Coping with long-term pain after a stroke.

Abstract:

:The aim of this qualitative study was to describe pain, coping strategies, and experienced outcome of coping with long-term pain conditions after a stroke. Forty-three participants were interviewed: 15 with central post-stroke pain (CPSP), 18 with nociceptive pain, and 10 with tension-type headache. Analysis of the data was by content analysis. Pain-related problems described were incomprehensibility regarding the pain, disturbed sleep, fatigue, diminished capacity, mood changes, and stress in relationships. Different coping strategies were used; the most common were making the pain comprehensible, planning of activities, taking medications, communicating, and distractions. Changing body position, making comparison, and enduring the pain were common in central or nociceptive pain, rest and relaxation in tension-type headache. Communicating their pain gave a feeling of perplexity and resignation. Satisfaction was reported in the cases of consideration shown by others. Pain after a stroke requires specialized knowledge in order to understand the patient's experiences and to enhance coping.

journal_name

J Pain Symptom Manage

authors

Widar M,Ek AC,Ahlström G

doi

10.1016/j.jpainsymman.2003.07.006

subject

Has Abstract

pub_date

2004-03-01 00:00:00

pages

215-25

issue

3

eissn

0885-3924

issn

1873-6513

pii

S0885392403005281

journal_volume

27

pub_type

杂志文章
  • Deleterious Effects of Higher Body Mass Index on Subjective and Objective Measures of Chemotherapy-Induced Peripheral Neuropathy in Cancer Survivors.

    abstract:CONTEXT:Recent, albeit, limited evidence suggests that body mass index (BMI) may be a modifiable risk factor to reduce the deleterious effects of chemotherapy-induced peripheral neuropathy (CIPN) in cancer survivors. OBJECTIVES:To evaluate for differences in demographic, clinical, pain, sensation, and balance characte...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.04.029

    authors: Petrovchich I,Kober KM,Wagner L,Paul SM,Abrams G,Chesney MA,Topp K,Smoot B,Schumacher M,Conley YP,Hammer M,Levine JD,Miaskowski C

    更新日期:2019-08-01 00:00:00

  • Understanding the causes of problematic pain management in sickle cell disease: evidence that pseudoaddiction plays a more important role than genuine analgesic dependence.

    abstract::Treatment of painful episodes in sickle cell disease (SCD) is sometimes complicated by disputes between patients and staff and patient behaviors that raise concerns about analgesic misuse. Those concern-raising behaviors could indicate either drug seeking caused by analgesic dependence or pseudoaddiction caused by und...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2003.12.001

    authors: Elander J,Lusher J,Bevan D,Telfer P,Burton B

    更新日期:2004-02-01 00:00:00

  • Effects of morphine on the dyspnea of terminal cancer patients.

    abstract::We report an open, uncontrolled study designed to assess the effects of subcutaneous (SC) morphine on dyspnea of terminal cancer. Twenty patients with dyspnea caused by restrictive respiratory failure received an SC dose of morphine of 5 mg (5 patients who were not receiving narcotics), or equivalent to 2.5 times thei...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(90)90027-h

    authors: Bruera E,Macmillan K,Pither J,MacDonald RN

    更新日期:1990-12-01 00:00:00

  • Treatment of reflex sympathetic dystrophy (CRPS type 1): a research synthesis of 21 randomized clinical trials.

    abstract::A blinded meta analysis was performed on randomized clinical trials (RCT) on the medicinal treatment of reflex sympathetic dystrophy (complex regional pain syndrome type I) to assess the methodological quality and quantify the analgesic effect of treatments by calculating individual and summary effect sizes. The inter...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析

    doi:10.1016/s0885-3924(01)00282-2

    authors: Perez RS,Kwakkel G,Zuurmond WW,de Lange JJ

    更新日期:2001-06-01 00:00:00

  • Continuous Cardiac Inotropes in Patients With End-Stage Heart Failure: An Evolving Experience.

    abstract::Heart failure (HF) experts recommend initiation of continuous inotrope therapy, such as milrinone or dobutamine, for clinically decompensating patients with stage D HF. Although originally intended to serve solely as a bridge to more definitive surgical therapies, more and more patients are receiving inotrope therapy ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2017.09.026

    authors: Malotte K,Saguros A,Groninger H

    更新日期:2018-01-01 00:00:00

  • Efficacy of analgesics in chronic pain: a series of N-of-1 studies.

