient's perceptions of function and performance of physical tasks after discharge from treatment for an ankle sprain. METHODS:Using a mixed methods approach, 40 participants who presented with an acute sprained ankle and their treating clinicians completed two questionnaires related to functio...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.568668
更新日期:2011-01-01 00:00:00
abstract:OBJECTIVE:This research examined the long-term outcomes of rehabilitation patients with moderate to severe traumatic brain injury (TBI). DESIGN:Retrospective cohort study. SETTING AND SUBJECTS:We examined consecutive records of persons with moderate to severe traumatic brain injury who were discharged from a large re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280310001639722
更新日期:2004-03-04 00:00:00
abstract:PURPOSE:To assess functional activities of the upper extremity of young adults with cerebral palsy (CP) and to determine their relations with participant characteristics and participation. METHOD:Assessment of functional activities of the upper extremity was performed on 103 participants (aged 16-20 years) with the Me...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701355504
更新日期:2008-01-01 00:00:00
abstract:OBJECTIVE:To investigate a new style of resistance exercise using elastic bands and explore its therapeutic effect on the lower-extremity function of female patients with osteoarthritis (OA) of the knee. DESIGN:A randomized, controlled clinical trial. SETTING:University-affiliated medical center. PARTICIPANTS:Forty-...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2012.660598
更新日期:2012-01-01 00:00:00