Abstract:
:Purpose To investigate shoulder function, pain and Health-Related Quality of life (HRQoL) among adults with joint hypermobility syndrome/Ehlers-Danlos syndrome-hypermobility type (JHS/EDS-HT), compared with the general population (controls). Method In a cross-sectional study using postal survey, 110 patients diagnosed with JHS/EDS-HT and 140 gender- and age-matched healthy controls from Statistics Norway participated. Shoulder function, pain and HRQol were registered by Western Ontario Shoulder Instability Index (WOSI), Numerical Rating Scale (NRS), pain drawings, 36-item Short Form (SF-36). Results Eighty-one individuals responded, with response rate 34% (JHS/EDS-HT: 53%, controls: 21%). JHS/EDS-HT had lower shoulder function (WOSI total: 49.9 versus 83.3; p < 0.001), lower HRQol on SF-36 Physical Component Scale (PCS: 28.1 versus 49.9; p < 0.001), and higher pain intensity (NRS: 6.4 versus 2.7; p < 0.001) than controls. Neck and shoulder joints were rated as primary painful areas in both groups, with significantly higher frequency in JHS/EDS-HT (neck: 90% versus 27%; shoulder: 80% versus 37%). Further, JHS/EDS-HT most often reported generalized pain (96%). Conclusions Adults with JHS/EDS-HT have impaired shoulder function, increased pain intensity, as well as reduced physical HRQoL compared with controls. Although neck and shoulder were most frequently rated as painful, significantly more JHS/EDS-HT also reported generalized pain compared to controls. Implications for Rehabilitation Adults with JHS/EDS-HT have impaired shoulder function, and most often painful areas in the neck and shoulder joints, which need to be targeted in the treatment strategy. Compared with the general population adults with JHS/EDS-HT have reduced physical HRQoL, supporting a physical approach for this group. Adults with JHS/EDS-HT may present with both specific painful joints and generalized pain.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Johannessen EC,Reiten HS,Løvaas H,Maeland S,Juul-Kristensen Bdoi
10.3109/09638288.2015.1102336subject
Has Abstractpub_date
2016-07-01 00:00:00pages
1382-90issue
14eissn
0963-8288issn
1464-5165journal_volume
38pub_type
杂志文章abstract:PURPOSE:Recent debates about the epistemological origins of Universal Design (UD) have questioned how far universalist design approaches can address the particularities and diversities of the human form through a series of standardised, technical responses. This article contributes to these debates by discussing an eme...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.913710
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To establish the feasibility and effectiveness of a community-based exercise programme for ambulatory patients with stroke discharged from rehabilitation. METHOD:Eighteen participants were recruited 3-12 months after onset of first stroke. Using a time series experimental design, the group completed a baseline...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903095916
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abstract::Despite an increasing interest by researchers and clinicians, the pusher behaviour (PB) is still a poorly understood disorder, exhibited by some stroke patients, who push with their non-affected limbs towards the contralesional side and resist attempts at correction of their tilted posture. This review is aimed at cri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280801928002
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abstract:PURPOSE:To describe access to and engagement with cervical and breast screening services for women who are Deaf or live with a physical or sensory disability in Aotearoa New Zealand (NZ). METHOD:We carried out an online survey on a convenience sample of 84 women. Tests of association were undertaken between socio-demo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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abstract:PURPOSE:Quality of Life (QoL) is an important outcome measure in health care and pharmacological trials. The trend towards multinational clinical trials may be problematic because it is unclear as to whether, or to what extent, QoL-measures are comparable across cultures. This study compared QoL between English and Ger...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110072913
更新日期:2001-12-15 00:00:00
abstract:PURPOSE:There is little guidance on using extrinsic feedback to enhance motor learning after stroke. This narrative review synthesises research findings and identifies questions remaining to be answered. METHOD:A summary is given relating to the use of extrinsic feedback in healthy subjects. Then, research concerning ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280500534937
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abstract:OBJECTIVE:To study the effects of spasticity, sensory impairment, and type of walking aid on falls in community dwellers with chronic stroke. METHODS:Functional Independence Measure (FIM) Instrument, Joint Position Sense Evaluation (JPS), the Rivermead motor assessment scale (RMA), Ashworth Scale, Tinetti Assessment T...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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abstract:PURPOSE:To describe the goals, processes, resources and outcomes of on-road training lessons provided to drivers with traumatic brain injury (TBI) who failed an initial occupational therapy (OT) driver assessment. METHOD:Descriptive cohort study using file audit design of 340 drivers with mild to severe TBI. Measures ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1274341
更新日期:2018-04-01 00:00:00
abstract::This study examined the stroke knowledge of 60 stroke rehabilitation patients, 46 spouses, 25 family members, and 103 people in the general community. Changes in stroke knowledge with time, and determinants of stroke knowledge, were also examined. Clinical participants were assessed on acute admission, admission to an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289809166061
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析,评审
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更新日期:2017-01-01 00:00:00
abstract::Purpose: This study examined the degree to which goals perceived by occupational therapists (OTs) matched those perceived by their clients. Methods: A total of 100 clients and 79 OTs were recruited from seven subacute rehabilitation wards in Japan. Matched pairs of OTs and their clients were independently asked for th...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1047970
更新日期:2016-01-01 00:00:00
abstract::Aims: The aim of this study was to examine whether and how intended processes of behavioural change were reflected in participants' experiences after an inpatient occupational rehabilitation programme. The programme was transdiagnostic, lasted 3½ weeks and was based on the acceptance and commitment therapy model.Metho...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.1080/09638288.2018.1490824
更新日期:2019-12-01 00:00:00
abstract:PURPOSE:This survey was carried out to study the views of multidisciplinary health professionals about discussing sexual issues with patients. METHODS:A questionnaire was sent to professionals (nurses, doctors, physiotherapists and occupational therapists) to return by post. A duplicate questionnaire was sent 4 weeks ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000031188
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1055374
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abstract:PURPOSE:The provision of informal care plays a crucial role in supporting those with long term illness such as MS to stay in the community, but there is no recent United Kingdom (UK) research into the nature of this care provision and how it interacts with professional community care. The aim of this study was to inves...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400007802
更新日期:2004-12-16 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.628436
更新日期:2012-01-01 00:00:00
abstract:BACKGROUND AND PURPOSE:Little is known about the potential role of environmental factors in the handicap creation process following a stroke. The objective of this study was to explore the presence of a relationship between environmental factors and the occurrence of handicap following a stroke, taking into considerati...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2013-09-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2020-08-05 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.544838
更新日期:2011-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2008-01-01 00:00:00
abstract::Objective: Pilot test GoWoman, a small-group weight management intervention for mobility impaired women that was a disability- and gender-responsive adaptation of the Diabetes Prevention Program delivered in the online virtual world of Second Life®. Objectives were to (1) examine pre-/post-intervention differences in ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2019-11-01 00:00:00
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journal_title:Disability and rehabilitation
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