    abstract::Rational drug treatment of chronic musculoskeletal pain remains a challenge. Although commonly prescribed, the true efficacy of opioid analgesics or of nonsteroidal antiinflammatory drugs remains to be established. Using an N-of 1 design, eight patients with regional cervicobrachial pain received ibuprofen 800 mg/day,...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(98)00369-8

    authors: Sheather-Reid RB,Cohen M

    更新日期:1998-04-01 00:00:00

  • Establishing Goals of Care for Patients With Stroke and Feeding Problems: An Interdisciplinary Trigger-Based Continuous Quality Improvement Project.

    abstract:BACKGROUND:Few patients with dysphagia because of stroke receive early palliative care (PC) to align treatment goals with their values, as called for by practice guidelines, particularly before enteral access procedures for artificial nutrition. MEASURES:To increase documented goals of care (GOC) discussions among acu...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2018.06.010

    authors: Hwang F,Boardingham C,Walther S,Jacob M,Hidalgo A,Gandhi CD,Mosenthal AC,Lamba S,Berlin A

    更新日期:2018-10-01 00:00:00

  • Descriptions by general practitioners and nurses of their collaboration in continuous sedation until death at home: in-depth qualitative interviews in three European countries.

    abstract:CONTEXT:One palliative care approach that is increasingly being used at home for relieving intolerable suffering in terminally ill patients is continuous sedation until death. Its provision requires a multidisciplinary team approach, with adequate collaboration and communication. However, it is unknown how general prac...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2014.05.012

    authors: Anquinet L,Rietjens JA,Mathers N,Seymour J,van der Heide A,Deliens L

    更新日期:2015-01-01 00:00:00

  • Quality of Life Changes With Duration of Chronic Breathlessness: A Random Sample of Community-Dwelling People.

    abstract:INTRODUCTION:Chronic breathlessness is associated with poorer quality of life (QoL). This population study aimed to define dimensions of QoL and duration and dominant causes of breathlessness that most diminished QoL. METHODS:This cross-sectional, population-based, and randomized survey of adults (n = 2977) in South A...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.05.015

    authors: Currow DC,Chang S,Grande ED,Ferreira DH,Kochovska S,Kinchin I,Johnson MJ,Ekstrom M

    更新日期:2020-10-01 00:00:00

  • Enrollment and events of hospice patients with heart failure vs. cancer.

    abstract:CONTEXT:Hospice care is traditionally used for patients with advanced cancer, but it is increasingly considered for patients with end-stage heart failure. OBJECTIVES:We compared enrollment patterns and clinical events of hospice patients with end-stage heart failure with those of patients with advanced cancer. METHOD...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2012.03.006

    authors: Cheung WY,Schaefer K,May CW,Glynn RJ,Curtis LH,Stevenson LW,Setoguchi S

    更新日期:2013-03-01 00:00:00

  • Advance Care Planning in Palliative Care for People With Intellectual Disabilities: A Systematic Review.

    abstract:CONTEXT:Advance care planning (ACP) is defined as a person-centered, ongoing process of communication that facilitates patients' understanding, reflection, and discussion of goals, values, and preferences for future care. There is evidence for the general palliative care population that ACP increases compliance with pa...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2017.04.016

    authors: Voss H,Vogel A,Wagemans AMA,Francke AL,Metsemakers JFM,Courtens AM,de Veer AJE

    更新日期:2017-12-01 00:00:00

  • Could Objective Tests Be Used to Measure Fatigue in Patients With Advanced Cancer?

    abstract:CONTEXT:Assessment of cancer-related fatigue is currently based on patient-reported outcomes. We asked whether objective assessments, such as muscle strength and nutritional markers, can be used as surrogate measures of cancer-related fatigue. OBJECTIVE:We examined the association among three fatigue scales, muscle st...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2016.12.343

    authors: Schvartsman G,Park M,Liu DD,Yennu S,Bruera E,Hui D

    更新日期:2017-08-01 00:00:00

  • Obtaining informed consent for cancer pain research: do patients with advanced cancer and patients with chronic pain have different concerns?

    abstract::To explore the factors that patients with malignant and nonmalignant pain consider when deciding whether to enroll in pain research studies, determine whether their views are different, and determine whether willingness to enroll in research is associated with pain severity, semi-structured interviews were conducted w...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(02)00527-4

    authors: Casarett D,Karlawish J,Sankar P,Hirschman KB,Asch DA

    更新日期:2002-11-01 00:00:00

  • End-of-Life Concerns and Experiences of Living With Advanced Breast Cancer Among Medically Underserved Women.

