The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review.

Abstract:

PRIMARY OBJECTIVE:To appraise recent studies regarding the needs and experiences of caregivers of individuals with multiple sclerosis (MS). DESIGN:The following computerized databases were searched: CINAHL, BIDS IBSS, ASSIA, MEDLINE, PSYCHINFO, British Nursing Index, ISI Web of Science, Zetoc, AMED (1990-April 2002). The computer-based search was supplemented by manual searches of the reference lists of all retrieved studies and review articles. Inclusion and exclusion criteria were formulated. RESULTS:Twenty-four studies from across the world that met the inclusion criteria were reviewed. The majority of studies were descriptive in nature. The studies covered a variety of topics, including how carers assist people with MS, the effect of providing care on a carer's physical and psychological well-being, social life, financial situation and overall quality of life, and how carers cope with the stresses of providing care. CONCLUSIONS:Providing care for a person with MS has a major impact on all areas of the caregiver's life. Perceived social support has been shown to have a beneficial impact on the caregiver. Limitations in design and variation in methodology of studies limits the generalizability of findings. There is a need for further research, in particular the development of reliable and valid disease-specific caregiver assessment instruments.

journal_name

Clin Rehabil

journal_title

Clinical rehabilitation

authors

McKeown LP,Porter-Armstrong AP,Baxter GD

doi

10.1191/0269215503cr618oa

subject

Has Abstract

pub_date

2003-05-01 00:00:00

pages

234-48

issue

3

eissn

0269-2155

issn

1477-0873

journal_volume

17

pub_type

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