    abstract:CONTEXT:Breast cancer morbidity and mortality disproportionately affect medically underserved women. Most studies of the experience of living with advanced breast cancer do not focus on this population. A deeper understanding of racial/ethnic minorities' and low-income patients' experiences is needed to reduce breast c...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.08.006

    authors: Adler SR,Coulter YZ,Stone K,Glaser J,Duerr M,Enochty S

    更新日期:2019-12-01 00:00:00

  • Rationale and evidence for the use of oxcarbazepine in neuropathic pain.

    abstract::Oxcarbazepine is a second-generation antiepileptic drug (AED) with proven efficacy in managing partial epileptic seizures, with or without secondary generalization, in adults and children. The overlap between the underlying pathophysiologic mechanisms of some epilepsy models and neuropathic pain models supports the ra...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/s0885-3924(03)00067-8

    authors: Carrazana E,Mikoshiba I

    更新日期:2003-05-01 00:00:00

  • A comparison of the pharmacokinetics, clinical efficacy, and tolerability of once-daily tramadol tablets with normal release tramadol capsules.

    abstract::This report describes a pharmacokinetic study and a clinical study of three different formulations of oral tramadol: once-daily tramadol tablets 150 and 200 mg, and normal release tramadol capsules 50 mg 8-hourly. The randomized, open-label, crossover pharmacokinetic study included 22 subjects. The three treatments sh...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0885-3924(02)00642-5

    authors: Bodalia B,McDonald CJ,Smith KJ,O'Brien C,Cousens L

    更新日期:2003-02-01 00:00:00

  • Prevalence of Neuropathic Pain in Cancer Patients: Pooled Estimates From a Systematic Review of Published Literature and Results From a Survey Conducted in 50 Italian Palliative Care Centers.

    abstract:CONTEXT:Because of the increasing body of literature on neuropathic cancer pain (NCP), an accurate estimate of its prevalence requires recurring updates. OBJECTIVES:To provide this estimate using information from a systematic review and a survey. METHODS:Using MEDLINE, Embase, and a previous review, we searched for s...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,多中心研究,评审

    doi:10.1016/j.jpainsymman.2015.12.336

    authors: Roberto A,Deandrea S,Greco MT,Corli O,Negri E,Pizzuto M,Ruggeri F

    更新日期:2016-06-01 00:00:00

  • "Burst" ketamine for refractory cancer pain: an open-label audit of 39 patients.

    abstract::The results of a novel approach to the use of ketamine in refractory cancer pain are reported. In this prospective, multicenter, unblinded, open-label audit, 39 patients (with a total of 43 pains) received a short duration (3 to 5 days) ketamine infusion. The initial dose of 100 mg/24 hr was escalated if required to 3...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/s0885-3924(01)00340-2

    authors: Jackson K,Ashby M,Martin P,Pisasale M,Brumley D,Hayes B

    更新日期:2001-10-01 00:00:00

  • HIV/AIDS symptom management in Southern Africa.

    abstract::We describe self-reported strategies used by persons living with HIV/AIDS in Botswana, Lesotho, South Africa, and Swaziland to manage common HIV-related symptoms. A questionnaire asked participants to list three to six symptoms they had recently experienced, the care strategies they had used to make them better, where...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2004.05.007

    authors: Sukati NA,Mndebele SC,Makoa ET,Ramukumba TS,Makoae LN,Seboni NM,Human S,Holzemer WL

    更新日期:2005-02-01 00:00:00

  • Assessing fatigue in persons with cancer: further validation of the Wu Cancer Fatigue Scale.

    abstract::Cancer-related fatigue (CRF) is a significant clinical symptom. Effective assessment of CRF attributes from the patients' perspective is essential. This study tested the psychometric properties of the Wu Cancer Fatigue Scale (WCFS). A total of 172 outpatients with breast cancer, who were at various stages and on vario...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2006.06.001

    authors: Wu HS,Wyrwich KW,McSweeney M

    更新日期:2006-09-01 00:00:00

  • Quality of Life Trends in People With and Without Cancer Referred to Volunteer-Provided Palliative Care Services (ELSA): A Longitudinal Study.

    abstract:CONTEXT:Trends in symptoms and functional ability are known toward the end of life, but less is understood about quality of life, particularly prospectively following service referral. OBJECTIVES:This study compares quality of life trajectories of people with and without cancer, referred to volunteer-provided palliati...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2018.07.020

    authors: Walshe C,Preston N,Payne S,Dodd S,Perez Algorta G

    更新日期:2018-11-01 00:00:00

  • Cancer pain in the marital system: a study of patients and their spouses.

    abstract::Forty married patients with metastatic cancer, who were receiving opioid medication for cancer pain, were interviewed for this study. They were asked about their pain and its treatment, their beliefs regarding cancer pain, their concerns about opioid analgesics, their mood state, and the nature of their interaction wi...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(92)90119-3

    authors: Dar R,Beach CM,Barden PL,Cleeland CS

    更新日期:1992-02-01 00:00:00

  • Methylnaltrexone treatment of opioid-induced constipation in patients with advanced illness.

    abstract::Methylnaltrexone, a peripherally acting mu-opioid receptor antagonist with restricted ability to cross the blood-brain barrier, reverses opioid-induced constipation (OIC) without affecting analgesia. A double-blind study in patients with advanced illness and OIC demonstrated that methylnaltrexone significantly induced...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2009.02.234

    authors: Chamberlain BH,Cross K,Winston JL,Thomas J,Wang W,Su C,Israel RJ

    更新日期:2009-11-01 00:00:00

  • The Hot Flash Related Daily Interference Scale: a tool for assessing the impact of hot flashes on quality of life following breast cancer.

    abstract::To assess the psychometric properties of the Hot Flash Related Daily Interference Scale (HFRDIS), a sample of breast cancer survivors and an age-matched comparison group completed a questionnaire packet and 2-day prospective hot flash diary at an initial time point and again 6 months later. There were 71 breast cancer...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(01)00353-0

    authors: Carpenter JS

    更新日期:2001-12-01 00:00:00

  • Multiple Stakeholders' Perspectives Regarding Barriers to Hospice Enrollment in Diverse Patient Populations: A Qualitative Study.

    abstract:CONTEXT:Although studies show disparities in hospice care utilization, many questions remain regarding the causes of these disparities. Most studies focus on a single ethnic/racial group, and most use physician informants. None compare and contrast views of multiple stakeholders or use a systems approach within a singl...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.02.012

    authors: Cicolello K,Anandarajah G

    更新日期:2019-05-01 00:00:00

  • The use of octreotide to manage symptoms of bronchorrhea: a case report.

    abstract::Octreotide, a synthetic analogue of the hormone somatostatin, is primarily used in palliative medicine because of its antisecretory effect and has been shown to be effective in the management of bowel obstruction, nausea, and diarrhea. Octreotide also has been successfully used for the management of bronchorrhea in bo...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2013.06.008

    authors: Pahuja M,Shepherd RW,Lyckholm LJ

    更新日期:2014-04-01 00:00:00

  • Single- vs. multiple-item instruments in the assessment of quality of life in patients with advanced cancer.

    abstract::Although multidimensional instruments are usually used to measure quality of life in advanced cancer patients, recent research suggests that single-item assessments can provide a reliable measure. Using the Functional Assessment of Cancer Therapy-General (FACT-G) instrument as a gold standard, we assessed the performa...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2009.08.006

    authors: Bush SH,Parsons HA,Palmer JL,Li Z,Chacko R,Bruera E

    更新日期:2010-03-01 00:00:00

  • Placebo and nocebo effects in randomized controlled trials: the implications for research and practice.

    abstract::Placebo and nocebo effects are known to contribute significantly to the response to symptom control, including analgesia. Clinical trial methodologies using placebo controls are designed to identify the magnitude of these effects in the research context. An adequately powered, randomized, double-blind, placebo-control...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2012.12.005

    authors: Sanderson C,Hardy J,Spruyt O,Currow DC

    更新日期:2013-11-01 00:00:00

  • Symptom assessment in community-dwelling older adults with advanced chronic disease.

    abstract::Brief symptom instruments are designed to assess symptoms while maintaining low respondent burden, but they may omit important information. Our objective was to determine whether a representative brief symptom instrument effectively captures the full symptom experience of older adults with advanced diseases. In this c...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2005.05.014

    authors: Walke LM,Byers AL,McCorkle R,Fried TR

    更新日期:2006-01-01 00:00:00

  • Barriers to effective symptom management in hospice.

    abstract::The barriers to effective symptom management in hospice are not well described. We surveyed nurses of hospices affiliated with the Population-based Palliative Care Research Network (PoPCRN) to identify barriers to the effective management of common symptoms in terminally ill patients. 867/1710 (51%) nurses from 67 hos...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2004.09.001

    authors: Johnson DC,Kassner CT,Houser J,Kutner JS

    更新日期:2005-01-01 00:00:00